2021 AccessAbility Awards

[Doug]: Hello, and welcome to the first annual Helen Keller Services AccessAbility Awards tonight is about recognizing companies who are doing work to support individuals who are DeafBlind, blind, or have low vision. My name is Doug Roland. I'll be your host for this evening, and I'm going to kick things off with an image description. I'm a white male in my thirties with short dark hair and a short dark beard. I'm wearing a light blue button up shirt. And behind me is a bookshelf, a framed picture and a lamp. I'm so honored to be a part of this evening. I've had the great pleasure to work with Helen Keller Services over the past few years in a number of ways I've learned so much from this organization, but one of the things I've learned the most about is accessibility. I had heard a while back the saying that accessibility is for everyone, but I've gotten a chance over the last few years to really learn what that means. And we're so thrilled to be honoring some amazing organizations this evening who really understand that as well. I'm going to turn things over to Dr. Sue Ruzenski, who is the CEO of Helen Keller Services and someone who's been with the organization for over 40 years.  

[Sue]: Good afternoon, everyone. I'm Sue Ruzenski and I’m the Chief Executive Officer at Helen Keller Services for the Blind. And let me take a moment and describe myself. I am a middle aged female white. I have shoulder length, blonde hair. I'm wearing black rimmed glasses. I have a black dress on and behind me as a black backdrop. So let's begin. It has been such an extraordinary year in so many ways. And we had a landmark year for change and improvement towards diversity equity and inclusion and the blind and the DeafBlind communities were no exception to witnessing this progress. And the shift in perspective that has taken place across many industries. This year, we celebrate DeafBlind Awareness Week emphasizing the collective power among us to bring about meaningful change with respects to accessibility and inclusion. Helen Keller Services is humbled and excited to celebrate five of our revered partners who are making a difference. It's my pleasure to welcome our partners and all of you, everyone who has joined us today, Helen Keller Services is honored to have the shared experience and introduced the trailblazers who are using their talents and resources to make our society more inclusive and accessible. I would like to begin by sharing about our first award recipient, the Academy of Motion Picture Arts and Sciences, Helen Keller Services in collaboration with filmmaker Doug Roland. We're so grateful this year to be nominated for an Oscar for a short film Feeling Through which casted the first time DeafBlind actor in a co-leading role. Robert Tarango attended the Oscar ceremony with us, and it was a joy beyond our dreams. This award today is to recognize the Academy of Motion Picture Arts and Sciences for their outstanding work in providing accessibility to Robert Tarango the DeafBlind actor during their 93rd Oscar ceremony. The team at the academy were amazing. They were so responsive in providing accommodations to Robert that allowed him access to the event. And he had such a very positive experience. We want to thank the Academy for showing a worldwide audience, the value of being inclusive and demonstrating. What's doable to ensure that a person who is DeafBlind can fully participate and engage in such a inspiring and enriching event.  

[Christine]: Welcome to the 93rd Oscars. I'd like to thank you for joining us tonight at the 93rd Oscars, there's nothing like celebrating our movie love together.  

[Doug]: Doug speaking accepting the award for the Academy of Motion Picture Arts and Sciences is Christine Simmons, the Chief Operating Officer.  

[Larry]: Hello, as you heard, my name is Christine and I am a tall brown skin black woman with a long, straight ponytail, some big ol' hoops. And I'm sitting in front of two barn doors and some beautiful art representing a protest. It is truly an honor to be here today. And on behalf of the Academy of Motion Picture Arts and Sciences, and our Oscar broadcast. We sincerely thank you from the bottom of our heart. This award means so much to us. We set out to make sure that this was indeed the most accessible, but also the most normalized live broadcast possible. And we feel that we did that as much as we could. Of course, there's always improvements. There's always more to learn and we're here to listen in partner, but we truly wanted to thank you because we've set out to make sure that the nominees had the most beautiful experience possible in this once in a lifetime, maybe not, experience that they had for their performances. We are honored again to have this award and on behalf of Jeanell English who leads our office of Representation, Inclusion and Equity, Randy Haberkamp, who also was one of our staff liaisons at the show. We all really thank you for this award and look forward to the future where everyone is welcome at the Academy and enjoys their experience in the most accessible way possible.  

[Doug]: Hi, Doug speaking, let's now hear from Maricar Marquez, who is the supervisor for the Independent Living Department at Helen Keller National Center. In this video Maricar is wearing a black shirt, she has dark shoulder length hair and is standing in front of a backdrop of green grass and trees.  

[Tanner]: Accessibility is important because of four reasons, participation, integration, equality, and self-esteem accessibility provides all of these qualities to DeafBlind people. They're included in a variety of different employment opportunities, recreational activities. We're all the same. We're all integrated. It's not like, oh, the DeafBlind person is alone just hanging out with their own community. No, we love the diversity. We love to be integrated and part of the community and equality. We want to be treated equally. People have jobs, people have homes. DeafBlind individuals want to have fair access to get the information. There are three methods. The first being utilizing sign language, American sign language through spoken word, and also through tactal means. DeafBlind individuals use those three ways to gain access to information and knowledge, to know what's happening in their environment for a person who's sighted in hearing, they can hear what's happening around them in the environment. A DeafBlind person has no idea they're behind naturally because they don't have that access. So those three ways between signs spoken word and tactile information, if they gain access to that they understand what's happening fully around them. And that creates the equality and the access that other individuals have. Fourth self-esteem the fourth quality.  

[Tanner]: Some DeafBlind individuals have a lot of challenges with isolation because they have no information access. They have no individuals who could communicate with them so that if you provide that information, that access to communication and they're involved in all these activities, it increases self esteem and pride for the individual, and they know that they can do anything. DeafBlind individuals also have goals and they attain those goals. Goals for work, goals for recreation, whatever they are, they can attain those goals. They can be successful.  

[Sue]: This is Sue speaking. And now for our next recipient, Microsoft. Microsoft has demonstrated an exceptional commitment and focus on the accessibility of its products and services, keeping accessibility first in mind and not just an afterthought. Microsoft is changing the mindsets of how we think about accessibility. Accessibility is as you say, a benefit to everyone and Helen Keller Services would like to thank you for empowering people who are DeafBlind, blind, and have low vision by creating accessible and inclusive tools for the workplace, and for broadening your inclusive hiring programs. It is truly an honor to acknowledge and celebrate your impactful work and commitment.  

>> More than 1 billion people have a disability around the world. And while some disabilities are visibly apparent, others are not. The truth is most of us will experience disability at some point in our lives temporarily or permanently, still people with disabilities face higher unemployment rates, and only one in 10 have access to the assistive devices. They need to be active in their communities. The COVID-19 pandemic has only exacerbated this disability divide here at Microsoft. We've been on a journey to design technology with, and by people with disabilities. As the world changes, our approach to accessibility is changing too. That's why we're upping our ambition over the next five years. Not only do we want to scale accessible and affordable technology, we're investing in skilling opportunities and talent development and doubling down on our promise to build and model inclusive workplaces, but we can't close the disability divide alone. As communities around the world prepare for post pandemic life. We want others to join this global cause to make society more inclusive. Disability is a strength and society is stronger when it's accessible to everyone. To learn more, visit aka.ms/accessibilitycommitment

[Doug]: Doug speaking, accepting the award on behalf of Microsoft is Jessica Rafuse.  

[Jessica]: Hello, I'm Jessica Rafuse. I'm a white woman with long blonde hair and I'm wearing a pale pink shirt with black flowers. I'm sitting here in my home office and there's a bookshelf behind me. I lead strategic partnerships and policy for accessibility at Microsoft. And wow, what an honor. Thank you so much to Helen Keller Services for this tremendous recognition as the first annual first annual AccessAbility Awards, knowing all of the amazing companies, nonprofits, individuals who are DeafBlind, who have accomplished so much, we are so grateful to all of those who have paved the way for the work we do in accessibility at Microsoft. And there's really so much more that we need to accomplish to truly bridge the disability divide with, and for people who are DeafBlind, blind, and low vision, we renewed our commitment to accessibility this year because the reality is that people with disabilities are being left behind even more so considering the impact of COVID-19 on the disability communities, the disability divide is expanding and digital accessibility has never been more important. And this is also really personal for me. I am a part of this cool gang of people with disabilities. I have muscular dystrophy and I use a power wheelchair. I know that disability is a strength and that disabled talent brings so much innovation to our work. At Microsoft, we will not stop pushing the boundaries of what technology can do to empower people with disabilities to achieve more, but we need your help. So thank you to each of you who is blind, low vision, DeafBlind , everyone who has called our disability answer desk, who has been a part of a disability user study, or just giving us feedback on accessibility. This feedback is a gift and the disability feedback in particular, it's the pixie dust that will make our products, our company, our culture soar. Lastly, happy birthday to the late, the great, the profoundly impactful Helen Keller Together, we blow out the candles and wish you all a fantastic DeafBlind Awareness Week. So from all of us at Microsoft, thank you. Thank you. Thank you.  

[Sue]: This is Sue speaking. And now for our next recipient, Usablenet. Useablenet has been on the forefront of challenging and advocating among businesses everywhere to place a value on improving their website, accessibility, your dedication, and helping businesses far and wide acknowledge that when one person who is blind using a screen reader cannot access their website. That's not acceptable and you're there as a resource to help them bridge that gap. Thank you for your expertise and advocacy in supporting companies with creating accessible websites and making a commitment to improve website accessibility, not only for the sake of compliance, but because it's the right thing to do.  

>> Useablenet is a digital accessibility pioneer and industry leader. We created some of the first tools and platforms to make websites accessible and usable for all people starting out. We worked with government agencies as well as universities and corporation. Today digital accessibility has become important to almost all companies. We provide accessibility solutions to fortune 1000 companies, small and medium enterprises, government and education organizations across industries including retail, travel, hospitality, food services, automotive, financial services, and healthcare. Our focus at Useablenet is to make the digital world more accessible and usable. We aim to make websites, apps, and other digital platforms more accessible, inclusive, and user-friendly for everyone through technology, deep expertise, constant innovation and collaboration with the disability community. We help businesses improve their digital content for customers with disabilities.  

[Doug]: Doug speaking, accepting on behalf of Useablenet is Jason Taylor and Tanner Gers.  

[Doug]: A white male in front of a white backdrop followed by a white male in front of a green backdrop.  

[Tanner]: My name is Tanner Gers, I'm the head of partnerships here at Useablenet, I am on this team and work really closely with everybody from top to bottom, from the VP of sales down to our frontline sales development representatives. I am totally blind and use a screen reader, but I'm also using all the technologies and tools that our team is using Salesforce, joining Zoom meetings, Microsoft Teams, and even closing out contracts and negotiations.  

[Jason]: Thank you guys. Thank you for the award. We're absolutely honored to get the award from Heller Keller Services. We have worked in a variety of ways with Helen Keller Services over the years, including hiring some amazing people from their network. So thank you for that too. We've always been admirers of Helen Keller Services mission of making sure that everybody from the blind, the low vision and the blind-deaf community can live and thrive in any community that they choose. Our mission at usable and acne is to make sure that digital accessibility is available to everybody in work in education, in health care, in your finance. So our missions are aligned. We're looking forward to working with Helen Keller Services for a long time and creating a fruitful relationship. We'd really like to thank the people that work at helicopter services and the supporters of helicopter services. So the passion that they bring to this area.  

[Doug]: Hi Doug again, let's take a moment to hear from Megan Dausch who's Helen Keller services accessibility specialist. In this video, we'll see Megan, who's a white woman with a blue face mask, shoulder length hair, and a purple shirt. And she's standing in front of a backdrop of green bushes and trees. My hope certainly is that companies become more aware of accessibility and ultimately I would love every company be so aware of accessibility that it becomes that they don't even think about it or that they think about it from the inception of their design and it's not an afterthought. I think that's one of my biggest hopes is that accessibility becomes so integral to the way we do things, the way we live that we realize that everyone is going to have different access needs and we become more flexible as a society to really allow people to choose the modalities for them that work best. And, and I think that would be my hope for companies in the future going forward, that they just continue to become aware of accessibility and realize that accessibility should be integral, not just an add on afterthought.  

[Sue]: This is Sue speaking, and now for our next recipient Sunrise Credit Services. The team at Sunrise Credit Services exemplifies what it means to be a trailblazer when it comes to providing training and employment opportunities to people who are blind, DeafBlind, and have low vision, your approach to diversity and welcoming and inclusive workforce has resulted in fulfilling careers for individuals who are members of the blind, DeafBlind, and low vision communities. Having a fulfilling and successful career is sometimes more about the culture and our relationships at work that allow us to be our best. Thank you for your commitment to joining our mission so that people who are DeafBlind , blind and have low vision have an equal opportunity to live, work, and thrive in their community of choice.  

[Doug]: Doug speaking to accept the award on behalf of Sunrise Credit Services is Elizabeth Vidas and Dawn Simmons.  

[Elizabeth]: Hi, I'm Elizabeth Vidas. I am a 40 year old white female with blonde hair and a black shirt I'm with the Sunrise Credit Services. And we are so honored to accept this award. We work for a great company that's always been inclusive of all of our employees, and we're so proud that we've partnered with Helen Keller to share that with you guys too. Thank you.  

[Dawn]: And hi, I'm Dawn Simmons. I am a black 52 year old female. I am wearing a black shirt and glasses, and I'm sitting in our office at the Sunrise Credit Services. And again, we are so happy to accept this award. It means a lot to us, and we definitely thank Helen Keller. People who are differently-abled are special to us. We both have brothers who have developmental disabilities. So this means a lot to be able to help people, to train people. We love training and to be awarded for it. It almost seems unfair because it's just something we love to do. We just want to say thank you, this means so much to us. It means so much to our company. Everyone's excited for it and we can't wait to go more. We can do in the future.  

[Doug]: Hi, Doug speaking. Now we're going to hear from Chris Woodfill, who's the Associate Executive Director of Helen Keller National Center. In this video. Chris has a short graying hair and a short gray beard. And he's standing in front of a backdrop of green trees and grass.  

[Chris]: Definitely people push the idea of accessibility. We're pushing accessibility. We want everyone to have access, and it's not just beneficial for us as a DeafBlind community. It's beneficial for all because what's accessible for us is also accessible from many other individuals. So it's like a universal accessibility and it has a ripple effect and it benefits really many individuals and society in general.  

[Sue]: This is Sue speaking. Last but not least our final recipient Be My Eyes. Christian, your company has been such a game changer, for in among individuals who are blind and have low vision, not only in the United States, but internationally. We want to applaud you for making the world a more accessible place through your app and your exceptional services for providing people who are blind and have low vision with volunteers who assist them in navigating life situations. We are truly in awe of Be My Eyes and the over 300,000 lives that you have touched through your services, with over 4.8 million volunteers since your company's inception in 2015. It's a great pleasure to share this award with you.  

>> If you can't see very well, some tasks can be a little challenging, like cooking.  

>> Is this the tomato can, or is it the baked beans?  

>> Or trying to pick clothes that match.  

>> Is this tie red? Does it go with that shirt? 

>> For people who are blind or have low vision, some everyday tasks can be tricky. Having quick and easy access to assistance would be really helpful. Hans Jorgen Wiberg had a vision to help the visually impaired like himself in such daily challenges. He created an app which connects people who need assistance with a pair of friendly eyes. Since our launch in 2015, Be My Eyes has seen an outpouring of support with millions of volunteers signing up to assist their peers. A user can ask for help anywhere in the world in 180 languages with a quick video call to a friendly volunteer on the other end of the line.  

>> Hello?  

>> Whatever time of day it is, she connects to someone  

>> Could you help me find my keys?  

>> He was more than happy to spare a few minutes to assist her in solving a problem.  

>> Sure thing.  

>> But sometimes more challenging issues arise that call for a more expert set of eyes like your computer making spooky sounds. In 2018, we introduced specialized help connecting users to customer support specific to their needs, to troubleshoot and solve more complex issues. Microsoft and Google were the first to come on board and we're now inviting more companies to join us, to create a healthy ecosystem of value and purpose. Together, we can make the world more inclusive to people with disabilities companies, more accessible with enhanced customer support centers and Be My Eyes can continue to offer this valuable free service to its users. If you are blind or low vision and think Be My Eyes could be a helpful tool. If you are sighted and want to volunteer, or if you're a company which wants to provide enhanced and inclusive customer support, we welcome you into the Be My Eyes community. Let's make the world a more accessible place for everyone. Visit www.bemyeyes.com.  

[Doug]: Doug speaking, accepting the award on behalf of Be My Eyes is co-founder and CEO Christian Erfurt, a white male with dirty blonde hair and beard is sitting in front of a bookshelf wearing a dark polo shirt. 

[Christian]: Thank you. It's an honor on the entire behalf of the Be My Eyes team and our community. I want to thank you for the AccessAbility Award. It's an honor to be recognized by our peers and in particularly by the community who knows why we are doing this and why it is important. I want to share with you a brief history about how Hans, my visually impaired co-founder and I met one another. So years back I was organizing a startup competition and Hans came there pitching an idea that seemed very, very simple, but had a powerful element to it. It was the idea of connecting sighted volunteers to visually impaired and blind people via live video connection. And I immediately fell in love with this simple, powerful random act of kindness idea. So I had to leave the organizing team and I came over to Hans and I said, I'll do anything I can to help you over the next 72 hours to prove this concept. We didn't win the competition, but we did get a honoree award from the judges who made up that award on the spot, saying that this needs to be in existence and they encouraged us to carry on and build the app. And fast forward to a couple of years later, we did just that we launched Be My Eyes in January of 2015 and were amazed to see that we had 10,000 volunteers signing up within the first 24 hours and a thousand blind and visually impaired users. Within six weeks, we had users signing up in more than a hundred countries. And for the past six years, we've been doing everything we can to make the world more accessible, and we'll be continuing to do this as a free service. And our service will always remain free, unlimited, and globally available. It's an honor to accept this award and I thank you all for it. 

[Doug]: Doug speaking, now we will hear from the Chairman of the Board of Trustees of Helen Keller Services, Mr. Larry Kinitsky. Mr. Kinitsky previously served as the HKS board for more than 10 years as the Chairman of the Development Committee. Over the past decade, Larry has devoted his business expertise, time, energy, and commitment to Helen Keller Services, working tirelessly as a board member to help guide the organization to fulfill its mission. A white middle-aged male with short gray hair, wearing a light blue button up shirt and a dark blue jacket behind him is a bookshelf.  

[Larry]: I'd like to offer my congratulations and heartfelt thanks to each of the companies being recognized today. The contributions that you have made and your commitment to improving the everyday life of those who are DeafBlind, blind, and have low vision is truly remarkable. You are true leaders in the field and have demonstrated that anything is possible. While today we recognize your amazing accomplishments, we are truly thankful that so many companies are working towards improved accessibility and look forward to more innovation in the future. Thank you so much.  

[Sue]: All of us at Helen Keller services are so inspired and excited by each and every awardee today. We're extremely appreciative of the steps that have been taken this past year by Academy of Motion Picture Arts and Sciences, Microsoft, Useablenet, Sunrise Credit Services, and Be My Eyes. Sometimes the leaders in our industry, first lead by taking the road less traveled and clearing a path for all of us. Congratulations to everyone. You all have made the road by walking and we're so grateful to be able to join you on the journey. We want to invite others to join us in our collective commitment. If we can put a man on the moon, we can certainly make our earthly environments services and products accessible. And as a result, promote diversity, equity and inclusion in our lives and the lives of everyone, including people with disabilities. Thanks to all for being with us this afternoon to celebrate DeafBlind Awareness Week, and to also honor five outstanding leaders.  

[Doug]: Doug speaking, thank you so much for joining us this evening, and there you have it for the first annual Helen Keller Services AccessAbility Awards. What an amazing way to celebrate DeafBlind Awareness Week honoring some incredible organizations on their achievements and accessibility. It's been an honor to host tonight and if you're an organization that would like to learn more about accessibility, you can connect with Helen Keller Services at helenkeller.org. Thank you, and we'll see you all next year! 

Feeling Through: Road to the Oscars

[Robert]: This is like my dream coming true. I was so excited I was like doing a dance in my head!  It was a once in a lifetime experience. I am very happy to find out the momentum that we've been gaining, and I'm just thrilled. Oh my God me? I was like, really? And I was like, wow, I just couldn't believe it! I was like, I made it!  Honestly, it was such a great time. Being together, doing all of that campaigning and hosting all those interviews, and then ultimately going to Los Angeles was amazing. I just didn't realize then the opportunity that I would have now.  

[Kelly]: The film is based on your experience, right? So can you tell us what happened? 

[Doug]: Yeah. It was inspired by a chance encounter. I had 10 years ago, I was coming home late one night and I saw a man standing by himself on a street corner, holding a sign that said I'm deaf and blind and need help crossing the street. And we ended up having a whole hour long conversation that way of me writing on his palm, him writing back in a notepad. And this man, Artemio was just this really charismatic, lovely guy who I felt like I'd really formed a connection with. I ended up partnering with the Helen Keller National Center because at the time that I was ready to make the film, I'd still only met this one, man, Artemio and I wanted to make it authentically and make it something that wasn't just a great story, but did well by a community that had not really been represented in film yet.  

[Robert]: I thought there was no way that anybody would want to hire somebody who was deaf, not only deaf, but then blind to become an actor.  

[Doug]: It's an amazing opportunity to let people know more about the DeafBlind community, a community that hasn't been represented at all in film and TV and is not covered a lot by the media. I walked into this and scanned the room going, what is going on in here? You want me to audition for a film? I'm like, wait, wait, wait. Okay, hang on. Hang on. Hang on. Let me think about this. I'm like, are you serious? I was so excited. He was pulled out of the kitchen, brought into the casting room, instantly started cracking jokes about being a movie star, and. I'm like this is our guy.  

[Steven]: That rehearsal that we did was different from any other rehearsal that I've done before. So it was such a, it was a learning and humbling experience all around. There was a kinship that was building between us. I remember  

[Robert]: The first time I was standing there on the set, they had to do my makeup. This is the first time I've ever had makeup. And I was like, oh, is that what movie stars do? 

[Doug]: We're going to just pick it up from when Steven is it hesitating on your palm, and then play through to the end from there. 

[Steven]: It was something just magical just happening around everyone on set.  

[Doug]: Cut. That's a wrap.  

[Sue]: It gives other individuals who are DeafBlind, an example what's possible. 

[Lester]: After the film was completed, Doug Roland was finally able to track down the real Artie. 

[Doug]: It was amazing to reunite with him. 

[Artemio]: We ultimately became friends.

[Steve]: A man on Long Island breaking barriers in the film industry. He's believed to be the first blind and deaf man cast in a leading role.  

[Judy]: The cafeteria assistant became a movie star overnight after getting cast as the lead role in the short film Feeling Through. This was my dream. I mean, honestly, and my goal now is to be involved in more films.  

[Doug]: Robert, can you tell everyone how your life has changed now that you are a huge movie star? 

[Robert]: I’m humbled. And I look at it and I'm like, wow. I feel really, really good. 

[Doug]: Some of the Change we hope to enact in rolling this film out and being able to show it in a lot of places is also bringing greater awareness around accessibility.  

[Judy]: Not all theaters are accessible, which makes it difficult for a DeafBlind individual to enjoy something that many of us take for granted. What really makes a difference is having interpreters. The Helen Keller National Center made sure all those amenities were available for the screening.  

[Doug]: It's not only important to provide experiences that are accessible to everyone, but it's also there are a lot of people that want to go and attend if you create that level of accessibility for them. 

[Ginger]:She is the Executive Producer of the new film Feeling Through. 

[Al]: You're an Executive Producer on a new short film called Feeling Through.  

[Marlee]: This 18 minutes is probably the best 18 minutes I've ever spent watching a film. When I was shown the film originally I couldn't take my eyes off of it. We really are making a lot of noise all over within the deaf community. And from the moment that I saw the film, the first moment I was hooked, and we connected, and I can say that the rest is history because I had to hop on, I really did. It's time to cast authentically.  

[Lisa]: 174 Films qualify for this year's academy awards Live Action Short Film category, but only 10 have advanced to the shortlist for nomination. One of those 10 is Feeling Through. Now. I am hearing a little birdie has been telling me that Feeling Through could be up for Oscar consideration.  

[Trevor]: A short film that has Oscar buzz. 

[Tamron]: It is a tear-jerker, it's inspiring.  

[TJ]: It's a sweet, sweet story of humanity. 

[Michaela]: This film is terrific.  

[Trevor]: When you watch it, you go like, oh, this is phenomenal. 

[Marlee]: It's awesome. 

[TJ]: It's incredible.

[Sandy]: Packs more punch than most Hollywood blockbusters.  

[Marlee]: This movie is really just something else.  

[David]: What an awesome story. 

[Lauren]: Yes. 

[Whoopi]: It's a slice of life and that's the thing that makes it so sublime. And there are no better films in the world than the ones that give us a view into a world not our own.

[Host]: For best Live Action Short Film, the nominees are...  Feeling Through  

[Michaela]: That chance encounter started a 10 year journey that led to an Oscar nominated short film. [Emma]: Feeling Through is the first Oscar nominated film to feature a DeafBlind actor in a leading role. It's already won a whopping 16 awards and is up for Best Live Action Short Film.

[Lester]: Nominated for an Oscar this week it challenges us to see the world in a different way. 

[Marlee]: I’m going to the Oscars, I'm looking forward to presenting. And the reason I am going, and the reason I'm happy to be going is to do it for Feeling Through. 

[Robert]: I can't wait to get on that red carpet. I hope we win. It really doesn't matter if we win or lose, but you know what? We've made that top five. So no matter what, we're still winners, but I'm hoping to bring home the Oscar tonight. 

[>>]: Hey, welcome. Welcome. 

[Doug]: Thanks buddy. Well, hello.  

[Angela]: Look at you! Look at that dress girl!

[Robert]: Hey Doug.

[Robert]: Handsome now, very handsome.

[Doug]: You too.

[Robert]: We’re twin brothers.

[Doug]: Just the sincerest most heartfelt thank you to all of you guys for making this happen and for being such extraordinary humans to have this amazing and unforgettable experience with. I know we'll be all celebrating each other together tonight, and that's really genuinely what is most important about tonight. And so let's have fun. 

[Robert]: Yes, yes. 

[Doug]: Lets do our last little getting ready here and we'll get in the car and take off. 

[Robert]: And go to the Oscars! 

[Doug]: Yeah!

[Robert]: When the mention of the Oscars came up, I was like, wow. The last three years just been amazing. I mean, honestly, that was the first time for me. I mean, being there with all of those movie stars was unbelievable. It was amazing for me to be able to walk the red carpet with my cane, with all those people and just go in and sit down. It was on believable. We did not win the Oscar, but at the same time, I think that everyone involved with Feeling Through are winners. And I think that we should just look toward the future. And I think that Hollywood could look at this film to look at Feeling Through and see the DeafBlind people can act, invite us to be part of the process. Doug plucked me out of the kitchen. There are people out there like me that want to do this. So invite us into the setting. Don't be scared. Think about how you can utilize us, invite us to the table and start that connection because that's how the world goes around. Those relationships happen each and every day, and I think that they're everlasting.  

[Sue]: That's great. 

Feeling Through Live • Episode 43: Feeling Through at the Oscars

[Doug]: Hello everyone, welcome to Feeling Through Live. We've taken a little time off, but we are excited to be back. The reason we've taken some time off is because you might've heard, we were nominated for an Oscar, and we were going through quite a lengthy campaign process. Something that was an amazing process, a very time consuming one, but one that we were really grateful for that journey. And we thought  now that, that  that part of the journey has come to a close, it would be a great opportunity to sit down with Robert, and  Robert to talk about your experience over the last several months. So before we get started  I'd love to just set things up for anyone who maybe doesn't really know what's been going on in the last  several months here, but  we we've been screening Feeling Through for quite a while now. We were sharing it  as part of the Feeling Through Experience which was our fully accessible screening event that we were taking around the country first, prior to the pandemic, we were doing it in person. And then later on, we were doing it  virtually for people. And then we were also showing the film in film festivals and sharing it with audiences across the country and around the world through film festivals. But then we had an opportunity to submit for the Academy awards. And this was the first time for me. I didn't really know what to expect, but we were very fortunate to make it all the way to the actual award show as an Academy award nominee. And  basically that for the last number of months, we've been doing a lot of interviews to promote the film, to give people more context about  what the film is and, and all of the interesting details around it.  And we've had to learn so much more about how to communicate all of the different topics around the film to people. So that's all the context, now I want to talk to you, Robert, and  let's just go back to right at the beginning of this Oscar campaign. I just want to know what was running through your head the first time I told you that we were going to submit to the Oscars in the first place. This is Robert speaking. I do remember that.  

[Robert]: And I thought, who am I, goodness, wow, are we really going through that? And of course, through all of the screenings, and then when the mention of the Oscars came up, I was like, wow. And to believe that we actually made it to the top five, that was unbelievable. I couldn't believe that our film made it that far. Honestly, it was such a great time being together, doing all of that campaigning and posting all those interviews. And then ultimately going to Los Angeles was amazing. I mean, honestly, that was the first time for me. I mean, being there with all of those movie stars who was unbelievable, I just, it was a once in a lifetime experience. So yeah, when we got to the actual Oscars, when we get to actually touch the red carpet and look around and see all those people, it was amazing for me to be able to walk the red carpet with my cane, with all those people and just go in and sit down.  It was on believable. I mean, again, I can't believe where we've come and how many people are now looking at me as a DeafBlind person as an actor on par in Hollywood. That's just such an accomplishment to see all of these really famous people with me sitting there. And again, it was unfortunate that we didn't win, but the reality is that we were there. And it was also unfortunate in that we didn't have the same  audience as previous years. And we were separated by all of the tables that we were because of the pandemic. But nonetheless, it was an amazing night. I mean that whole day. And I  I'm just hopeful that you, Doug are going to be making more movies and see where we end up.  

[Doug]: Well, Robert, you, you  definitely did a great summary there, of, of these last number of months, but I want to kind of walk back a little bit and take it step by step for a moment. And  we've done so many interviews  have had so many conversations with people about the film, about your experience. I want to know  if, if any of these conversations or interviews have stood out to you in particular,  

[Robert]: I think the interview that we had honestly, was the one with Whoopi Goldberg. She's my Mom's favorite actress. So for me, that was the first time that I actually had met somebody famous. And for my Mom, she was like, what you're interviewing with Whoopi Goldberg. So interviewing with her favorite actress, I think for me is what stood out the most. Because up until that point, I had never met anyone famous and certainly had never been interviewed in that way. And I think so for me, that was the starting point of this. And I think that the interviews were really an important part for us and I really enjoyed doing them. I had never experienced anything like that  so for myself as a DeafBlind person being interviewed by people of that caliber, I think again, was important. And I think those interviews really made an impact. So for me, I think that was the starting point. And I also think that my communication since that point and my ability to express myself has grown since that time  

[Doug]: You're hitting the nail on the head, as far as how much you've grown as, as a public speaker. I mean, you and I have been doing conversations now for  pretty consistently for the last year and a half or more. And  I've, I've seen you blossom and flourish into this amazing public speaker. You're so eloquent. You're so poised, you're so  you're so personal and intimate and the details that you share that have really moved people. And I want to know  what is it that's made you grow? So much as a speaker,  

[Robert]: I think before COVID honestly  I had no access to communication, honestly  through the whole pandemic, my family doesn't sign very much. I mean, we understand each other, but again, full-on access to communication is not something that I really had. We share important facts, not everyday conversation. And I think  for me, the ability to do this, inviting me in this helped improve my communication as whole. And every time we did it, I just got better and better and better. And again, for me, I wanted to make sure that what we showed the world is what DeafBlind people can do. And so that hearing people would partner with us, regardless of whether we're deaf or hearing or DeafBlind , that this kind of forum would help us all communicate better. So I think not only that my communication got better, but our ability to communicate as a whole got better.  

[Doug]: Yeah. That's, that's so well said, Robert, we talk all the time, but I didn't really know the specific reasons behind  how, why you flourish so much. That's really interesting too, to know more of the details about that  and I'm, I'm thinking of  one moment in particular that stands out for me just off the top of my head is when we had the panel discussion with Colman Domingo who was hosting it, who's the  you know, a great actor  from shows like the walking dead and the movie, my rainy. And I remember toward the end of that conversation he, he asked you something to the effect of  what your experience had been like, and you gave this like three minute beautiful speech about what it how important it is for you to have people understand that we're all one that we're all connected and to see to see your humanity and not just see you for your disability. And I mean, it was so poetic that you had Coleman  you know, in tears at the end. And now I just saw you just grow and blossom to be this someone that was quite literally moving people to tears with your, with your  what you had to say.  

[Robert]: I think it's important. Again, I've felt so connected and I think for someone like Coleman, who's so famous. I think it's really important to open that dialogue. Because again, I think communicating is what's key and not brushing people off, but bringing them into the fold. Because again, we are all children of the world. We all need to make that connection. We need to support each other. We need to talk to each other better. And you know, for me, people have told me all my life, you plant do this, whatever this was, but it was always you can't. But in partnership with you, how we all work together, you saw me made that connection and look at where we are now I can do it. And I want to represent that to everyone who thinks people who are deaf or DeafBlind or blind people say that we can't do things we can, we all rely on each other. So I think it's important for executives to look at this and say, Oh my goodness, I never thought about someone, definitely deaf and blind doing this, and to focus on the positive and not the negative. I think this world is way too much negative in it. And I think that we need to focus on the positive and I want those people, especially those that are really famous to look at me and go, huh, look at our relationship. Doug, look at this perfect sort of union and how we made this work, and now they can do it. Robert we've I've known  

[Doug]: You now for almost three years, if we go back to the very beginning of this process. So I want you to take a moment to think back on Robert three years ago, to Robert who's now been in a film that millions of people have seen, has talked at dozens and dozens of events has been to the Oscars. You know what, when you look back three years ago to now how does that make you feel and what, what comes up for you?  

[Robert]: Well three years ago I was working in a kitchen I was just a regular guy. And again, when you think about the world now, when we went to this I'm an actor I've been seen now around the world as a DeafBlind person, as an actor. And I hope that people recognize that and that I can use that to move forward. I mean, I've had these opportunities with these interviews. And when I think about that going, I'm going to be a movie star. And I'm like, like I was just at the Oscars. I just didn't realize then the opportunity that I would have now. And so how I feel about Feeling Through it's proud and I'm inspired and the connection is unbelievable and it has truly changed my life. And I hope that I can use this platform and keep moving forward. And again, what I really hope that others take away is again, and it keeps saying it over and over again is what deaf and DeafBlind people can do if we support one another. And if we love each other, and if we don't tear each other down, it's important that we support one another and look at the growth from then to now. And again, when I look at all of these other famous people at this event, seeing me there, I hope that we can all work together.  

[Doug]: Well, let's talk about the Oscars for a moment. I want to know what you expected the Oscars to be versus what the actual experience was like for you.  

[Robert]: I think in my mind, I guess I had a hard time thinking about what it would look like, because you have to remember that my vision of the Oscars is what the Oscars was like pre pandemic. The excitement was still there regardless. But I think what I thought they would be was different because we were all sort of kept separate. But the actual sitting in that chair, I was like, Oh my God, is this really what this is about? You know, to make it to the top five films in our category was an immense sense of pride. So to sit in that chair, comparative to where I was to where I am just was one of those once in a lifetime wow. Experiences looking around the room, seeing how it was set up, seeing all these incredibly famous gifted people in that room just made me feel proud. It was an amazing experience. And I don't know that I'll ever feel that way again, but for me it was like, yes, I mean,  

[Doug]: Robert, let's go. I want you to kind of walk people for people who aren't necessarily familiar with the, like the, all of the different parts of the event or what the lead up to it looks like. Can you just walk us through from you getting ready for the event all the way through the night itself and just kind of like talk about what stands out to you in your memory and what the best parts were from the very beginning to the very end  

[Robert]: So I got dressed, got into my tux got all ready and got my hair done. And then there was a gentleman there who was taking professional pictures for us, and I was like, what's going on? And there was a lot of pictures being taken. And then we went outside and we did even more pictures. I met with my interpreters and we also group photographs and the interpreters themselves were getting ready and having their hair and makeup done. We went out onto our patio. The group was just really excited. And of course, again, more and more and more pictures. So I felt really good. Then we got into  sort of a really large truck went in through security checkpoints. There were a lot of checkpoints by the way, we had to make our way through. And then we ultimately did get out and started walking to the event itself at the onset. There were a number of reporters there doing interviews. Again, I have no basis of comparison, but it was really enjoyable for me. And then you saw the actual red carpet and you sort of stepped onto it. And for me walking the red carpet with my cane as a definitely versa, I think was pretty incredible.  

[Doug]: And Robert, we had, we'd learned about this prior to the event, but to our knowledge  you very well, might've been only the second person who's DeafBlind to attend the ceremony other than Helen Keller who did so back in 1956, when she was  when she was there to accept the award for a documentary that was about her life. What what goes through your mind when you hear something like, perhaps you might have perhaps been only the second person who's DeafBlind ever to attend the awards.  

[Robert]: Right? You mentioned that in 1956, Helen Keller herself was the first person who went  and she got that award based on her life. But you want to think about how many years have passed since that I'm only the second person to ever represent our community in quite a while was really amazing. And I think that I was representing not only myself, but Helen Keller Services who was co nominated with you. So I just really, again, I keep saying the same thing over and over again, but I hope that there are more and more people. And I hope that the third person isn't that much farther ahead of me,  

[Doug]: You know, leading up to the event there, there were four other films that were nominated in our category. I'm  just wondering when we were sitting there in the room once the show started and they start doing start going through the different categories, were you nervous? Were you excited? Both? How are you feeling at that time?  

[Robert]: Well when I sat there, I'm just talking about our category. When I heard our name, I just sat there with my fingers, crossed to see what would happen. I mean, really literally with my fingers and toes, I was ready, ready to win. And then when it went to one of our competitors of course I clapped for them because I wanted to be supportive, but I was like, Oh, I really wanted that to be us. For us, I feel good for the winner because I think win or lose, we should all feel incredibly proud of what we did. Any one of those five nominees, all of us felt the same way. We all wanted to win and only one was going to win. So I'm proud of what we did. I'm just proud of it.  

[Doug]: So we talked about  you know, you coming down the red carpet  with all the, the media there, us actually being, sitting inside the room for the ceremony itself. Afterwards we went into a courtyard to eat and socialize. Were there any moments  during that time that stand out for you?  

[Robert]: Hmm. I think waiting for a Marlee and Jack, I think who's probably hugging them and chatting with them for a while was probably the one thing that I was absolutely waiting for. And then when we went in and sat in that screening and they were trying to do that  fake thing that they were doing for promotion, I guess it was, it was some kind of commercial. I have no idea what was going on in that we had to pretend to act like we were in a movie theater. I was like, what is that? So that stands out to me. But yeah, I think that's what I remember most. We talked to Marlee and Jack for quite awhile, and I really enjoyed that and then watching the other categories  again, I will never ever forget just being there and what that felt like, particularly in that room. So I know that they wanted us to act scared in doing that commercial or whatever it was they were doing. So I think it was fun doing that. But that's what I remember. Yeah.  

[Doug]: And you're referring to, there was a booth  that was set up where we  where we were in a, in a movie theater pretending to watch a scary movie and react to it, which we all did together as, as a team  all the whole Feeling Through team, which was quite fun. But yet you were talking about meeting Marlee Matlin, our Executive Producer, and as well as Jack Jason, our  another executive producer. And though we've had many Zoom conversations alongside them, this was your first opportunity to meet them in person, right?  

[Robert]: Yes. Yes. That was my first time to meet Marlee and Jack face to face finally, in person so much better than zoom. It was really nice to meet such a famous deaf actor and her winning the Academy award herself was amazing to hug her and chat with her for quite a while. I wish I would've had more time, but of course we were at the Oscars and everybody had a lot of things to do so again, it was great forming that connection with both she and Jack. And I think that Doug, you would feel the same way.  

[Doug]: Well, I think people probably want to know how's the, how is the food at the Oscars? Is it good?  

[Robert]: It was very good. It had never actually eaten things like that. It was very fancy. It was set up in like quadrants and it was really interesting to kind of look at, but yeah, it was delicious. Everything was great. Yeah. And they also had an appetizer set  before we had got there. And that was again, very fancy something in the shape of an Oscar. And there were a ton of people milling around to chatting with each other. And again, I just thought it's just never something that I've ever experienced like that. And again, I know that this was a smaller setting comparative to previous years because of COVID, but it was amazing.  

[Doug]: So the Oscars are behind us and again, although we didn't win, as you were saying, Robert, it was really an honor to be a part of the ceremony  you know, to be honored in that way and to celebrate with our team together. Um, as well as alongside a lot of other really talented people in the industry, but just because the Oscars are over doesn't mean that Feeling Through is over. We have still been doing  we solve a number of screenings to do coming up a lot of conversations to be had, and a lot of future plans that we'll announce in more detail soon, but I just want to know personally  what are you hoping for in the near future and for the rest of this year?  

[Robert]: Again, I would love to continue doing these types of interviews. I'm going to relax. I'm going to spend time with my family. I'm really going to enjoy that again. Unfortunately, we did not win the Oscar, but at the same time, I think that everyone involved with Feeling Through are winners. And I think that we should just look toward the future. And for me, I don't know, maybe I'll be going back to New York. I really can't predict the future, but for right now, I'm just going to hope that we continue what we're doing. Continue these interviews and see if there are other opportunities for me to be invited into other productions, perhaps audition and see what happens. I really enjoyed the connection that we made and the last three years have just been amazing. So again, I don't think that the Oscars are the end for us, but what the future holds. I don't know. We'll see.  

[Doug]: Well, Robert  it's certainly been an absolute pleasure and joy to share in so many different experiences with you over the last three years. And to be at the Oscars with you  was just such an amazing, amazing evening. I was so happy again, this was a year where unfortunately, not as much as our team was able to come because of COVID, but to be there alongside you. My co-nominee Sue Ruzenski, who's the CEO of Helen Keller Services and a couple of other Marlee Matlin, and several other of our core team was really just such a treat. And I think just us being there  and getting to share in that evening together is really the big win and achievement regardless of taking home a statue or not, because that in and of itself to be standing on that carpet with you and our team was really just such an absolute honor. So I'm so glad we got to do that. You looked very sharp, Robert, the tux looked great. You were looking like a movie star and  I'm hoping for many more opportunities like that for you in the future. I hope some of them at least will be with me, but I hope for many more than that for you and very excited for what the future holds.  

[Robert]: Yes. Thank you so much. You are very welcome, Doug. At one day, you are going to be back up there again. I'm still holding my breath for part 2 Doug. Let's go, cause everybody on YouTube wants to know what happened. So there's gotta be a part two here somewhere, but nonetheless, I'm just very blessed to be a part of this and ready to see what happens in the future. And maybe one day we will have a part two. But I think everything nonetheless has been amazing and beautiful and who knows what the future holds, but we're going to keep our relationships and keep plugging along together and see where we end up. And again, I hope that HKNC is part of that. I hope that more deaf people are invited to the table, and I hope that we're all just more welcoming of each other as a culture and just look, and this is what I want to tell the world. Doug plucked me out of the kitchen. There are people out there like me that want to do this. So invite us into the setting. Don't be scared. Think about how you can utilize us, invite us to the table and start that connection and start building those relationships because that's how the world goes around. Those relationships happen each and every day. And I think that they're everlasting  

[Doug]: Well, Robert such a beautiful way to wrap up our conversation today with an amazing example of the poetry with which you speak at during these conversations now on a regular basis. Again, it's been such an honor to share in this experience with you, I'm excited for what we have planned for the future and  yeah, stay everyone stay tuned. There's still plenty of big things coming your way from the Feeling Through community and the Feeling Through team, and we're excited to share more things with you coming up. Awesome. So we'll  thanks for tuning in and  we'll see you all soon.  Love to everybody. Take care, everyone much love, bye now. 

Bradley Whitford hosts 'Feeling Through' panel

[Bradley]: Hi everybody, I am so thrilled to be here today  to talk with the cast and the creators and producers of one of my favorite movies of the year, a  short called Feeling Through   which actually is nominated for  an Oscar, which is an incredible, an incredible honor. Let me just introduce everyone. By the way, I am a  61 year old white haired man. A white haired white man is what I am, but I want to introduce  Doug Roland, Marlee Matlin, an old friend of mine  is a Producer- Executive producer, excuse me, and a couple of terrific actors whose work I had never seen before Robert Tarango  and Steven Prescod  before I get into it, I just want to say that I responded so strongly to this movie because it feels like an ally in the fight against the war of the myth of separateness, if that makes any sense. And it takes two people from radically different worlds, radically different experiences, and  brings them together. There is some fear that goes on. And over the course of the film, one of the things I loved as an actor is just the character development, the arc of both of these characters. But Doug, I know this came from a real experience, so I'd love to know what that was, and I'd love to know the moment when you realized this. This was a perfect short movie.  

[Doug]: I'm Doug, I'm a white male in my thirties. I have a short, dark beard and a short dark hair, and I'm wearing a blue button up shirt with a plain white background. And you know, Bradley, I love your quote about, I'm paraphrasing now, but what you were just saying about the  the myth of separateness, I think if I was gonna kind of title  the experience itself, I think that was probably the takeaway from it. But as you were alluding to it, it was inspired by a real life encounter I had ten years ago. And though the film is a fictionalized account of that, what does remain true from my experience was how two characters met. Ten years ago, I met a DeafBlind man standing on a corner by himself, late night, holding the very sign that you see in the movie. And also the way in which we communicated the way in which Tereek can already communicate in the film is very similar to how I communicated with this man Artemio at first, I just tapped him to let him know I was there. He pulled out a notepad, wrote a bus stop he needed. When I took him there, I realized the bus wasn't coming for a very long time and wanted to let them know I'd sit and wait, but didn't know how to communicate with him. And just instinctively. I took his palm and just tried writing one letter at a time on it with my finger. He understood that, and we had a whole conversation that way. And I think  as far as the moment where I knew this would be a great short film, that would probably be about a year later when I wrote the short film. But the moment that I knew this was a life-changing event was like pretty much the moment that I walked up and tapped this man named Artemio obviously already the character being a nod to the real life Artemio. And it was one of those instances in life where  every molecule in your body is firing and you feel like something's being gained, obviously it's, in this case, it's really been a ten year journey to understand what that is. I think the process of writing it, shooting it and exhibiting it. I learned something new every day about what new takeaways from that moment ten years ago, but it really more than anything beyond opening my consciousness to a community that I knew virtually nothing about, other than hearing about Helen Keller years prior, I think, again, you summed it up perfectly in your introduction about more than anything. It wasn't about the differences between Artemio and I, it was this real deeper understanding of the ways in which we're inextricably linked and connected despite whatever those differences may be.  

[Bradley]: I'm just curious, did you see Artemio after that evening?  

[Doug]: So  the great story behind that is that  we actually shot a companion documentary while we were shooting the film that people can find on feelingthrough.com if they're interested, and that not only documents  you know, the inspiration behind the film, my partnering with Helen Keller National Center. We had cameras in the room when we cast  Robert, who has pulled out of the kitchen at Helen Keller National Center, where he was working at the time to audition. But it also follows the year long journey of trying to track down Artemio. When we started to try to track him down it was seven years after the incident, and though Helen Keller National Center, after me describing this man  was very quickly able to identify who it was, because he had actually passed through the center years prior, no one had any contact info for him. So we literally spent like a year reaching out to people in the community, thinking at first, maybe he's in Minneapolis, maybe moved to Seattle and sure enough, no embellishment here, the day before we start shooting the film, I get an email saying that we haven't addressed for Artemio, we found him. So spoiler alert for the doc here, but actually I had cameras with me when I went to visit him, and reunite with him. And  it was, it was an amazing moment.  

[Bradley]: Wow, wow. Marlee, before I get into the actors who I just, again, fell in love with in this, Marlee talk a little bit about, I'm interested in your perspective on  what representation means  to this community  and the distinction between representation  and the shortcut Hollywood often takes, which is  tokenism. Just talk a little bit to me about that.  

[Marlee]: I'm Marlee Matlin. And I'm a white woman with blonde hair. It's not really blonde,  but I mean, it's blonde, and  I'm wearing a purple jacket with a blue shirt. Brad and I have worked together and we understand how Hollywood operates, what they call representation or not. And for the longest time in the entertainment business, and I've been around for about 35 years, I've had the opportunity to play characters who clearly are deaf. And a lot of times the story incorporates aspects of being deaf, mentioning deafness, focusing on deafness. And for example  I'm not going to mention exactly the project, but  on the West Wing, for example, we didn't do that. Aaron Sorkin just wrote me into the role and the character didn't dwell on being deaf. It wasn't about being deaf and it just happened to be a pollster. So that kind of occurred. Some Hollywood is rare and is mirrored again in Feeling Through, because  I came on after the fact, and I saw once again, how representation took place that this is authenticity in action. This is representation in action. This is what we need to have more of in Hollywood. And Doug Roland is one person who understands that you had to cast authentically that disability isn't a costume that you wear that you take off at the end of the day, when you're shooting a film. Nobody these days is willing to accept that because we've been making noise and no one, hopefully anyone who hears me speaking about this will understand that there are actors out there who can play roles authentically. Writers out there who can write authentically, and so forth and so on. So representation is very important right now with a capital  

[Marlee]: A embedded in it, Authenticity.  

[Bradley]: I often make the joke that if you  look up white privilege in the dictionary, the definition is my headshot. And part of that, part of something I've realized is that all underrepresented communities, all in my world, in the acting world, when they take a part there is an obligation to represent that's  never occurs  to a seeing hearing white man. I'm not representing anything. And I know that that it's a dance  in your life morally where you want to take the opportunities to represent in order to create opportunities for  more fully fleshed  portrayals of communities like the deaf community. Let me go, let me just talk for a second to  Robert, Robert Tarango, the first DeafBlind actor to star in a film. I definitely want to know what that felt like. I want to know what the audition was  and I know I want to know what it, what it feels like, to get what I am sure is kind of unfamiliar a wave of attention like this  

[Robert]: Hi there, I'm wearing a green t-shirt, I am a Hispanic native American man with gray hair, and I am 55 years old. So when I first was approached about Feeling Through, I feel great about it. I mean, great people got to see that a DeafBlind person can be successful in the film industry. And for me, it was powerful. It was positive, and it is showing the world what we can do, and not from the perception of what a hearing sighted worlds can do. But here I am as a DeafBlind adult acting and to show that we need more of that understanding our culture, understanding who we are, regardless of whether you're sighted, blind, hearing, deaf, we're all the same. We need to make that connection, that relationship to work with one another. And I hope that this woke up Hollywood so that other people who have aspirations to do this can.  

[Bradley]: Steven, let me, let me ask. I thought it was such a wonderfully nuanced- you know what I loved about what you guys did all all together. But Steven, you didn't sentimentalize this. I believed your edge. I understood your fear of  encountering someone unlike  anyone you've ever encountered before. And I could  I saw you do something  that disappointed me in the bodega, and I saw you sort of transcend that at the end. Just tell me, tell me what this experience  how did this movie come to you? What was it like  working with a DeafBlind actor, and what was the set like? I just like to know what the process was.  

[Steven]: Well, thank you Bradley for doing this with us. My name is Steven and I am an African-American male. I have two braids going back and I have a clear quartz earing in my ear. Well, I was first introduced to the project through my manager. He sent me the sides for it, and I did a self tape and Doug told me it was actually one of the last tapes that got put in. So then I was excited that I actually got a call back. And that was the first time I was able to  have an audition face-to-face with Doug. And  actually after I booked the role I had no idea that I was playing alongside an actor who was actually deaf and blind. So I was like, am I going to have a chance to actually meet with him first.  

[Steven]: And he was like, yeah, for sure. So I had the opportunity to go to the Helen Keller center and  then that's when Robert and I first met and it was like an instant connection. I felt like we hit it off. We had this chemistry and  we built a lot of trust. So it was good that we actually were able to build that trust before we got on set, because  it just made everything go run so smoothly, even with all the interpreters, but  just  being on the set, putting on the close, and it made everything more realistic for me than it was actually just auditioning for it. Yeah, I think that's, that's stuff I hope I answered.  

[Bradley]: Yeah, yeah, yeah, yeah, yeah, yeah. And where you  I was confused as the writing on the hand is that it seems like such a discovery  for your character. Is that something Doug that  that you happened upon is that  a way to communicate with  deaf and blind people?  

[Doug]: You know, that was something that in the moment, ten years ago, when I was meeting Artemio, who inspired this. It was something that literally, I'd never thought about doing before, and just kind of came out of both ingenuity and also like a little bit of desperation of trying to figure out how to communicate with him. Later on I would find out that it's a form of communication called print on palm. It is used sometimes I think from what I've gathered, it's something that's probably more often used in a situation like myself, communicating with someone who's a tactile communicator where if I don't know  ASL and I'm not able to like sign it tactically into that person's hand, I can use that method. You're more likely to find  DeafBlind people who are tactile using tactile ASL, which is again, just ASL sign into the hand, but it is a form of communication called print on palm that I'd later learned.  

[Bradley]: I want to go back to Robert. I wanna know what did the audition feel like? I am someone who hates auditions.  

[Steven]: I can second that.  

[Bradley]: But what was the audition process?  

[Robert]: Well, I was at work. I was at work in the cafeteria and my boss, Dan came up to me and said, come here. And I was like, what's up? He said, you need to go over to the other building. And I was like, why do I need to go to the other building? He's like, just get over there. And I'm like, why do I need to go to the other building? I really had no idea what was going on. So I walked over to what we call the training, building up to the second floor meeting room and sort of walked into this end, scan the room going, what is going on in here? So I saw all these people sitting there. I slowly sat down and Doug explained the process and I was like, what seriously? You want me to audition for a film? I'm like, wait, wait, wait, okay, hang on, hang on, hang on. Let me think about this. I'm like, are you serious? I was so excited that Doug extended the invitation and again, to have a DeafBlind actor in a leading role was amazing.  

[Bradley]: Yeah. Yeah, it is. It is amazing. Steven, where were you  were you initially tentative about communicating with Robert and I'm just imagining that, that you might be tentative at first, but as you, as you get into the shooting  it did the communication between takes  become more casual. Because I think for most people  who are not exposed to communities like this, they don't realize how quickly  people's fundamental humanity and the ability to connect makes itself available. But initially, did you have fear about being able to communicate, did it get more comfortable? What was that like?  

[Steven]: I can say to an extent because  I was actually, since, I remember I was ten, there was a neighbor that lived next door to me. His mother was blind and  so I used to go over there and visit, you know what I mean? So I was ready. I already was exposed to that side of the community. And I also have a cousin who's who's deaf. But I never met someone who who's actually both deaf and blind. That was something I always thought about. We all heard of Helen Keller, but  yeah, I did  have my thoughts  how are we going to communicate, but being able to meet before the actual set date, when we actually had to shoot  it just made, it really made everything smooth and authentic, just like  we casually naturally anytime I had something to say, there was an interpreter there to  interpret for me. And  yeah, I mean, it made everything run very smoothly. I can't say there were any like misguided hiccups or I don't know how to really say that, but yeah, I ran really smoothly, honestly, I can say.  

[Bradley]: Well, Doug, just as somebody who's done this for decades, you're very smart too. It always baffles me  that people don't understand  how valuable rehearsal is  in the world of film, just because it's so bizarre to walk onto a set and with crews standing around you  try to be a human being with another human being. So that's smart. Marlee, I wanna  I get upset when I hear my own  when discussions about representation come up  and I'm just interested in your thoughts on this  there is a version of, excuse the French  sort of Trump thinking that  there is a fixed amount of real estate in the storytelling business. And if God forbid, we open it up to all the different people who have stories to tell it will diminish rather than invigorate the business.  

[Bradley]: And it always drives me nuts because the magic and show business are these voices that are fresh. Show business is always  sort of  usurping what came before it. Part of the reason show business gets so tired is because it's the same people telling the same stories. And I'm just wondering if you agree with that and what your feelings are about the idea that actually diversity is not some service that needs to be performed  even  even if you don't care about equity and representation, the fact is the most exciting stories come from these underrepresented communities.  

[Marlee]: Absolutely, absolutely. You get it, my friend, you really do get it. I have been saying all along since December, when I hopped on board with as much clarity as I can provide to anyone who was willing to listen to me that this film is one great living example of the fact that representation, of course, we talk about representation, representation. Doesn't last one project. It's not the flavor of the year. Representation is ongoing because Hollywood has a tendency to  fall in love with something rave about something with the thing feels so new and different. And then the next thing  they feel like they've checked off the box and they move on to  whatever next day list or they want to focus on or whatever biggest blockbuster they want to focus on. And then once again, something like this comes up and they're like, Oh God, this is great.  

[Marlee]: And you know, it's like off and on hot and cold, hot and cold. And I don't know how much more I need to do to represent what you just said. We are here. We have beautiful stories to tell, beautiful stories to share. We have beautiful actors to show you all, and I'm not one to complain, but I'm certainly one to make noise, even though I'm deaf. So you and I had a chance to work together and you knew how I work and I know how you work. And the reason is, is because we both are actors who care just the same way that Robert and Steven actors who trust each other, actors who work together. And when someone mentioned something about there's an, Oh my gosh, how are we going to deal with something we've never seen before? It's this is what, how is this going to work? Is it's it's okay. It's okay. We collaborate, we learn, we teach, we educate and we listen and we learn to trust. And that's all, it takes simple as that.  

[Bradley]: You know  I always think about  on top of the ability to connect, you're exposed to a world you may not be familiar with. I think of my experience of watching a Big River  the Deaf West production and all of those productions  that I have seen where seeing a production that is  with deaf performers, even in a musical  is a better way, a more expressive way.  

[Marlee]: It's just like when we did spring awakening on Broadway, the same thing, it's a better musical.  

[Bradley]: It's not a concession and we're not checking a box. It's a better way to tell the story.  

[Marlee]: Exactly, exactly right. Yeah.  

[Bradley]: Doug, tell me, I think I know, but  you've obviously lived with this story forever. I want to know a little bit about how you connected  with the Helen Helen Keller  society and how you wanted to include them ways that you were able to do that ways that  Hollywood can  get more people involved from these communities, both in front  and behind the cameras. Just talk to me a little bit about that  that connection with them, and with that community, and where it can go from here.  

[Doug]: Yeah, absolutely. You know, for me, it was, it was instinct for me. The, the actual story was that I'd written this short, like about nine years ago now I wrote it like a year after I encountered Artemio, but it lived on my computer for you six plus years. Because when I first wrote it, I just, I didn't feel like I could do it justice really, honestly. So I lived on my computer and on a fateful day, a little over three years ago, I was sitting in a coffee shop in Los Angeles on a rainy day, which was already just, how depressing is that a rainy day in Los Angeles and a coffee shop in the middle of the day. And I was like just relegated to cleaning up my really messy desktop of my laptop, and I opened a folder I hadn't opened in a while, read the script and immediately knew I needed to make it in that moment, just gut feeling. And literally before my rational mind kicked in, I just Googled DeafBlind organization. And I called literally the first number that popped up on Google. I spoke to this gentleman, I told him about this incident that had happened to me, this story that I written, and then I on the spot again, without thinking about it. I said, and I feel like I want to cast a DeafBlind actor. Is that crazy? Is what I said to him, because I still had only met Artemio I knew nothing about the community. And he said, no, that's not crazy at all. You should reach out to the Helen Keller National Center. So that was why I reached out to them specifically. And it took a little while to court them, and meanwhile, I live near the braille Institute here in Los Angeles, and I was driving by  in the midst of this time period. And I saw it and I parked immediately. And I just walked in and I started telling the guy who sits at the front desk, my story. And he's like, very quickly. He's like, I'm not the guy you want to speak to, but go down the hall, make a left, make a right, make another left. There's a woman there, tell it to her. And before I knew it, I knew everyone at the braille Institute, I was sitting in on DeafBlind classes at the braille Institute, getting to know the local DeafBlind community. You know, someone at the braille Institute was like, you should go to this DeafBlind living facility out in Eagle Rock. So I went out there, met a bunch of the residents there, and the gentleman Jim, who runs that place. And then I heard back from Helen Keller National Center met with them. They  Sue resent skews might mind you, my co-nominee in this is Sue Ruzenski, who's the CEO of the parent organization, Helen Keller Services, who's never made a movie before never even dreamt of being a part of one. She's had her entire 40 plus year career has been dedicated to serving the DeafBlind community. Now she's an Oscar nominee, which I think is pretty cool. But we see, we connected, she's like, look, we've never done anything like this before, but I have a gut feeling this is the right thing to do. And that was three years ago. And what we've done more than like almost three and a half now. And what we've done during that period is  I went to that Helen Keller National Center, many times met with the staff there, the students there who are DeafBlind   and some of the staff was DeafBlind, and just, it was more than doing my homework. It was actually building meaningful relationships with people in the community, some of which are still good friends of mine, three plus years down the road here. Colleagues of mine who were DeafBlind that I've been working with for three plus years on this. So it was more than, I love that you brought this up a couple of times Bradley, it wasn't about checking boxes. This was something that deeply moved me. And from that deep place I was compelled to seek out the things that would make this the best possible thing I could do within the resources I had. And I was always operating from there. And, and  as far as what Hollywood can do  it was, which is the last part of your question there. I was like, go a level deeper than checking the boxes. Because look, honestly, checking the boxes is better than not doing anything at all, but how about we go a level deeper than that and understand that there's deep value in actually coming at this from a more heartfelt place of knowing that it's also going to serve the stories that you tell as you were just discussing with Marlee, that you're going to get more interesting stories. The thing that people love about film, the reason people love those Marvel movies and, and all these other  sci-fi worlds and everything is because film can take you to a place you've never been before. And so  a community that's been so really not represented at all, like the DeafBlind community is a world people want to know about  we've shown this to millions of people now, and they are so interested to learn, get a little window into this world. And then there's so many people that reach out to were so motivated to learn more about it and feel like they have a personal connection to a community they never had before. And they live with this film for a long time after seeing it. And isn't that what ultimately  is a large part of what we're trying to do here is like actually impact people and make them think about things that they maybe have never thought about and want to learn about things they should learn about. And that's something that I think just my advice  to anyone who's like me three plus years ago, starting out on a journey like this would be, Don't just do something. Because it's the box checking, right? Thing to do, like really search a little bit deeper and be open to coming out a more well-rounded person from the experience.  

[Bradley]: Well your connection to-.  

[Marlee]: We need more Doug Rolands in the world.  

[Bradley]: Yes, we need more Dougs. but yeah, I think about too, it's just, again,  not to be the self lacerating white guy, but I just think about how being able to tell stories to participate in storytelling  has been the heartbeat of my life and all communities  all people  need to be able to tell stories and to tell stories about their own community in an authentic way. I'm wondering Robert, are you given everything up and  coming to Hollywood, is that happening?  

[Robert]: Yup. I am ready, willing and able. And in fact, I am coming on Monday for the Oscars, so-  

[Bradley]: Oh my God, you're going to the Oscars!  

[Robert]: I'm going next week. Yeah. So  I'm really looking forward to meeting people and I just can't wait to meet folks. I can't wait to meet Marlee face-to-face. But really, I just hope that I'll be able to meet you if you're around. I'm just very excited. I can't wait to meet all the movie stars cannot wait. I'm thrilled to be a part of this inspired and yeah, I am absolutely ready, willing, and able to go, because I think that it's really important that people see like, Oh, that's the DeafBlind actor. And I'm like, yep. Yes I am.  

[Marlee]: And I can't wait to see what lies ahead for Steven as an actor, because he's gotten so much praise.  

[Bradley]: Yeah, I will second and third that I was blown away. Are you coming to the Oscars, Steven?  

[Marlee]: Oh, I'll be there on the screen. And in spirit with everyone. My mom, she's planning a Zoom party actually with everyone, so we all will be together soon.  

[Bradley]: Good, good, good. I know you're going to be, I can't wait to see where your career goes. I thought both of you guys were absolutely spectacular and  as Marlee knows  when it comes to other actors, my heart is the size of a raisin.  

[Steven]: I love that.  

[Bradley]: No, I'm kidding. Doug congratulations. You know what you can feel in this thing? I think about this all the time. When I was coming up in New York,  Joe Papp  thought it would be a good idea. And it sounds like a good idea to do every single one of Shakespeare's plays. It was a marathon. And  a lot of them were terrible, terrible productions, because if you get asked to do a  production of Troilus and Cressida at the public, the director's gonna say yes, but they haven't been dying to do it for years. They don't have a deep need to  to get a story out and get it  get it out  right. And all of that energy is underneath it, not only from you  but  from the actors. And it was an absolute joy to watch. So, do not miss Feeling Through and thank you all for being here. Thank you so much. Such a pleasure. 

'Feeling Through' on the Black News Channel

[Kelly]: Wow. That's quite a wonderful scene from the new movie Feeling Through, and you're watching the Oscar nominated short Feeling Through. It's an incredible film, a film about the power of human connection. And it's the first film ever to star someone who is deaf and blind, but an actor with so many talents, brilliant talents to bring to the table. So I want to bring them all in now. Joining me now is a prolific and innovative film maker, Doug Roland, and the films star Steven Prescod, who joins us now. Gentlemen, I want to thank you, and first of all, congratulations on this wonderful nomination for the Academy award, but let's go back to the beginning. How did you two meet and embark upon this wonderful journey to tell this remarkable story?  

[Doug]: Well, first of all, thank you so much for having us today. It's really an honor to be here and maybe Steven, maybe I'll set up my side of how we met and I would love if you fill it in. But I actually had a lot of trouble casting the role to Tereek because I had such a clear sense energetically of what I was looking for from that actor. And I saw a lot of really talented young actors in New York, but no one was like quite fitting the bill for me. No one was like quite capturing that thing that I couldn't put my finger on, but I would know when I'd see it, to the point where we had a very narrow window to cast it and we were getting ready for the final callbacks. And I was saying like, we can't do final callbacks because I know he's not here yet. Like, I know I haven't seen him. So we got some last minute self-tapes and maybe I'll pause for a second and Steven, maybe, why don't you fill in your side of this story?  

[Steven]: So after I submitted my self tape, I remember getting a call back and that's when I was able to have a face-to-face audition with Doug. So when I got there, actually, it was funny thing when I actually got there, I met Doug in the elevator before actually getting into the actual auditioning room and asked him and I said, Oh, well I knew who he was, but he didn't know who I was, because I looked him up and I was like, Oh, do you know where I have to sign in? Like where I have to go? He's like, well, yeah, the sign in sheet and everything is right over there, and then we're going to be setting up and everything, whatever I was like alright, cool. So, yeah, when I went in there, actually the person who I had in my mind when I went into this role was this kid named Noroxin that I randomly met in the street. He actually been going through like the same things that Tereek has been going through. So, that was sort of the energy that I had when I walked in and filmed for my audition with them.  And I will say Kelly, that like no exaggeration here. It's one of those moments when you're casting something where the second Steven walked in and opened his mouth, I'm like we got it. And it was that clear, literally he probably said one word. He probably didn't even say a full word. He probably like made the sound of part of a word. And I'm like, we got our guy and he was the first actor up that day. So it was like such a relief knowing we had like one more shot to find our guy and that it happened to be Steven whose first stopped that day. So it was definitely kismet. We later found out that we have birthdays a day apart and a lot of other things I kind of cross over. So we're like, we feel like we were like orbiting kind of the same system here. And it worked out perfectly.  

[Kelly]: Yeah. I'd go one step further. You two are brothers,  

[Doug]: I definitely, I'd say there's certainly that connection going on for sure.  

[Kelly]: Yeah. What a great connection. So, let me get this straight then because Doug, you created some groundbreaking opportunities in this film, tell me about that because it will lend itself now to a whole lot of opportunities for other actors.  

[Doug]: Yeah. And that's what we're certainly hoping from this. And I had this chance encounter in real life 10 years ago that inspired this. And I knew from the start of making it that I wanted to cast a deafblind actor in the role of the deafblind character already in the film. And fortunately I was able to partner with Helen Keller National Center throughout this entire process and still three years down the line, I'm still still close partners. And that allowed me to gain the knowledge and the connection and the real meaningful relationships with the deafblind community to not only cast Robert, who's our deafblind actor who does an amazing job, but to really make sure that the film was done authentically and that it was something that would do justice to this community. That's unrepresented. And we all know the responsibility anytime you're representing a community that's underrepresented or not represented at all, even with the best intentions, if you're not creating something that's authentic, you can inadvertently be really setting back the perceptions of a community in certain people's eyes. If you don't do it justice and do it authentically. We've taken one excuse away from people who are making films, they can't say that you can't do it with an actor who's deafblind, cause we've done it and we've done it successfully. And we're hoping that this is the start of many opportunities for people not only in the deafblind community, but many other parts of the disability community that had been historically had almost no opportunities.  

[Kelly]: What an amazing film. I guarantee if you go see it, you will walk away and you will feel very, very inspired. And the two gentlemen who are making this possible. And by the way, congratulations gentlemen, on your Academy award nomination, it's so big and it's so right, and so deserved. I'm talking to Doug Roland and Steven Prescod and Steven, what does it mean for you to be a part of this groundbreaking film, and also to bring your talents to this effort overall, to really awaken the world to say, don't discriminate, don't disregard, don't count me out because of what you think you might know about me.  

[Steven]: Oh, that's a beautiful question, Kelly. And it just puts a battery in my back to just keep on driving, keep on rolling that way. Because like, honestly, especially with this business, this industry, I'm looking to embark into, it can be pretty difficult and overwhelming and sometimes you can second guess yourself, like, am I what I'm meant to be doing? Am I doing the right thing? And then like seeing the feedback that Feeling Through, how it has been affecting, like people that's been watching, it's like, wow. I feel that I am doing what I am set to be doing in this day, time and history. So I'm excited to just keep on going and keep pushing.  

[Kelly]: Doug, look, you're out there and you're producing films and you're working in Hollywood, which can sometimes, and oftentimes be very mean place. But here you are finding these wonderful moments of inspiring people through your artistry. How did you come to that conclusion that this was your Why?  

[Doug]: I think a lot of what you could very much label as  failures or the things that didn't happen or the things that have served me by far the most of my journey. And I think I've always thought of myself as a late bloomer and not, I don't mean that in a negative connotation. And I think what the failures or rejections of the past provided for me was first and foremost, the need to look in the mirror and really ask myself, do you want to do this? And why do you want to do this? But the what, but the resounding answer back was I'm doing this for reasons deeper than  outside validation or a certain paycheck though. Those things are nice to certainly not saying otherwise, but there, there were certain things that would come up in my stories that were things that were from a much deeper place that I felt really compelled to capture and do my best to make and share with people there's a universal resonance. And I think that's what we've been most grateful for is the fact that this is a film that has meant just as much to the deafblind community that's experienced. It that's really at the heart of it than it has to any other kind of person that's come across it. And particularly through the lens of pandemic and a really divisive time over the last year that we've been showing it, we've had hundreds and hundreds of people reach out to us and say, this is exactly what I needed to see right now to turn things around.  

[Kelly]: I want to thank both of you for staying true to your story, true to who you are, and let's see what happens. Again, congratulations on getting the nod from the Academy award  Steven Prescod, as well as  Doug Roland. Thank you so much, gentlemen.  

[Steven]: Thank you. Thank you. 

Tim Gray of Variety hosts 'Feeling Through' panel (6-minute cutdown)

[Tim]: What was it where you just thought, I really want to be part of this?  

[Marlee]: It was just a no-brainer for me after I saw the film. I typically don't find myself in situations where I can't take my eyes off the screen. I mean, it was 18 minutes of amazing, well put together, touching, moving experience of storytelling that I've ever seen. I was just amazed and it was eye-opening and I've learned a great deal myself about the DeafBlind community as well.  

[Tim]: I think anyone who sees this film learns a lot, but also you make a good point, which I think is worth repeating: it's notable because we cast a blind-deaf actor, but it's also, it's just good filmmaking. I mean,it's, like really, really well done.  

[Robert]: I was so excited that I got selected. I started just jumping for joy. I could not believe it. Um, seriously? And that's all my reaction was. And that's how it all started.  

[Doug]: I'll quote what I've said the first time I ever met with Sue Ruzenski, the CEO of Helen Keller Services, who's my co-nominee, I said to her, I have a film that includes a DeafBlind character that I want to be played by a DeafBlind actor, but it's not a film about DeafBlindness. It's a film about the power of human connection that happens to include two characters from very different walks of life. And I think ultimately that's been something that as we've put it out on YouTube and had almost 3 million views in a little over a couple months and had thousands of people reach out to us in different ways, both from the DeafBlind community and people who've never experienced or thought of the DeafBlind community and everyone in between. Ultimately, what we're, I think most proud of about this story is that it's universal in what it touches on. It has a real reverence and respect for both of its primary characters, and that it's about, it's meant to remind us what's much deeper and more resonant beneath our disability or our skin color or our age, or our background.  

[Marlee]: I try to make people aware of the fact that production companies, studios, they need to understand how crucial it is and they need to pay attention to whatever it is an actor needs on a set in order to work successfully. And Doug did that. He got it. He reached out to organizations who are very aware of needs when it comes to accessibility. And I think we need more Doug Roland out there.  

[Steven]: I think we need more Doug Roland for lots of reasons. Did you to talk about your characters, the backstory with Doug? Did you do it in your mind or did you just think, no, let's concentrate on the script and what we can have here? Yeah, I did a separately talk with Doug about my character and who I related my character to was actually a kid named Norickson, who I had met like years prior to this film. He was a homeless kid who I met in the street looking for something to eat and get some coffee. He like stopped me in the middle of the street at night, and I told him, you know, asked him how old he was. He was actually younger than I was. And I told him he could stay with me for the night. And, you know, we had a conversation and everything. So, his essence is something that I carried with me into this project.  

[Tim]: You had a Feeling Through Experience where people would come. Tell us about that a little bit.  

[Doug]: Tim, I'm sure you've seen a fair share of films in your day, but you'll have a paradigm shift of your understanding of what it means to experience a film when you look out onto a full audience and, you know, anywhere from a quarter to a third or more of the audience is experiencing the film through tactile ASL, through visual ASL, through audio description, through really large open captions on the screen. And it just really was such a beautiful way to kind of understand or understand deeper what it means to experience a film.  

[Tim]: Things are better for disabled people than they were 10 years ago, but are they significantly better or are they in danger of slipping back again?  

[Marlee]: I'm pleased to see greater participation, greater authenticity in the film business. At the same time, I want to be able to say, look, I don't want this to be the, this recognition to be the flavor of the month. I want it to go beyond this period, I want it to go beyond this. I don't want it to be the flavor of the year even.  

[Tim]: If there is a filmmaker out there, you know, director, writer, or a show runner on television, who is thinking of casting a DeafBlind actor, what advice would you give this person?  

[Robert]: You know what I want executives to know whether they be directors, production companies, my biggest thing is just simply, don't be afraid. And I think that Feeling Through has really shown people again, the community at large, who we are. And they may never have thought of us, you know, other than Helen Keller, as part of the community, and that we live independently and that we're here. So to partner and collaborate with places like the Helen Keller National Center, and to learn more about us, but recognize that we can be part of the film. We are part of your everyday life. We walk the earth, we go to work, we do everything that you do. So why wouldn't we be represented? And so I think that again, you mentioned having a hearing actor, a hearing-sighted actor do this. I don't think that that would work because they don't have the experience of who I am and what my experiences have been. So quite simply we are here, we are ready, we are willing, and we want to be involved. And we want to just show people who we are. Invite us. Don't be afraid. 

Lauren Ridloff hosts 'Feeling Through' panel

[Lauren]: Before we get going, I would like to do a visual description of myself. I am a black Mexican woman with Brown skin, black hair that is up in a bun, gold hoop earrings. And I have a pink sweater. I think that's enough. Before we go around, I would really like to talk about this panel as a whole. We are going to be discussing the importance and the benefit of collaboration and how people can grow from this experience. As I said, as an actor who happens to be Deaf, who happens to be mixed race black and Mexican, who happens to be under represented. Now, I think as the time that the industry, particularly the film industry and Hollywood take a moment and have a moment. Perhaps it's happening because of COVID-19 perhaps it's happening because of the political climate to date. But now we have the moment to pause and to think about what we see on the big screen. Representation is critical now more than ever, both in TV and in film. What is the importance of these mediums for people to be able to learn about people other than themselves, to learn about other cultures or to see people we wouldn't typically. So now when we talk about Hollywood and the inclusion of this globally, there needs to be more representation of people who are outside of the margins, if you will. So with that, we come up with this topic of where do we begin? How does this process start? And what does it look like? What resources do we need? And so I hope that we'll expand upon that throughout this discussion today, I am thrilled to be the moderator and to start with Doug. So Doug, if you could start with a visual description of yourself, please,  

[Doug]: This is Doug speaking. Thank you very much, Lauren. It's really an honor to have you moderating our discussion today. I am a white male in my mid thirties, dark short hair, little scruff on my face. I'm wearing a blue jacket with a lighter of darker blue jacket with a lighter blue button up shirt. And  yeah, really, really excited to be able to be engaging in this discussion with all of you today.  

[Lauren]: Great. Thank you so much. I'd like to give the floor to Sue for a visual description.  

[Sue]: Hello everyone. This is Sue Ruzenski. I am a middle-aged a female in my sixties. We shall say  I have blonde hair, shoulder length, black glasses, and I'm wearing a black turtleneck and it's great to be here. Thank you.  

[Lauren]: Thank you, Sue. Marlee. Would you mind?  

[Marlee]: Hi, I'm Marlee, thank you for doing this Lauren, it means the world to me and to the rest of us here. I am a white female, middle aged with blonde hair. It's not my natural color, but I have blonde hair and I'm wearing a dark blue velvet jacket with a brown shirt and a pin pendant representing the sign for, I love you.  

[Lauren]: Oh, we have something in common then because I have my, I love you pendant on as well.  

[Jack]: That's great.  

[Lauren]: That must be the theme of today. Jack, as Marlee's partner, please.  

[Jack]: I'm Jack Jason and I am a middle aged man with graying hair and little round glasses that sit on the bridge of my nose. I am wearing a black sweater with a white shirt and t-shirt underneath.  

[Lauren]: Great. Thank you, Jack. Robert, I'd like to give the floor to you to give a visual description of yourself.  

[Robert]: Hi everybody, my name is Robert. I'm also shortish kind of balding hair a little bit also on that grayish white side and wearing a purple colored t-shirt, I'm also middle aged 55 and that's it. That's who I am. Awesome and handsome I might add. And finally, Steven,  

[Steven]: Hi everyone. My name is Steven Prescott. I am in my late twenties. I have box braids falling down. I have a white turtleneck and a clear quartz earring in my left ear. Black male. Did I say that?  

[Lauren]: Great. I think I got everybody. So now I would like to just talk about really how we got here in the first place. I think Doug, if you could give a brief description of the project, how it came to fruition and what inspired you.  

[Doug]: Sure, well I'll start off by saying as a filmmaker and as a storyteller, we  hope to  be gifted with stories that not only move us, but allow us to move other people. And I can certainly say that Feeling Through and its origins have been a true gift for me  to it. It's a really, it's a 10-year journey that I'll summarize very quickly for the sake of this panel. But, again, it starts 10 years ago when I was living in New York city where I'm from, I was coming home late one night and very similar to what you see in the film. I saw a man standing on a street corner, holding a sign that said I'm Deaf and Blind and need help crossing the street. And though Feeling Through is a fictionalized version of that story, a lot of the main story beats that you see in the film are something that I shared with this man Artemio, named similarly to Artie, the character in the film where we ended up spending quite a while together, sitting and waiting for a bus to come. Again, we also communicated by me tracing one letter at a time on his palm, him writing back to me in a note pad. And I think that the experience really stuck with me because when I initially saw Artemio standing on the street, I saw him for his DeafBlindness in the sense that the real resonant thing was, Oh, wow, this is the first DeafBlind person I've ever met, which certainly was notable. But I came away from that interaction thinking to myself, Oh my, this is my new friend, Artemio, who I felt like I had made a really heartfelt connection with, as I got to know him as this charismatic, charming, funny, insightful guy. And it really opened up a whole new world for me. Obviously starting with writing Feeling Through, and then it was one of those stories that at the time that I wrote it, I didn't feel like I was ready to make it quite in the way that I wanted to. So it lived on my computer for a number of years until I just had that burning feeling that it was time. I ended up reaching out to, Sue was one of the first people I connected with, at the time at Helen Keller National Center. She's now the acting CEO of the parent organization, Helen Keller Services. And I basically just said, Hey, look, I have this story that includes a DeafBlind character that I want to be played by a DeafBlind actor. And I'd love to collaborate with your organization to do it in the best possible way. And I'm still so thankful to this day for Sue really thinking outside of the box and being open to something that was very new for the organization. And I think just to kind of get things going with this spirit of collaboration,    one of the key things of collaboration is that it takes two sides to come together.  

[Doug]: So I could have all the will and desire to do this alongside the community, but it really took in this case Sue, really seeing value in this idea and really wanting to walk down this road with me in order to really make it happen in the way that ultimately it needed to happen to make it the best version of itself. So that was kind of like a very, very quick summation of a 10 year journey to actually collaborate, make the film, and then also work with Helen Keller Services throughout the process to not only cast Robert, who obviously does an amazing job in the film, but also to create fully accessible screening events so that we can share it with the DeafBlind community, the Deaf community, Blind community, low vision communities, so that they could all experience it as well. So, that was  that's kind of a really quick summation of a long journey.  

[Lauren]: Wow, I mean, just think about that, the impact of just meeting somebody on the street and where it is led today and the team and the community and the beauty of representation and collaboration. I really think that again, it's amazing that all of you have been involved with this project and really have created those links and have not let it go by the wayside and have continued it. And I'm seeing something, a bigger picture in it. It is beautiful. Doug, this might be a simple question, but why did you go ahead and cast a DeafBlind actor? Why not just find someone who is hearing who could play the role?  

[Doug]: You know, that's a great question. And for me to be quite honest, it was a complete just  instinctual decision. It occurred to me the first time that I was talking about it on the phone to the individual who ended up directing me towards the Helen Keller National Center. Actually funny story about that. I was sitting in a coffee shop in Los Angeles, when the overwhelming feeling hit me that I needed to make the movie right now. And before my conscious mind kicked in, I Googled DeafBlind organization called literally the first number that came up on Google. And before I even knew I was calling, someone picks up the phone and I just start talking and saying, I have this film, I want to cast a DeafBlind actor. What do I do? And it literally came out of me before I thought about it, quite honestly, and to this day, I'm really glad that that's what my instinct was, because quite honestly, at the time, I didn't know so much about what authentic casting was. I mean, of course I knew literally what it was, but I did not know anything about  the culture of, of that. I didn't know anything about the fact that it's something that is extremely underdone in Hollywood and is really problematic. It was an instinct for me, but I'm so glad it was because now over the last three years, not have not only have I learned so much about the importance of casting roles authentically  in short, because there are a lot of talented  actors with disabilities out there who historically have not gotten opportunities to be part of this storytelling  that I've now learned so much about that. And I've really been fortunate to be able to use the platform of Feeling Through, to try to do our part to further that, but fortunately it was an instinct of mine. And, and I think that that gut feeling that kicked in at the very start of this process,  

[Lauren]: Sue, speaking to that, when Doug first reached out to you, did you have any reservations concerns or did you just jump ahead with the collaboration? What did you think like was this sort of the gatekeeper to protecting the community? What were your initial thoughts when you first spoke with Doug?  

[Sue]: This is Sue. I did have some concerns. It was just a call that I had never received in all the years that I've worked with Helen Keller National Center hearing from  a filmmaker and just wondering, what are his true intentions? And would he produce a film that would be  representative of the community? Would he understand the culture? And if we associated with him, would it be a positive or could it actually be a negative? So I did have some concerns, and just, it's interesting,    we talk about open mind and  this process of being inclusive of people who are  of any on the margin, as you said, so here I am, working in an organization and think about my closed-mindedness initially when he contacted me to say, Ooh, I don't know if that's possible. So I think that  it really was a learning  process for me as well.  

[Lauren]: So one disability advocate, her name is Mia Mingus. She's coined the term Access Intimacy. And that concept is really interesting to me because the concept is that there are many people with disabilities who instinctually feel they can , that connection. So that term Access Intimacy, and what that means is that connection between two people, one person who does not have a disability, that person who just instinctively gets it, who can be with that person and just provide that emphasis automatically. So Access Intimacy, it doesn't mean anything that's romantic or something that's built with family. It can be with two complete strangers who just instantly click in that moment of access. And so that really is the bottom line of someone who gets it. So Sue, when you first connected with Doug, did you feel that this was a guy who could potentially get it and, what was that, did that impact your thought process and your impression of Doug initially?  

[Sue]: This is Sue yes, absolutely. So after having heard from Doug  through the phone call, I had an opportunity to go to the West coast and we had a meeting in a hotel lobby and he was there with his producers, his team, and I was with several of our staff and he just began to tell the story of his encounter with Artemio in Manhattan. And there was that access intimacy, and the way he spoke about that evening and his interaction with that gentlemen that inspired him for this story. It was clear. I knew it in my gut instantly that he was the real thing and that this was going to be something really amazing and that we had such a opportunity  ahead of us. And I just, it just started to, the momentum has been going and going, but that initial meeting really, I did have that sense, that, that feeling.  

[Lauren]: So can you imagine now, when we talk about the industry and the creative people who were in this industry, providing authentic storytelling and representation, because often it is well intentioned, but what sometimes happens is when you talk about, offering this person or tokenism, Oh, here's a DeafBlind actor. Marlee, I think this is a question for you specifically, honestly, and Jack perhaps, but how can you as a director, encourage writers who know nothing about the community of people with specific or general disabilities, particularly in this case, DeafBlindness, how do we better really prepare them  for authentic representation of people without minimizing their experience.  

[Marlee]: This is Jack interpreting from Marlee. Thank you for that question. I think it's important to approach the subject because, having been in the industry for 35 years, I have had the opportunity to see so many perspectives and variety of responses  of how people need to understand or look at the Deaf and Disabled community. People who have absolutely no clue. People who may not understand that there's Deaf culture, that there's DeafBlind culture, and that there is a disabled community out there at the same time, they are eager to make films about us. However, the first thing I always say to them, if I'm approached, they'll say, I want to make a movie about you. And the first thing I'll ask is what do    about my culture? That's the first thing I'll ask, at the same time, you would hope that that person, whether you were talking about a filmmaker or screenwriter or an actor, would have had the chance to do their homework, would have had a chance to collaborate with people who represent the community authentically or organizations. for example, in this case, the Helen Keller Center, that's why I'm always thrilled, for example, and to have heard the story with Doug telling us that he reached out to you, Sue, because that's the best decision he could have made, is to start at square one. And I mean, how can he have made a film and while casting authentically a character, telling a story authentically without having collaborated with Helen Keller Center, you couldn't have told the story more authentically. So that's fortunate that he did that for the first step, in terms of my experience in Hollywood. It has been a wild ride and an interesting one at the same time . A lot of positives and some negatives. And yet I plowed through and learned as I was going along. And I learned, and I communicated and I learned, and I worked and I learned, and I struggled.  

[Marlee]: And one good example is when I did Children of a Lesser God  which, I received the Oscar for, I was extremely grateful for the opportunity and can say that it was well deserved. And it was a performance that should have been recognized because it was authentically played 30 years ago. And they cast me authentically 30 years ago. Paramount did that, but the irony is, is that the next day, and reading some of the comments, two well-known critics, one said, well, it was Rex Reed. Actually I can say his name,  said Marlee Matlin, she won out of pity. She got a pity vote. And at the same time, she's a Deaf woman playing a Deaf character. So how is that considered acting? What is authenticity about  

[Jack]: It was not within, I mean, it wasn't even within his Periscope, he didn't see anything, and we can see how much things have changed since then. And now we're talking about collaboration, we're talking about greater attention to people who are Disabled or Deaf. We're talking about working with the community, but the key word here is collaboration and that's what's happening today and authenticity. Oh, and another thing a reviewer said that  it was New York Magazine said that as a Deaf actress, I would never work again in Hollywood. And I think I've proved them wrong.  

[Sue]: Yet, I'm still working.  

[Lauren]: Thank you, exactly. So in terms of Children of a Lesser God, and being authentic as that character, and that playwright was written by Mark Medoff and he was an outsider, he immersed himself in that community, in that culture.  

[Marlee]: This is Jack speaking for Marlee, yes. I have to interrupt because he was good friends with Phyllis Frelich who was cast and he cast his friend. He wrote the play for her.  

[Lauren]: Yes. And thank you for mentioning that and pointing it out. So yes, Mark immersed himself in the community. And again, analogous with Doug, Marlee spoke of doing your homework. And I think that really includes research and finding resources and organizations, and also really immersing yourself in that community. So, Doug, did you do that and what has that experience been like for you and what have you learned?  

[Doug]: Yeah, immersion was key to this process and it's actually such a great word to use because it was really about, again, one of the great things about partnering with Helen Keller Services and Helen Keller National Center is, I had direct access to not just a lot of people in the community, but a lot of people who also worked alongside the community. So that meant flying from LA to New York, specifically Long Island in Port Washington, where the Helen Keller National Center is based quite often to go up there, to meet with lots of students there who were DeafBlind, to meet with some of the staff there who are DeafBlind to meet with a lot of the instructors there who work with the community day in and day out to sit in on just other happenings up there and observe. And that was absolutely key because there's nothing that can replace actually interacting with connecting with, and building meaningful relationships with the community. I think that's key too, because in this case, and again, it was so fortunate that we all hit it off. So well, I mean,    Sue is someone that I still talk to on a weekly basis. Sometimes multiple times a day. I try not to bother her too much. She's very busy, but  really forming meaningful relationships with Sue and many people in the DeafBlind community. And getting to know them as friends. I think that was huge because there was such a long period of time between connecting with Sue and actually shooting the film that I had an opportunity to really make friends with people in the community. Chris Woodfill who's the Associate Executive Director at Helen Keller National Center who really was the driving force in helping cast Robert.  

[Doug]: He's DeafBlind as well, and he was someone that I spoke with on a very regular basis as well, and became friends with him before we even shot the film. So ultimately I think,    as a storyteller, my job is to really from a heart space, not a head space from a heart and spirit space, understand the story I'm telling him and the people that make up that story and do that justice. And that was that was most beautifully facilitated by actually making heartfelt connections with individuals in the community. So the immersion was absolutely key and I wouldn't have wanted to do it at any other way. And I'm so glad for the collaboration with Helen Keller Services, to be able to actually have the access and opportunities to be able to have that immersion.  

[Lauren]: And so far we've talked about collaboration between the director and the organization HKNC being the organization. And now I'm wondering in terms of collaboration between the director and the actor or actors in this film, Robert and Steven, your chemistry on film, was so real. Throughout the film, and I think it really speaks to that access intimacy that I spoke of earlier, because it's so evident. Your characters just instantly connected to some degree, but then built upon that. So I'm wondering like behind the scenes, as actors starting, with both Robert and Steven, how did the two of you connect? How did you work together?  

[Steven]: Yes, Doug, he brought me with him to Helen Keller and soon as I met Robert, Robert was so enthusiastic and just this amazing guy and meeting him, it was just inspiring meeting him, and knowing all the things that he does offset, it was just like, wow.  

[Steven]: Cause I had these preconceived notions about the Blind and Deaf community, and then us clicking together, like offset. It was like, that was the most important part for me.    During our breaks,    we sat together, ate together, even when it was times, it was kind of chaotic around us, and, I could see sometimes like  the frustration sometimes that could  that I saw what Robert was going through onset sometimes. I remember it was one time he was on set and it was like really cold. And Robert was like, we could still do this. Like, those were like moments that was like, yo, if he could do this, I could do this. It would just like bonded and thank full for the interpreters as well as Ilissa, Angela and Erin, and more as well. They were the ones I actually, like, I was learning as I go, how we should work together. And ways to go about it on set and offset, but  even without them around, I think we just always had the chemistry from since we first met. And I think that's why it showed on screen.  

[Lauren]: And Robert, do you want to add?  

[Robert]: This is a Robert speaking. I remember when we first got into the room together  and we actually started doing print on  palm and writing back and forth. And that was our very first introduction and meeting where we just naturally started communicating on our own. And we had that natural, just, connection that we had, there was some explaining of how to work with one another, but really I have to say our relationship working together was just perfect. I don't know any other way to describe it, but it was just a beautiful connection that we had naturally. And I remember watching it on screen for the first time and seeing how it came across on screen. And I was so impressed by that. And    what I loved about it the most is that we were able to show the world it doesn't matter if you have a disability or not, hearing, DeafBlind, you can still have that connection and that friendship.  

[Steven]: That was well said. Exactly, I mean, when you think about this, you and Steven are different and Steven's an experienced actor. You are a first time actor,  

[Lauren]: right? This is your first experience.  

[Robert]: Yes, it is. I had never acted before. When I was in school, I did  participate in the drama club and I was involved in some theater then, but for a movie and really acting, Feeling Through was the first time ever that I was able to make my dreams come true. And I remember it sitting there being like, Oh my it's me on the screen, that's me. This is real. This really has happened. And I just can't believe I've made it and how amazing this film came out and how inspiring it is and that we can show the world that we all are equals.  

[Lauren]: Yes, it's really important when you talk about that. When I had my relationship with my director, Kenny Leon, when we were doing Children of a Lesser God, I really did rely on that trust and that collaboration and that process, that I had to trust him as the director. So I'm wondering for you, Robert, did you have that kind of relationship with Doug? Did that happen easily, to take his direction in terms of what you needed to do as an actor, again, not knowing your experiences?  

[Robert]: Of course yet from the start, when it first opened, when I first met Doug, we figured out our own way to communicate. Of course, in the very beginning, there were some awkward moments, but there was a learning curve that we've just learned together. And then when it came to acting and him giving me feedback, really, it was just a beautiful relationship.  

[Robert]: And we had a great working relationship and it was just so inspiring and, really being able to open up the door and show the world that DeafBlind actors do have skills and we can do it. And having Doug given me this opportunity, it was just everything about it was amazing.  

[Lauren]: So admittedly, when I first watched the film, when I was watching, Feeling Through, I thought a little bit, I was like, I hope this is not going to be another film about an able-bodied person, helping a person with a disability, because I'm just tired of seeing that. But I was so amazed and thrilled to see this was more about the dance of helping each other, of two individuals helping one another and how they really went through that process together. And I think we do need to see that today. Marlee?  

[Marlee]: And this is Jack speaking from Marlee. That's exactly how I felt. I've been on the lookout for stories, films, screenplays, whether they had Deaf or Disabled characters or DeafBlind characters. But more importantly was, as you said, I wanted the stories. It didn't delve into heavy exposition. I wanted to find that the person, the character, whether we're talking about Deaf or Disabled person, is the means to which you tell the story and you don't instead have to go on an extended monologue. When I was five years old, I did this and I did that and I did this and I did that. And I became Deaf. When you have a character, a diverse character like this, they embodied the exposition. That's why I love documentaries because you see a real story. You don't have to tell in words about what's going on here. And the same thing is when it does, when you're talking about feature films, we need to be able to create characters that tell you the story. We don't have to dwell on dialogue or monologues, or talk about how did I become disabled because that's not the story. That's just words and  

[Marlee]: actors who are deaf, perhaps in the background. It's a great thing, but I think I'd like to be able to see films where Deaf, DeafBlind, People with disabilities come to the forefront of a film. I think it's time for that. I know that Jack would love to be able to talk about this when it comes to stories.  

[Jack]: I'm going to speak, I can sign, but I don't want to confuse this screen with too many signers. I've worked with Marlee for 30, 35 years, looking for stories, looking for projects that suit one of those desires, you just said to tell stories authentically. And a lot of times we're offered  films where it may be. And at one time it was the case that Marlee played characters that were about the struggle about being Deaf and having to explain where it was and why she got to that point. But I think as we've all evolved, we are now seeking out stories that  tell are told authentically. That's why we always look for real stories. That's why Marlee and I are working on several other stories that have to do with real characters that happened to be deaf. But we also like to find ways to incorporate characters who happen to be Deaf or Disabled into stories that are just told generally either become on a greater level, more interesting because the characters definitely example Marlee and the West Wing, meeting with Aaron Sorkin,  he just decided, and they clicked, as you said, the word that you used  this access intimacy, I start right away between the two of them. And the next thing you know, in a day, he had a story where Marlee plays a polester and no one would ever think of that, but because they connected somehow.  

[Jack]: And when you see that polester you're walking on the screen, you think, Oh gosh, she's Deaf. And there's a whole story you create in your mind, but she doesn't have to talk about just let it be, just let it play out. And that's, what's so great about this film too, is that you see the story play out naturally, realistically, but there is a heart to this story at the same time. It's because they used authentic representations and they told a good story. And I always say at the end of the day, it's a great story that you can tell it, put in the elements into it, and you have even a better story.  

[Marlee]: This is Jack speaking for Marlee, and that's why Feeling Through works. That's why it works. Absolutely works from beginning to end all the way. And thank you, Doug. And thank you to everyone who was involved in this beautiful production of Feeling Through. I mean, we need more of a films like this. We need to be able to see more screen representations like this. Thank you for that.  

[Lauren]: Yep. Yes. Thank you Marlee for that. I really do want to shift back to Steven and when you talk about this story, it was created by a hearing white man, here you are Steven, a black man. How do you feel about your representation within the story? Do you feel that you were your authentic self?  

[Steven]: I did. I did. I felt like what Tareek was going through, it was universal. And I feel like representation like that is important to get authentic representation because there are young people that need to see themselves in every shape and form. And I feel like that's very important how Hollywood continues to cast and get that representation in films. So yeah, I did feel like myself, that wasn't actually the first time that I played a role that wasn't written for a black male. I actually played a role one time for this guy, his name was Gavin O'Connor and  he was a kid from Boston. So I things like that I feel like it's as universal and important to be told authentically.  

[Jack]: Lauren?  

[Lauren]: Sure, Jack.  

[Jack]:   When looking out for projects for Marlee, it's important to realize that in Hollywood, the number of Deaf and Disabled writers directors, producers is about this actively working in front the camera. So when telling stories obviously, I don't have a lot of choices, but at the same time and Marlee will back me up on this is that we are more and more encouraging participation  to encourage  writers who are Deaf, to encourage the opportunity for people who want to be directors to,    work with a hearing director. And the movie that Marlee just did, CODA. They extensively incorporated  what are called DASLs, Deaf Artistic  Sign Language advisers , community members, the same as you did here with Helen Keller in  telling a story that Marlee is doing a true story of a person in history, we are now using a Deaf writer out of England  to create the script. Another story we just told a couple of days ago to Marlee's producer on Quantico, sing a Deaf writer who worked on the show. So it's always important to understand, it would be great if we could have a Deaf director or Disabled director, it would be great if we could have a Deaf writer, it would be great. If we could have a Deaf crew at the same time, we have to deal with the reality. So the best way to deal with that is collaboration, as this is, this is all about. And when we finally get to the point that there is equal representation by directors, by writers, but on all levels then great. But for now it's about collaboration. And I think sometimes that criticism is misplaced.  

[Jack]: when they say, well, you don't have a Deaf director, you don't have a Deaf writer. Well, we're trying the best we can. There are people who want to be in those positions. We'll incorporate them into our productions and we'll move forward together, collaborating just like they did on Feeling Through, just like they did on CODA, just like you doing on whatever it is. But the old days of somebody who just goes, Oh, I want to write a story about somebody who's deaf. Oh, blah, blah, blah, blah. Here it is. Let's film it. Oh yeah. There's a couple of actors out there who are deaf. No, that might've been true, whatever back then. But now it's all about collaborating.  

[Steven]: And Feeling Through shows that it works.  

[Lauren]: Oh yes, it does. Collaboration is really  an easily solved problem. If you do your research, if you do your homework, if you immerse yourself and just a little bit of changing your framework, your mindset. So my experience in the industry,    when you talk to those creatives, be aware because they need to think about what they need to do and what support they need. But often they forget about their role in this process, the directors, the writers often forget that they do need support and resources as well. So often when I think about myself as an actor, the burden is on myself to educate them about an advocate for. It's exhausting, honestly, as an actor to do that in addition to acting. So when you bring that back to Doug now, what kind of resources and when I that specifically people or roles  that benefited you as the director throughout making this film?  

[Doug]: Well, yeah, I mean, again, the resources really specifically were coming up to Helen Keller National Center, meeting with the different departments there. I met with the mobility department to learn about  how people who are DeafBlind, different ways in which they navigate the world. In addition to talking to the community about that. I obviously met with and got to know the interpreting team so that I could do everything that I could as someone who does not yet is not yet proficient in ASL to communicate in the best way I could to help facilitate the best communication. But I want to also address in both collaborating with Robert and Steven and on to Steven, what you were just saying too, something that's really important is, I don't treat what I've written as the gospel. We will be on set having a conversation and I'll encourage Steven to make changes that he feels might fit that moment as well. So it's something to where I have a healthy regard for what I don't know, or what is not my experience. And that's where part of the collaboration comes in is, when you cast the right actors and hire the right people, part of that, is it being people that you can trust as collaborators and whose opinions and thoughts and feelings about something that you want to be a part of the finished product. So there were a lot of times with Steven where we would have side conversations and he would be giving his thoughts on things. And there's certain parts of the film, particularly the first couple minutes of it that were heavily improvised as well, all the scenes with him and his friends where it was more just about me cultivating an atmosphere for them to kind of hang out in, and also like obviously giving them indications about who each one of their characters were specifically. But I love that aspect too. I think as someone who has in myself was an acting background as well, and, the actors on this panel can probably attest to this. I think it's really frustrating when a director treats an actor like a puppet and is like, basically feeling like they're just pull ing the strings and telling them exactly, and,    that's the last thing I want to do. For me, it's like, Hey, look, we have this blueprint, but how can we come together to make it better? And how can you bring in what you know better than me to make the total product, the finished product better than the sum of its parts. So that's really integral into how I work and collaborate as a director.  

[Jack]: This is Jack speaking. The opposite of collaboration is fear. And so much of the business that I've seen as a result of working with Marlee is about people who were afraid, either about they're afraid of money, or they're afraid of success or whatever, or they're afraid of just change. And when you get to a set and they say, this is the gospel, as you just described, this is it no collaboration, especially when you're talking with people who are diverse, they don't consult. And now I'm speaking for Marlee.  

[Marlee]: They think accessibility costs money and, lights, cost money.  

[Jack]: Makeup costs money, costumes cost money, disability, deafness, diversity, collaboration is just part of the equation too. And these people with these old mindsets, oh sorry for signing, these people with these old mindsets have to get rid of them. And we're fortunate to have people like Doug. We're fortunate to have so many people out there wanting to make movies who are not afraid and who are willing to collaborate. If the person is themselves not making the film and let's let's work together, that's all it is. And now Jack speaking for Marlee.  

[Marlee]: And for providing voices for ourselves, for us, we have voices. And if we all work together, and everybody has their own voice, and we all need to respect each other's voice.  

[Lauren]: Exactly. Robert, I have a question for you, and I'm going back to working with Doug as your director. My understanding is that you are not completely blind, but your character is fully blind. How was that experience for you? And how did you come to terms with, okay, I'm going to portray a completely blind person and how did Doug support you?  

[Robert]: This is Robert speaking. Well, definitely talked about it. That character Artie was fully blind, and I'm legally blind and low vision, but I'm not fully blind yet. So Doug and I have really consulted about this. And we talked about little nuances of, I understand where the cameras are going to be. Again, I can't see them from my sides, but we talked about the setup on what when we were filming it itself. But I have to say reflecting on it. It was such a great experience for myself. It was a great weekend overall. And just putting myself in artists shoes, really feeling what it would be like to be fully blind and DeafBlind. I am DeafBlind, I'm deaf and legally blind, but it was a great experience for me. And that it was nice to kind of put myself in that person's shoes. But Doug and I really talked about it a lot about how I would act out this role to make sure I represented that character very well, but I have to say the end product really came out beautiful.  

[Robert]: It's interesting, and when you think about what I really want to point out for today, for people who are listening and watching what Robert's saying, really, I think he just exemplified that the DeafBlind community is not homogeneous. It's, it's really heterogeneous. There aren't one type of DeafBlind person. There isn't one type of hearing loss that people have a variety  of vision and hearing loss, even myself as a deaf person, I'm completely sighted. And our experiences are very different. So when we watch the film, I found myself inspired and crying and thinking about all of these emotions at the same time about,    how does it feel for a DeafBlind person to watch this as an audience member? So I'm wondering how definitely people have responded to you and the film. I think the DeafBlind community and blind individuals who wanted to see the movie finally have access. We provide it through tactile interpreters, or you have individuals that have low vision or maybe tunnel vision that sit further back. And so they, a lot of times, right now, this industry is geared towards hearing sighted individuals, but in the real world, there's a diverse world out there. It's not just a world of hearing sighted people. There's so many other people that are there that want to be able to enjoy the exact same things. And so I don't know why at times that we feel a little bit segregated, but we should all just be grouped together, work together, understand one another. And it's interesting that there are so many people that may have never met another DeafBlind person before or a deaf person before. But if you do encounter somebody, go up to them, try and communicate with them. You will find that they're more than their disability. You will be inspired by them. And I hope that this movie really does that. It really will inspire people and kind of make people realize that we're all human first and foremost, and that we all can do the same things. We are all equal, just because we may have other challenges. We still can do it. We can succeed.  

[Steven]: Yeah, if I could piggyback on that, I just find it like I do kind of find it weird that people that are creative,    how could you not find a way to communicate and break past those barriers?    You know what I mean? Like when we were on set, we found ways, how we, when it's action I tap Robert on the shoulder, things like that, like it's ways to get creative. Like, so how could you be someone who calls himself, like, I'm creative and you're not able to like, see passed those things. It's just weird to me in a way that people could think that way.  

[Jack]: And this is Jack speaking for Marlee.  

[Marlee]: That's why it's important to ask questions, ask questions. It's as simple as that.  

[Robert]: And that's why I was so happy to see this and to see the supporting film, the documentary, Connecting the Dots, because that shows the story behind the scenes. And I really felt that was really proof and inspiring and even more impactful. In addition to the film.  

[Steven]: I connected more with Robert, then I connected with a lot of actors.  

[Lauren]: Really through all of you, I know that you're aware, when we've had this discussion about why this film, Oh, I miss something. I'm sorry, Steven, can you say that one more time?  

[Steven]: I was able to connect with Robert better than I connected with a lot of the actors on different sets,    so it works.  

[Robert]: Thank you. We were a great team and we understood each other. And again, we we had positive attitudes going to an awesome team.  

[Lauren]: I'm really fascinated about this. And what's really fascinating about this story is the importance of touch, human connection, legitimately. Robert?  

[Robert]: And this is Robert speaking,    I really just wish that we had more of an understanding of the world, and really that the hearing world understood that deaf and DeafBlind world, instead of just being like, Oh, they can't do this. Or they can't do that. Or, no, welcome us into your world. You know, we have brothers and sisters in children that are also hearing or deaf, DeafBlind.  

[Steven]: Yes, and I was,  

[Lauren]: You mentioned that when you think about the language, I didn't think about that in the movie, I didn't think about of that in terms of the story about how you were communicating through touch and tapping. Interestingly  was that part of the story? I mean, the touch that you talked about, how did you set that up? That you had mentioned Steven?  

[Steven]: Yeah. It was just  a whole collaborative idea. You know what I mean? Everyone was just saying, like, we just figured out ways, like how to go about it. I threw an idea. It was all like, Oh yeah. I let them know, on this shoulder, it's cut. Or like, you know what I mean? It was ways to communicate, and we definitely like communicated on so many levels. It was a beautiful experience for myself. Cause like, I was learning as I was going, coming in. I used to think about that. I never met anyone who was deaf and blind before. So I did, I was a bit ignorant to how, what is the life for it for someone who's deaf and blind. And that's why, so when I met Robert, it was inspiring me. And then it just knocked all that ignorant nonsense out of the park. So it was a learning experience for me. And and I'm thankful for that, and I thank Robert for that as well and the Helen Keller entire community.  

[Lauren]: Great. Okay, so I know we're running out of time and I would like to start the wrap up by asking a question for each person. What kind of advice do you have for people who have a position similar to yourself? When we look at Steven as an actor, what kind of advice do you have for other actors who maybe find themselves in a role opposite of person,    someone who is DeafBlind or somebody who's deaf or somebody with another disability, what kind of advice do you have for them specifically, Steven?  

[Steven]: Don't be afraid to take that leap. As an actor you want to grow, you want to learn. And that's, I mean, that's the reason why I became an actor, is to tell these these stories and learn from these stories. You know what I mean? Sometimes you, as an actor, you'll get a role that might even feel uncomfortable that you have to play for yourself. You know what I mean? But it's like, you never know where you'll get out of that when you break past those, those like doubts that you could pit in your head as an actor. So it's just take that leap In general. Just take a leap.  

[Lauren]: Great. Be brave. Robert, what advice do you have for other DeafBlind doctors?  

[Robert]: This is Robert speaking. My advice would be, don't be afraid. Be open to communication and opening up that relationship. There's a whole other world out there develop that relationship. Communication comes naturally. It doesn't matter if somebody is deaf, blind, DeafBlind, or has a disability or anything like that. And even if you're acting, just be open to it, you can find a way to communicate with one another. You don't need to know the other person's language. You will find a way to naturally connect.  

[Lauren]: Yes, exactly. We all have our place in this world and our place has storytellers and in our work as actors and we need to carry those stories forward. It's so important. Thank you, Jack? Do you have any advice for someone who works as an advocate and, part of the community?  

[Jack]: I'm going to defer to my boss to Marlee because I think she says it much better than I can still say it at the same time, but I'm speaking for Marlee. It's the advice she always gives people is just believe in yourself  because when you're not truthful with yourself, the other person will see that. You can tell like when you act, when you talk to little kids and for example, when you watch a child meet somebody who is in a wheelchair  the kid will say, why are you in that chair? Why does your chair have wheels? And you don't, a lot of people will just say  they won't establish eye contact or they'll just be afraid. It's a fear thing. It's a fear thing. And if you want to talk about what a person should do, when working with somebody who is deaf at the table, just be yourself, communicate, look me in the eye, just be open, be open, just be open. It's a simple thing. It's really simple. It's not, it's not brain science or whatever.  

[Lauren]: Marlee what I want to go ahead and reinforce that. Be brave concept, be honest. This industry, I think it's critical to do so. Marlee, so as somebody with us being a seasoned performer writer, executive producer, what advice do you have to other Executive Producers who may not have exposure or experience to working with people who are deaf or have other disabilities?  

[Marlee]: This is Jack interpreting for Marlee. That's a very good question. As an Executive Producer, working with     a person who is not deaf. I think it's important to tell the person who's not deaf is to listen, to trust, to collaborate clearly. These are things we've already discussed today. When I get a script, for example, and I have an opportunity to read it, the first thing I'll do is I'll read it straight through and then I'll consult my gut, my instinct, and say to myself, is this something I want to do? Is this right? Is this something I want to act in? Is it something I want to produce? But I think again, it's all about listening to yourself and moving on a path where you can tell the story truthfully, where you can express it on the screen authentically and you can't just say, okay, fine. I'll do this. Okay, fine. I'll do that. If you have to put a little bit of thought into it and you can't take the words in the page for granted. It's very important to look at the story that's being told to see if it's being told authentically. And  I mean, it's about the whole package. It's about the whole package. And if you feel you can deliver it and you can do it in the best way possible, then go forward with it, don't just do it for the heck of it.  

[Lauren]: Thank you, Sue, as the CEO of HKNC, what advice do you have for other organizations, if a request comes in for them to support a project similar to this, what would you advise them to do?  

[Sue]: This is Sue. I would say, go for it. I think that there is such an opportunity that would be missed and  engage everyone across the organization to be a part of this exciting adventure  be as inclusive as possible, provide the resources, whatever you can do to support it. For us,    being outside our world, it actually engaged us in a way that it changed us. It really did. And it made our world bigger. Really. This is amazing to be here with all of you in this field right now, but to have Robert succeed  and just paved the way as the first DeafBlind actor, and to be a part of this exciting creative work that  Doug has completed, if you're lucky enough to have someone like Doug  to collaborate with don't think twice, just, just go for it.  

[Lauren]: Thank you. And Doug, you make it seem effortless. And that is not often the case for many people. So what kind of advice do you have for people who have an idea or a concept, or don't know what to do next? What can they do?  

[Doug]: First? I'd like to start by saying, I second everything that's been said already, because there's been such great specific wisdom shared. And one thing I'd just like to add to it is the topic of trust has been brought up trust and fear. Jack, I know you mentioned that, and Marlee had mentioned that  and really everyone across the board, and I think first and foremost, be someone who is worthy of someone's trust. So I think the work starts with ourselves. You can't have any meaningful collaboration if you're not someone who lives their life in a way where you are worthy of someone else's time and trust and collaboration. So for me, it started with, I honor what I'm asking for from an organization like Helen Keller Services from an actor like Robert and an actor like Steven, can I show up and be the person who's worthy of their time and their trust? And I think that comes down to that's in everything we do, but as a storyteller, I need to also trust this story. I want to tell because believe it or not, there's a lot of people who weren't really into the idea of Feeling Through before it was made, but I believed in it and I trusted myself and I trusted that I would seek out the people who I needed to make this with, to do it right. And so that's the advice, I know one of the things I love about Slamdance, as one of your Slamdance sayings is that it's a festival by filmmakers for filmmakers. Speaking directly to filmmakers, I would say, there's so much outside pressure to tell certain stories and certain ways and adhere to like what the industry is doing so other people will want to finance what you're doing or be into what you're doing. And  I'm not saying that stuff isn't important, but really, it takes so much time and energy and investment. What are we really doing if we're not fighting for the stories that we know need to be told, and that we really want to tell. So for me, it comes down to like first and foremost, being someone living my life in a way that's worthy of other people's trust and fighting to tell the stories that I just feel in my gut and my heart needed to be told.  

[Lauren]: And with that, we are going to close today's panel and our discussion about Feeling Through, I want to thank each and every one of our panelists for your comments, your thoughts, and really your authenticity and strength. I'd like to give the floor now to Taylor. And thank you for that beautiful introduction. I'd like to thank Slamdance for hosting this panel. And for anyone that hasn't yet seen Feeling Through and the supporting documentary, Connecting the Dots, I suggest that you do. Have a great day everyone.  

[Taylor]: Hey, thank you so much. That was, yeah that was incredible. And just being,      in this discussion and being able to  be present and learn. To continue to learn about other communities and to really, place our intention in a way that is pure. And it's really from a standpoint of wanting to grow from it. And I think that that's such an important  decision that has to be made from each person on your own authenticity and what you're bringing to it. I just want to say that I'm so proud and I'm glad that that Feeling Through and Slamdance hooked up and I think it's a great collaboration and I think it's a great example that  while I feel like this should have been done a long time ago  in terms of festivals, having something like this, like Unstoppable,  we have it now and I expect other film festivals to step up their game. I mean, we have to live in reality. We have to make this accessible n so many levels and, the collaboration between a filmmaker and a festival is a very unique one, but having said that  it's also every type of filmmaker and every type of film. And the ones that are misrepresented. You have to step forward and say, you know what, I've got your back and I'm going to do everything that I can in my power to hold a mirror up to the misrepresentations and the gaps. And I feel like so often in film festivals, particularly, in this last year more than any,  I think that we can learn from, if you go into something and you're  you're looking only at it from a competitive edge, you can't collaborate. If your ego is in the way you have to come from a point of really realizing your full potential from wanting to grow and wanting to learn. And  I think that's, I mean, I know that's what we're doing, and I'm just grateful that we're able to do it together. So thank you all so much. And  yeah, thank you for being a part of Slamdance Unstoppable. 

Tim Gray of Variety hosts 'Feeling Through' panel

[Tim]: Hi, I'm Tim Gray. Awards Editor at Variety. I'm in my Sixties. I have thin gray hair, wearing glasses, blue shirt, and I'm very honored to be here talking about Feeling Through. Which I think is a really good film. I also think it's an important film, and, I'm really honored to be talking with this group of people. So, but also I want to remind people that this has an Oscar nomination, which is a major feat and a well-deserved. But also, it's had, what'd you say, Doug? You're nearly 3 million viewers on YouTube.  

[Doug]: That's correct.  

[Tim]: Which is another astonishing achievement. So, that's Doug Roland, the writer-director. And the first question is for you, because I think this film was based on a real experience of yours. Yeah?  

[Doug]: That's correct. Tim, thanks so much for leading the conversation today. And, before I start. My image description is I am a white male in my thirties. I have short dark hair, a little bit of a beard, and I'm wearing a blue button up shirt with a clean white background. And yeah, this was, you know, this is one of those stories that I say that I was gifted with. It was inspired by an encounter I had 10 years ago. And, though the film is fictionalized account. Like it's not meant to be a one-to-one at that. A lot of the central story beats of how these two characters interact were directly inspired by my real experience. Similar to as you see in the film, I encountered a man. In this case in real life, his name was Artemio. Artie is a clear nod to that. But just like in the film, Artemio was standing on a street corner by himself holding the exact sign that you see in the film saying, stating that he's deaf and blind and needs help crossing the street. And again, similarly to what happens in the film. I tapped him, he wrote to me in a notepad, a bus stop he needed. I took him there. A bus wasn't coming for a really long time. And I just, I wanted to let him know I'd sit and wait with him. And I, fortunately I had the instinct to take his palm and start tracing one letter at a time on it because I did not know any other way to communicate with him. And he understood what I was writing to him. And we ended up having a long hour-plus conversation that way me writing in his palm, him writing back in a notepad. And it was such a beautiful, memorable moment for so many reasons, you know. Not just meeting the first DeafBlind person I'd ever met, but also this very unique and intimate way to communicate with someone that I had just met. That was so personal. And obviously the communication through touch has that much more relevance during a pandemic where we can't touch each other. And then lastly, the fact that this man, Artemio was such a light of a human being. That he was so charismatic, and so warm, and so confident. That he just really stuck with me and we'd really formed her a beautiful connection that evening. And it would be many years later that it would turn into a film, but that was the real life inspiration behind it.  

[Tim]: When you decided to make the film. Did it occur to you to not cast a DeafBlind person to say, well, maybe it'd be easier if I have a sighted-hearing actor?  

[Doug]: You know, that's a great question. And I, now three-plus years into this experience of making this film. I know so much more about authentic representation and authentic casting. Largely, as a result of my collaboration with Marlee, our EP. And many other conversations I've been a part of, but at the time it was honestly an instinct for me. When I decided to make the film three years ago, which mind you was about six years after I'd written it. It just lived on my computer for about six years, before I had the feeling that it was the right timing. I literally just googled DeafBlind organization. I called the first number. Started talking to this man that picked up on the other end and just started telling him about my encounter. And on the spot I said to him, "I feel like I want to cast a DeafBlind actor. Is that crazy?" Because at the time I'd still only met our Artemio. And he said, "no, that's not crazy at all. You shouldn't reach out to the Helen Keller National Center." Which led to this now three-plus year partnership with them to make the film and exhibit it as these fully accessible screening events.  

[Tim]: Well, what I hope to do today. Talk about the actual production of the film, and then open it up to the kind of bigger questions about authentic representation, and give people some lessons that we can learn. But before we get into even the production. I want to ask Marlee Matlin. You are a great actress and I don't say that lightly. You've had a great career. You're also a tireless activist and you're a very kind person. So I'm guessing you get hit up a lot from projects that want you to be a part of them. But what was it about this project when you signed on that? Cause I think you signed in after the film was completed, but what was it where you just thought, "I really want to be part of this."  

[Marlee]: Thank you, Tim. Thank you for that lovely introduction. By the way, I want to give an image description. I'm a white woman in my fifties with long blondish brown hair. I have a lot of objects in the background. I have flowers, yellow flowers, and some family momentos and photographs. Tim, thank you for hopping on board and I consider you as a friend, and I'm a big fan of yours as well. When I was approached by Doug to look at the film Feeling Through, that was back in December. And it was actually during Hanukkah and Jack came over to the house. And he said we had just got approached and we got a call from Doug Roland, who directed and wrote this film or the short film. And we should take a look at it. So we sat down and I typically don't find myself in situations where I can't take my eyes off the screen. I mean, it was 18 minutes of amazing, well put together, touching story, moving experience of storytelling that I've ever seen. I was just amazed and I asked Jack, "what is it that Doug is looking for? I mean, because this film has been produced. I don't know what I could do." And Jack said, "what we'd like to be able to do is to be part of the team to support, making as much noise about this film as possible as executive producers." To point out how this film  

[Marlee]: is one that we should all be talking about, in terms of inclusivity, authenticity, accessibility. It was just a no brainer for me after I saw the film. And at that moment, right there, it was important for me to be part of the team. So, I mean, it was an honor that he asked me and it was just a very simple story that became a phenomenon and it was eyeopening. And I've learned a great deal myself about the DeafBlind community as well.  

[Tim]: I think anyone who sees this film, learns a lot, but also you make a good point, which I think is worth repeating. It's notable because we cast a BlindDeaf actor. But it's also, it's just good filmmaking. I mean, it's like really, really well done. So give yourself a pat on the back. But now, but is this true that this is the first case of a BlindDeaf actor, acting in a film?  

[Doug]: Yeah, so, you know. We have definitely had a large, period of time to not just try to look into this, but also see what came to us. The only sources that I have learned of any instances of a DeafBlind actor in film and granted there are, some instances on stage, for sure. In fact, when I first googled this years ago. I learned of this theater troupe in Israel that had a number of actors with disabilities. And I believe at least one, if not more actors that were DeafBlind. I'm aware of another entity in the UK that does theater with people who are DeafBlind as far as on screen. The only mentions that I've seen thus far are apparently Helen Keller herself, made an appearance in a film about her life a number of years ago. And then I am aware of a DeafBlind filmmaker who is part of an ensemble cast in a short like six or so minute film that he made. So we usually at this point, qualify it by saying Robert's the first DeafBlind actor to have a starring role in a film. But really those are literally the only two, of any sort of, participation of people who are DeafBlind in film that I've heard over the course of, you know, three-plus years now.  

[Tim]: Yeah, I think it's true. And, you know, I want to say both of those actors. You give really great performances, but I want to ask both of you. Robert first. Did you audition for this? Had you acted before? How did you come to this project? And then Steven, I want to ask you the same question.  

[Robert]: This is Robert speaking. I was at work in the kitchen at Helen Keller and my boss, Dan had come over to me and called me over and he was on the phone and he motioned "that I'm on the phone". And he said, "they need you over in the other building." And I was like, "well, what's going on? Um, what did I do?" I had no idea why I was being called. I was like, "am I in trouble? Did I do something?" But nonetheless, collected myself, went over to the other building. Went into a meeting room and sorta just took a look around at all of these people. And I did not know what was going on, felt a little awkward, sat down. And then Doug explained what he was doing there. And I was shocked initially. And I was like, "seriously, you're making a movie?" And this is the first time a DeafBlind person is going to be in a film. So for me, I was really excited and the thought of doing this really got me going. So after that interview, I went back to work and just sort of thought about it all day long. And several days later, Doug came back and I got another summon. So I went back over and my boss was on the phone again. And I could see Dan shaking his head and I was trying to read his facial expression. And he said," Doug picked you." And I started just jumping for joy. I was so excited that I got selected. I could not believe it. Oh my God. Seriously? That's all my reaction was and that's how it all started.  

[Tim]: It's a great start. Steven?  

[Steven]: Thank you Tim, for facilitating this. On my image description. I'm a black male with a man bun and I have a black turtleneck on. Solid gray background. I was first introduced to the film from my manager. His name is Brandon. So he emailed me the script and I did a self-tape for it. And I remember, submitted a self-tape and then I got a call back. I heard. So I remember the callback was like, "finally, I'm able to audition in front of the director and casting director." So I remember going into the building, I actually saw Doug in the building, and I knew who he was because I like to look them up before auditioning for him. And I asked him, "well, where do I sign up", at him. He was like, "well, you just sign up over there." And then I remember just going into the audition. And we were like, kind of like mixing up, like who we're going to be the friends and all that stuff. It was pretty fun. And I just had no idea what I was walking into.  

[Tim]: Now I think you had, you had had that acting experience, but I'm guessing you had never acted with a DeafBlind actor before. So were you, nervous about this going in or, what was that like?  

[Steven]: Yeah, I mean, I'm always open to, like when it comes to this business and especially if you want to, be versatile and get into like any type of work. You just never know where you're going to get into. So I was like pretty open about, you know, the idea of this. And I had no idea I was going to be working alongside, an actual DeafBlind actor until I was booked for the role, and Doug told me. So yeah, and then the only thing I was just like, "are we going to meet each other before we get on set?" Like, those are like my main things. And that's just with anyone that I work with, I just feel like it's important to get to build some type of chemistry with that person before getting on set with them. And I was blessed to, had the opportunity to go to Helen Keller and meet with Robert. So, yeah, it's fun.  

[Tim]: And Robert, because this was your first time acting. What was the biggest surprise about acting for you about the process of it?  

[Robert]: Please forgive me. I forgot to give my image description. So I'm going to do so now. I'm wearing a blue t-shirt. I am a Hispanic male, American, white hair. I am deaf and legally blind. So. I think that the rehearsal at the Helen Keller National Center with Doug and Steven. That really helped prepare me. And that was sort of my crash course in acting and what to do, what to expect. Again, I know that Steven never had an experience with a DeafBlind person. So, you know, teaching him how to guide somebody or what those initial things are really helped set the stage for the foundation of what we were going to do. And I think that made everybody feel more comfortable to go and shoot the actual film. So I do think that that awkwardness in the beginning helps because it was a learning process for everybody. Including the interpreting and communications team, all of us to get on the same page for when we would actually shoot. So I would say that the preparation would definitely be needed and that helped a lot, make it as seamless as it was. So I think for me as a first time actor, listening to Doug's direction really helps make that come to fruition.  

[Tim]: Doug, how did you give direction?  

[Doug]: So, one of the necessities really of this experience was partnering with Helen Keller National Center, and working with the interpreting team that we had throughout this entire process. You know, Erin and Angela were a part of this conversation right now, are two interpreters that were a part of this, for now three years-plus, and having some other people on our team that were really, facilitated all the communication between Robert and I. And that was something that we, fortunately working with also the same interpreters that knew Robert already and got to know me well, really helped to make that communication even smoother, by the time we got to set. And you know, we'd also, I got to know Robert personally and got very clear with, his access needs. So that by the time we got to set, we were very, we had everything planned as far as how we were going to make it accessible. And that was a large part of pre-production for us.  

[Tim]: Well, now Marlee.  

[Marlee]: I'd like to add this if you don't mind following up with what Doug just said. Which is talking about accessibility on the set for actors who are deaf or disabled or DeafBlind. Whichever, individual you're working with. All these years having worked with actors like myself in Hollywood. I try to make people aware of the fact that production companies, studios. They need to understand how crucial it is and they need to pay attention to whatever it is an actor needs on a set in order to work successfully. And Doug did that. He got it. He reached out to organizations who are very aware of needs when it comes to accessibility and Helen Keller Services, Helen Keller National Center was the place that he went to. And you know, whether we're talking about a script, if you're doing a script that deals with a particular subject, and of course you reach out to an organization and you collaborate like you would any time. So the same thing happens with people who have particular needs as those who have disabilities are deaf or DeafBlind. I always say that interpreters for deaf actors are extremely crucial. A lot of times they think, "Oh, okay, God, there's a cost there. Or, oh gosh. There's gonna be more people on the set, or, oh gosh." I mean, they look at those issues of accessibility as an inconvenience, and it's not that. It's about making a good film. They're part of the crew. There are tools that you use to help make a film, run even more smoothly. And I think we need more Doug Rolands out there.  

[Tim]: I think we need more Doug Rolands for lot of reasons. But to go back to that again, one of the popular excuses for not hiring a disabled person is that it's going to be much more complicated on the set. It's going to be more expensive. It's going to delay things. And I think. I don't want to put words in your mouth, Doug or Marlee, but I think anybody who's worked with a disabled person knows that that's not true. And that the benefits far outweigh, any kind of minor shifts.  

[Marlee]: It really is. I mean, look. When I get to the set, the first day of shooting. The crew, typically, you know. Of course they know how it works. They know the procedure you have to go through on a set. All the things that they do, everybody knows what everyone's job is, what their role is. But when they see a deaf actor and an interpreter. They do at one point, they kind of look, "Oh, how is this? This works." Before, you know it though, everybody learns how to sign. Everyone knows how to communicate through an interpreter. They make it work. It takes maybe two days, max. It's just a simple process. I mean, you might have particular need that is a little bit extra, but everything went smoothly. I mean, wouldn't you agree Doug? Would you find the same thing that happened with you?  

[Doug]: Yeah, absolutely. And beyond that, you know, in something that we've talked a lot about, in previous conversations and you know. Tim, you were alluding to it in how you were setting up this question, but moreover, you know. What Robert, being a part of this experience brought to, you know, this whole project. What the experience, how it made it so much more of a really deeply meaningful experience to everyone else who was a part of this, because they understood that they were a part of something that was groundbreaking in its own right. And something that was necessary and having this kind of representation for a community that historically hasn't had any. Robert, just who he is as an individual, you know, is someone who lights up any room that he's in, just because of his spirit. And also ultimately the way that the authenticity, translates to the finished product. I mean, though that so far outweighs any kind of additional logistical thing that you had to plan in. Filmmaking as Marlee was saying. That is filmmaking. Filmmaking is, figuring out tons of logistics. Like that's just kind of par for the course. So, it's not something that should be intimidating to anyone who makes a film. I mean, there's things that are so much harder than figuring out the basic accommodations and accessibility for an individual. That it really shouldn't be very intimidating. And there's plenty of people, that if it's your first experience that can come on board as a consultant or walk you through it. And again, the payoff is so much bigger than whatever the, you know, quote unquote extra investment is that. To say that it's worth it is an understatement.  

[Marlee]: And Steven, I mean, look at Steven. I mean, having worked with a DeafBlind actor for the first time. Probably had a little bit of trepidation I'm sure, but it's the same for all of us when you're dealing with a new actor on the set. I mean, how wonderful it was, Steven ended up finding out, working with Robert, wouldn't you say so? I mean, because as an actor. When I work with another actor for the first time, we don't know each other, it's the same thing. I mean, we don't know if we're going to be compatible, but it's the same. It's, it works as it would be if you were working with any actor. Regardless of whether they were disabled, DeafBlind, or not.  

[Tim]: Great. I am going to ask Steven and Robert. Because, you know, again. It was an unusual experience for both of you. Robert is first time actor. Steven, first time working with a DeafBlind actor, but was there a moment in rehearsals or filming when the DeafBlind just went out the window and it was just two actors working on a scene and it's just, okay. Let's get past all that other stuff and just make it about the scene.  

[Steven]: Yeah. I mean, I could definitely say like. The moment when we were at the bus stop, was definitely all about the scene. And I remember the direction that Doug was giving. He was saying like, "you know, this is yours. You know, make it yours, you know what I mean? This is not for you to, you could take whatever you take from what I'm saying, but this is yours. So make it what you make it." And Robert and I just, at that bus stop. Like I remember even before that, I remember when we did the scene when we first met. I remember that scene. I remember actually rehearsing. So rehearsing and being on set, like Robert said. That whole trust that we gained for each other, you know, that was important. Those rehearsals that we had, those are important. And I think it's just important for any project that you step into to like, you know, rehearse and get those kinks out. So like when you're there on set, like you're just fully there and present and ready to go. It was, like that was definitely a moment where you weren't thinking about, you know, "Oh, you know, the assessability or anything like that everyone seems to talk about." You know, it was definitely a heart to heart thing that was going on. And I think that's one of the most important things to have when you're creating something this hard. You know, no shortcuts, just full heart in something.  

[Marlee]: And I think Steven is right. We're not saying to ignore or to look over the fact that somebody is deaf or blind, or you're dealing with somebody who is black or of a different race or anything together. We're just working together as human beings, as actors. And we look beyond, you know, whatever it is that may seem to be a barrier.  

[Tim]: I want to ask you, Robert about that scene, but Marlee in terms of heart and bringing heart to the scene. You know, there's a lot of people, and I know you've had experience with this. People with limited imagination, who would say what's a DeafBlind man playing a DeafBlind character. I mean, is that acting? And we all know that it is acting. But I wonder if you could talk about that for a minute about acting and about these performances?  

[Marlee]: Well, I mean. I'm happy to talk about. Listen, I'm glad you brought it up because it's an important point. There are two things that we have to focus on. One. You know, I recall that one time, Rex Reed, after I won the Academy Award said that I was a deaf person playing a deaf person. So how was that considered acting? I mean, he thought that my winning was a result of a pity vote because how could I have been acting and gotten the Oscar? And I mean, even New York Magazine said, "well, she's deaf. She's never going to work in Hollywood again because she doesn't speak." I mean, they chose to define me and they defined who I was as an actor. So they didn't see or acknowledge my ability, my skill as an actor. And I have dreams of being an actor. I had dreams ever since I was a young girl to be an actor. So I, thank goodness, you know. I had a person like Henry Winkler told me never to listen to these kinds of people. You go beyond it. At the same time, right now, with so much awareness of what's going on of the noise that we're making through social media channels. We need to be able to understand that people out there don't necessarily have the knowledge, whether we're talking about deaf or DeafBlind, or disabled people. They want to be actors. That's fine. We can collaborate. We can teach each other. We can help them. And I know that there are plenty of. Well, not some. There are plenty who don't think outside the box, as you just said, and what do we do? I mean, either you approach them and you educate them, or you develop your own project. You go ahead and make one of your own, whatever it is. If you're a writer, write. If you're an actor, act. If you're a lighting person, light. I mean, I keep saying that authenticity is so crucial these days in all, in all aspects of the entertainment business. That, a deaf person or a DeafBlind person or a disabled person, shouldn't be considered a costume that an able-bodied person puts on and then takes off. We are people, not costumes. And I feel like I've been talking about this for seven days a week, 365 days of the year. But if they listen great. If they don't fine. We'll find someone else who will listen to us.  

[Steven]: I think, if I could piggyback, I think like the best representation when it comes to it. It has nothing to do with race or anything at the end. Most of it is really culture, that's such a separate thing. Like culture is so important when it comes to like the authenticity of a performance. And you're always going to bring yourself, a part of you to each character. So culture is like something. I think it's important.  

[Tim]: I also want to ask Steven and Robert. Did you, because your character is obviously, they both have a background, a lot has happened to them before this film starts and a lot happens to them after the film ends. Did you two talk about your characters of the backstory with Doug? Did you do it in your mind or did you just think, "let's concentrate on the script and what we have here"?  

[Robert]: So one of the things that I added was, there was a point where it said that Artie was, that we added that Artie was on a date. And that's why he was standing on that corner at that moment. You know, we had to figure out why was he there? And that was just something that I did. So, you know, were we out dancing? Were we out doing whatever it is that we were doing? And so that was the backstory. That I was just coming from an evening that I had enjoyed myself and now meeting Steven, this was a sort of a new dance of communication. I was on my way home. So when you think, I'm standing at that street corner, really, what was I doing? My next move was thinking about this great time that I had with a girl.  

[Tim]: Yeah, it's great.  

[Robert]: I think the other thing that it really does promote is the independence of Artie as a DeafBlind person.  

[Steven]: Yeah, I can agree. It was definitely a new dance when Robert and I, compared to when I was with my friends, because when I was with my friends in the scenes. That was just like Tereek's moment of like, you know, some type of feeling normal. You know what I mean? Like not being homeless around that time. And then leaving from that scene in the whole new dance when I met Robert was just like, everything that I was boiled up before meeting Robert was just like, it was just a different type of feeling I should say. You know what I mean? Like if this man could be so brave. It's like, you know, I can be brave as well. You know what I mean? It is more words that I can put into it, that it is hard for me to put into words. But, definitely to answer your question. Yeah, I did separately talk with Doug about my character and who I related my character to was actually a kid named Norickson, who I had met, years prior to this film. He was a homeless kid, who I met in the street. Looking for something to eat or get some coffee. He like stopped me in the middle of the street at night. And I told him, you know, I ask him how old he was. He was actually younger than I was. And I told him, you could stay with me for the night. And, you know, we had a conversation and everything. So, his essence is something that I carried with me into this project.  

[Tim]: It worked, it works. Thanks. Doug, I want just a technical thing. In the film. Tereek takes Artie's hand and creates letters that spell out words. Is that based on real life?  

[Doug]: Yes. So that was directly inspired by the real life encounter I had. And again, I now know that that's referred to as print on palm. It's not as often used in the DeafBlind community. But it is a communication, mode of communication that is sometimes used. Particularly in my case where I'm someone who doesn't know. I don't know ASL and therefore I don't know how to do Tactile ASL, which is how some people who are DeafBlind communicate, which is ASL signed into the hand. Which I, again, I didn't know at the time. But it's how Artemio, in real life, the gentleman that I met, communicates. For me, it was just on the spot 10 years ago when I met Artemio. It was just something that kind of intuitively came to me. I'd never thought to do that before. It's nothing that had ever occurred to me, but just kind of been racking my brain as far as figuring out how I could communicate something to this man. Artemio beyond just a pat on the shoulder. It's just something that came to me in the moment, that I again, was not familiar with at the time, but have now learned about since then.  

[Tim]: Yeah. And once the film was completed, before COVID. "BC". In our years, BC. You had a Feeling Through experience where people would come. Tell us about that a little bit.  

[Doug]: You know, so very early in this process, you know, during what it was essentially our very lengthy preproduction period of about eight months. Which was not only getting things set up to make the film, but also just this longer timeline for me to really get to meaningfully connect with the DeafBlind community and learn about the community and make meaningful relationships with the community. I was talking with someone at one point, who had mentioned in passing. "You know. You know what would be great? If you did a documentary after this. I bet that would be really helpful in educating people more about the DeafBlind community. But the way I heard it was, "Hey, why don't I make a documentary right now also?" And that's when I, when the supporting documentary that ended up becoming what we call "Connecting the Dots". We started shooting that. So we were rolling cameras throughout a lot of preproduction. We had raw, you know, cameras in the room. The first time we met Robert. We actually, part of the documentary is following this year long process of trying to track down Artemio, who I'd met years prior. And we had cameras around when we reunited with him. So we, I came out of this with both Feeling Through, and this short complimentary doc. You know, a companion documentary, "Connecting the Dots". Which together constitute about 45 minutes. And now during this process too, and now also still, you know, to this day. I've met and connected with so many amazing people in the community that I thought would be really beneficial for other people to hear from and be able to connect with directly. And that's when this third part formed, which was this panel discussion and Q&A with the DeafBlind community. So what ended up, what we created was this thing, this event called "the Feeling Through Experience. Which was this 90 to 100 minute event that included both films and this panel discussion. And really, fortunately, we got to do 14 fully accessible in-person events "BC", "Before COVID". You know, what those looked like, we knew that before we ever submitted to a film festival or did anything within the film industry. It was really important for us to bring it directly to the community that was at the heart of this and the DeafBlind community. So we created this fully accessible screening event that would have as many as 50 interpreters and support staff and an individual screening. So we could provide one-to-one accessibility. We would take people's accessibility requests ahead of time. And then, we would make sure that everyone was accounted for. DeafBlind, blind, low vision, hard-of-hearing. It was this really, I mean, you know Tim. I'm sure you've seen a fair share of films in your day, but you'll have a paradigm shift of your understanding of what it means to experience a film. When you look out onto a full audience and, you know, anywhere from a quarter to a third or more of the audience is experiencing the film through Tactile ASL, through Visual ASL, through audio description, through really large open captions on the screen. And it just really was such a beautiful way to kind of understand, or understand deeper what it means to experience a film. And we had a lot of, we were able to get and do 14 of those and then did a bunch virtually after the pandemic hit. And it's been an amazing way to share the film. Share more awareness and understanding of the DeafBlind community, and also create a platform for a lot more people in the DeafBlind and disability community to talk about a lot of the themes that come up in the film or around the film. And it's been a real gift of an experience to be able to share with so many people.  

[Tim]: I have a two-part question for Robert. Now that the film's over, are you back at work at Helen Keller Center and in an era of COVID, because so much of your communication is based on touch, how complicated is that in the COVID era, or do you just have to have to not think about it?  

[Robert]: Well, when you think about "before COVID", "BC". Yes, I was working, but as a result of COVID, the kitchen is closed. There are no students on campus at the Helen Keller National Center. So no. I'm not working presently. So we don't have that ability to actually touch to communicate because the center's closed in that capacity. I'm hoping that I'll be able to get back to New York and then, you know, catch up with my friends. But I am here now and I'm spending time with my family in Phoenix, Arizona, outside of Phoenix in Glendale. And I do keep in touch with people distantly, you know, from a distance and we try and, you know, make preparations for trying to connect via Zoom. But yes, right now my position. I've been laid off because of COVID. We'll see what happens when it's over.  

[Tim]: Well. I also. I know a lot of people use a short film as a kind of calling card. I mean, filmmakers use it. I think this film is a great calling card for you, Doug. I also think it's a great calling card for the two actors to show what they're capable of, but I also think it's a good calling card for the DeafBlind community. To kind of raise awareness. Which I think is what you're all doing. Including Marlee, is to raise awareness of these things. Yeah?  

[Doug]: Yeah. That's really accurate Tim. And, it's, you know, nice to be able to do multiple things with this film. That it's really become so much more than a film. Again, it's a testament to how this began. Directly in partnership with and alongside the community. The way that informed my understanding and how to put this out in the world in the best possible way and create it in the best way. But you know, to your point, even before we started sharing the film and before its success. I've always wanted to explore the feature version of this story. So that's something we'll actively be working on. And, it's also gonna be an amazing opportunity to continue to highlight the community on a larger platform and hopefully include more of the community in a longer form story. Yeah, it's been a real gift to be able to work on this.  

[Tim]: Now, also. Marlee, first. Congratulations on your film Coda, which was a huge hit at Sundance. Probably THE hit. Biggest hit at Sundance. Between Coda and this film, Sound of Metal. The documentary Crip Camp. Things are better for disabled people than they were 10 years ago, but are they significantly better or are they in danger of slipping back again?  

[Marlee]: I'm thrilled to pieces that the conversations are out there about these films. As you just said. People are noticing more, people are observing more. They're more or less. I mean. Deaf actors are working, you could say. With COVID of course. We need to understand that there are different needs and, you know. Focus on different aspects of how to get involved in film. But I think I'm pleased to see greater participation. Greater authenticity in the film business. At the same time. I want to be able to say, I don't want this to be this recognition to be the flavor of the month. I want it to go beyond this period. I want it to go beyond this. I don't want it to be the flavor of the year, even. So, I want it to be able to continue. I want deaf actors, DeafBlind actors, disabled actors to be able to have the opportunity to work, to display their craft. I think it's a matter of hustling, of communication, of being creative, of networking. This business is a cutthroat business. It's how I put it, but at the same time, we shouldn't let the barrier stop us from doing what we want to do and to achieve our dreams. I mean, if you know what I'm getting at, it's just a matter of just putting yourself out there.  

[Tim]: To go back to authenticity, I mean, I think this is a very well-made film. If you had had a sighted-hearing actor in the role of Artie. It probably would have worked okay. But it just wouldn't have been the same film. So I feel like people are more aware of the importance of authenticity, but I'm not sure if it's ingrained at this point. Do you think it is?  

[Marlee]: No, not a hundred percent, no. Not a hundred percent. I mean, yeah, it's not a hundred percent. We have a lot more work to do, and yet it's there, it's there.  

[Tim]: Well, I want to know from each of you. If there is a filmmaker out there. You know; director, writer, or a show runner on television, who is thinking of casting a DeafBlind actor. What advice would you give this person? And if there's people out there who it never occurred to them to cast a BlindDeaf actor. What advice would you give those people?  

[Marlee]: First of all, I would hope that they would look for authentic DeafBlind actors. That's important to at least give the opportunity for them to be seen. Doug?  

[Doug]: Yeah, absolutely. And you know, beyond that, I would say. First of all, I would just zoom out a little bit and say. It's important to understand, why it's important to include people with disabilities. And I think that one of the major reasons is because then people with disabilities, the disability community constitutes anywhere from a quarter. A fifth to a quarter of our population. So when you, first and foremost, you start to understand that you're passing people with disabilities when you go walk out on the street. When you're at a coffee shop, when you're anywhere. And just to understand that it is really a part of the fabric of the world we live in. As storytellers and filmmakers, we have a responsibility to reflect that world accurately through whatever genre or story we choose. So right off the bat, to just understand that. And then also to understand that, deaf blindness. Although it hasn't, people who are DeafBlind have not been represented in storytelling or shown that much in the media. There's by certain estimates, as many as a million or more people in the U.S. alone who are DeafBlind. So you start to understand that this isn't some, you know. So such a low incident rate, that it would be such a rare thing for that person to be involved in a story. To know that there are a lot of people who are DeafBlind, who are out there in the world. And I would say just as far as specific advice? If you are, do what I did. Which is seek out collaboration with the community and be really humble and willing to learn every step of the way. I mean, we're three-plus years into this process, and I'm still learning literally every day, every time I meet someone or have a conversation. But also don't over-complicate it. Just understand that, it's important to have, stories are more interesting when they're inclusive. They're better stories when they're inclusive. They're more accurate to the world around us. And it's ultimately not that hard. Just make the decision to go, "okay, this is going to be something that I'm aware of moving forward." And there's plenty of people that will help you execute it. It's really not as complicated as it's made out to be sometimes.  

[Steven]: I'll say that it's very possible. I'm an actor who's never been encountered with someone who's deaf and blind, and it's very possible to be on set with the actor who's deaf and blind. Yeah.  

[Tim]: Robert.  

[Robert]: Excuse me if I may, this is Robert. You know what I want executives to know. Whether they be directors, production companies. My biggest thing is just simply, don't be afraid. And I think that Feeling Through has really shown people, the community at large, who we are. And they may never have thought of us, other than Helen Keller, as part of the community and that we live independently and that we're here. So to partner and collaborate with places like the Helen Keller National Center, and to learn more about us, but recognize that we can be part of the film. We are part of your everyday life. We walk the earth, we go to work, we do everything that you do. So why wouldn't we be represented? And so I think that, again, you mentioned having a hearing actor, hearing-sighted actor do this. I don't think that that would work because they don't have the experience of who I am and what my experiences have been. So quite simply we are here, we are ready, we are willing and we want to be involved. And we want to just show people who we are. Invite us. Don't be afraid.  

[Tim]: Robert, I think you should go on the lecture circuit. I think, a lot of people could benefit from hearing you speak. But also think you're making a really important point about fear because I've got a friend who's in a wheelchair and he said he finds people. They're like afraid it's contagious. That they're kind of afraid to get too close to him, that they might end up in a wheelchair themselves. Which again, it's totally irrational, but it's real. It's something that has to be overcome. I think that this movie is going to help people overcome a lot of things. But you know, you've all made really great points. But, you know, is there anything else you want to add about this film?  

[Doug]: The last thing I'd like to say, and it's something that I think is come up kind of thematically in what we've been talking about, but kind of just kind of like call it out is, and I'll quote what I said the first time I ever met with Sue Ruzenski, the CEO of Helen Keller Services, who's my conominee. I said to her, I have a film that includes a DeafBlind character that I want to be played by a DeafBlind actor, but it's not a film about deaf blindness. It's a film about power of human connection that happens to include, two characters from very different walks of life. And I think ultimately that's been something that, as we've put it out on YouTube and had almost 3 million views in a little over a couple months and had thousands of people reach out to us in different ways. Both from the DeafBlind community and people who've never experienced or thought of the DeafBlind community and everyone in between. Ultimately, what we're most proud of about this story is that it's universal on what it touches on. It has a real reverence and respect for both of its primary characters. And that it's about, it's meant to remind us of what's much deeper and more resonant beneath our disability or our skin color or our age, or our background. And that's something that I think has been particularly resonant for people during this past year that we've been screening it where it's a trying time. And we've had a lot of people reach out. A lot that have really moved me to tears of people reaching out and then know, how vague terms saying that they had really hit rock bottom and came across this film. And it really helped turn things around for them. That it was the message that they needed to see and hear and experience. And that, to me, I think is the greatest gift when you're putting something like this out in the world to have it have that kind of impact and people have that kind of relationship with it. And that's, I think ultimately what we're most proud of how we really encourage and foster everyone to engage in these conversations and topics with each other so that we can all grow and learn from one another.  

[Tim]: Well, again, I just finally I want to remind people that the film is available to watch on YouTube. Nominated for an Oscar. I feel like a lot of us are pulling for this film, but you guys are already a winner. I mean, I feel like the film is great. You all did great work in it and I think it affects people. So, thank you. Thank you all. I want to thank Aaron, Angela and Jack for being great workers during this conversation, but thank you all. And congratulations on doing great work.  

[Doug]: Thank you, Tim.  

[Marlee]: Thank you, Tim.  

[Robert]: Thank you very much. 

Colman Domingo hosts 'Feeling Through' panel

[Colman]: Hello friends. My name is Colman Domingo. And for those who need to know what I look like visually, what's happening here is I'm a 51 year old African-American man. I'm wearing a black turtleneck. I have short cropped haircut, and I have a backdrop that is very much, teak wood. So I'm like, I look like I'm in a little box of wood, which is a mid-century modern house. That's me. And, I'd like to introduce our panelists today and they will introduce themselves as well. We have a writer, director, and producer Mr. Doug Roland. Great. And we also have executive producer, Marlee Matlin. We have the two leads, the two stars of the short film. We have Robert Tarango. He is one of the first DeafBlind actors to star in a film. Which is, I think tremendous. And we also have Steven Prescod. All right. Wonderful. I had the pleasure of, witnessing this short film just a couple of days ago and I watched it again this morning to make sure what I saw was true. And what was true about it was that, it was so simple and it got to the heart of two people that just has this wonderful interaction. And it changes, I think both of their lives. It says that it changes one of their lives, but I think it changes both of them in some way. I think it's about goodness and caring and reaching out to others in the world, especially right now when those messages are even more profound. We want that moment. I think maybe there's something in it and I'll just hold off on my thoughts because I want to get into this great panel, but there was something that stood out to me and it was the moment when, Steven's character put his, started writing on Robert's hand. And I don't know why it affected me so much, but I'm actually processing it now. It's the idea of touch. That we have not been allowed to touch each other for the past year. And then you look at how important it is to touch and connect with someone. The idea. It's very intimate to put your finger on someone else's palm and have that trust. And that was the most profound moment in this short film to me, and there are many profound moments. And so I would like to start with you, Doug, if you wouldn't mind giving an intro to yourself visually, and also telling me the genesis of this short film.  

[Doug]: Well, thank you Coleman so much for leading the show today and, for those kind words really appreciate it. I'm Doug Roland, I'm a white male in my mid-thirties. I've got a dark beard and a short, short, dark hair in a white, plain backdrop. And I'm also wearing a dark button up shirt and, you know, Coleman before I answer that. I love how the touch element stood out for you so much. I mean, this film was made before the pandemic, but we couldn't have imagined how much more relevant the theme of touch is, in the time that we've been showing it, which is primarily during a pandemic where touch is prohibited. And I think it's, as you said, it's something that we've all missed. Just the intimacy of being able to just freely touch someone else. And, that's something that certainly has kind of been, a silver lining of obviously a very challenging time, but to be able to express that kind of connection, is something that has been even better than we could have imagined. Given the context that we've been showing it in, but just real quick. The origin story of this, it was. It was inspired by a real, encounter that I had, going back 10 years ago, when I was still living in New York City, where I'm from. Similar to what you see in the film, I was coming home late one night and I saw a man standing on a street corner, holding a sign that said I'm deaf and blind and need help crossing the street. And again, just like the film, I took him to a bus stop that he wrote, he took out a note pad and wrote a bus stop that he needed. Which I took him there and, a bus wasn't coming for a very long time. So I sat. I wanted to let him know I'd sit and wait with him. I didn't know how to communicate with him, but fortunately just instinctively, again, similar as you see in the film. I took his palm, started tracing one letter at a time on it, to let them know I'd sit and wait with him. And he understood what I was writing to him. And we were able to have a whole conversation that way. Me, writing one letter at a time on his palm, him writing back in a notepad. You know what had first started very basic. Me introducing myself, him letting me know his name was. He referred to himself as Artz, A R T Z. I would later find out his name was Artemio, his full name. But then we got into a much more personal conversation and it was one of those occurrences where I just knew as it was happening, that it was such a, so impactful and such a. Every molecule in me was firing. But I think it's been this many year process to bring it to the screen and share it with people where I've really kind of learned what was being gained in that moment, but simply put it was.  

[Colman]: What was inspiring you in that moment, what was being gained for you in that moment?  

[Doug]: You know, it's interesting because how I would first describe it is that I just had the great fortune to connect with someone from a community I'd never met before. In the DeafBlind community and got to know him in this one encounter. Just this beautiful, charismatic, funny guy, which I think is the most resonant thing. I think any time. I know for me. Coming from the environment I came from, where I didn't have anyone in my personal life, who was from the disability community, let alone the DeafBlind community. That I did. The first time I laid eyes on this man, Artemio. The most notable thing was that he was DeafBlind and that by the end of the interaction, I really just saw him as like my new friend, Artemio. I was tearing up as his bus pulled away 'cause I'm like, "Oh, there goes my new friend. I'm never going to see again." So I think that's kind of like the most resonant thing, but you know, for me, it comes back to this more universal takeaway of just. Whether it's. Whatever the difference is that someone might be across from you, that there's this more resonant, connective place. And just finding that connection point, regardless of whatever our differences might be is the thing that comes up for me over and over again. And I think has application to anything, to any circumstance with two people.  

[Colman]: That's what I've found to be so beautiful. I really thought this is exactly, it's part of the conversation, I think that we're all having as a culture in our communities about how do we reach across and learn something new about someone else. So that's why I think it's really effective. I think it's beautiful. So I'm glad you're sharing it with us. And I want to talk to Marlee about the casting because we have, there's truly authentic casting in process here. It is a, BlindDeaf actor being played by a blind and deaf actor. And that's, I think it's unique, but also, could you talk to me about that? Could you tell us about that and why it was so important?  

[Marlee]: Thank you. I'm Marlee and I'm a white woman with blonde hair and I'm wearing a gray blazer and a black shirt with a little, "I Love You" pendant. And my background is a bookcase with different plates for my kitchen, items like that. And maybe there's an Academy Award behind me as well. Okay. What can I say? Anyway. I am four years older than you Coleman. So anyway, you do the math and figure it out. I won't say it, but you know how old I am. Anyway. When I first saw the film, the film had been produced already. It was the best 18 minutes I'd ever spent in front of a screen. It was because it was authentic. The whole package, was, you know, not only an authentic casting, as you mentioned. And, putting the two. The African-American homeless guy, the DeafBlind guy. Bringing the story together, just spoke of authenticity because, we look at not only what they were saying, but we could see the humanness of them and, the fact that they're meeting and then, you know, what happened to Doug and the fact that it's expressed on the screen. And when we say authentic, I say with a capital A, because in terms of casting. There was, it was so thrilling for me to see that a deaf, I mean, I'd never seen Robert before this film, I didn't know of him. And when I found out that he was DeafBlind, I was like, how better to tell this story than to have this cast authentically. And we've come a long way from when I was in this industry, having been in it for 35 years. We've come a long way to try to convince this industry, powerful people who make films happen. Producers, writers, directors, studios. That they need to understand the importance of authenticity when it comes to acting, particularly when it comes to deaf and now with DeafBlind individuals. Diversity is very important as well. I've been using this word "diversity", for the longest time. And I know, Colman. You're aware of what we're talking about. When we talk about diversity, Steven understands. Everyone understands that it, I'm just thrilled to be a part of a film that includes all of these elements and it needs to be seen by everyone. People will have a much better understanding as a result of seeing the film, that authenticity tells real stories. As opposed to someone putting on, I like to say that, in the past, that disability is not a costume. You don't put it on like a costume and you take it off. It has to be authentic.  

[Colman]: Well said. Thank you. And I would love to talk about the casting process. Robert, you are the first DeafBlind actor in a film. I'm sure you understand the significance of that. Will you tell us about how you got cast? Tell us about where were you, when this project came to you, tell us about that.  

[Robert]: This is Robert speaking. I am wearing a green t-shirt. I am in a 55 year old man with salt and pepper hair, and I am tan skinned. So how I first met Doug, I was at work. I was a kitchen worker where I had been working for over 21 years. And my boss, Stan came over to me and said, "Hey, can you come here a second?" And I was like, "sure, what's up?" He said, "you need to go over to the other building." But they didn't tell me why. And I'm like, "oh, okay." So I was like, "well, what's going on?" He didn't have any information. So I took a walk over to the other building, which we refer to as the training building. And I had to give my eyes a couple of minutes to adjust, coming out from the light into a darkened room. And when I sat down, I started looking around and Doug started talking to me. And started explaining the project and what this could be. And if I would be interested in being in a movie and as he kept talking, I just started getting more and more and more excited. It lit a fire in me. And you know, as I know that he had interviewed seven candidates up until that point. And again, I was just at work. And so when my boss came to me and said, "Hey, why don't you go over to the training building and do this?" I was like, "what?" So I really had no preconceived knowledge of what was going on. Ultimately. I got the call that I was selected. And after which I found out I was the first DeafBlind person in a film, that feeling was indescribable. Amazing. I just thought I'm like, I did it. And, you know, Doug cast me in Feeling Through, and here we are.  

[Colman]: That's beautiful. What do you want to do next?  

[Robert]: Well, I think that one of the things that I would like to do, is when I was in New York. When we went for the first time to actually film the film was kind of unique. And I sat down and I started doing my makeup and I was like, "what are we doing?". I was like, "okay, so this is what this looks like, huh." But again, that feeling that inspiration, that success. I don't even know how to describe it. It's really, again, indescribable that I feel like I was a part of this and it was my own.  

[Colman]: Beautiful, beautiful. Thank you. Tareek, the other lead of this film. Steven who plays Tareek. See, you're so convincing, I just thought of you as Tareek, 'cause you were just so authentic. And I cared for this guy very quickly. I cared for you. And I knew that your sense of pride, you trying to find your way. You're trying to find a place to sleep for that night. And then the universe takes on its own purpose with you to lead you somewhere else. I thought you were very effecting, a very, very beautiful actor. Is there, where did you draw your inspiration from, to create a character like Tareek.  

[Steven]: A great question Coleman, thank you. And I am a black, I'm an African-American male in my late-twenties. I have box braids pulled back in to a ponytail and I have a gray background. Where I pulled my inspiration from actually it was from a young man. His name is Norickson. He was walking on the street as I was walking, my pup. Ginger, who's 10 years old now. I was walking her on a sidewalk and then this young man, he was across the street watching me. And then he just came walking towards me. And like, I was a bit quick to be on the fence, but I was like, okay. This is like. It has to be a reason why he's just walking towards me. So he walks up to me and he's like, "Hey man, do you have like two dollars you could spare for some coffee." And he was like younger than I was. I was like, "yo dude, like, how old are you?" He said he was 18. And I said like, "where are your parents."  Asked him, "where are your parents?" Things like that. And he said that he don't have any parents. His mother passed away. He hasn't been in communication with his dad. So he didn't have any place to stay that night. And I said, "you know what? Yo, you can chill. I'm going to find out with my aunt if you could spend a night by me." And then I went upstairs and I spoke to my aunt and my cousins and I said, it's this young man outside. I told him, I'll let him stay here tonight. I think, like my spirit gets to him. I think he's a cool guy and my family, I think they, they trusted my judgment. So they're like, okay. And he came in, I gave him some new clothes and things like that. So that really resonated with me. That actually this role, that we found each other. That this role, that I found this role and this role found me because it made me think of him so much. Even after that interaction with him, I will see him like, peppered throughout the years and months. So it was really him where I drew my energy and consciously from going into that character.  

[Colman]: Stephen, that's beautiful. I think there's always a great, I think, alchemy between actor and character. And I think that there's a lot of that character that lived in you. That empathy, and you could see it coming through your eyes, truly. Beautiful work.  

[Steven]: Thank you Mr. Colman. Thank you.  

[Colman]: Doug. I want to know your process. Because you've taken this film from a real life experience and then theatricalized it, in some way. You know, created another character, things like that. And also I'm wanting to know. Did you immerse yourself in the DeafBlind community as well? How did you make it so authentic? You know?  

[Doug]: Yeah, well. To start with the writing process, you know, I think, anytime you're drawing upon inspiration of something that's happened to you. It can be a real gift and a curse, depending on how you use it. You know, for me, I quickly found that there were certain details that had happened that needed to be in there and kind of help guide some of the plot points in the narrative. But that ultimately, as I was working through it, the story that was demanding to be told was something that was very different than, beat for beat what happened to me. And through various drafts, it took on a different form. And, you know, is definitely something that I still say is heavily inspired by the encounter I had with Artemio, but a fictional story that's not meant to express, you know, it's not meant to represent that one to one in any way. And that was really just that organic process of just, draft after draft and kind of figuring out what. Because a lot of times, like, in my first response talking about this whole process has been really me understanding what it was I was trying to say in the first place. The first step of that is the writing process of where you have that lightning bolt of inspiration. In this case, a real life occurrence. But you don't really know what you're trying to say until you get in there and really play with it. But as far as the process, you know, on set. Again, I had the real privilege to partner with Helen Keller Services and the Helen Keller National Center, same entity, different branches of it. To make this film, and really, you know. Really so fortunate for that, because at the time that I started this process of making the film, I'd still only met Artemio many years prior and still did not know the DeafBlind community. So what transpired was a lengthy eight-month plus process of really getting to know the local DeafBlind community here in Los Angeles. Going into the Braille Institute, meeting everyone there. Sitting in on the DeafBlind classes there. Meeting people who are DeafBlind that go there. Going to a DeafBlind living facility out in Eagle Rock near where I live here in Los Angeles. Getting to meet everyone there and then flying back to New York regularly, to go up to the Helen Keller National Center in Long Island and getting to, not just meet all the staff and the. So basically just to explain real quick, what HK&C is, is that people who are DeafBlind from all around the country, go there for up to a year to learn independent living skills. And so I got to meet a lot of the students there, all the staff, but also really had this time to really form meaningful relationships with the community. You know. Chris Woodfill, who's the Associate Executive Director there, he's DeafBlind himself. He was the one who I worked with most closely during the casting process. So, got to collaborate with him to find Robert in the fateful way that he described, and make a number of meaningful relationships along the way. And now three years into this process and working with, and for Helen Keller Services for the last couple of those years. The community is a daily part of my life as far as: collaborators, colleagues, friends. But again, having that good long period of time to really get to know the community in an intimate way, and then having the great interpreting team, some of which is here today to facilitate communication between, Robert and myself, and have a really smooth process on set. Figure out whatever we had time to figure out what we needed to on set, to facilitate the most efficient and best communication. And, again, it's that collaboration that really made it happen.  

[Colman]: And as, someone leading the charge in that way. I think this is going to eventually fall over into a producorial question as well, 'cause I think it can help our communities. I see it as, it's a great, it's a wonderful challenge that you can meet. And it sounds like you met the challenge where there's some challenges that you did not foresee and you were able to figure that stuff out and sort of like, hopefully give us a template and give people more tools to work with. Did you figure some things out?  

[Doug]: Yeah. You know, Coleman, that's a really great question. I'll answer that more specifically in a second, but overarching, and you well know this having been on many sets. Filmmaking's always hard, right? There's always unforeseen things that happen. So I think first and foremost, I'd urge people who maybe haven't had experiences, where they'd need to consider accessing. Where there maybe, having had to consider accessibility components on previous sets and are maybe intimidated by that. It's something that you can very easily figure out like any other element of filmmaking.  

[Colman]: Right. Yes, yes!  

[Doug]: It's just part of, and there's so many people, so many entities and individuals who you could easily just bring on to consult all the way through. So you wouldn't even have to figure it out on your own. But really it's a mindset thing more than anything, in that, it's something that, there are so many things that just need to be accounted for when you're going to shoot a film. And that's just one of many, and it's not, it's nothing that's too hard or too difficult to figure out. Particularly if you have people who know what they're doing. And the thing that I would add onto that, and I think it's really, really important. And it's something that I like to embrace as a filmmaker in any film that I've been able to make, but it is those things that could easily be labeled as challenges or obstacles that are the very thing that make the final product, what it is. So it's like, we wouldn't, Feeling Through isn't what it is. And it hasn't, it wouldn't have moved as many people as we've been fortunate to bring it to and move, had it not been, not just Robert on the screen, but the way in which we, myself and everyone else on that crew who was working with a DeafBlind actor for the first time, learned a lot more about humanity in themselves through the process and the way that creates an environment and an energy that comes through in everything you do. So for me, it's like. People get so much and I get it right. It's a business, too. People get so much in the mindset of like the X's and O's and the bottom line and how much something costs and how much time something is and, how much that costs. But also at the end of the day, we're making something, for the purpose of moving people, of engaging people of hopefully opening people's minds to new things. And you do that by, it starts with what your team looks like and how you go about what you're doing. That, those things, it's a one-to-one connection to what ends up on the screen. But beyond that, we did, you know, cut this, long-winded answer a little shorter, just with the last part to add onto that. One thing that we did learn a lot about was doing these fully accessible screening events. Fortunately, prior to the pandemic, I collaborated with Helen Keller National Center to create these accessible screening events that would have as many as 50 interpreters and support staff in an individual screening to provide one-to-one accessibility, because we knew before showing it to anyone, we knew that it was important that the DeafBlind community who was at the heart of this film was able to experience it alongside everyone else. And that we may be cracked a little bit more of the code there. That felt like maybe treading new water in a certain way, but again. Things that are, we've freely pass along what we've learned to anyone who's approached us and things that are not hard to figure out if you just have the right team and the willingness to do so.  

[Colman]: That's a beautiful, beautiful. Marlee. I'd like to ask you a question, please. How can the film industry steer clear of tokenism and avoid using disability as a storytelling prop?  

[Marlee]: That's a good question. I mean, tokenism is obviously, I mean people, a lot of people don't understand or realize that tokenism is rampant and has in terms of the community been used quite a bit. I can probably say that it's just a fact that they don't know. And it's up to us to educate them, to those who aren't clued in, who aren't necessarily as knowledgeable as we are when it has to do with representation on screen. Especially if you're talking about deaf and DeafBlind individuals, or whatever. Gender, race, whatever you're talking about. Right now, as we speak, we need to combat all the "isms" in general, in Hollywood. All the "isms". And how we do that is we educate, is we have conversations, is that we, I mean, it's basically collaborate, collaborate. And that's why I'm so thrilled with Doug, followed that process. He collaborated with the Helen Keller National Services at Helen Keller Center. And what Doug said earlier about using authentic characters, actors. Using, whether we're talking about the process, on the set of using interpreters. And thinking about it strictly from a numbers point of view, and a schedule point of view, and a crew point of view. And the fact it's not rocket science, it's doable. If you keep in mind the same way you do with everything else that you work on a set. And at the end of the day, it comes down to collaboration and working with people who know how it goes. It may be new, but at the end of the day, everyone needs to understand and needs to listen to one another, because you're talking about making a movie here and at the end of the day, the movie, as we shot here, is beautiful.  

[Colman]: Truly is thank you.  

[Marlee]: And you know what? When I have a new job, for example, and I'm offered a script and I take a look at it. If I feel there is something there, it's something that I want to do. Play this character for example. I first of all, have to feel good about the character. I have to be excited. It has to excite me, but I also, and they think, well, okay, it's fine. You have to go to the set. It's the same thing. Yes, it is. The environment pretty much is standard. When it comes to sets, it's fairly typical. There's the crew, everyone has their job to do, but they don't, we don't know each other. So it's a learning experience, whether you're talking about with an actor who's disabled or not disabled, we all have to learn about each other. So why not just incorporate this into the process? I always am the one who breaks the ice. I'm always the one to...  

[Colman]: Same here.  

[Marlee]: And that's how we work. That's how we work. That's how we do it. So if you want a good, smooth relationship, because we're doing something that's different, but we're doing something together and we're creating together and we're creating a beautiful product. So you have to work as a team. And it's just a matter of making sure it's two ways. Bottom line is we just have to remove, again, all the "isms" that take place in Hollywood. That's all we have to do.  

[Colman]: Thank you. That's wonderful. Robert and Steven, how was it working with each other? How did you, it's a very intimate, it's a two hander. And so you had to, you can just tell that there's a lot of trust and faith in each other. How did you, how'd you figure out how to work with each other, just generally? Let's start with Steven.  

[Steven]: Well, with the help of the Helen Keller and Doug already prepping me before going into it, 'cause I did have my ideas on how would it be working with Robert. But all the, preconceptions that I had about working with a DeafBlind actor went out the window when I met Robert and this man is talented. And we did have a chance to bond and I fell that Robert is very talented and we were able to communicate through our interpreters. And I just felt that the trust was important with anyone that I've worked with. I feel that it's always important to just build a certain type of connection to the extent that the other person wants to build with. And Robert was very open to that. So it was very helpful to work with him on and off camera.  

[Colman]: Steven, this is a testament to not only you, but also to Doug. That I think that there's something else going on in this film that I realized, as we're speaking about it, that you don't see often, which is tenderness between men, which is care. It's actually like it's really smashing tropes over the head. What you may came in thinking about a DeafBlind person, what you came in thinking about an African-American male. Suddenly you have to rethink that. You know, that's what I think is so powerful because suddenly you're like, "Oh my gosh, look at the tenderness and care." And this is a young homeless kid who doesn't have anything and look at all this. You're humanizing these men, which is so beautiful. And I wanted to say that's testament to, your heart Doug and your performance as well Steven.  

[Steven]: It was something that, sorry, before Robert answers. It was something that you said about human touch. And that was something that Robert actually mentioned before going into this film. That something that frustrates him is like the human connection. And like that, that was something that resonated with me when he spoke about it, 'cause he was very passionate about how he felt with, just humans, helping each other and being there for one another. So that was something that really stuck with me with Robert.  

[Colman]: Beautiful, beautiful. Robert, how was it working with Steven?  

[Robert]: I think before I get to that, generally speaking, seeing this film for people who are not in the know, so hearing people who have never met a DeafBlind person or even a deaf person. When you think about communication and forming a relationship, I think seeing this film makes people go, "Oh, it's not that difficult." Or, "Oh, I could touch their hand." Or, "Oh, there's this place called Helen Keller National Center where people go to actually learn to prepare for their futures so they can regain their independence." And it doesn't have to be frightening and people don't have to think that I can't, you know, it gives you the opportunity to look at alternatives when you're talking to people of different abilities or different ways of communicating. And I think that's what the whole point of this is now it's just generalizing and going, "wow, I can do this and I can communicate with somebody that I never thought I could." And it doesn't have to be difficult or something that causes fear or angst. I think it's just the willingness. And that's what happened with Steven. It's that willingness to go up and to meet somebody and go, "Oh, I can, and we can do this print on palm thing, writing on somebody's hand." And I think that those that have had exposure to the Helen Keller National Center. The consumers that go there learn how to make this, fluid and it's basic training so that we can meet other people and make it easy and make it commonplace so that people like, "Oh." And now the film, it actualizes it so that people aren't afraid of us and that people see how easy it could happen and it makes us connected.  

[Colman]: Beautiful. There's also a wonderful moment when Steven's going through the pages. When he's, when Robert's asleep. And I think it's a beautiful touch, Doug, because it humanizes him even more. You see that he wants touch or a kiss. That he knows about, "can you close the door, please, when you leave?" That he's a full, fully human, fully realized human being. And that's something you should be, I thought it was very, it was beautiful. It's all these beautiful touches. I'm just going to keep, you know, fanning the flames of supporting how beautiful this film is. But it was beautiful. That, that's another moment that stood out to me.  

[Marlee]: This whole movie, this whole movie is a win-win for everyone involved. For the actors and for the viewers.  

[Colman]: I agree. Doug, what has been the most rewarding part of this journey for you?  

[Doug]: I'm going to get to that in a second. It's kind of related, but I want to just touch on what you were just saying Coleman and also what Robert was noting. And thank you for those kind words in that, the moment that you just picked out and connecting to what Robert was saying about, like telling people to not be afraid, just because you've never met someone who's DeafBlind, it's not scary we're people just like anyone else. Just understand that even if you've never met us, you know, another thing that stands out to me so much about exhibiting this film during the time that we're doing it right now is not only the element, it's related to the element of touch during a pandemic, but also, not looking at people who are different from us, in being fearful of people who are different from us during a time where it's been such a divisive time and there's been such a hard split between "I'm on this side, you're on that side." And just this, a lot of fear of what those other people are doing or what those other people think. And for me, that's such a thing that really is hitting me hard in this conversation today and something that comes up a lot in showing it during the time we're showing it is just this understanding of what's more resonant than whatever differences we might have. It's the fact that we all want to kiss and we all want to hug. We all have these basic human needs that connect us so much deeper than whatever differences we might have. And as cliche as that may sound, it's something that's so needed to feel and experience and see now more than ever when there's not only so much divisiveness, but such barriers, between us to be able to foster those connections. And, it's something that really resonates with me when Robert says, "Hey look, don't be afraid of us. You know, I'm just like you." And that's something we hope people take away from this film. And, to just answer your question Coleman, as far as the most rewarding part of this? It's really been able to, it's been the universal takeaways for this. There's people from the DeafBlind community have seen this and are, moved by it and are so happy to know of this representation for their community in a film. And also on the other end of the spectrum, people who have never, not only ever met anyone who was DeafBlind, but they maybe never even thought about the community who come away feeling having gained some sort of curiosity and understanding and connection to a community that they previously maybe had never even thought about. But one really quick anecdote that I think drives it home more than anything else is that our very first screening, in Cary, North Carolina. We had a lot of the local DeafBlind community there. And we would screen it as the "Feeling Through Experience" during these screenings, which is Feeling Through. A supporting documentary called Connecting the Dots, which is available at feelingthrough.com for anyone to see more of the process of how we made the film and worked with Robert and Helen Keller Services, and then a panel discussion and Q&A. One of the very first people to stand up at our very first screening was a man who's DeafBlind, who had had the entire experience tactilely signed to him. And he said that he loved the film and really appreciated the representation. And he said, moreover, "you know, people might assume that because I'm deaf and blind, I wouldn't care to go to the movies, but I love this. I love coming out and having this collective experience with other people. I just never have the opportunity because it's never made accessible for me." And I think those kinds of being able to share it in that way and, and have people express, like, especially someone from the DeafBlind community express that level of gratitude for what we've done, how we've done it, and also be able to break down assumptions that other people might have, has been is a real example of some of the more rewarding elements of this experience.  

[Colman]: Beautiful Doug. I have one more follow up question with that, because in this short there's a lot of questions. It's a short, it's a moment you're capturing this beautiful moment, but their lives go on. Have you thought about expanding it into a feature or a series? I just think, you know, that there's more there.  

[Doug]: Yeah. Well, in the short answer is yes, absolutely. We're gonna, tell a longer form version of this story a hundred percent. Not because, first and foremost, I think it's because I've always had that instinct. It's not, it wasn't, before we even ever showed it to anyone, I knew there's more to explore here. It's not just because we've had the great fortune to be able to share it with a lot of people who are enthusiastic about it. It's because more than anything, there's more of a story in there that demands to be told. And we just want to uncover that and share more with people.  

[Colman]: Beautiful. Marlee, what do you want audiences to take away with this film?  

[Marlee]: I want audiences to understand that we need to be able to stop taking life and people for granted. I think that, we need to open our eyes and our ears and our hearts and our minds. When you meet somebody that you can't judge, just by strictly looking at them, that you, that we all live on this earth together, and we all have our own lives to lead. And of course we do come from different backgrounds. We all have different stories to tell. We all have, whatever it may be it, but it's really important. And it's time to be yourself and to let people know who you are, let yourself know them and stop judging. I'm so over it, I'm so over this, constant judging people. Some don't. Some do, some don't, but I think it's time that we, I just appreciate what we have and to be able to share that. And that's what this film does. It shows how we can do that. It's simple as that.  

[Colman]: Thank you, Marlee. Steven. It's important for audiences to get up there and see this film and find this film. Are there people that you feel like, "I really want these people to see this film. This is important for them." Besides your family and loved ones who want to see a wonderful performance, but who do you think should really see this film right now?  

[Steven]: Well, because the story is so universal. I just felt like everyone should see. Literally when it was available on YouTube, I just started sending it out to like everyone. I was just like, it was just like a mass send out, just sending out to everyone. And then a few people were getting back to me. They were like, "yo, I really needed to see this." Some people were saying like, especially everything that's going on, like, "I really needed to see it." Like some of my companions. Some of my friends. And like their take on it, made me had to go back and watch the film. Like, "oh, like I didn't even, I probably didn't catch some of these things." Because sometimes when you create something, you don't really sometimes know what it is. Like I heard Erica Badu said that to never explain your art, to just let the other people to interpret it themselves. Because if like Tupac explained his music, you'd feel like, "oh I thought I allready knew Tupac." Something like that. So like for me to go back and see what everyone took from it. It was just, wow. And to see the conversation that's happening from it. That I felt is the most rewarding part to see how it is affecting everyone and seeing that everyone's saying that, "I took a lot of things for granted." And, you know, life can, you will be okay. Those are the things that really stood out to a lot of people. Robert's line saying that you'll be okay. Alot of people do need to hear that, especially in the time that we're living in now.  

[Colman]: About to get emotional, just thinking about it, because I think that line in particular is so significant because sometimes that's all you want is for someone to see you literally and figuratively, literally to see you and see through the idea that he is in the DeafBlind community, but he sees you. He can feel you.  

[Steven]: To piggyback, sorry to piggyback on what you're saying there. Doug. Yes, Doug, you know, helping me out, coaching me through like scenes, the bus scene, when I'm talking to the bus driver, Doug mentioned to me, that dialogue, think about like, it's also speaking for myself as well. So like, I felt like  

[Colman]: Hear me.  

[Steven]: Yes. Hear me. Yeah. Right. So I felt like that the relation of our characters is  

[Colman]: A double on that.  

[Steven]: Yeah. Right. Exactly. We both felt unseen, unheard, and that that was something that I felt stood out.  

[Colman]: Beautiful. Thank you.  

[Marlee]: It can be important. I think it's important to add. Steven that, when. For those of you who see this, I want, and I hope that people of the young generation have an opportunity to see this and understand how his character helps someone. For example, in this situation, the Robert's character is older. I mean, we're talking about all kinds of levels here. We're talking about, disabilities, non-disabled young, old. It's just an important message on all levels here.  

[Steven]: Yeah. The, compassion I feel like is one of the things that's important. Compassionate and kindness.  

[Marlee]: Exactly!  

[Steven]: These are things that I feel is, needs to be shown that it's okay to be compassionate and kind you know. It can be easily taken away by things you can hear, especially for me as an African-American male. Things that you hear coming up, in the environment that some will be raised in. That It's probably not okay to always show that side of you and that there's strength in it actually.  

[Colman]: Hmm. That's beautiful. My God. That's, thank you. Robert. I think I'm going to wind this down by asking you a question. This is a question, that I think, that I'm asking you, because I know this as well. As an actor, you seek out things that will change you and hopefully change the world a little bit. I want to know how has this process changed you?  

[Robert]: Well, when you think about my life before the film. You know, I have bumps in the road just like everybody else. You know. I, wasn't really very happy with myself. I'll be honest. I was struggling. And having this experience and being able to do this with Doug really changed my whole life. My outlook. I feel like I can change the world's understanding, our collective consciousness of being kind, of being friendly, regardless of whether you call yourself hearing, or sighted, or blind, or DeafBlind. Whatever it is, we, the world, every single living person on earth, we are one. And regardless of whether you have a disability or not, regardless of how you see yourself regardless. Go on and live your life and that we can of do it together and don't be afraid of each other. I think that, you know, I'm just happy with the connection, the togetherness and that we are all brothers and sisters of one god, of one universe, of one blessing. And that's what I want people to see and not to put on airs. This is real life you're right. There are people out there that don't know anything about me, my community, or who I am, and have never met a DeafBlind person. Sure, great. But here I am and we can help each other regardless. So my end game, I think is, don't be afraid. We are one world.  

[Marlee]: Amen to that! Amen to that.  

[Colman]: Doug, Marlee, Robert, Steven. What you have given us feels like a sermon for 2021. Kindness, and reaching out to others, touch. All those things to go deeper, because sometimes it's not about what you may know here, it's about what you feel. And so I think that's exactly what's the whole point of your short is wanting us to feel a bit more in reach out to each other. I'm a little emotional, because I think this panel was really beautiful. And I think these are words we all need to hear right now. We need to hear more words about kindness and reaching out to each other. And we can all do that with film. So I thank you for what you put into the world and thank you for letting me be a part of this panel. Outstanding work by you all. And I hope that this gets into many people's hands and you do the thing that you set out to do, which is change the world and bring us together. So thank you.  

[Steven]: Thank you Colman.  

[Doug]: Thank you so much!  

[Marlee]: Thank you Colman, thank you very much.  

[Colman]: Without further ado. Thank you. Go on with your afternoons.

Connecting the Dots: The Story of Feeling Through

[Chris]: Chris Woodfill speaking. And I would like to introduce you to Doug Roland. And he is a filmmaker for the project that we're going to be working on called Feeling Through

[Doug]: Back in August of 2011, I was coming home late one night. I was out in the East village in New York city. And I saw this man standing on a street corner by himself. And as I got closer, I saw that he was holding a sign that said that he needed help crossing the street and that he was deaf and blind. This is the first time I'd ever encountered a DeafBlind person. So initially I tried to talk to him and quickly realized that wasn't going to work. But when I tapped him, he had a note pad that he wrote to me that he needed a certain bus stop. So I walked him over to the bus stop. I didn't want him to sit and wait by himself. So I wanted to find a way to let them know that I would wait with him. And I kind of intuitively just took his hand and started writing one letter at a time on his Palm. The man who had written his name as A R T Z, artz is how I knew him at that. In that conversation, he was just a really charismatic open-hearted warm person. I was inspired to write a short film about it. I reached out to the Helen Keller national center, but they are pretty busy over there.

[Sue]: I was a bit skeptical about it, um, because I had never received any call like that in the past.

[Chris]: I remember in the beginning, I remember initially I was like, I am not so sure about this. I was politely persistent in reaching out a number of times through emails and calls.

[Sue]: I believe it was a lengthy voice message from Doug that I learned about the idea of the film.

[Doug]: There are not DeafBlind actors portraying DeafBlind characters in the media. That's the whole reason that we're standing here today and why we've come up here and why we've been connecting with everyone in the community, because we really want to tell this story accurately and authentically.

[Sue]: I remember sitting in the lobby of this hotel and meeting with Doug and the team. So I was able to talk to Doug in detail about what inspired the story

[Doug]: Right from the start. I knew that I wanted to cast it up. Why doctor?

[Sue]: It's not common that we're going to see the face of, of these people in media. It's a sort of breakthrough. It's a first it's never happened before. I can't think of anybody who is DeafBlind , who has ever been cast in any type of movie. It was very obvious to myself and, and two of my colleagues and we were very excited.

[Cathy]: Doug told us his story about meeting this guy seven years ago in New York. And I said, I bet we can find him within three hours.

[Doug]: I got an email from Cathy Kirscher, who was a part of that initial meeting, telling me that they're like, we found them, it came pretty clear who it was Hispanic guy, New York tactile signed this RD, like, or at least we know who it is. It's this man named Artemio. We would love to, um, reunite with our Tomio who's inspired this story. And then it became a quest. Where is Artemio living at this time?

[Cathy]: The sad part is we couldn't find RD after that. He has known contact with email and all of that, but that's how small and tight this community is for months and months and months, they couldn't find our temil

[Sue]: People basically were saying, gee, I don't think we're going to be able to find him.

[Doug]: I knew that there was so much for me to learn about the community, but also that I was gonna, I really need help finding potential actors to fill this role.

[Chris]: I remember starting to think in my mind of who could be potential candidates for Doug to interview.

[Doug]: You can come sit here.

[Person]: So how would I encounter this person? Would it be just walking on the street on the road?

[Doug]: And that's initially how the other character meets him. So I'd love to just jump right in and get to know you a little bit more and that's...Right. Learn how to sign and learn. We'd be using two cameras, um, to capture the scenes in a more nuanced and efficient way,

[Robert]: Trying to figure out their communication style and the communication methods so that I can interpret what's going on was challenging. At times, interpreting a translation are very different and interpretation is always going to be an interpretation. It's going to be me trying to trying my best to get where you're at, right? It's not a direct translation. There may be one word in English that I might have eight different ways to sign it based on all of the other words around it and what your intent is. So my goal is to interpret the meaning and the essence in the manner in which you convey it so that the deaf or DeafBlind person will understand it and be able to respond accordingly.

[Doug]: At one point in the middle of the day, we had a little bit of a break between auditions

[Chris]: Options that, um, that are not, um, Ilissa. I don't know if this is good enough for you, but if you would like you talk with Robert, he works in our kitchen. We can pull him over here. I think he might be a good, is it, do you want to add?

[Doug]: I know you just got pulled in here, so I'll explain a little bit why we're here. We are making a movie.

[Robert]: Um, Oh, wait, who is going to be the actor? Me? It made me feel so excited. I was like, wait, are you serious? I'm auditioning for something. I don't, you know, you have to remember. I do remember I work from 10 to six, Monday to Friday.

[Chris]: So don't worry about that. We would excuse you from work.

[Robert]: Are you sure?

[Chris]: Yes. It's only for a few days.

[Robert]: I just want to pick up because you're not bothered to have a movie star, you know, I don't want to be in trouble with you, you know? And if you, if I'm late, it's on you,.

[Chris]: Don't worry about it. We will excuse you.

[Robert]: But then I felt like this is my dream coming true that I'm sitting here in this room auditioning for a movie. I'm getting so excited about this. And I love being on camera.

[Doug]: Genuinely. The moment Robert walked in the room, I was like, this is our guy. So we were really, really excited to, call up Robert shortly after and let him know that he'd gotten the role. And he was very excited. I just remember one day I was at work and my boss, Dan came over to me. He's like, I'm on the phone right now. And he's like, Doug picked, you was like, Oh my God. Oh my God. Me really? Wow. I just couldn't believe it. I was thinking I did it. I made it.

[Sue]: I felt great for him. I was really excited. It was great to learn that he was the person selected. He's such a friendly, charismatic type of person. He's got a good soul.

[Robert]: I was born deaf, but I had 2020 vision. I thought about wanting to become an actor and meeting actors and wanting even to be an actor in a movie. Then at the age of about 30, 31, I started to lose my vision. It became just so depressing to me. I thought there's no way that anyone would want to hire someone who was not only deaf, but deaf and blind to become an actor. I have no peripheral vision at all. I have like a tiny box of vision in front of me that I can see through.

[HKNC Employee]: So his vision on a great day, it'd be this on top of this. Yeah.

[Robert]: I mean, Artie is a completely DeafBlind person, whereas I am not. I'm deaf and legally blind. So it was a little bit different for me. We're the same, but we're not. So for me, I was trying to figure out how to play the part of already, because he had no vision. I mean, who knows in the future, I might lose all my vision. Just like Artie.

[Doug]: I don't know what it's going to be like getting you guys together yet. And like actually working through it together.

[Steven]: Do you have any tips to give me?

[Doug]: I have a plan, but like I also, like I have no idea. We'll have to figure it out. We'll just like, see what it's like when we get moving. They have pretty unique elevators in here. There's obviously a lot more buttons than the other most elevators. And you can keep your hand on the button so that, uh, when it gets to the floor, this will pop out and it lets you know that you're at your floor. This is just an opportunity for us to be able to get on our feet for you. And Steven's interact with each other. And for us to start to see where we're at with things, you just got to go. Just keep walking.

[Steven]: That rehearsal that we did was different from any other rehearsal that I've done before.

[Robert]: I remember he came over to me, he tapped me and he was trying to communicate with me, Tereek And it was the first time. And he was like trying to guide me, but here I am on this DeafBlind person. And we were trying to engage with one another.

[Steven]: It took a lot of just trusting each other, listening to each other.

[Doug]: Even if it's a little awkward for you to do it. Even if you wish you didn't have as many things in your hands, that's one of the obstacles that you still need to get past in order to communicate to them. And that first rehearsal was great. It was to have Robert and Stephen jump right into it. But it was also really scary as a director because I was like, Oh man, I wish we had 20 more rehearsals because there's so much more we need to get through.

[Interpreter]: So if I just leave you here, you're not going to be able to get where you're going. Yeah. So why don't you be and let Tereek be Tereek and let him watch you.

[Doug]: Perfect. I love that idea.

[Chris]: People I think are probably more familiar with what is called TASL, which is tactile American sign language, which is really just using regular visual sign language adapted to the hand.

[Interpreter]: Haptics is, it's just a way of touch communication that we use here at Helen Keller. So we might just put our hand on Robert's shoulder, for example, to just mean hold or just to stop.

[Chris]: But then there are also some people who might learn the print on Palm method, where you actually take letters, use your index finger and print them on the other person's Palm of their hand.

[Robert]: It was hard for me to actually use that type of communication because I'm not used to it. So it took me a while to understand what Tereek was trying to communicate to me on the Palm of my hand.

[Doug]: Yeah. I definitely came away from that first rehearsal. Pretty nervous. I was pretty sweaty by the time we got out of there and looking around at other people going like, is it hot here? Is it just me? Because I know Dan's going to get mad at me. If I don't get you back to the cafeteria. It was really great to be able to work with the two of them. And then also moreover though it reaffirmed that cast the right people.

[HKNC Employee]: So if you want to cross the street, say, you can see or hear this will get you recognized faster. And then when he's walking, he just needs to just move his cane. Like that's all he needs to do.

[Doug]: Great. You know, basically we're going to be outside with like some natural light from streetlights, but also like most of the light that he's going to feel on him is light that we're introducing.

[HKNC Employee]: I actually have a lot of concerns with what he's going to be able to see exactly.

[Doug]: It was in March of 2018 that we had that first meeting with HKNC, but it wasn't until November of that year that I got an email the day before we started shooting the film that we found Artemio, or we know where he lives.

[Sue]: One of our former staff members had the opportunity to be at a forum and at that forum was Artemio.

[Doug]: So now it's the day before we start shooting and we have this address for Artemio, and I was like, well, invite them to set. Let's let's have them come. Like, you know what better way to let them know what he's inspired to have him come down to set. Scene nine, take one, Mark.

[Robert]: I remember the first time I was standing there on the set, they had to do my makeup and I was like, Oh, is that what movie stars do? Okay. I'm going to sit in the seat and get my makeup done. And uh, took me over to a storefront.

[Doug]: Action. We were shooting this film in November, in New York city outside, at night. So you have the obvious challenges that you might assume of it being quite cold a bunch of the days.

[Robert]: I had to follow what Doug was telling me to do and it was cold. And I had to focus on keeping my eyes focused and not act as if I was looking. And it was tough with the weather.

[Doug]: You don't have to scan so much, but really? Yeah.

[Robert]: So just like I'm scanning, cause I don't know where he is. So that's, that was the scan just right?

[Doug]: Sure. Of course.

[Interpreter]: I think it helped to just provide Robert with a lot of the touch techniques. So giving him signals to indicate, keep going or to indicate like the scene is going to be cut or to stop. I think really helped out in this situation.

[Steven]: He was sticking it out. I thought Robert was about to like tap out, but he was like, nah, he said, no, I got this. Like I just needed a quick breather. He just got right back up and was like, yeah, we think we're going to finish this. We're going to do this. And we needed that. That just tightened me up. And I was like, yo, I can get this. Oh, sorry. It

[Robert]: It doesn't matter if I'm deaf and legally blind, I still felt like I could do it.

[Doug]: We were shooting almost the whole film outside at night. And in those settings, Robert really has little to no vision. So something that we needed to figure out ahead of time, how do we break off and create little settings where the interpreters well lit enough so that him and Robert can communicate.

[Interpreter]: So whoever was not actually interpreting at the moment would hold the light over Robert shoulder so that the light wouldn't distract him. So it was coming from behind Robert. So he wouldn't get any ambient glare and he could actually see the interpreter.

[Interpreter]: It's called a silent call pager. It's a very simple system. It's just one way. It either chimes or if vibrates. So when they're striking the lights.

[Doug]: It's your part, so I'm just helping you find it. But it's your role to have, take more ownership over it.

[Robert]: Okay.

[Steven]: There was a scene where, when I had to, like, when he touches me and I kinda like shift, I kind of fliche reflexes. And he was saying that, you know, in real life, like it's, it's a sad thought that people in this world are afraid of like, you know, human connection.

[Robert]: The point is just communicating. It doesn't matter how you communicate, whether it's through sign language or with pen and paper.

[Steven]: There was a kinship that was building between us. And I believe that is showed on camera. It was something just magical just happening around everyone on set.

[Doug]: Cut. That's a wrap.

[Steven]: Woo! Had to let that out. Sorry.

[Doug]: So the shoot comes and goes and we're not able to get in touch with Artemio. A couple of days after Christmas of 2018, I was up at HKNC and I was like, I'm going to just go by his house and see what happens. We are in front of our Artemio's house about to knock on his door. To our knowledge, he does not know anything about this yet. So we're going to go in there and do our best to explain why we're there so that we can finally be reunited with Artemio and let him know that he's inspired this film.

[Doug]: Might've been better to do this during the day time. Just realizing that. But it's dinner time. It's like an approachable hour hurdle. Number one, definitely don't want to hop the fence. That would not be a good start to this operation. Any chance have you ever seen anyone? Um, if they have a son who's deaf and blind,.

[Person]: They do. They always lock their gates so you have to yell out.

[Doug]: Hello? Hello. I have a question. Is Artemio your son?.

[Person]: Yeah. One moment.

[Doug]: Yeah. Yeah. Come on. Okay. Oh great.

[Person]: Please, please. My husband,

[Doug]: What did Artemio say when you explained who we are and why we're here?

[Person]: I told him a seven year old friend that his acquaintance is here and wants to see him. You remember?

[Doug]: Very quickly. We realized that the most efficient way for us to communicate was just like how we communicated when we first met each other.

[Artemio]: Are you an artist?

[Doug]: Yes. Filmmaker.

[Artemio]: Do you want a glass of fresh water?

[Doug]: Sure. It had been at this point about seven and a half years exactly since the one and only time that I'd met him prior, but the instant, he walked down the stairs, like his appearance and his energy. It was very familiar, surprisingly so. Over the course of this year in searching for him, I started building this rounded understanding of who Artemio was through all these other encounters that he'd had with other people. I will tell you more about the film soon.

[Doug]: Yeah. It was great to be able to finally fill him in on this whole experience that he's inspired, but it was really just more than anything. Just really great to see him again,

[Artemio]: Such a pleasure to see you again. Doug had never even met a DeafBlind person in his entire life meeting me was his first time encountering a DeafBlind individual. And we ultimately became friends. Now I'm motivated to learn about becoming an actor and becoming an author similar to Helen Keller,

[Doug]: Robert being a part of this experience. Wasn't a challenge. It made it what it is. It was such an integral part of creating the environment that that was that pervaded. Every moment of the shoot it's in the DNA of every moment of the story that we're telling.

[Sue]: It gives other individuals who are DeafBlind , an example of what's possible.

[Steven]: It was a learning and humbling experience all around.

[Artemio]: I can do anything. Just like your typical sighted person can do it.

[Chris]: It doesn't really matter who the people are. It's about that connection that two people can make.

[Robert]: I hope to educate people through the film. So that's my hope for the future. And I hope that Doug maybe who knows he'll give me a shot at doing part two of this movie.

[Doug]: Th whoe journey from the start of meeting Artemio years ago, to aligning with Helen Keller National Center to casting Robert as our DeafBlind actor in the film has been such an amazing journey and it was, it was just so great to have it capped off by reuniting with Artemio and getting a chance to share that with him.

[Sue]: To really elevate people's, you know, just awareness about people who are DeafBlind is tremendous.

[Robert]: I feel like at the end, when we embrace each other and have the hug, I feel like it was showing how people can help each other out. And I felt like that was really something that really left an impact on me because we are all not alone in this world. Everybody needs each other. Everybody needs help. Everybody can help each other out.

Feeling Through Live • Episode 42: A Conversation with Marlee Matlin

[Doug]: Hello, everyone. Welcome to episode 42 of Feeling Through Live. I am very excited to be joined by Marlee Matlin today who has recently become a collaborator and an integral part of the Feeling Through family. But, you know, Marlee, I realize, I feel like I've gotten to know you well in some respects over the last couple months. But there's a lot that, I still don't really know about you. That this is a perfect opportunity for me, personally, to also get to know you a little bit better. And I'm really excited to just have a conversation about a lot of different things today.  

[Marlee]: And you know, what, my favorite color is?  

[Doug]: Why don't we start with that? What is it?  

[Marlee]: Because you asked me if you want to learn more about me. So I'm going to tell you; first thing up, purple is my favorite color. So there you go.  

[Doug]: That's a great color.  

[Marlee]: Now we'll get that out of the way. Now we can jump into the conversation.  

[Doug]: I think purple, isn't purple, like associated with royalty. Isn't that like what they say?  

[Marlee]: Well, I didn't know that, but, maybe so. Yeah. It's certainly, it's a warm feeling. It feels very. It represents unity to me. It represents. And it's also a little bit unisex. I mean, anyone, anyone can wear purple. It doesn't matter. It's, I just think it's a color that brings people together.  

[Doug]: Well, there's so many things I want to talk to you about today. But, you know, from, for me personally. Where I'd like to start, because it's actually the first reference point for me in my life of knowing who Marlee Matlin was. I was an avid fan of Seinfeld growing up and I very distinctly remember the episode that you were on for a number of reasons. One, because it was great and Seinfeld was my favorite show. And two, because it's the first memory that I have of seeing a deaf actor on screen. And, you know, I guess the first question to that is, you know. I mean, what is,  knowing that that was such a big, obviously you'd already won an Oscar at that point. But that was the biggest show on TV at the time. And I'm sure like me, there were a lot of other people seeing an actor who was deaf for the first time. What, was that experience like for you?  

[Marlee]: Actually, the experience was awesome. When, I recall being told that there was an offer for me to make an appearance on Seinfeld and I was in New York and I don't know what I was doing there. It might've been filming something. And I was in a hotel room and I got a phone call from my agent who screamed and said, "you're going to be busy in the next two or three weeks. You're going to be doing Seinfeld." And I said, "Oh my god, Seinfeld. Okay." And my first thought was, how am I going to work with four or five cameras at once? I've never had that experience of doing a multicam show, a half hour sitcom. I mean, I'd been in movies, I'd been in one hour dramas. And I was a little bit concerned how it would work with the way they shoot the show. But then once I read the script, I realized, you know, it was perfect. It was perfect. The sense of humor from, from the writers, from myself, all fit together perfectly. And it was great working with the actors. I was so looking forward to them. They're so talented. Brilliantly, brilliantly funny. They made me feel so welcome on that set and the crew too. And I think I was working out. What was it? I was working at the gym and Larry David saw me at the gym on a treadmill. And that's how he thought of putting me on the show. And, so,  listen, I still get texts. I still get tweets. I still get, you know. "Hey, I saw you're on Seinfeld tonight." Or, you know, "you're on a rerun." I mean, those reruns are nice. It was really a big honor to be part of Jerry's girls. You know, Jerry told me one time at an Oscar party, we were standing in line. It was like one of those after-parties. And he said, you know, Marlee. Our episode, the one with you in it, is one of my top favorites, my top 10 favorites. So that was really nice to hear that from Jerry Seinfeld.  

[Doug]: And, you know, what's so interesting. I went back and rewatched it recently, cause I remember it very, very well. But also I wanted to look back at it through the eyes of someone who's been in a very different space over the last few years with Feeling Through. Understanding much more of the nuance of disability representation. Not just in opportunities for actors, but also in the ways the stories are crafted. Something that I found interesting about it and I'm curious your take on it. On the one hand, your deafness was like, a little bit, the butt of a joke. But on the other hand, they looked so ridiculous. That they were actually, at the end of the day, the other characters were much more the butt of the joke because of how ridiculous they were.  

[Marlee]: Exactly. That's why that was the whole point of Seinfeld. That they, that, that little group of friends would make fun of people and it ended up making fun of themselves. It was perfect for me because there was nothing where I was pitied or nothing where I was, I mean, it was the other way around. And that was a nice change for everyone to see a deaf character portrayed like that. I had a scene where we're in the restaurant. Where they think, okay, oh oh. I can lip read for them. I could, you know. And they've got to figure out how to do this. Meanwhile, they're trying to cover up their mouths and their faces to make sure I wouldn't lip read what they're saying. And then I'd say, I'll do it. You know, it worked both ways. It worked both ways with the humor. And I think, I mean, listen. I use myself, I use my own deafness, my expertness in, in reading lips. And then you want me to make you look good at a party. And, you know, it was, it was this give and take. Kramer with his ridiculous, you know, explanation that he knows sign language. Making him, himself look like a fool, but I sort of go with the flow, you know, in a nice way. I think there needs to be more comedy like that.  

[Doug]: And, you know, that's what I, what I loved so much about it is that even though it was from quite a while ago, it felt like, though that it really held up through modern eyes. That it was really nuanced in that way, because ultimately, you know, the people in that story that are somewhat objectifying, your unique skill are the ones who ultimately look foolish and silly. And I thought that was like a really, nuanced way of kind of subverting, you know, what you'd say maybe more, kind of a outdated storylines. And it really kind of held up for me in a lot of ways.  

[Marlee]: It still makes sense. It's still fresh. It's still, it really still applies today. It's one of the very few shows that I'm very comfortable watching over and over again. It hasn't dated itself. I don't cringe. I don't regret ever having done the show. I wouldn't say, "Oh my gosh, man. That didn't age very well, that that's dated or why did we do it that way?" Listen over the years, we, of course, you know, whatever it is, what kind of work we do. We do go down different paths. But for some reason, this one has maintained a steady path. And it's, it's a show that the deaf community has never been embarrassed of it. I mean, it really, it's one of the first that really expresses a sense of humor when it comes to being deaf. It was written so well, it was written so well,  

[Doug]: You just mentioned, you know. One, that the deaf community is never embarrassed by it. You know, I know that you're not only the first and only deaf Oscar winner. You're also the youngest in your category. And I can imagine from a very young age, because of your, because of the lack of representation of people like you in Hollywood, I imagine you had to really take on a role as an advocate, which you are now very well known as, but I'm wondering in those early days, how much did you embrace being an advocate versus it was something that was kind of just thrown on you.  

[Marlee]: I really never did. I never did. To be honest, when I was thrust into the spotlight, into the Hollywood spotlight. You know, a year after I graduated high school, I was thrust into the spotlight just a year after I graduated from high school. And I remember thinking to myself, okay, fine. I'm doing what I love. I realized that my dream was coming true. I'm in a movie, I'm an actor in a movie. As I told Henry Winkler when I was 12, I want to be in Hollywood, just like him. And of course that's, what's happening right there. 19 years old. And then I became 20 during the shooting of the film. But I remember before Hollywood, I thought of myself as just a Chicago girl, and had never been exposed to the deaf community outside of Chicago. I'd never been exposed to deaf community politics. I didn't know about deaf actors. I only knew one. Linda Bove and Phyllis Frelich and Bernard Bragg. Maybe Ed Waterstreet, but I wasn't that. Maybe, Bernard Bragg was the one I actually met. And I didn't understand about the politics that were involved in the deaf community. I didn't understand ASL. I didn't understand all the different things about sign language. I, wasn't taught, about deaf education really. I mean, I didn't know about the politics about deaf culture and mainstreaming and being in classes with teachers who sign and, you know. There was much more to what I was exposed to. I was never taught that. Again. I was just a girl that just, you know, grew up in a community just like anybody else. Mainstream having different experiences, just like anybody else, but it wasn't until I did Children of a Lesser God. And in all honesty, because there was no social media at the time, I didn't hear about how, the deaf community felt about me doing a movie. I didn't know. And I had heard that they were looking for an actor to play my role of Sarah Norman. I think it must've been about three or four years, that I knew. Okay. And then when I surfaced like, "who the hell is this woman? And where did she come from?" Because there was an active group of deaf performers and artists who knew each other, who fully expected that they would be getting into the role. And I came in at the last hour, the last minute, and got the role. And they were like, "who is she to get this role?" And when the movie was done, I found myself having to grow up very fast. Everything happened so quickly. In fact, it all happened at once. So many things happen at once. And then I realized, "Oh, okay." Right after I made my appearance, the year after I won the Oscar. When I spoke the names of the nominees, is when I realized how much controversy I caused. Because they were angry with me that I spoke. That somehow I was passing along a message to parents of deaf children, that what I was doing on stage was the best and preferred mode to communicate speaking and not signing. And I was thrown for a loop. And it took, I mean, it's a long story and it was a long journey to get to the point where. It was tough. It was very tough, but I learned to accept it and I learned to deflect it. And I don't want to say that I was hurt. But yet I was, I was in many ways. Where it got to the point, you know it's funny that you brought this up. Because me being in charge of, you know, me being one to sort of express my opinions about deaf culture, making sure that deaf actors get jobs. Making sure that they're portrayed properly or whatever it is. I realized, wait a minute. No, no. I want to work in collaboration with other people in that community. But people say, I paved the way. Okay, fine. I paved the way, great. I started the ball rolling, but at the same time, I can't be, I can't do it alone. And I wish that one thing that might've happened, which was, I wish somebody would have come up to me right after I won the Oscar. Or maybe just before and just said, "Hey, we'll help you. We'll guide you, to understanding the world that's out there." Because again, I was so, so young and I had. I mean, I'm talking about someone deaf, being able to help guide me and realize, and I had to learn on my own. I think I just realized all of this about five years ago. And I said, you know what? I'm never going to apologize for what I did. If it was speaking at the Oscars, it was because I thought, well, it was right for me. I had to do a lot of growing up and yet at the end of the day, it's okay. That's why, when I see new faces, deaf actors, I always want to go up to them and say, "hi, is there anything you need? Is there anything you need to talk about let me know?" Because I wish someone had done that for me, but that never happened.  

[Doug]: You were kind of just getting to this in your response. But you know, how much. When you take on a new project, how much awareness do you have about how the deaf community is going to respond to that role? How much do you think about that?  

[Marlee]: It's a good question. I mean, number one. As an actor, deaf or not, you have to like the script. Okay. That's the first thing. Is the script, right for me? Is the script something that I can deliver? Is this script, does it have a role that I'm comfortable with? Is it something that I can play, type of character? I mean, those are all the aspects of any actor that goes through a script. That's what Henry Winkler, again, told me. You have to feel comfortable with the role. You have to feel it fits you. That's, that's the number one priority for me when I read a script. As any actor should, as any actor would deaf or not. So now with all of the conversations with, and the attention about; deafness, DeafBlind, disability, making noise, saying we're here. We need to work. We need to work. We need to do the work that's out there. All eyes are on us now as actors and as storytellers. Whether we're directors or writers. I'm fine with that. But we need to be able to do what we want to do at the end of the day, as long as we feel that the role is right. And that the role, obviously it has to be politically appropriate. We have to be sensitive to the community. But yeah, things have changed a great deal since when I first started and you're right, you're right. The role feels right. But at the end of the day, not everyone is going to be a hundred percent happy with the choices that you make. And I have to accept that. I'm not, I'm not one who looks at controversy. I don't look for controversy.  

[Doug]: Is there a role in your career that stands out particularly as like a, just a favorite of yours? Whether it was just the experience of taking it on or kind of how other people responded to it?  

[Marlee]: Well, Sarah Norman in Children of a Lesser God, will always stay with me. It was my first movie and I remember every single thing that I did to this day on the set, 35 years later. So many other shows that I've done or movies that I've done has sort of faded into my memories. I remember little highlights, but not the same way as I remember Children of a Lesser God. And when I watch the film, I remember exactly what I was doing while we shot that scene, during that day. What a huge, huge learning experience it was for me in my life. To the point where, I mean. It's just a one of a kind experience. Learning about what we're making, learning about what the crew does on the set, learning so much about the craft of acting. Working with other actors, working with the director. Craft service! You know. But other roles that I really loved, that I ended up doing, there are a few. Quantico was a lot of fun because I play, I played a law enforcement officer. I love playing on the L Word because it a whole different world for me. I love the challenge of that. And the West Wing I have to say was so much fun. It was a tough role, but it was a brilliant cast. And it was a lot of fun. And anyone who has the opportunity to work with Aaron Sorkin should be thankful as I was because, I love working. Even for David E. Kelly, on Picket Fences. There are so many shows and a lot of others that I wouldn't want to acknowledge at this point. But at the same time, Children of a Lesser God. To go back to your question, it's Children of a Lesser God.  

[Doug]: And I'm wondering, are there certain roles that you have your eye on now that are roles that you haven't had an opportunity to play that you'd really like to, whether it's something really specific or just an archetype of a character.  

[Marlee]: It has nothing to do with being deaf or not. Just the person, I would love to play a drug addict. And I've been in recovery myself for 34 years, and I know what it's like, and I know what kind of life the drug addict leads because I've experienced addiction. But I've never had an opportunity to play it. I think that would be interesting challenge. I think it's so, so you don't have to be deaf of hearing to be able to take on that role. You can just play the role.  

[Doug]: Well, to pick up on that for a moment, there's been a lot of discussion, particularly over the last couple of years that I've noticed around, there being more characters with disabilities in stories and have them be played by actors with disabilities. But to your point, you know, where do you think we, do you think we're headed to a time in the not too distant future where there will be more characters, actors with disabilities playing characters that are not only not written as having a disability, but are maybe, types of characters that we wouldn't, that the general public wouldn't normally think of as being able to be played by a person with disabilities. Do you think that's something that's happening?  

[Marlee]: Well, I mean, look at Peter Dinklage, what he's done in his roles. They don't talk about his stature. Nobody does. He just plays characters, that are, that make sense for him. And he's been very hot lately, you have to say. We need more Peter Dinklage's, we need more stories where people play a variety of roles. And that includes people who are deaf, just to enhance the story. A deaf character, somebody who happens to be deaf could enhance the character. It doesn't have to be about being the deafness. We need more of that instead of, I mean, I don't want to say we have to dwell on the disability or not, or the deafness. It's not germane to the role. I think it's about, I think more and more, I mean, people are still, I think, intimidated because, well, I mean, they see, you know, about box office ratings. Whatever IMDB number, they are. Are they number one on IMDB? And on the other hand. Oh, we're going to do this project out of love. We're going to do this project for the passion of the project. So those two things are always, you know, there's always a struggle between the two of them and disabled actors always have to face that reality. But they should, actors with disabilities should be able to do. I mean, we have to start somewhere. We have to start somewhere and people need to take risks and we need to see them being hired. We need more people like you, for example. Who are open-minded, who think outside the box. And basically operate without fear and instead operate with trust. That's why I say to my friends who are actors, when they say, how is it that you can get into the business? How do you get an agent? How do you get a job? And I say, "you know what? You have to hustle every day." You know, to get that. I mean, I'm fortunate. I have the Golden Globe and the Oscar behind me, but I still have to hustle. I have to go to my desk. I have to see what's going on. I look up, I find, I call, I research. I network. I write. And if you can't write like a writer, then find somebody who can write for you as a writer. Of course it's easier said than done, but you just have to get into it. Hollywood is a very funny business.  

[Doug]: You can say that again. Speaking of that hustle though. You know, I think with whatever progress has happened from Children of a Lesser God to Coda, which, you know, again, to your point. Coda is hopefully a great sign for the future because not only did it sweep all the major awards at Sundance. It also broke records for an acquisition from Sundance and a $25 million acquisition from Apple. So hopefully that that is, you know, a sign of more to come of the marriage between, you know, more stories in that space and also the financial element. But knowing that, regardless of whatever progress there's been made, frankly speaking. A young actor like yourself is winning an Academy Award right out of the gate, was gonna invariably have more challenges than in a young actor who was not deaf given, you know, where things were when you won that and where we're still going. How much of you, looking back would hoped, would have wished for say a more traditional, an easier path versus the one that you were, your path or not. Like how much, how much would you have hoped for something different or.  

[Marlee]: Well, look, I could say that I'm glad I got my Oscar early. That's all I can say. I'm glad I got my Oscar early because I have it. I got it. I was lucky, which, I mean, I guess it's pure luck. It's timing. I can tell you that I was very, very naive about the business? I, again, I didn't know what it all entailed, about publicity and what to wear and who you are going to go to the ceremony with. All of those little details that means so much to the Hollywood community. I walked in completely clueless, and I'm glad I did because the pressure would have been so much and I would have been so emotional and I would have probably over-thought it. And I would have driven myself crazy. So I'm glad that I, again. I was new. I was as green as could be. I got the Oscar. I said, thank you very much. Thank you for acknowledging my work. Most of you. And now 35 years later, having been in the business that time and having seen what I've seen in that time. The award buzz, the race, the people getting anxious, the PR, the stakes. Even last night I saw on CBS, a half hour, one half hour commercial from Amazon about two of their movies. And I'm thinking, all right, I'm so glad I wasn't part of that now, because I would have been obsessing. I don't think it's healthy, but what's important to me is the work, the people I work with. And hopefully back then I did my job and I continued to do my job and I continue to entertain people. And the fact that they acknowledged my work is really special. I mean, that's all I really wanted. So.  

[Doug]: It's interesting to hear about, you know, your experience of your naivete entering the Oscars at such a young age, being a gift for you. Cause I actually, I went back and watched Children of a Lesser God very recently, and I feel like.  

[Marlee]: It landed in your hands, no?  

[Doug]: Yeah. And I feel like when I went back and watched Children of a Lesser God, very recently, when we actually first started talking. And something, that kind of reminds me of your character in that film, in the sense that you're razor sharp and really smart. But also there is a little bit of a kind of bubble from the rest of the world. You are kind of a little separated from the world around you and it's kind of your. There is like a, even though you're so smart, you're so smart in that role. And the character's written so intelligent. There is a kind of a naivete because of your distance from others. That kind of sounds a little bit similar to your, Oscar journey as well. Like when you were at the actual experience of being at the Oscars.  

[Marlee]: That's an interesting perspective. You could say that. I mean, the real world versus the movie. But you know, art imitating life, life imitating art. Sarah, in Children of a Lesser God was isolated. She did only attend the school for the deaf. And then when she had no one else to go after graduation, she stayed at the school for the deaf and then suddenly a man comes into her life who opens her eyes and she grows up very quickly and he tries to make her do things she doesn't like to do. But at the same time, he's trying to help her grow up, into adulthood where she probably wouldn't have gotten that opportunity from her school principal or her mother, because everybody was struggling to communicate with her. But I think for me, Marlee, I did exactly what every other kid my age was doing. Whether I'm talking about five years old up to now, I saw things. I learned things. Just like any other kid would, but all within the bubble of Chicago. Before I knew it, then I was on my own and I never really planned to move out. I mean, I knew that I didn't want to stay at home, but when I got the movie, I said to myself, "okay, I guess this is it. I'm going to have to become an adult very fast. If I'm going to be leaving home." I. I mean, it was a crazy time. And yet I embraced whatever came my way. And whether it was something that I enjoy or didn't enjoy it, whether I had to work at it or whether it came to me easily. And whatever, I mean, I can tell you all the barriers that I faced, but then I broke it down. I broke them down. And while I was breaking them down, I would talk, I would make, I would talk to people about how to make things happen. So for example, I dedicated myself to my sobriety. I dedicate myself to close captioning. I dedicated myself to my career. And I think if it weren't for Children a Lesser God, I don't think I would've been able to do these things. And as I said before, Henry Winkler was one of the many people who helped me along the way. People who have been nothing but good friends and Henry in particular is somebody that I've known since I was 12 years old and he's still a mentor to me to this day. So it, again, I just went along for the ride after the movie and, you know, from the Golden Globe being a complete shocker to me. Really, I didn't expect to win anything only because I didn't know what it was about. I didn't, sitting at the front table. I wasn't even sitting at the front table at the Golden Globes! I was sitting at the one level up in the back. And I had Lee press on nails. And, I wore my glasses. I mean, I was just a regular Marlee. Oh, look, look at all the celebrities. Look at all the Glitterarty. And that's what kept me sane. No ego whatsoever.  

[Doug]: Yeah. And I think if you want the longevity like you are having and are going to continue to have, I think that probably serves you pretty well.  

[Marlee]: Probably so. I think I agree with you. And I think it was also married with that was playing a big role. Being grounded is to be sober at 21, which I did. I got sober at 21, the day after I won the Golden Globe and entered myself into rehab. Because I knew that the career path that I was embarking upon was a big deal. And I need to get myself clean. And I did it all by myself and no support, except for Jack and my family somewhat. But I can't blame them because, when you talk about a daughter, who wants to go sober. They didn't know any better. "What, what are you talking about?" I wouldn't blame them for not being there a hundred percent. My dad might've been, but then who gets nominated for an Oscar when you're in rehab? I! I got nominated for an Oscar in rehab. What a nice bit of trivia I can talk about.  

[Doug]: It sounds like you really lived about three lives by the time you were 21 years old,  

[Marlee]: Maybe four, right? Yeah.  

[Doug]: You know, one thing that, you know, talking about family. One line that stood out to me when I watched Children of a Lesser God, is that your character, Sarah says something to the effect of, wanting deaf children. Before you started a family, was that something you personally thought about at all?  

[Marlee]: In all honesty? I never even thought about starting a family before. I was a little too well. I mean, everyone can decide, but at the time I was so young, I was too selfish to, focus on myself. About exploring life out there. And then it was about getting sober, and listen, it didn't happen overnight. My sobriety, it took a while. So I was focused on myself for the longest time. I dated, I had a good time. That's what I was looking for. And so I didn't rush through life until I met the man of my life. And then of course I changed.  

[Doug]: So I think, do you have four children? Is it?  

[Marlee]: I have four children, 25, soon to be 21, 18 and 17.  

[Doug]: And I'm wondering what, pandemic life has been like for you and your family. How many of your kids are at home with you during this last year?  

[Marlee]: So she, the oldest one is living on her own. He is at, Marquette University. He is a senior in high school and she is a junior. So the two youngest ones are here at home. And I have to say that I'm lucky because they're old enough that they can take care of themselves. Regarding school and homework. So I don't have to, you know, have a blackboard and become the teacher at home, homeschool my kids. I tip my hat to all the parents who have had to juggle working at home and homeschooling at home. I mean, so that helps. That helps. I got lucky. But yeah, they miss their friends. And one of them refuses to see their friends in person. It's been a year, all they've done is virtual encounters. Maybe two or three, but they keep themselves within a bubble. But yeah, I think the pandemic has really, I don't think I've ever stayed home this long before in the entire year. I'm always on the road at least two or three times a month. And my dog and my cat are wondering, why are you still here?  

[Doug]: As for someone like you, I imagine has been on the road often for your entire career. Has there been something nice about being able to stay put so much? Are you going a little stir crazy now?  

[Marlee]: I've never talked to so many people in my life. People that I've known, but we really didn't have time to sit and chat. Zoom is now my middle name and I'm okay with it. A lot of people say that they're zoomed out and I understand the fatigue that comes with it, but I'm very visual. So zoom is perfect for me. This is what I like. I love to be able to see people instead of having to send emails or talk on the phone, which of course I can't do. So I'm not complaining about zoom at all. Thank goodness for that technology. I mean it's yeah. I mean, I cook a lot more. I have to say that I've been cooking a lot more.  

[Doug]: I was going to say that Marlee "Zoom" Matlin doesn't really have that much of a ring to it.  

[Marlee]: It's okay with me. It's all right. Marlee "Zoom Facetime" Matlin.  

[Doug]: No, there is something interesting. You know, just to segue to Feeling Through for a moment. You know, so much of Feeling Through's life has happened virtually. And in certain ways it's allowed us to reach so many more people. You know, being present at every single film festival we're in, because they're all virtual and you can be at all of them. And, you know, connecting, doing conversations and conferences with people all around the world, has been something that's kind of been made possible being that everything's virtual and you kind of can be everywhere. So it has had its benefits.  

[Marlee]: Who can complain about that? I mean, what better way to connect with people?  

[Doug]: It has certainly had some benefits and you know. Firstly, as we transition to Feeling Through , I also want to say, and I'll say this many more times over, but it's been an absolute honor to have you and Jack on the team. You've been so amazing, such amazing collaborators, so invested and so generous with your time and your energy and your resources. So I'm still kind of on cloud nine about it, even though it's been quite a while. So first thank you for that.  

[Marlee]: No listen, look. I believe in this project. Simple as that. I believe in Feeling Through, I believe in you, I believe in the actors, I believe in everyone who's associated with this film, whether it was in the making or after whatever it was behind the scenes. I can't be any more happy about the authenticity that is represented in this film. I mean, yes, we cast it that way now, which is beautiful. And I tip my hat to you for doing that. But at the same time, the whole thing, just screams authenticity. The words you've written, the stories you've told. Whatever it is that you've expressed throughout the whole Feeling Through journey that I had an opportunity to see. I mean, I never have taken my eyes off of this journey. And I know that when I look at a project, I look at what my gut says, what I feel. And I say, if it's good or not, and this is good, and this is good. And this is what I want to share with the world because you really, truly, richly deserve everything and all the accolades that come with this film. And so thank you for listening to yourself because what happened in that one moment that inspired you to do Feeling Through. What were you doing the hour earlier before that moment that you met the young man that inspired this movie? What were you doing? 15 minutes before you did this? What was, three minutes before you did this? When suddenly you met this guy that changed your life forever and you changed as a result, other lives forever. So thank you for being brave. Thank you for trusting yourself. Thank you for making this happen because it just needs to happen.  

[Doug]: Well, thank you, Marlee. I appreciate that. And you know, as we're talking about producing, you know, I'm hoping, can you talk a little bit more about your producing ventures and you know, what you're focused on and also what you hope to continue doing in the future from a producing standpoint?  

[Marlee]: Well, you know, in the past, I would say about, I think I've done four or five years after I won the Oscar. I was at a point where I thought, you know what, I need to set up a production company with Jack here. And Jack runs this production company called Solo One Productions. And our goal was to find projects, rather than wait for projects, to create our own. I thought, why wait? Jack, write something, find something. So actually after doing some research, Jack, did our first film that we produced today, produced together, called Eddie's Million Dollar Cook-Off for Disney, and they bought it. And then the next thing, you know, we went onto the next project. We shot that in New Zealand and I wasn't in it, but I couldn't go because my mum was having a quadruple bypass at the time, but that was great. And that was our first, our first producing effort. And we did a movie for Lifetime that we shot in Oregon, called Where the Truth Lies with Regina King, look where she is these days. I mean, Regina King and I got to work together at a movie I produced and now she's so hot. So that was another effort on our part to produce. Sometimes you go through dry spells, you know, and it's when I'm working for example, on a TV series consistently, then I find that the producing efforts, we don't focus on them so much. So I have to learn how to balance that. You know, you're trying to juggle all of these different balls in the air, but right now I am like a, you know, I'm done with waiting. I'm ready to roll up my sleeves and I said to Jack we need to hustle a hundred times more and whatever it is that comes our way, I look at it. I'm looking for projects today, where, as I said again, we represent them authentically the stories authentically that they're good stories. Depending on, it doesn't matter what the character is all about. It's not about being deaf. I just look to also collaborate with other people. I think collaboration is extremely important, especially like we are doing the Feeling Through. I mean, you did a brilliant move by collaborating with Helen Keller center because they're an authentic organization where you can get everything A to Z when it comes to aspects of the DeafBlind community. And I have right now on my slate, several projects that I'm excited about that I'm producing. Some that I'm not in, some that I am in. So, maybe perhaps we can work together again.  

[Doug]: I hope so.  

[Marlee]: If you'll have me.  

[Doug]: If you'll have me, I guess it's mutual then. You know, one thing that came up when we first connected about Feeling Through. We also, had, we were also on the same page about how it could be used beyond entertainment. The ways in which we could use it, educationally, community building. And one thing that came up was we talked about how, you had mentioned that it could be something that could be a really good tool, or vessel to help build stronger bridges between the Deaf and DeafBlind communities. Communities that at least in my experience over the last few years are, you know, quite separate for obvious reasons. They're completely in many ways, completely distinctively different cultures and communities, but there is also an obvious overlap too. That doesn't always necessarily seem to be there as far as, cultural connections between the communities. I'm wondering what your thoughts are about that. And you know, about those communities and how maybe Feeling Through could potentially play a role in building a bridge.  

[Marlee]: I think you're right. And I think I appreciate that you brought that up because they are two different worlds. The one thing that just really binds them together is that they can't hear. Deaf people are very dependent on their eyes and extremely so. Whereas maybe if an individual was deaf or they had a progressive vision loss, or maybe they were born being deaf and blind, their way of communicating with the world, their tools are different than the Deaf community. They have interpreters just like we do, but in a different form. Yet at the same time, we understand what it's like to be deaf. I don't understand what it's like to be blind. I don't understand what it would be like to have Usher Syndrome. I have a lot of friends with Usher syndrome. I've had friends who at once were sighted and now they're completely without sight. Some high school friends of mine, I've watched this happen to them. And I would hope that Feeling Through, as you said, would bridge these two communities together, where we would get to the point that we could work together. That we could educate the outside world, that we're not that different. And yet we are unique communities that want to work together. Once you examine how we go through life, I think it will help everyone else. At first, I have to say when I, you know, I met Robert and watched him and I have to admit; how is he communicating his interpreters? And I thought that, "Oh, it's funny." It's just another facet. I mean, you know, instead of one interpreter, he has two interpreters. Instead of, you know, they're closer to his field of vision. I'm still learning about people as a result of having this experience of being associated with Feeling Through every day. And yeah.  

[Doug]: Yeah, you were kind of just getting to this, but you know, you'd made some reference points of people that you knew that maybe who were deaf, who had lost their eyesight, and obviously getting to know Robert. But I'm wondering, beyond those reference points, how much did you know about the DeafBlind community prior to coming on board with Feeling Through like, what, how much was it?  

[Marlee]: Nothing. Almost nothing.  

[Doug]: Yeah. I mean, that was me too.  

[Marlee]: Almost nothing, no. I had taken a memorial service for Bernard Bragg and there were a lot, it was a lot of work. Where we had to coordinate interpreters and we had to plan. And it was, it took a lot, I mean, picture about three months. And at one point, someone at the very last minute said, so Marlee, because I got four interpreters for the event. With microphones and no way to choose who would be other voices and almost the very last late hours of the morning, "What about the DeafBlind community?" And I said, "Oh, what, oh, right." And I'm so happy that they let me know. To be honest. It wasn't my area of expertise and I don't want to sound selfish, but I just honestly did not know. So I thought, where can we find people? How can we get interpreters? And so I knew someone who was an expert in this arena, and I said, can you be in charge of this aspect of the memorial service? And she took eight interpreters who were DeafBlind interpreters. And at the end of the day, it worked out beautifully. So that was a big relief to me. So yeah, it's.  

[Doug]: It's definitely been, you know, as you well know at this point, certainly a learning experience for me, every step of the way. And something.  

[Marlee]: Oh yea, absolutely!  

[Doug]: And something that I realized too, is that, you know. As someone who had no, didn't know anyone who was DeafBlind in my immediate world, I'd also never seen the representation either. So I realized that like, you know, part of the reason I had no knowledge.  

[Marlee]: It's been enough. There's not been enough at all.  

[Doug]: I couldn't think of a single reference point. Other than when I remembered learning about Helen Keller as a very young kid. And I realized I had no visual reference. I had no, like, I'd never seen a movie or a TV show, or even really a news story that I can ever think of that featured the community.  

[Marlee]: Well, I mean, I think Richard. I mean, we've seen blind people on screens. But again, these were all people putting on costumes of disability or being blind that they weren't authentic.  

[Doug]: And, you know, that's something that I've had heard spoken about in other ways, but I've recently really taken on how you talk about disability is not a costume that you put on. I love that way of phrasing it. I'm wondering if, you know, I think there's reference points a lot of times that you wouldn't have. Like, it would be so obvious to someone now that you wouldn't have a white person play, a person of color. Like I think people would immediately would have to be explained why that is problematic. And certainly there's historical things that make it a little bit different in certain ways than what you're talking about. But do you liken it to something like that? Do you think there's, or do you think there's some point in the future where maybe it's a utopia that we won't get to, but there's so many opportunities for everyone?  

[Marlee]: I think we're talking about race and issues of race are so much more deeply problematic than issues having to do with ableism. You can't. I mean, race is just something you just can't absolutely do. When you're talking about disability, you're talking about some sort of physical aspect of the person, but race is so it just a completely different, completely different.  

[Doug]: So to that point of being completely different, I'm wondering, do you think there's ever a case, even if it's sometime down the line in a different world where it would be okay for a non-disabled actor to play a character with disabilities, do you think that is something that's ever okay?  

[Marlee]: I think we've seen enough of that. I've seen, we've seen enough of it. We've seen enough of it because now we are aware of the fact that there are so many actors with disabilities. There are so many actors who are deaf out there who could play the role, expertly. Who again, would be playing it authentically. Because if you look at the two, you compare the two there's nobody that can play the same way as a person who's disabled, or. I mean, look at the movie Music. SIA's movie. Fine actor, in general, playing the role or for that movie, for that person. I watched it for the first two minutes. I could not stomach watching this person go through what it was like to play a non-verbal person who was autistic because the lead actor was shown what it's like to play a non-verbal character, the way that they communicate just bothered me because there are wonderful people out there who could have played this role who are on the spectrum. Not in the same level, but could not, completely as the same level as this character, but who, I don't know. It's just. I believe fully. I know there are people out there to play the roles. If you just look, but to have this cast the way it was, uh. I mean, you know, maybe in the past we would have been more comfortable with it. You know, fine. Okay, it's a character you can play. But I think since what's been going on, I think since what we know. Since all the noise that we've made, to have this still happen in 2021, I can't do it. Listen, I love Kate Hudson. I think she's a great actress. I love her mother too, Goldie Hawn. But I just wasn't comfortable watching this movie with her in it. I wish the actress who played the character with autism played it better. I'm not one to criticizing an actor's work, but I know what's real. And it was hard for me to watch this actress play opposite Kate. As much as I have respect for the actress in this film. SIA, I respect her music. I know that her intentions probably were good, that she really loved to develop and shoot this film. And I feel bad that she had to lash out the way she did with those who questioned her choices. I feel bad for everyone concerned. It's just not appropriate these days, because these days, you can't do this any longer. Cause you just can't. It's a tough situation. I would not criticize or say anything bad about any actor's work, period though. Really.  

[Doug]: Well. That's such an interesting example you brought up because I'm pretty familiar with it. I have not seen the film, but I did read a good amount about it. And I did read about the progression of SIA's response initially pushing back a lot, and then ultimately acknowledging that she's learned a lot in this process. And I think that's such a microcosmic example of the fact that, these things have not yet been talked about and thought about enough because SIA, if SIA had thought about it before she wouldn't have done that.  

[Marlee]: Maybe, and that is, she did say she spoke to a variety of organizations having to do with autism, which I believe, of course she probably did. I mean, anyone should, who was doing their homework and had a passion for the project. But yet, and she chose this actress because they were good friends, which is fine. And she believed this actress could do a good job. But the reality was that autism is not something. I mean, it should have been played with somebody who was on the spectrum. That's all I can say, it was simple as that. And I know people think, well, that's what acting is all about. If you can't act that way, what does it all about? And you know, we're at that crossroads where we have to answer that question. It's a long conversation. It's a long conversation we have to educate. We have to listen. We are entitled to shoot and develop and produce television and films, whatever we want to, and play it. That's, that's the fact, but there is a line that we should not cross that you'll find yourself being taken down hard for not portraying them authentically. There is such a fine line about how do you deal with both sides of the argument? It's very political or, you know, somebody it's almost akin to what the Republicans and the Democrats and the Independents are going through. I mean, I wouldn't try to touch any of this with the ten foot pole, you know, myself, no.  

[Doug]: You know. There's this story that comes to mind for me, that's very different from what we're talking about, but I think you could use it as an analogy. One of the first films that I ever made, I studied abroad in Prague in the Czech Republic. And I was making a film with a friend of mine there. And we made this film that all the actors were Czech. It was Czech language. We were working with an all Czech crew and we ended up telling this story of this young man who's enlisted  into the military. But he actually, he doesn't believe in the war. So he's actually trying to get out of town with his girlfriend so he can evade the war. And, you know, we thought it was like an anti-war message. And then we played it. We didn't know a lot about Czech culture at the time we played it to a Czech audience and people hated it. They were so angry. They were, we had a Q & A afterwards. They were furious with us. And we had, no, we had, I mean, we didn't think it was the best movie ever, but we didn't think it was that bad. We didn't understand. And then afterward the Czech, our like Czech dorm mother with the program we're on. She told us, yeah, the reason people really upset is because, you know, Czech Republic had been under foreign occupation for hundreds of years through several different empires. And that's kind of, you inadvertently perpetuated a stereotype that, you know, Czech people, just avoid war. That they just get rolled over and that they don't want to participate. And the reason that story came to mind is because if you start telling stories about cultures that you don't know about, even if you have the best intentions, you're going to walk into a trap. So really, that to me, that's authenticity.  

[Marlee]: You're going to get taken down, you're going to get destroyed.  

[Doug]: To me, that's like an analogy about authenticity. Well, you don't always have to work solely in stories that are directly your experience. But if you're going to tell stories that deal with other people's experiences, keyword that you mentioned before. Collaboration is necessary because that's how you nail it on the head.  

[Marlee]: It's your ass on a rack.  

[Doug]: Exactly, exactly.  

[Marlee]: I had an interesting perspective from, something or someone that I knew, fairly well. Who saw Coda and this person had one comment. That he wasn't crazy, he loved the movie. He loved the movie, but the comment that they made was that the portrayal wasn't, or the family, the Rossi family in the film wasn't, sophisticated. That they were from a working class neighborhood. And the person was afraid that people in general, who had never met or seen deaf people or deaf characters or sign language would think that's what all deaf people are like. And I said, but that's not the case. It's just one aspect of a community who happens to live the way that they live, who work hard. Who may not be sophisticated when it comes to salary or social status, but they love each other. They care for each other. And it's much more than just that surface aspect. I mean, yes, we all know there are deaf lawyers. There are deaf doctors, there are rich deaf people. There are poor deaf people. There are homeless deaf people. There are regular deaf people. So, I mean, I think we can tell stories, regardless of what people think, or especially characters who just happened to be deaf and whoever they are, written, however they're written, whatever they do, however they're portrayed. So I mean, you know, a movie is not the entire world of the deaf community. So, you know, you're right. One has to do the homework, but at the same time, you can still, you know, if you can pick one story, if you could make one story, tell that one person's perspective. That's okay. That's what we'll be making is about. But it's not, nobody has ever said that a film represents the entire world.  

[Doug]: That's well said. I'm certainly we fielded that with Feeling Through as well. So I can totally understand that, but you know, Marlee. We're out of time for today. I want to thank you so much. You'll have to come back another time. We'll do it again. But thank you. Thank you so much, Jack, as well. And just again, I just want to end by saying, I'm so excited for the journey ahead with both of you and can't wait for everything we're going to experience. So thank you so much.  

[Marlee]: I couldn't be more happy. I can't wait for people to see the film more and more people to have more discussions about it. People, the friends, the family, their kids. You know, somebody at CBS. I don't know. I don't care. I want everybody to see this movie.  

[Doug]: Well, thank you so much.  

[Marlee]: Nice Doug, Thank you.  

[Doug]: And thank you everyone for watching today and we'll see you next week. Bye. 

LA Times: Marlee Matlin on 'Feeling Through'

[Host]: 174 films qualify for this year's Academy Awards, live action, short film category. But only 10 have advanced to the shortlist for nomination. One of those ten is Feeling Through. A film about a late night encounter between a teen in need and the DeafBlind man. The executive producers, Marlee Matlin, and Jack Jason joined us to talk about the film. Welcome to you both.  

[Jack Jason]: Hi there. Thank you for having us.  

[Host]: Marlee. I'm going to start with you. Tell us a little bit more about this story that is so touching and heartbreaking at the same time.  

[Marlee Matlin]: Well, actually the first time I saw the film. In which it was after the film had been produced. They sent me the film. I just wanted to clarify that they sent me the film after the film had been produced. I was completely mesmerized by the story, by the authenticity in the acting. Particularly in the actor who plays the DeafBlind character. In fact that he was DeafBlind and I was amazed how well the story was put together. I just couldn't take my eyes off of it. Every second, every camera angle, every bit of action, every bit of dialogue that was in this film was so powerful for me to watch. And as you said, it is about a late-night encounter between two people, two unexpected people in a very unexpected situation. The cold streets of New York. In the middle of the night, both of them wanting to get home. One, the young teenager, the character who was called Tereek, trying to find a place to even sleep for the night.  

[Marlee Matlin]: He meets a young man who's standing in the corner who says I'm deaf and blind, and I need help to cross the street and to get on a bus to go home. And this character Tereek. I guess you could probably say that he was, it was all about himself and he was wallowing in his self-pity. But yet when he met the man who was blind and deaf, somebody who had never met before, somebody he'd never even been encountered in this life. Realizing that here's somebody who's alone and that maybe I can help him for a few minutes. But the bond that they establish after those few minutes is all about being unselfish.  

[Tereek]: You've never seen a blind or deaf guy before?  

[Marlee Matlin]: Again, this movie isn't about being deaf or blind. Both of them have an agenda. Both of these characters have an agenda. They want to get home, but they establish an unusual friendship. In that moment.  

[Host]: You mentioned the actors Marlee, and Steven Prescod is the young actor who plays Tereek. And then Robert Tarango is this, let's just call him a leading man, shall we. Who plays the deaf and blind man, and he is deaf and blind.  

[Marlee Matlin]: And that is correct. That's why I was fascinated because there is a level of authenticity here that we haven't seen before in a film. Using a deaf and blind actor to play this character has never been done before. It's the first time ever in the history of film that we have a DeafBlind actor playing a DeafBlind role. And instead of having just an actor who puts on the costume of disability. Again, I always like to say disability is not a costume or makeup that you just apply and then take off. And what is interesting is that Robert, who plays a deaf and blind character in the film, has always wanted to be an actor. And the director, Doug Roland had been looking and auditioning a number of actors for the role. Actors who are deaf and blind, and all of them were great. But for some reason he couldn't find the connection that he was looking for, something more in the actor. And then somebody at the Helen Keller center, thought of Robert who actually worked as a cook in the kitchen, at the Helen Keller center. So they brought him out on his break one day and he auditioned and then the rest is history. There was a connection and the rest is history.  

[Host]: And you saw an actress signing on television when you were a really young person and she gave you confidence.  

[Marlee Matlin]: That's correct. That's right. And actually there's two different shows that featured the same actor. Linda Bove, who I saw on Happy Days. I remember watching Happy Days and saying, hey, there's somebody signing there and she's signing my language. I'd like to be able to do that. I want to be able to do that. And I was a fan of Happy Days before she was ever on the show. And then I saw her again as Linda the Librarian on Sesame Street. She really paved the way for me and for several other deaf actors as well. She gave me the inspiration, the motivation to dream.  

[Host]: It is so important to have this inclusion and representation.  

[Marlee Matlin]: This time, this moment. It seems to be louder than ever about inclusion, about accessibility, about diversity. And I'm so happy that we are finally being heard. Our voices are being seen and heard.  

[Host]: Jack, I want to address this question to you. You and Marlee have known each other for a very long time and you have a production company together. What's your mission statement?  

[Jack Jason]: The mission statement is for people to understand in the projects that we optioned, in the projects that we develop, in the projects that we hop on board is to show people that there's a great talent in a person by the name of Marlee Matlin. And that her Oscar was not a fluke, that it was not the result of pity vote and that she has the right, just like anybody else does, to play the role, whatever role authentically. And it doesn't have to be about being deaf. And it can be a great story that happens to have a deaf character. And I think the roles that she's done since that moment that she won the Oscar; whether we're talking about the West Wing or Picket Fences or the L Word or Switched at Birth, you see that. But she should be doing a lot more. There are women in her age and her position who are doing a lot more and Marlee should be just on a equal level with them. So that's my aim. That's what Solo One is for.  

[Host]: I do want to say that right now seems to be a very special moment in Marlee's career. Not just the success of this short film, which is groundbreaking. But also the film Coda that was selected to open Sundance, which is a big, big deal! There was a bidding war. It will be released later in the year and Marlee, I know will be back to talk to us about it then.  

[Marlee Matlin]: Absolutely. I look forward to it. And I'm really, really thrilled that Sundance believed in our film, Coda. And it's, you know, it's a whole different vibe than Feeling Through, but I think the similarities are in that they're both authentic in the terms of their casting. And that's why I'm pushing for more attention when it comes to films that cast authentically, as well as including other deaf actors. People who, whether it's their film or television or musical or whatever it may be, for all of us to have the opportunity to display our craft.  

[Host]: Well, I want to tell everyone in the audience they can find Feeling Through which again has made the shortlist for Oscar noms. You can find it on YouTube. Thank you both for being here. It's a pleasure to meet you and we'll see you back again.  

[Marlee Matlin]: Thank you. Look forward to it. Yay! 

Whoopi Goldberg hosts 'Feeling Through' panel

[Whoopi]: Hello, my name is Whoopi Goldberg. I am short, I have round glasses. My name is a W, and I have a hair kind of like an octopus in a funny kind of way, but I'm cute. And I am here because I'm talking with the folks who've made an amazing film called Feeling Through, and I just want to tell you that it has already racked up 1 million views in the last three weeks. And it's the first film to star a BlindDeaf actor and was inspired by a real life encounter that, the writer had. Doug has partnered with Helen Keller Services to authentically cast the film and create a fully accessible screening event around the film, the Feeling Through Experience, which they took across the country. First in-person and now virtually, Feeling Through has won 16 awards on the festival circuit and hit 1 million views in the first three weeks. So I want to introduce Doug Roland, who is the writer, director, and producer. Marlee Matlin, who is executive producer, Robert Tarango co-leads first DeafBlind actor to star in a film and Steven Prescod co-lead. So, first Marlee, I have to ask you this question, because I would like to know the answer. What was it about this project that really got your attention? Because I know how picky you are. So what was it about this that made you want to get involved as an executive producer?  

[Marlee]: Hi Whoopi, thank for letting me hop on, with the description, first of all, I'm going to describe myself what I look like. I'm a white woman with blonde curly hair, and I'm wearing a blue jacket with a pink glass, and I'm not as cute as you are, but we're going to go ahead. When I was approached by Doug, to have an opportunity to see the film, I sure at that point, I'd be happy to look at it. I had never taken my eyes off the screen the entire time for the entire 18 minutes. My mind was blown by the authenticity of the film, by the actors performances, by the storytelling, by everything, by the film, making that dope put together here and what really excites me about it. I mean, if something excites me like that, it means that I need to pay more attention to it. And from the moment that I saw the film, the first moment I was hooked and we connected, and I can say that the rest is history, because I had to hop on him, I really did.  

[Whoopi]: And so you decided I have to be part of this. What is the, what's the thing that made you say I've never seen anything like this before, because it's very unique this movie.  

[Marlee]: Well, that's true because the uniqueness is because it is, we've never seen a film display authenticity like this, using an actor who is deaf and blind in a role that is deaf and blind itself, that it's never been done in film history before you you'll see people portraying disability, like a costume, they'll take it off and put it on. And in this case, this is unique because it is authentic. And what's more, I mean, there's always stories that are about, you have a character who is deaf or characters blind in a film, in a movie, for example, or even in television, any, any character with a disability is always talked about that. Oh, okay, they are disabled. We are talking about the disability. We are making it about the disability. And in this case, this film is not, this is a film that talks about a connection between two different people in the middle of the night who want to get home. And that's why I was so attracted to this film. It's a movie about two people, not about being deaf, blind, not about whatever DeafBlind issues are out there. So now I'm going to ask you, Doug. What made you decide that I've had this experience and I need to make an experience that I can share with other people.  

[Doug]: Well, first Whoopi, thanks so much for leading the conversation today. And, my image description, I'm a white male in my mid thirties, short, dark hair, little light, little Scruff on my face, wearing a blue jacket and a plain white backdrop. And every now and then we have those, those moments in life where every molecule in your being is firing, knowing that in that moment, you're going through something that will change you moving forward. And that's really how I felt in my interaction with Artemio 10 years ago, who's the person that this film is inspired by. And again, it started off really simply as just me, very similar to what you see in the film, me seeing Artemio standing on the street, holding a sign that said I'm deaf and blind and need help crossing the street. And at first, my first thoughts were, this is the first DeafBlind person I've ever met it really just seeing them. That was what was the most resonant thing. But after I spent this hour plus waiting for a bus with him and really getting to connect in the same manner that you see the two characters in the film, me drawing one letter at a time on his palm, him writing back in a notepad, I got to know this man is this really charismatic, warm, and just like beautiful person who had this smile that would light up any room that he'd be in and was just someone that I felt like I've made a really profound connection with. And it was after we were giving each other big hugs goodbye. And I'm kind of tearing up a little bit, having this real New York moment of this fleeting intimacy as he drives off into the night, wondering if I'll ever see my new friend again, I realized that in this one interaction I'd gone from initially seeing this man is his disability like, Oh, wow. The first DeafBlind person I'd ever met to seeing him as my new friend, that's going off into the night that I hope our paths will cross again. And there was just, so there was so much from that interaction that stuck with me, but it was one of those things where like, it was just firing in my chest and my gut. And I just knew that I needed to somehow find some way to share whatever it was that I was gaining in that moment with other people. And it was quite a long journey to get to here. But it was something that I just, it was just one of those few instances in life where you just have that gut feeling, the moment something's happening, that this is significant.  

[Whoopi]: So how difficult was it when you set out to make this, to find an authentic DeafBlind actor?  

[Doug]: That's a great question. I knew so at the time that I actually set out to make this film, which mind you was about seven years after the actual event, I wrote the film shortly after, but it lived on my computer for a number of years because I just didn't think I was ready to make it. But when I finally was ready to make it, I just intuitively I knew I wanted to cast a DeafBlind actor, but I'd never heard of any DeafBlind actors. And very fortunately I ended up, connecting with, and then partnering with Helen Keller Services to make this film, which was absolutely necessary because Helen Keller National Center, which is the part of Helen Keller Services that provide services for people who are DeafBlind they're based in Long Island and have the largest network of people who are DeafBlind in the country. They didn't know any DeafBlind actors either, but what they did was they just reached out to anyone that sounded like they fit the description of kind of what I was looking for to people all across the country, basically saying, Hey, there's this guy that wants to make a movie. Like, are you interested in acting? And very, very fortunately actually, Robert actually wasn't on our casting list when we were initially casting, but we had a break in the schedule and Robert was actually working in the kitchen at Helen Keller National Center when we were doing our casting. And halfway through the day, we had a break in our casting schedule, someone in the room goes, Hey, what about Robert? I feel like Robert would be great for this. So Robert was just pulled out of the kitchen, not really being explained where he was going lands in this room with some guy with a camera and is being told these auditioning for a movie. And I guess you could say the rest is history, but yeah, it was such a fortunate thing to be able to partner with Helen Keller National Center to be able to have that network, to reach out to and have all the accessibility needs we needed to make it happen.  

[Whoopi]: So I have a crazy question to ask Steven. Steven, what was it like to discover that you are going to be playing was extensively was a white guy?  

[Steven]: Well, thank you Whoopi for facilitating this. And my image description is I'm a black male box braids and a man bun with a white turtle neck. When I first heard that I was being cast that I actually didn't know that the story was related to a Doug's encounter. It was real life. But, when I read the script I felt that it was a universal just being casted in it, I was just excited to be a part of it. And my first time playing alongside someone who a DeafBlind actor it was an amazing experience. Yeah.  

[Whoopi]: Well, I want to say Robert, in a way you are a magical being, because we, I don't think many of us have met a DeafBlind artist and actor. So what was it about this story that made you say, okay, I will try this out, this could be good for me.  

[Robert]: Hi everyone. My name is Robert. My image description is I'm wearing a gray shirt. I have gray hair, tan skin, and I'm in my 50s. I was really motivated to be involved with a real DeafBlind actor cast in this role. It's never been done before. This industry is so competitive. I couldn't believe Doug picked me for this role. Instantly I wanted to jump right on and be involved with this film. I wanted to pave the way for the DeafBlind community. To show them that it wasn't another hearing, sighed person playing a DeafBlind character. I wanted to be their role model, to inspire them, to realize they can do it to. And that's what really inspired me and motivated me to be involved with this film.

[Whoopi]: Marlee, I want to ask, I know the answer to this, but I want you to speak to why it's important to have authentic casting when you can,  

[Marlee]: Well, do we have five hours? In reality, I can start by saying why authenticity is important because I can go back to 1985 when I auditioned for Children of a Lesser God, my first film. And the whole experience, the history of the casting of that film of Children of a Lesser God, the being able to get into the film then going on to win a golden globe, but then in an Oscar, and then getting all that attention and then throwing people off because a windmill, there's a deaf actor playing this revolving Children of a Lesser God. And I mean, there were critics who said, what, how is she acting? She, she won the Oscar out of pity. She was a deaf person playing a deaf role. So how was that considered acting and well, you know, Whoopi, I didn't stop there and I let them define me.  

I wouldn't let them say, okay, you're authentic. I just continued and I'm still here. So authenticity for me means we can't look at disability. As I said earlier, as a costume that, that an actor can put on takeoff, you are cast authentically as an actor, because whether you're deaf or DeafBlind or you're disabled, or you're a person of color, even. It's about experiencing the truth in the story and displaying that truth. We have to stop the artifice where acting is about taking on somebody that is not who you are. We have to stop all the isms in Hollywood that racism, the autism, the age-ism whatever, and focus on authenticity in portrayals it. And it's, it's about the truth of the character. And it's, there are so many talented, deaf actors out there, DeafBlind people, there are disabled actors out there that could do so much. It could contribute so much to the industry. And a lot of times, and I'm talking about the past. A lot of times, people, producers, directors, even writers will say, well, let's use them and put them in the background and let's, we'll have that box check. And you know what, it's time for us to carry the films. It's time for us. As I said, we don't have to dwell on the disability. We don't have to dwell on being deaf or being DeafBlind. It's time to focus on the story was that, and I'm still fighting and I'm still looking to collaborate with deaf, DeafBlind actors, disabled actors, to all work together with the industry to make things happen. The people who have the power in Hollywood to make things happen. And that's why I was so impressed with what Doug did and that he reached out to help Hellen Keller Services, because it was all about people who know how to get it done. People who know how to tell the story, people who know how to bring them into the, into the mix. He did his homework, and that's why I was so impressed and happy to hop onboard this project and go on this journey with it.  

[Whoopi]: And also what it will mean now for DeafBlind actors and actors with different abilities. Because if it was difficult for Doug to find the actor, because, didn't know, couldn't go to this agent or that agent and say, do you have, so now we need to populate this world, our world of actors with more differently abled actors. I have to ask Doug how was, did you have to make the set accessible for Robert in particular? Or was there technology and how did you make this work?  

[Doug]: Great question. And right before I answer that, just to pick up on what you were just talking about to your point will be something that's so cool about this experience is that now having had the opportunity to take this film around the country, fortunately, prior to the pandemic, we got to do these fully accessible screening events with as many as 50 interpreters and support staff at a single screening to provide one-to-one accessibility so that anyone could join in and have these panel discussions and Q and A's. And then, and also taking it out online and having million plus people see it. I've gotten so many responses from the DeafBlind community. Not only that, they're so thankful for their inclusion in portrayal in this story, but a lot of people who are DeafBlind, who say, I want to be an actor. Now I want to do this. And that's, what's so cool about it. And Robert can talk more about this later, but something that I actually found out after the process was that actor, Robert, you always wanted to be an actor. You just didn't think it was possible. Cause you didn't see yourself on the screen. And I think this is something that, Whoopi, Marlee, you know, better than anyone here that is fortunately getting more attention in Hollywood. But for me, what's been so cool about this process is seeing it through Robert's journey, through the DeafBlind community. That's reached out very tangibly and specifically why it's important. It's important because there's so many talented beautiful people out there who don't even have in their consciousness. The fact that this is a possibility because they never see it. And all it takes is that one person to do it, to open up this new space to go, I can do that too. I want to do that. And I will do that. And that's, what's been so cool. But to answer your question will be about accessibility. Yeah, that was, this has been this three-year journey from when I first approached Helen Keller Services to now has been an absolute masterclass in accessibility. And the way we handled it on set was very fortunately again, got to work very closely with Helen Keller National Center and Robert ahead of time to make sure that we made this as accessible as possible. That meant creating, I know again, Robert can certainly speak for himself on this, but Robert still relies on some vision that he has left, but at night where we, 95% of this movie is shot on location at night in New York city, he's completely blind. So we had to set up various lighting scenarios to be able to facilitate, communication and with the interpreters and Robert, and obviously make sure we had an amazing communication team on set at all times to help the communication. So, it was one of those things where just to note that I think a lot of times, and Marlee, I know we've talked a lot about this. And Jack but people kind of take this on as if, Oh, accessibility, it's a whole nother thing we have to worry about. It's like costly so much trouble. I mean, movies are challenging and cost money. That's, that's just a given anything you do in a film is hard, but with the accessibility, it actually created such a beautiful, like family vibe on set and to have this whole new dimension for myself, for almost everyone else on the crew to have a new experience breathed a new kind of life into this experience that I think was not only not, not only something that made it like part or subtracted from it, but was super additive to it and made it like this unique, beautiful experience that it wouldn't have been without that. So it was definitely a learning curve, but like such a beautiful new dimension to have as part of storytelling.  

[Whoopi]: Right. I want to ask Steven, because as an actor, you are now immersed suddenly in a world that I don't know if you know, very many DeafBlind artists or deaf actors, what was it like for you? Did you have to learn some signing? What did you have to do? And were you a little bit freaked out because you were in such a different world? Yes, yes. I was a bit, a tad freaked out just a bit before I like stepped in, but when I met Robert, I wasn't like all that went out of the window. Robert, we build like such a great connection and that's always important  

[Steven]: With me when I meet any artists. And I felt like Robert was really talented. So it was easy for us to have that chemistry on set. And I'm thankful for the staff of Helen Keller, we were able to communicate and find creative ways for us to like, when there was time when the camera was action and when it was time for us to like stop and things like that. So it was very creative and fun at the same time.  

[Whoopi]: Excellent. So, Robert, I would imagine for a DeafBlind person, tactile signing as a key element for interaction. And how was this handled during this pandemic time? I mean how do you do everything that you need to do in the time of social distancing?  

[Robert]: This is Robert speaking. Well, it's hard right now. It's hard to communicate mostly I'm at home. So I'm communicating with my family. I do, we text message back and forth. My family is hearing, my mom does sign a little bit too so I can communicate with her as well as my sister. My sister also has Usher syndrome. So that's the cause of my blindness as well. We both have Usher syndrome but really for us, the biggest thing is, being together as a family and technology really has been groundbreaking for us and really has helped with communication as a whole. Right now with everybody with masks on it is a challenge. It really does impede communication. You really can't human guide when you actually physically grab somebody's arm because of touch. So now I really a little bit more reliant on using my mobility cane to navigate, but really, it's not an easy time right now and it's causing a lot of communication mishaps. So we just have to figure out other ways to communicate, we text back and forth. I still have some vision. So I use a video phone to communicate so I can still call and get in touch with other people.  

[Marlee]: I'd like the follow up, if you don't mind, we'll be for both Steven and Robert said that Steven mentioned at first that there was a little bit of hesitation about what to expect before meeting a DeafBlind person. And of course that's natural. It's the same way with a hearing crew, knowing that they're going to have a deaf actor on set or a DeafBlind Actor for that matter. It's the same thing. It's natural that you always want to question how you communicate, but when you come together, you make it happen. You open doors, you open your mind, you open your heart, you meet halfway and you communicate.  

[Whoopi]: Did you feel that once everybody understood the story, that you would find that you change the hearts and minds of people who you were working with? Cause I can't imagine that this story did not shake some folks up and perhaps have people looking at the world a little differently. I'll give that to you Doug.  

[Doug]: No, I think that's the beautiful thing about storytelling is that at the end of the day, whether you're on set or you're watching the finished product later, you're all there with that like common focus on the story that ultimately whatever trepidation or fears or questions that people have, the story is something that people really rally around and connects people ultimately. And one kind of anecdote that comes to mind, off the top of my head on set was, I think initially as Marlee was just saying, I think it wasn't just something that Steven was thinking about. There were a lot of crew members on set where that, somewhat even expressed a fear of working with Robert because it was a very unknown thing for them. And they, a lot of times when people have no exposure to something, they are fearful again, why representation is important, but we'll get, we can, that's a whole other discussion, but there was a moment where it was very cold when we shot this outside at night, in a winter in New York, people were cursing my name a lot on set for making those choices.  But, there was this key scene between Steven and Robert, where on the bench where at the bus stop where we did a wide shot and how did this whole scene play out? And it was really challenging. There are a lot of little micro beats to it and it was tough and, Robert was struggling with it and we all were kind of struggling with it. We went back inside to like warm up and really go through this scene, micro beat by micro beat. And for this like two minute scene, we probably spent 45 minutes to an hour going through each second of it and really beat micro beat by micro beat. And you saw everyone in the holding room, they were kind of warming up and you just slowly saw them all turn their focus, watching us work together, seeing how committed Robert was to making this happen and how hard he was working as a first time. actor, mind you, which is no easy feat. And we got walked right back outside first take Robert nailed it. And I mean, everyone on that crew rallied around him and was cheering and patting on the back and going like, cause they saw how much investment there was to get there. And that was a real turning point on set from that moment onward. It was such a family feel on set, no one felt awkward or weird. We'd had that like bonding moment. And I think people experience that when they watch film too, we've fortunately have had the opportunity to share this film with, in person prior to the pandemic with thousands of people where there would be a lot of the deaf, local, DeafBlind community present alongside the general public. And so many people who had never experienced, knowing anything about the DeafBlind community would come up to us after and say, this was a life-changing experience for me.  I now feel like I have a personal connection to this community that I prior to this knew nothing about. And I also get so many emails of people who've seen this film. And then like a day later, a week later, see a person who's maybe blind trying to navigate a situation. They know how to approach that person respectfully ask them if they need help and help navigate them somewhere. If they do say they need help and say how that it's changed their way of thinking about an interacting with communities that they previously were maybe trepidatious or fearful because they didn't know anything about. And that's the power of storytelling is it's like this beautiful singular vessel that we can kind of all put our focus in on and then like come out feeling like much more connected than we did when we went in.  

[Whoopi]: I have to ask you Robert, because you're a first time actor and acting is it's not easy. But I'm curious as to how surprised were you when you discovered all of the itty bitty minutiae kind of things that go into making a film were you very surprised by it?  

[Robert]: Yes, I was. This is Robert speaking. There's a lot that goes into it, but in my heart, my gut, I knew this was right for me that I can do it. And again, this is my first time ever acting. I have never even worked in this business before. So I had a great team. We worked together, we talked about it and I have to say, I will never forget that moment where I sat in the movie theater and I saw myself on screen for the first time. I couldn't believe it, that everything that we did to actually make this, it was amazing. I'm still in awe from that experience and I couldn't stop smiling the entire time to realize that, wow, I made it. I finally did it. I'm so proud of myself and knowing that, not knowing or being in this business to realize that I can do it and how successful I did it. I can tell you how much that, how good that felt.  

[Whoopi]: I will assume that having a great co-actor helps. I have to again, ask you Steven, the two of you are marvelous in this movie. Like I want to start with that. And I wonder what you were taking away from this experience as you were working with an actor who no one had ever really has ever really seen before on screen an actual actor who was DeafBlind, were you aware of it or did it just fade from your mind and you were just working with another actor?  

[Steven]: Yes. Yes. Because I've been asked that question a few times, how was it working with a DeafBlind actor? And like sometimes always felt a little difficult to answer because I always felt like it was just, an actor that I was working with them. That's how it felt on set and like exactly what you said. Like it was just, he was just a, a CoStar and amazing, and the way we was bouncing off each other was better than a lot of other DSPs that are probably worked worth working within the past. So yeah. I mean, like, I think it's important. I think what Robert did on, on filming through already explains itself, you could feel it. I felt, I felt too when I watched him. So, yeah his, his talent speaks for itself.  

[Whoopi]: I have to ask you, go ahead.  

[Steven]: I'm sorry. Cause you did ask what did I take from it? Well, I mean, yeah, well, what I took from it that authentic casting needs to happen.  

[Whoopi]: Yeah. Yeah.  

[Steven]: That's the best and quickest way I can answer that.  

[Whoopi]: That's a good way. So Marlee, you have this young man come to say, I have this, this piece I want to do and I want to direct it and I'm going to produce it. And will you EP it? How were you concerned at all with Doug being a director for this piece?  

[Marlee]: Well, I mean, with Doug, I came on after the fact he brought me in as an executive producer, after the film had been produced. So they had already shot the film. So I, as I mentioned, how he asked me to watch the film and again on my, I was just astounded by and we just hit it off right away. And I'm very grateful that the fact that he asked me and that the fact that both Robert and Steven did the work that they did on the screen and Doug and the crew and how, how elaborative they were, everything behind the scenes in front of the camera was just so beautifully done. And again, it's about being authentic, but I think I have to say that if anyone brings me say, for example, a script, it has to do maybe with a DeafBlind character or a deaf character, disabled character. I, the first thing I'll do is I'll read it. If it excites me, if it feels truthful, if it feels believable,  

[Steven]: if it feels authentic in my, like you who gets script, I'm sure you do what be to as well. If it makes sense to you, if it makes sense to you for hop on board guys, if it doesn't, then maybe I can recommend it to somebody else and can connect them. I can make the connection for them. So that's what I typically do in that case.  

[Whoopi]: And what was he like as a director? Steven, I'm going to also ask Robert the same question, but I'm going to ask Steven first. What was Doug like as a director?  

[Steven]: Doug is very hands-on, patient, explicit. He knows what he's looking for, what he wants. So, he was very, very great to work with, and especially when you like times when I would, as an artist, sometimes like a second guessed myself, so Doug would always pull me to the side and tell me like, you got this, like just walk me through it. And he helped me in the best way possible and I love what we got from it. So yeah, he was very great to work with.  

[Whoopi]: And I'm going to ask you this same question, because I feel like as a first time actor, how did you feel having Doug as your director  

[Robert]: Working with Doug honestly, was wonderful. It was easy and smooth and natural. Anything I needed, he would really take the time to work with me. And of course our dynamics were a little different because we also had the interpreter. Sometimes things didn't always translate. So then Doug had to assume the role to really demo it for me, but he was really patient working with me. And I just have to say he was just a natural, he just treated me as if just, I was like an average person that my DeafBlindness wasn't even a factor. It just, it was a great experience overall and just easy. He's just a wonderful director and he really thinks about everything. And just, I remember just the final project I product. I can't believe what you created Doug.  

[Whoopi]: Now Doug what is your process? What was your process like?  

[Doug]: For me, I think the first word that comes to mind is collaboration. It's always a collaboration and that's to your point, what you're asking, Whoopi about me being a sighted and hearing director, telling a story that includes someone who's DeafBlind, and me being a white director, who's also telling a story about a person of color. So, for me, it's about casting so important because I don't see, I see actors as direct collaboratives in the story that we're telling. So I want someone who's not only like right for the part, but someone who's going to bring something to it that I could never think of or imagine. And that is adding a whole other dimension to what I could ever write. And I mean, when I tell you with no embellishment that, it was like, it was just knowing at first sight, the moment, the first moment I saw Robert, and also the first moment I saw Steven that they were meant to be in this. I'm saying that as literally as I can, it's those like, kind of amazing moments you have when you're casting something, when you just absolutely know the second they open their mouths. Okay. That's it? I mean like, well, we can do the rest of this audition, but like the second you opened your mouth, I already knew. And that it was not just because there were, again, I knew them at those moments, it's just energetically feeling like they were perfect for the roles. But as I got to know them, both as people, leading up to the shoot, they were also just have beautiful poet hearts who had things to add to it, and had the ability to come up to Helen Keller National Center and meet with, and hang out with, and get to know Robert and work with him individually, get to walk around the streets in New York with, with Steven and go on long walks and talks, just getting to know him as a person and saying from the very start I'm like, look, this is a collaboration, and I want you to feel like you can always, bring up anything that you think should be the case here.  

[Doug]: And with a lot of the scenes initially with Steven's character Tereek and his two friends in the beginning, like a lot of that was almost all of that was improv. It was just kind of like cultivating an atmosphere or an environment. So for me, it's like the words on the page are very important, but not gospel by any means. And, it's, I always welcome collaboration and really actually like require that from the actors that I'm working with. So that it's the best ultimate product.  

[Marlee]: That's called trust. You see? That's called trust. We need more Doug Roland's, directors who trust.  

[Whoopi]: Yeah. Well, I think it also speaks to the actors because if the actors trust the director, they're willing to go on this journey. And so Marlee, I wanted to ask you, what changes still need to be made in this industry for deaf and DeafBlind actors? We have come a long way, even way before my time when I started, there were very few deaf actors, no DeafBlind actors, deaf actors, like Linda Bowes, Phyllis Frelich,  

[Marlee]: Bernard Bragg. So many deaf actors who preceded me the generation before me and before them, but they tended to focus on theater, through the national theater of the deaf in Connecticut. And they'd been around a long time. And they provided opportunities for deaf actors and who became well known in the community. And well-respected both well, actually both from the deaf and the hearing community as well. But I mean, I can say that I've always wanted to be an actor. And I was fortunate enough to have met Henry Winkler who became my mentor when he told me to believe in myself and to not let anyone tell me otherwise what I should do in my life and now fast forward. And I continued to act and having won the Oscar. I thought initially, well, great. I'm on my road to success.  And I still faced barriers. I still, I might get work here and there, but I still found the barriers in life. And the problem was is that there was a lack of communication, accessibility, inclusion, and collaboration. There wasn't enough in Hollywood. So that's why I would say to people, to the deaf community to tell each other, let's make noise. Let's not be angry noise, let's say, hello, noise. Hello, we're here. Hello. And people thank me for paving the way, for more, to open the doors for deaf actors, but I'd say to them, no, it wasn't just me. And I can't even begin to do it alone. We all have to work together as a community. We all have to make things happen. So now, if you're talking about Hollywood today, I think I see more and more, roles out there for deaf actors. Now we have a DeafBlind actor, but I want her to be able to see more films that a deaf actor can carry a film, can tell the story about whatever it is. The story is in the film. And we don't have to dwell on being deaf. I'm not going to say hi, being deaf. We have stories to tell other than being deaf or being DeafBlind, or being disabled. So I think the doors are opening even more, more and more, more and more directors, more writers, more. I mean, even in terms of casting more deaf writers, more giving more opportunities, but we just have to keep on talking. We just have to engage. And that's all it really takes.  

[Whoopi]: Do you think that part of the problem in Hollywood is that people feel like, well, it'll be a lot easier for us. If it's somebody who at the end of the day, they can hear, they can see me and hear me and know what we're doing. And so I don't have to think about it. How do we change people's attitudes in terms of, well, it's better for the piece to have someone  

[Marlee]: who can authentically be themselves as well as be part of a story. How do we do this? It's those people who are unwilling, perhaps what, I can't be angry at people who don't take the time to learn or who don't take the time to open their minds and bring us into the conversation. I can't be angry at them. Maybe they don't have the education. Maybe they're just plain ignorant. All I can say is I need to focus on having a good attitude and going to focus on people who are more than willing to think outside the box. And it's a new generation we're in new times, times now, it's really time to let everyone into the mainstream to do whatever it is that they love to do. Whether they have a talent or a craft, we all are people that need to be welcoming and we all have differences or disabilities or whatever. I mean, everyone has some sort of disability or difference. I mean, why is it that we have to shut the door? Just because you're different, I'm seeing more and more people like Doug, like the film that I just did, Kodak, the director was more than willing to bring everybody into the mix. I mean, and we had signed masters on the set we had deaf actors on the set, we had interpreters, we had everything that was accessible and look how successful it was. So it's okay to say, let's incorporate these people you want to anticipate and tell them the story. It's fine. Let's bring it in. Let's hire authentically cast actors. And I think more and more, we're seeing this in social media and the conversation is opening up that we are here, we do exist. We aren't willing to be hidden any longer.  

[Whoopi]: I love hearing that. Doug, tell us about, the accessible screenings you created for Feeling Through.  

[Doug]: Sure. So, right when we finished the film, we knew, right off the bat, we wanted to share it with the community that was really at the heart of it. So we knew we first and foremost, before we thought about film festivals or anything else, we're like, we want to create screenings that are really for and include the DeafBlind community. So I worked with the Helen Keller National Center, to figure out what all the accessibility components we needed to be able to do that. And obviously, get the, however many people we needed to facilitate that. And we started setting up screenings across the country. So we did, we were able to do 14 cities, prior to the pandemic. And what that would look like at a, at a screening, there'd be as many as 50 interpreters and support staff. We'd have people we'd send out an RSVP ahead of time so that people could tell us what accessibility needs they had for the screening. And then we'd have as many interpreters as needed for people who needed interpreters. We'd have tactile interpreters, which is signed into the hand for some of the DeafBlind community. We'd have stage interpreters, we'd have closer vision interpreters. We'd have open captions on the screen that were a lot larger than normal with a black backdrop. So they're easier to read, we'd have audio descriptive tracks for people who are blind or low vision, where all of the visuals of the films are being described. And also accessibility needs taken care of to and from the theater. And, again, it was an amazing experience. And one amazing story that stands out that I think kind of Encapsulates a lot of sums up why it was so amazing and important was at our very first screening in Cary, North Carolina at this beautiful old theater on main street.  We had, again, we had 50 interpreters and support staff at that one, a ton of local, DeafBlind, blind, and deaf individuals at that screening alongside sighted and hearing of viewers. And we call it the Feeling Through Experience when we do these screenings, because we not only show Feeling Through, but we had to supporting documentary following the process of making the film that we'd screen as well, and then do a panel discussion and Q and A. And one of the very first people that stood up at our very first screening was a gentleman who was DeafBlind, who had had the entire experience, both films, and the panel tactilely signed in his hand and he stood up and he said, I love that film. I was so moved by it and I'm so happy to know that we have that representation on the screen, but moreover, I love being able to come and experience it in person. People oftentimes assume that because I'm deaf and blind, I wouldn't care to go to the movies, but I love it. I love coming to this theater and having this shared experience. I just never have the opportunity to do so. And it was such an amazing moment to have that be like literally one of the very first feedback, some of the very first feedback we got at our very first screening, because it kind of, I'd understood that intellectually at that point, but that really dropped it in for me, in a really immediate and visceral way. That's why this is important. That's why we need to do it this way. And again, we were able to do 14 of those. And then when the pandemic hit, as you noted Whoopi earlier in this conversation, particularly challenging for the DeafBlind community, a community that often realizes largely on touch during a time where touches prohibited essentially. So we started to create these fully accessible or as accessible as we could virtual experiences that would have an interpreter like you see on the screen today that would have live captioning that would have a stream text link that was accessible for people who are following along with the braille display, and try to create that same accessibility or as, at least as much as we could virtually as well, and be able to share it with so many more people way. And it's just been an amazing experience to be able to have everyone see it and everyone take part in it and experience it. And it's, it's been a richer experience of showing it as a result of that.  

[Whoopi]: I wonder if it also gives theaters or can give theaters an idea of some of the things they need to be doing in the theater so that everyone is welcome. I know that, for friends who can't see as well, having things enhanced in a way so that whether you're, partially sighted or, half cited or not cited at all, you can participate, in the experience of seeing things on a big screen. And it's like what they do at the opera, right. Because they have the headphones. And I wonder, have you all thought about putting together a list of things that theaters can do, whether it's for your movie or any movie that has the ability to have any kind of audience come in, have you thought about doing that?  

[Marlee]: Absolutely. Absolutely. I mean, most movie theaters do provide captions these days. They have, I mean, there's different tools that they use. They use either the glass that you can watch the captions, or they have a sort of a rear view mirror, or little caption device that you put into the cup holder. And I naturally I'd rather do without that. And just to watch a movie that has the subtitles right on the screen, rather than you can sort of device, and we're still working on that. And as you mentioned would be, they have people who, the Sennheiser devices for people who want to hear it better, or who I want to have audio description. I love the idea of maybe beginning some sort of means to provide larger captions for people who are low vision or DeafBlind. So that's a great suggestion.  

[Doug]: And, we did what was really great about figuring out how we can make these screenings as accessible as possible as we did create a document from that, that we have shared with other parties since, and we're, we're working on, trying to collaborate with a larger theater chain prior to, obviously theaters not being something that we can do right now. But yeah, as Marlee was just saying, there fortunately is, technology that's mandated to be implemented in theaters. We found taking it across the country to some smaller cities. They were a little embarrassed when we asked about the accessibility, because they're like, we know we're supposed to have that, but we don't really, so that's problematic, but yeah, it would be so amazing to go above and beyond what is mandated and find a way to have interpreters involved and bring in people that can't use the captions or the audio description and find other ways. I hope that we get the opportunity on the other side of this to be able to do that on a larger scale.  

[Whoopi]: Well, I think it would be a really good idea and a good reminder for smaller theaters to remember that just because a patron hasn't come, they may not feel like there's a place for them to come. So if you offer something that says I'm working on it, more people will come. But I also think about this for television. I know television has a lot of different ways of getting folks to hear and see as best they can, but I have to believe that there are other ways that we haven't thought of yet that are in the mix. And the last question I have for you, is what advice do you have for directors working with actors who are DeafBlind?  

[Robert]: So if you're going to cast somebody who is DeafBlind to play DeafBlind character in a movie, my suggestion would be, just have patience. It takes a little bit of time. You will have to have an interpreter onset, but just have patients listen. And I would suggest that you actually go to Helen Keller National Center and take a tour, really see what the DeafBlind movie is all about. Understand the diverse, the diversity within the community and see how we do things and see how we are independent and how we can do everything just in a little different way. But just my other suggestion would be, don't be afraid of us. We're all the same. We're all equal. We can do it just as much as anybody else. And realize that we can succeed and really the impact it would make to have more DeafBlind actors in Hollywood is really something that would just big game changer. And one that I would suggest that more, directors hire and cast more DeafBlind actors.  

[Whoopi]: All right. Well, I have to tell you all again, it's, everyone is really wonderful in it. I feel like this is one of those movies that people need to see if only to have a moment of taking a deep breath and watching a slice of life. Cause that's what it is. It's a slice of life. And that's the thing that makes it. So sublime is that it's not a slice of black life. It's not a slice of DeafBlind life. It's just a slice of life. And there are no better films in the world than the ones that give us a view into a world, not our own. So I just want to say, thank you. Thank you, Marlee. Thanks for allowing me to come and do this. Thank you, Doug. Thank you, Robert. Thank you, Steven. And I just want to remind people Feeling Through, make sure you find it and that's my wrap with you all today.  

[Doug]: Thank you Whoopi we appreciate it so much.  

[Marlee]: Thank you, my goodness, thank you.  

[Whoopi]: My pleasure. My absolute pleasure. 

Feeling Through Live • Episode 41: Unstoppable: Disability in Film

[Doug]: Hello everyone welcome to Episode 41 of Feeling Through Live. I'm very, very honored and excited to be joined today by Taylor Miller and Juliet Romeo from Slamdance, who will introduce themselves in just a moment. But before we do that, I'm going to just do a quick image description of the screen. So you'll see in the top left corner, you'll see Feeling Through live Episode 41. The title is Unstoppable Disability in Film. We'll be explaining what Unstoppable is in just a moment. There's a interpreter box in the top right corner throughout. My box says Doug Roland Feeling Through beneath it. And I have this kind of quirky electric keyboard thing behind me and a mirror over my kind of over my right or left shoulder here. And I'll just say, since they can't see the screen beneath Taylor, it says Taylor Miller Slamdance. Beneath Juliet Romeo, it says Juliet Romeo Slamdance. And Taylor, why don't you take away your image description?  

[Taylor]: Hey everybody. My name is Taylor Miller. I'm wearing a green sweater and necklace with the little plane on it. I'm wearing clear glasses. I am a white woman with hair just below my shoulders. I have some books off to my left and behind me is a whiteboard with some information regarding the panels for science  

[Doug]: And Juliet.  

[Taylor]: Hi everyone. My name is Juliet Romeo. I am a African Caribbean Brown skinned woman. My hair is curly with the three corn row braids on the side. I am wearing a oxygen cannula. My shirt I am wearing a blouse that is black and red, and I think that's a little bit of pinkish, lush, flowers all over it. My backdrop is a white bookshelf with some film chotskies all over them and some awards.  

[Doug]: Great. Well, and funny enough I realized, because I described myself every episode I forgot to today, but I'm a white male, mid thirties, Scruff, a little Scruff on my face as per usual, short dark hair. And again the timing of today's episode, couldn't be better because Slamdance is just launched. It is one of the premier festivals in the United States, and what's been really cool about this year that Taylor and Juliet will tell you all about is not only have they been super prepared for this virtual festival and have an amazing offering of films for only $10, which you can get slamdance.com, but there's also a new block of films this year called Unstoppable, which we'll be getting into as well. But before we get into that, Taylor, can you just tell everyone a little bit for people who aren't familiar with Slamdance a little bit about just what, what the festival is and why it's so cool.  

[Taylor]: Yeah, for sure. First I want to say thank you, Doug. This is an honor and yeah, just a real privilege to be able to talk with everyone today about filmmaking visible and invisible disabilities for creators of all ages. And I want to thank Erin and Jamie from Helen Keller Services for being our interpreter city. Slamdance is, Slamdance was started in the nineties and it's a festival that I think it was said it's one of those festivals that has to really  it's raw and it's original and it's authentic and instead of it kind of being perceived as well  it's  think outside the box with this festival, it's like, no, forget the box. There's no box. Just don't forget that. Yes, so Slamdance was started in the nineties, right along there was a group of filmmakers and they submitted their, their films to Sundance.  

[Taylor]: And those films were not accepted. And so the small group said, you know what, let's start our let's start our own festival from the films that were rejected. They started that and that's been a long, long time ago. They started that up in Park City and, and this year it's a huge deal because it's actually, this is the biggest festival we've ever had literally because of its accessibility. The amount of people that will be able to attend this festival. It's incredible. And we can do it safely from our own homes, it's on demand, it's on Apple TV, it's on Roku and  all of these different platforms. I think what's incredible about Slamdance though, is it's by filmmakers for filmmakers. We have some incredible alumni. We get the Russo brothers and Lena Dunham and bombed Bong Joon Ho, just to name a few, but Slamdance has definitely left its mark as a festival that does things a little differently. And I think there's a rawness, there's a rawness to Slamdance and to Slamdance films that really have kind  

[Juliet]: Of as a program, I've been a programmer for Slamdance for 10 years. And now I'm currently the festival manager for Slamdance Miami and the manager for the Unstoppable program. But a lot of the films, are first-time filmmakers, and that, and that's awesome. That's awesome that we champion those types of filmmakers, it's not all about big production values. It's about the story. It's about the heart of the story, and really being able to, what's the older Dodge, and I'll give you the same thing, only different films that can do that, and that have done that. And will you know that, that you'll see this year, I'm on Slamdance.com, especially with the Unstoppable program. I mean, it's, it's off the hook. This programs is amazing.  

[Doug]: And  to pick up on something you were saying there, Taylor, about Slamdance thinking outside the box and also being a festival like for filmmakers by filmmakers. I think that's a perfect segue Juliet into you introducing specifically the Unstoppable block, which is new this year and telling everyone what that is and why it's so cool.  

[Juliet]: In the spirit of Slamdance and for filmmakers by filmmakers, the Unstoppable block is, four differently able filmmakers by differently, able to filmmakers. Our programmers are all from the disabled community and we came together and we chose 22 amazing films from disabled filmmakers and actors. And it was such a thrilling experience. And also like what Taylor was saying about Slamdance came about was pretty much the same way that Unstoppable. We saw a space that wasn't being available and having exposure. And we created a space for that. Um, accessibility in a disabled community is so important. And for me as a filmmaker, myself, trying to get to spectacles, I love festivals is like a chore all worth it in the end, no matter what happens, but a chore in itself. And then there's I just got to thinking about how much of a struggle it is for me, and then how many other disabled filmmakers I don't ever get to see at festivals. And so it's difficult for me and I actually can walk, what is it like for someone that can't see or someone that  has a wheelchair or crutches. And so just being able to collaborate with Slamdance and have this event where it's like you brought the festival to up us, it was, it's just an amazing feeling.  

[Doug]: Yeah. And  again, I'd love to get into there's, there's a very interesting origin story, but behind how Unstoppable came to be. And I think it speaks to something that's been a very hot button topic in, in mainstream filmmaking over the last couple of years, but something that also is very, I think, indicative of, of the spirit of Slamdance , being a festival that as a filmmaker, that's currently in it, I can certainly attest to being a very, having a very collaborative spirit with the filmmakers that are a part of it or a part of the extended family. So Juliet, can you go a little bit into like the specifics of the origin story of how Unstoppable came to be?  

[Juliet]: A few years ago I went to a festival and I was really excited, actually. It was my first film festival and everything that could happen, as far as for someone that may has accessible needs happened that by the end of the festival, I was in the, in the hospital, like admitted, miss my flight there for two weeks. My oxygen broke, I didn't have access to elevator sometimes, and the sweltering heat of New York city in the summer, it was everything yet. It was still amazing. Like I'm literally in the hospital going, this was Epic. Will I do this again? Probably. Yes. But the struggle was always there. And for my second festival, I, it was local, but I realized this is just always going to be a struggle. And, but I didn't see any other options out there for us or for people like me.  

[Juliet]: And so I wrote a proposal, I wrote a letter, not really knowing what I was going to do with it. And then I had this opportunity in 2020, a film coach that I have been really good friends with Joanne Butcher. She had like a virtual event where she would invite filmmakers and people in the industry to speak about whatever they were talking about. This time, It was Peter Baxter of Slamdance . And he was talking about the future of film festivals and where would they go from here? After the pandemic. And I was able to ask him a question that I think really struck him to the core, which was, what does your festival look like? Does it have disability and diversity inclusion? And he, his answer was no, but he was not happy with that answer at all. And it was like, you can tell he was thinking about it. And I was like, well  I wrote a proposal. I would love for you to take a look at it and see.   

[Taylor]: if you like the ideas I've come up with, and that's pretty much all she wrote.  

[Doug]: To kinda talk about that, maybe Taylor from the Slamdance side of things, Juliet speaks in that origin story of how through her own experience, as, as a filmmaker at of festival, finding it really difficult from an accessibility standpoint, reaching out to getting connected with Slamdance and broaching that subject and Slamdance being very receptive, and now having created the most accessible festival you have yet. What was that like on your side, as far as maybe conversations around accessibility prior to Juliet broaching that and how things have evolved since that conversation?  

[Taylor]: It's been a conversation in the making for a while. But I think that when the timing of the year that we've all had. Last year sort of, it was really important to take. I actually, I think originally, Juliet had, had sort of suggested something like a workshop or something, something like that. And then Peter Baxter had said, well, or just a approach  let's just, let's just do this  let's go big or go home  let's do a program. I think the, the obvious thing, right, is that, I know that Juliet and I, and you too Doug I wish that this was something that had been done 10 years ago and then it wasn't. That it's not something that we're just doing now, but, but I think what's more important is to focus on, it's not like, why you're late to the table, it's that we've gotten to the table at all and that we will continue to do so for many years to come. I think that the collaboration aspect of the this is key because through Juliet's letter and through all of our programmers, have visible and invisible disabilities. And so the accessibility factor, there were so many layers of it, but we were able to do something so different, in thinking about the coming festival for this year, because the inability to have it in person. So automatically we were at a place that we hadn't really been before completely, where things had been offered online, but for the most part, right, everything was, it's a film festival everything's in person. And so the switch to that, for people to be able to access all of this from home, there was something I think really incredible  

[Juliet]: About how that affected our programmers, but also our filmmakers, because they weren't in a place where they were like, I can't, my film got in. I can't make it. I can't be there. It was like, no, everybody can be, so I think, it wasn't accessibility in theory, it was an action. And you know, it's virtual accessibility, but it's accessibility the same. One of the things that, I remember speaking, one of the times I spoke with Peter and his concern was, are you okay? We're gonna do everything virtually, what do you feel? And I was like, this is my home. Like, this is where I do everything. Virtually is like, it's, this is new to, to you guys, but it's not new to us. It's what we have been asking for the ability to work from home, the ability to go to school from home, the ability to go to certain events from our space where, where everything is be accessible to us, as opposed to us going out into the outside world and having to adapt to everyone else, like you guys find not to come in and adapt to our world and how easy it really was for you to do that. When I mentioned that to Peter, that was another like aha moment for him that he just was like, wow, this is, this is really great because I never thought about the fact that where, you guys are used to this already. This is gonna be a piece of cake for you guys.  

[Doug]: And it's such an interesting topic because, when the pandemic first hit and we were all doing everything virtually the predominating discussion was like, Oh, how terrible is this? Like, it's so annoying. We can't be in person. We can't do this. We can't do that. But something that, another narrative that has emerged particularly, in the disability community is the ways in which, in a lot of facets, not all of course, but in a lot of facets words created a real parody for people with disabilities in ways that they'd never experienced before. Juliet, like you're saying, like you were mentioning people who would have even less of an ability to navigate a physical film festival than, than your experience, which was still challenging, but people who might have even a harder time to get anywhere in a physical festival can now be everywhere, virtually in a way that has never been available to them and really be on the same plane as everyone else experiencing that festival. And I think it's such an interesting time, I feel like to be leaning into accessibility because there is something about the virtual landscape that is like a really interesting first step into really embracing accessibility in all the different ways and, and instituting that across the whole platform of Slamdance . So that makes me think though, Taylor question for you, obviously we've just begun, Slamdance today, so there's plenty going on right now to  

[Taylor]: Address 20 minutes ago,  

[Doug]: Right. About 20 minutes ago. I'm going to talk about next year Slamdance for a moment, even though we've just gotten into this one, but I'm just wondering what, if any discussions have started to emerge of when we're back in person, how we kind of knowing that there's this commitment to accessibility and really embracing that and continuing to understand that and evolve that over time, what may be early thoughts are there, how to implement that in a, in a physical setting again, when, when we are able to do that?  

[Taylor]: First off, I just wanted to say that before I answer that, this question of accessibility, I think, as it pertains to our Unstoppable filmmakers, is that the films themselves, that, that are in this year's program. They show the different ways of accessibility and the way that it's been represented and misrepresented in film and advertisements through the story and through the content that they've built. And I think that that's just something to mention, because in each of these films, the filmmaker has taken their perspective and showed us that, we're in this program where we are able to access real authentic stories. And what I mean by that is, I think we've talked a lot Juliet and the programmers this year. And one of the really important pieces of this was to really look at tropes and look at characters and look at moments in the arc of storytelling, where the disabled person comes in at this time.  

[Taylor]: And so I, I'm just going back to, to the core question of accessibility, and linking it to the program this year, because whether it's documentary or it's, a narrative, short, it's also only this year in our first, in our inaugural year, it's only short films. So one thing to answer your question, Doug, in, in the future, we hope to, that's a question we're all going to be having, but we hope to include, feature-length films possibly. But in terms of, an in-person experience, I think that that part of what's been so successful and genuine is that our we've let our programmers build this right. So turning to Juliet and to Asha Chai Chang and Gabriel Cordell, Chris Furby and Steve way and saying, okay, let's say that next year, everything is in person. What is the most important thing that we do on that level? Another person that's been amazing, for us to talk with and really learn from is Jason and his vision and his leadership as it pertains to accessibility, adaptability, and authenticity is something that's really quite profound. So I'd love to give you a simple question of, I mean, a simple answer of saying, okay, well, this, I envisioned that when, when you walk in, it would be like this and that. I think that, it goes more broad than that, because I think that the collaborative aspect is, is something that's going to have to really be enforced for us to all really, come together with a vision for, for in-person. Would you agree with that Juliet or? Absolutely. But I do feel like it's important for the virtual space to still be present. Oh, absolutely. Yes. For, Unstoppable I think it's here to stay. I think virtual.  

[Doug]: And that is such a cool again, like I think that's, obviously through the lens of accessibility, it's such a great thing to have as this we, it feels like we've discovered something that's kind of always been staring us in the face in a way of this, like, wow, this is like, actually not that hard to do. And it opens up so many doors, even when things are all well and good for us to congregate together again, why not continue to do this and, and inherently continue to provide accessibility while we're also working through how to make the physical experience more accessible. And it's such an amazing by-product of this and Taylor to kind of pick up on something you were just talking about, as we transition from the topic of accessibility, to representation of people with disabilities in front of, and behind the camera and storytelling and narratives that really, support the diverse understanding of these really diverse communities and that doesn't pigeonhole them in kind of like historical tropes that really set these communities back something that's so cool about what you did with the Unstoppable program this year is that it was programmed entirely by a panel of jurors where people with disabilities themselves, Juliet I'd love  you being part of that panel of jurors. talking about the significance of that. Cause I don't know if I've ever heard of that before, but maybe if you could kind of share, the importance of the way in which the actual, panel was constructed in the first place.  

[Juliet]: It was really important, for me when we were pulling together the panel. And then when we finally met all the other programs and we got together, I think it really hit us that this is important that we, there was there's this space where we know we understand each other, even if we all have different tastes and films, different, uh, disabilities, different ideas about the world. The one thing that we understood is that a struggle or a difficult space that we, we feel we always have to adapt to on the outside. And so when we started to look at the films, we, what one thing we always agreed on was we need to know if we love the film. One of the first things was how authentic is this? Is this actor, will we be a real disabled person? Or are they an actor acting as a disabled character? And so some films would just, we loved it and it broke our heart to find that out. Cause we're like, okay, we, we can't do it, but you know, Taylor, we'll tell you, she's like, you guys are cold=hearted because we can be like, yes, we love this. But then we found something, we found out something that wasn't authentic, like, and it's not to take away anything from the film, but it was like, this is what we want to represent to our audience. And that was really important to us that the representation was true and authentic, um, down to the very end we, that was something that we really wanted to stick to. And so yeah,  

[Taylor]: I said you were cold-hearted as a joke because they wouldn't budge. No, no, no, no, no, no. And then not, not that I was telling them to budge, but it was intense when, especially, in deliberations when we're discussing films and, and that, that was really that, that was a really hard to look operations. Yeah. There were so many fantastic, fantastic films  

[Juliet]: And yeah,  

[Doug]: We talk, we've talked certainly plenty in this platform about authenticity and authentic casting, particularly when it comes to disability in film and, both, Juliet and Taylor, you're just talking about having that really hard line of, Hey, it might be a good film. It might even be a really good film, but it wasn't authentic and that therefore it doesn't fit in what we're trying to do here for people who are maybe coming to this, who are still kind of understanding what often authentic casting is, what authenticity in, in disability, in disability and film, what that really means. Can you talk Juliet a little bit more about why that's so important and why it was important to draw that hard line, even with films that maybe were good films, but didn't follow through in authenticity in the way that you're describing  

[Juliet]: It was important for me because I wanted other disabled filmmakers or creatives to see that disabled filmmakers and actors matter, but also to open the eyes of able-bodied filmmakers to see that these kinds of actors exist. Like you don't have to cast someone to pretend to be disabled when you have not even had someone in your casting, audition that is disabled and how specific we even talked about when you are casting, you can't just put out a casting there says looking for a disabled person, everyone will show up, what exactly are you looking for? Who exactly is that character? And so, that was just really important that we, that we represented properly. But then we also educated, people that did not know what did not understand or did not know how, or what steps to take? So I feel like, we did a good job with that. We, it was just, I had these boxes that I, we had to check off before I could say, okay, this, this is okay.  

[Doug]: I'm going to take a quick pause for an interpreter switch.  

[Juliet]: Okay.  

[Doug]: All right. Continuing here. And Juliet, thank you for going a little bit more into that, because I think what's really important. And this is coming from someone who is certainly learned a lot about the process of authentic casting, and authenticity and disability storytelling, through the process of, what's been a three-year journey for me to make an exhibit feeling through. So I can certainly put a foot in both worlds of someone who not too long ago, knew very little about this to now having it be a very important part of my day-to-day life, for multiple years now, I think what people, that you've really captured, what you're talking about that sometimes people don't understand is the fact that for so long, there have been so few opportunities for people with disabilities in storytelling, both behind and in front of the camera. Cause I know there's sometimes this argument of like, well, come on, it's acting like the whole point is to take on another person's experience as your own, and really just honor that from wherever, be an actor, right. And look, in a complete vacuum and in a complete different world that is not the world that we live in and have lived in for many years. Yeah. Maybe in some alternate universe that, that has some validity to it. But the reality of the situation that we live in is that for many, many years, really the history of film, as we know it in, in many other parts of our society, there've been so few opportunities and, given to people with disabilities in film and so few structures that have supported people with disabilities, telling their stories through film that there needs to be right now, this hard line drawn where it's like, because there's so many talented people with disabilities, who've never had the opportunity as, and there's still so few stories relative to the pool of all stories being told that include people with disabilities when people with disabilities make up as much as perhaps depending on what numbers, you look at a quarter of our population in this country, until we get to any sort of, place where this, the people on both sides of the camera and the stories that we tell are reflective of the percentage of the large percentage of people with disabilities that make up our society.  

[Doug]: There is a need to really, focus on and create more opportunities that have not been there historically. And I think that's something that, sometimes people who may be argue on the other side are not really understanding that part of the conversation.  

[Juliet]: And that's what I wanted my mans to be able to translate for them. Because as much as we need to build, create this safe space for filmmakers, we also want to open up that space and invite everyone else. And when that doesn't, it's not like, a disabled only club. We want to be able to interact and collaborate with all filmmakers, but just as Slamdance , embrace this opportunity. We want to embrace the able community and have the able body community embrace us and see, even opportunities for them that they had never thought of. I done panels before at other festivals where I'm telling filmmakers like the importance and different types of opportunities. You have yourself when you open up the doors of opportunities for people that are just able for actors that are just able for cast and crew, there are so many other opportunities and funding and everywhere else, and you're blocking yourself off of that because you're,  

[Taylor]: You're not even thinking about how, how many layers you have your story can have just by doing this.  

[Doug]: And, that makes you think of the fact that particularly when you have a film festival that has so many films in it, right? Like a major film Fest, like Slamdance. Taylor do you have that number off the top of your head of how many films are in this year's festival or I'm putting it on the spot, but it's a lot, right?  

[Taylor]: Yeah, no, no, no. I'd say it's, it's a lot. I mean, so I think it's over a hundred, but thousands upon thousands of submissions.  

[Doug]: So you have thousands of submissions, like over a hundred that make the festival. And when I think one of the cool things about that, I love about film festivals is that you see so many stories, in very short time, like succession, right? So you might be seeing watching three, 10 or more films in one day, like back to back to back.  

[Taylor]: And there's when you watch,  

[Doug]: There's something different about watching a lot of films in short succession that you start to, there's a context that starts to emerge that is not just the film you just saw, but how that film plays  

[Taylor]: Unrelated to the other films. Exactly. And that's, what's the experience that you're having, the experience that you're having in the environment that you're surrounded by while you're having it example is details, makeup, sort of that, that viewing experience and sort of what you know  

[Doug]: Exactly. And, and through the lens of disability and film, I think for me, something that I've noticed in, in Taylor, I have a, I have a question for you out of this, but I think something that's really interesting is that when you, when you have this very unexplored territory in relation to a lot of other themes and types of films of, the disability, and film, and does storytelling, that includes, storylines and characters with disabilities being a really unexplored territory. Fortunately starting to emerge more, but still, few and far in between relative to, filmmaking as a whole, when you see a lot of stories in short succession, you're probably gonna be your interest is probably really going to be peaked by the type of story that you haven't seen before. And maybe aren't going to see after which in this case is, is a lot of stories that include, themes and characters with disabilities. Because I think one of the things that a lot of people enjoy about seeing films and a lot of films in succession is that thing that grabs them, that's different that they haven't seen before. And I'm wondering,  

[Taylor]: I'm just going to say that it's sort of, right. Like I was saying at the beginning that this, this concept of  give me the same thing, only different except, I shared, two films with, a best friend of mine last night and her husband and, they didn't really know, much about, they're not, they're not filmmakers. But they didn't know much about the Unstoppable program or I told him it was launching today. And, and, when they, when they called me after they viewed both of the films that they're, that are in the Unstoppable per program, they said, I've never, I've never seen something like that. Or if I have, I've never seen it done in such a way that's made me reconsider the way that I'm thinking about the things that I'm experiencing. So on one hand, I think that, one thing that was really important for the programmers and the whole team, right, is, let's show reality. Let's, let's, let's show what is going on here and, and, and how, how people are represented and misrepresented and let's show that let's also have, and this was something that's very important for Juliet. Let's also make sure that there are films in this festival where, it's a story and the story has a disabled person in it, or the director is disabled, but it's not the main, it's not about the distability, not about the disability. So, right. So this is what's, so it's such a fine line, right? Because I think one of the intentions here this year, and for every year it comes is, is to make it about, to bring that to the front. And yet it's, it's gotta be done in such a way that, it's not about disabled filmmakers, it's about filmmakers, right. I would say something like, what was it that I always said? It's about giving these filmmakers possibility in spite of the disability, opening up the doors to those possibilities, but not because of a disability.  

[Doug]: Yeah. I love that. And I think, again, it feels like you've really done that in the right way of Slamdance in because Taylor, like you said, it, it really is, there is a real, like tight rope to walk on that, particularly when you're in the context of the current context, we're in, if we were maybe hopefully  as we move forward in years, and this becomes something that is, all types of stories are embraced and shown it with such regularity that it's the conversation has really evolved and storytelling has really evolved, but where we're at right now, there's this fine line between highlighting it, but not making it about that. And that is something that both of those things are necessary. And it's, it's a tough thing to do. But I think what I love so much about  getting to be a part of, Slamdance with Feeling Through and getting to communicate with, both of you and the jurors that make up this section is you've made it a so collaborative and B by having it be, again, selected by a panel of jurors with disabilities and having them lead the conversation in a lot of ways, I think kind of inherently you've you, you've, it's enabled you to talk about both sides of that and in the way that both need to be talked about to not make it too much about one side of that or the other.  

[Taylor]: It's always, I don't think we have, one meeting where we weren't on the fence about something or walking the line of something, where it's like, well, if you look at any time you, binary is interesting, right. Because anytime, it's either, or you're attempting to exclude, right. It's like, from the very beginning you're just trying to create, an atmosphere of balance where, I've always been, as a documentarian, I've always been drawn to stories that are not being told. What's interesting now with sort of the, the amount of content that is online and, in social media and everything, there's kind of an over-saturation, right. But it's sort of like, you've got films that are being told, or if they're, if they are being told, do they have the platform where they are reaching the audience that should be reached to really have an impact to make change if that's what's necessary.  

[Taylor]: And so with this program, it's like one film at a time here. We're just trying to change the narrative, I think, and I think we're really off to a good start. I remember in the beginning we really wanted, I was, really adamant about, I didn't want to feel like anyone with any kind of disability was excluded, how can people that are blind be a part of this. How can people that, can't hear be a part of this. I wanted everyone to be able to enjoy films. I was speaking to someone and they were telling me about, Doctor Dre and how, well, the DJ, not the other Dr. Dre, but how he,  

[Juliet]: Has recently, gone blind and he's a huge cinephile. And so he, he loves films and he's trying to figure out how can I still be able to watch films. And that made me, say like, we need to be able to describe ourselves. Like, I feel like we're leaving. I don't want to leave anyone behind and feel left out. I know what it was like to be at a film festival and feel included as a filmmaker, as a woman of color, but then still feel like I'm invisible because of my disability, because there's a space that I still can't quite fit into. And so I felt like   

[Taylor]: Well, yeah, and yeah, yeah,  

[Juliet]: I guess that where all we leaving anyone out, like, are we doing anything that left someone out. And so I wanted to really try to make that even across the board. And I think we still have a long way to go and I want to learn as much as I can. So that next year we do include anyone. If we left anyone out, I really tried not to.  

[Taylor]: Going off what you're saying, that that's such a great point Juliet of light that space that you don't quite fit into. Yeah. That space is sort of what we're trying to create actually. Yeah. But all of those people that feel like they don't quite fit into that space, as best as we can, and just as has been said earlier as well, we still have a lot to learn. That's always going to be the case, we can always get better. We can always, learn more about representation and misrepresentation in, communities where, creators have visible and invisible disabilities and how we come to interact with that and checking our own narrative about, what it means to be able to do and to not do something. And so I think that, yeah, just, just, there was just a beautifully how you put that, that space that you, thats space is everything. And so if we can kind of collaborate on that space and share that space where we don't really feel like, yeah.  

[Juliet]: And we're all still learning, even as someone with a disability, we don't, we're still learning. Like, I feel like Gabe was learning so much about us. I was learning so much about Gabe and Steve. We're all learning about what, cause we're not, we're not a monolith. It's not just across the board disability that, little picture of, a symbol of a wheelchair. It's not everyone yet. It, it, they tried to just put us all in that box and we all have, very specific needs. So I really wanted to be able to have an open mind and open dialogue to everyone and everything that fits under the sun of disability. I mean, Steve Way, he told us, not too long ago, Doug, we were talking about film festivals and, somebody had said something like, well, when you went to one, he's like, what are you talking about? I've never been to one. I can't go, I guess, it's, to me, it's too much, you know what I mean? I can't, I can't do the whole thing and to go, and the  and so he was like, yeah, that's another reason. This is just so cool because, being able to go, for Steve was, it's just, it's really powerful.  

[Doug]: I brought this up oftentimes and cause it's something that I'm constantly learning about and exploring, but there's this saying that I've heard often echoed by a lot of people, that accessibility is for everyone. And the reason I love that so much is because I think there's so many different levels to that, in both literal and figurative ways, but the one that's coming up for me today that I'm like going to try to explore a little bit more through the lens of this conversation is that. Why do we, why do we love film in the first place? Like film of certain, we, of course we watch stories by ourselves at home on Netflix or whatever all the time, but I think the it's storytelling, the real power of it is that shared experience. Whether we're literally in a theater together or know that like, Oh my God, like I love this show so much. And I know all these other people are watching it too. And I can talk to my friend about it, or I can like go on some blog and read about other people's perspective on it. It's about the way in which it connects us through the topics that it explores through the interesting window into worlds we've never seen. And that's such a richer experience both individually and collectively when everyone can be a part of it, not just in the experience of it, but in the storytelling side of it. So like, it really does benefit all of us and in a way that, like, I think sometimes we might lose sight of, because, sometimes we have our blinders on and are just kind of not thinking about people outside of our experience and maybe not considering it in those ways, but like we, in that sense, we literally all each and every one of us benefit from everyone being able to be a part of it.  

[Doug]: And that's, to me what I find so compelling about storytelling and why I wanted to do it in the first place. And I think ultimately, I think it's that I think of the, it's a really bad analogy. I was about to do the, the Twilight zone episode where the guys, the last person on earth and he's has all the books in his glasses. So it's actually not really that app, but it's actually, reading's a very isolated, isolating experience, but with storytelling is very different. It's something that like, it's so much better when it's shared and that's so much a part of why it's like lights us up.  

[Taylor]: Yeah, exactly. And I think too, that there's something about, the stories we tell each other and the stories we tell ourselves are a way that we can make sense of the world. It's a way that we can build some kind of narrative and how we fall into own lives, and what it means to experience something together and to, I mean, it's really, it's really interesting, right? Because there's something where we're experiencing this together and we're all in separate rooms. It's just sort of the, the irony of everything, is it, isn't lost on us. A friend of mine last night was, was actually talking about your film, Feeling Through Doug. And she's like, I mean, I mean, how do you, I mean, how would they have told? She's like, no, you have to figure out a way because I'm not going to give any spoiler, but you have to figure out a way to communicate. In the best way that you can. And sometimes during that can change the trajectory of a life, right. As your film symbol shows us, and, filmmaking is all about making the impossible possible. There's always these waste stories about behind the scenes of how they got the shot or how they created this one scene. And I don't know any filmmaker that would look at the opportunity to have a differently abled person and not see that obstacle as an opportunity to create something, create this creative magic.  

[Doug]: I mean, I totally second that Juliet and I think so much about, it is the challenges, obstacles, things to figure out whatever way you want to label them, that make stories special, because that's like, ultimately, like what is a story reflecting, but some sort of some, not just a reflection of life, but some, some challenge or obstacle to move through that is the vessel to derive lessons and, and wisdoms from. So like when that's, that's always going to be part of the experience of making it as well. So why shy away from it? Why not embrace it and have it be something that serves the ultimate thing that you're putting out in the world that is because like what, what just from the actual finished product, what story's going to be good, that doesn't deal with massive challenges and obstacles and things to figure out and work your way through. That is what makes it a compelling watch. And that is always the process of making a film too. So why, when filmmaking is always hard anyway, why, why put, like, why say, well, this kind of difficult or op difficulty or obstacle is not one that we want to undertake. We only want it, like it's so ever through the lens of that, anything's hard and difficult about filmmaking. Like, if you look at any one part of it, it's all hard.  

[Taylor]: Oh, it was easy to make. I had no problems. Like, I've never heard that, but I think there's also something that like with this, going, this concept of like going virtual and, and being together, but apart, and not really the human experience and the interaction, that's always going to be, pretty special. And so sometimes I think also in the last months, you, whether it's technology and trying to figure out, okay, how are we going to get these films uploaded? And they're all going to be on this platform and this, there's always these little stories in our days, if we're vigilant enough to really see them, they can sometimes sort of poke fun at, either how serious we're taking something.  

[Taylor]: I was doing this thing was Steve View, amazing director, amazing director, but, this week, and we're doing this thing for Unstoppable and I'm shooting it on the Sony and we're doing it. And I sit down to send it to him. Internet's too slow. He can't get it. So we're like, well, what do you want to do about that? He's like, you're not gonna believe this. It'd be faster if you overnighted it to me. So I go to FedEx and I overnight the SD card. And then when I come back to try one more time to upload, it says access denied. So then I'm right back to the question of accessibility, right. And all the different ways that we're constantly kind of experiencing it. But my first thought is, how would I, how would I show this in a film? I think that that's also as filmmakers and as writers and photographers and all the different things is that it's, it's always already a story. It's just, we land into it. And you know what's great about Steve too, I think he embodies that openness and acceptance a challenge because we had an issues with filming me as well. And he just felt so cool as a cucumber. And he's like, yeah, you know what, don't worry about it today. We'll do it tomorrow. I'm going to mail you this. You're going to get it. And then call me when you get it. And I'm like, well, we only have today. He's like, don't worry about it. I mean, like, he's never been like, well, and didn't like anything that happened, the printer wouldn't work. The, the lighting didn't work, the sound stopped working on the camera all was, then it was just, it ran the gamut and he was just, so it almost made you go like, Oh my God, is this, is this going to happen?  

[Taylor]: Are we going to be able to get this in time? So even when Taylor told her story about having to run to FedEx, so like, it's, it's this, it's this Steve you way. He's just like, yeah. Because it also echoes that the thing that is a word that we touched so much about with the Unstoppable program and, story and making stories is that, the concept of patients. So that's been, that's just interesting. That's been a huge anchor of how many times people want to rush in and get the story and then they leave. But to really sit with a story or with an experience and take the time necessary to find out how people are living, how, how are people living over there? How are people dying over there? What, what, you know what I mean? None of, none of that can be done in a fast way. No, I think that, that goes to, Doug, you, spend a lot of time working on, Feeling Through when you, I remember you sharing that with me, when you got introduced with the Helen Keller Services, you didn't get involved with them and then, okay, let me get that from you. And then I'm going to, it became a year's worth of relationships and building trust.  

[Doug]: And again, relating back to our conversation from a little while ago, the whole thing is all the better for that real genuine collaboration. And it really wouldn't have been possible or certainly wouldn't be what it is without that. So it's, and it also, moreover has really impacted my life in a really meaningful way that in a really beautiful and deep way changes the trajectory of my life for the rest of my life. And on that note with like the last couple of minutes we have here, I'd love to get like a minute or so from both of you on this, but maybe Taylor starting with you. And again, the 60 second version, cause I'm sure we could do a whole episode about this, but what, how has this experience, particularly with this year Slamdance and through the lens of Unstoppable changed you?  

[Taylor]: This is, this has been one of the, the, this project and being a part of this is the, one of the great honors of my life. I mean, I say that a hundred percent, and it's some of the most important work that I've ever done, my understanding of visible and invisible disabilities, what I thought I knew it changes every day. I'm learning from Juliet all the time. I'm learning from Asha, from Steve, from Chris, from Gabriel, like, I think if you're, present in your life and you're able to relook at the way that you've been viewing yourself and others and, and what it means  when, when you see someone and the way that they're represented, It has to be, you have to be present and vulnerable to be able to tell the story in the way that I feel like the story wants to be told. So for me, one of the, the major things that, that I would say that has changed is the, Jason DaSilva was, having him, sorta as a mentor, Juliet and I worked with him a lot and Crystal Emery, KR Liu, Crystal Lopez. Even learning from you, Doug, and, your process, by having these experiences and by changing the way that we view what it means to be able to do something and not be able to do something. I think there's no way to do that without, looking at the way that we, we create stories in our minds about the world we live in and sort of the biases we have, or that we don't have, and other people that do.  

[Taylor]: And just sort of like, yeah, it's, I mean, I don't even know that if that was like an answer, but it's something that's just kind of, it's ongoing. It's an ongoing change and as it should be, it's not something that's like fixed or you change it once and then, I mean, I'm learning, I'm learning. I mean, I, I promise you, I, I learned something today that when I woke up, I didn't know, just since waking up, and it's just being able to just show up, I think, and, and just to be a part of this and collaborate, instead of about the competition, it, it's gotta be focused on the collaboration, right. And on that  

[Doug]: Note, Juliet, I'd love if you could bring us home here at the last minute we have, andwhatever you'd like to share about your experience through this and, or, what you're looking forward to and, or anything about Slamdance , the, this, the, uh, the floor is yours.  

[Taylor]: Slamdance and creating Unstoppable has shown me how fearless I am and how much, how fearless I need to be going forward in all aspects of my life that asking and speaking up and using your voice, not just for yourself, but for others ends up just bringing it right back to you. I'm a better filmmaker today because I stopped focusing on me and focused on helping other filmmakers.  

[Doug]: That's so beautiful, such a great way to, to wrap up today's conversation. And again, thank you so, so much Juliet and Taylor for joining us today, it's truly an honor to, to connect with you both. It's been such a, one of the real joys of my festival filmmaker experience in getting to work with the people that make up Slamdance, who are such an amazing team and so willing to collaborate and, have that real shared experience. It's been an honor. And Taylor, maybe if you could just tell everyone one more time, where they can, where they can check out the festival.  

[Taylor]: Absolutely. You can check out everything, everything, every film, every panel, every, every everything, at watch dot.Slamdance.com, you can also check it out. We got Apple TV, Roku, Amazon Firestick, we have some amazing, amazing panels as well. So the first one, the first Unstoppable panel will be Valentine's day. And it's with Kristen Lopez of Indie Wire, and it's called Real Love to Real Love. And, it's epic. I mean, each of these panels is like, they're amazing. So please come check it out. It's 10 bucks. And help help be a part of this, this community and, and share your support, it's, it's awesome. And I know that the filmmakers are. You won't leave the same that's for sure.  

[Doug]: I love that. And again, go to Slamdance.com. You can get your tickets there. There's no reason not to it's 10 bucks to amazing content. Thank you again and looking forward to Slamdance. I know I'll be diving in there shortly as well, so really excited about it. Thank you for all, all of you who joined us today, we'll be back with another episode next week and until then have a wonderful weekend. Thanks everyone.  

[Taylor]: Thank you, Doug. And Erin and Jamie and Helen Keller Services. Bye Juliet. 

Feeling Through Live • Episode 40 • A 40+ Year Journey at Helen Keller Services

[Doug]: Welcome to episode 40 of Feeling Through Live. I am so excited to be joined today by Sue Ruzenski, who is the CEO of Helen Keller Services who is a producer on Feeling Through, and also just one of my favorite humans. So it's just like a trifecta there. So, so it's just, it's kind of the best of all the worlds. And before we hop into things, just want to start off with a quick image description. So on the screen on the top left corner, you'll see Feeling Through Live Episode 40, a 40 Plus Year Journey at Helen Keller Services as the title of the episode. My box says Doug Roland Feeling Through underneath it. I am a white male in my mid thirties, little bit of scruff on my face, short dark hair, and over my one shoulder, you see a little bit of my living room and over the other, a wall with a picture on it, we have an interpreter box in the top right corner of the screen, and then under Sue you see Sue Ruzenski Helen Keller services, and Sue, why don't you take away your image description.  

[Sue]: Sure. Hello everyone. So I'm a middle-aged sort of 60 year old white female. I have blonde hair about shoulder length. I have a pair of red rimmed glasses on, and I'm wearing a black turtleneck and a black jacket. And my background is also solid black. Nice to be here.  

[Doug]: Great, well, Sue, I know when just getting the chance to get to know you so well over the last few years and working with you. I think a commonality that we find is we both believe in a healthy degree of serendipity and I think something that's so, just to kind of kick things off something that's so serendipitous about the timing of our conversation is that we've been going back and forth on this for many months to get you on here and coordinate schedules, but it just so happens that our timing couldn't be better. Because as of, I believe the top of this week, you had some exciting news in that you are now officially the CEO of Helen Keller Services. Prior to that, you were act as the, you were the Acting CEO. So first off, congratulations on that.  

[Sue]: Well, thanks so much. Yes. I'm very excited to be given this opportunity to serve in this role with the organization. So it's been a really exciting week, and I'm really just happy that it took place. Yeah.  

[Doug]: And the reason that's such a fun way to kick things off is because you, as CEO of Helen Keller Services is quite literally about a 40 year journey to that position. We were talking about this earlier in the week, but I love when I hear of people having such long journeys with an organization and community. And I can only imagine all the stories along the way. I think it's something that has maybe is a little different for people in my generation or even younger than me, that really kind of bounce around to a lot of different things in different places to really have a life at a place and really kind of have your evolution, your personal evolution in many ways, being informed by and happen alongside your professional evolution at one place. So I'd love to just go back to the beginning here and, can you just tell us how your journey started with the organization?  

[Sue]: Sure, I'd be happy to share it. It was quite a bit of time ago, as you said, 40 years plus. And I have to say that I think this career found me and I didn't really find it in a way, and it's not that fascinating a story, honestly. I had already had spent some time in this field, and really had an interest in teaching and I was working with a group of students who had vision loss and also additional disabilities. And I actually was working in a program and one of my good friends, I was actually dating this person. He's an audiologist. And he said that I should check out the Helen Keller National Center. He was doing an internship at that time and I thought, well, I don't think I've ever met anyone who is DeafBlind. I don't know what I could contribute, he just sort of encouraged me well, gee, I'd like you to just go there and check it out. And it happened, there was an opening for a Residence Supervisor at the time. And I went for an interview and I was hard on the spot and I worked, I think two days later in the position. And that time we had our staff who were a part of our residential program live on campus. So I was fortunate. I had this beautiful apartment in sands point in the, in the residence building. And I was just immersed into the community, into the environment and I felt immediately a connection with everyone. I think part of it is being there, living there 24-7 I hadn't yet learned sign language. So it was really through my interactions every day with people who were very good to me and helping me learn. And it just became for me very meaningful, and it stuck with me throughout these four years. So it's just been a blessing in many ways for me to be part of seeing Helen Keller services and this division Helen Keller national center, how it has grown, how it has progressed, how the field has gotten much, much better at what we have learned through the years and, and to be a part of that with so many people it has really been a very positive experience and now to be here in this position, leading the organization, what could be better. So it's just a good thing,  

[Doug]: Just to go back to that moment of like day one with the organization, I mean, could you have ever imagined that it would, it would be such a large part of your life for, for such for so long? Did you have that kind of indication? You said that you pretty, it sounds like pretty early on, it was something that you realized that it was work that was really meaningful to you, but I mean, did you have any indication that it's kind of like where you would spend your career?  

[Sue]: Early on? I definitely felt an affinity for the work, but I never dreamed that I would spend all these years throughout my life. And as you said, you go through changes every, the cycle of life. I mean, I've gone through many things from being a mother to a grandmother or through all my educational experiences, while I was there, I got my master's and my doctorate. So it it's been, it's been just an evolution in my life, but a big part of it. So no, I would not have imagined it, but then as time went on it became almost, it's just part of my nature, I guess, in a way I did not have any desire to do anything different, which to some people, they would be curious about that and think, well, you're kind of stuck, you might need to like open up your horizons, but the, the positions I've had and the people I've worked with and the, the students, the consumers, the community, it's been a great journey and it's never been something that has been where I felt like I wasn't growing with learning where just being involved and participating in something positive.  

[Doug]: Well, I think you hit the nail on the head with it being very early on, very apparently to you meaningful work. And I think when, when, when, when there's a real meaning and purpose to the work that you're doing, I don't think you can ever really feel like you're like stuck somewhere, right. Because it's there it, and one of the things that I've learned so much about in getting to work alongside for the last three years through, first meeting through Feeling Through and working together to make that happen in the right way, and now working with the organization on a regular basis. That meaning for you is still very, very clearly present. And it's very inspiring for me, it's something that I know that really I admire so much about you and it's something that really pushes me to delve deeper into the work that I'm doing, because I see that. I see, I know about how much you've put into the work that you do, what, and how much it still means to you after all these years and being a part of it. And that it's a really infectious, beautifully infectious thing, which is also why I think you make such a great leader. Can we talk a little bit just going back still, you'd mentioned I think some students that you were working with who are disabled, have you had any real personal connection to, um, you'd mentioned that you'd never met anyone who was deaf blind, but to the disability community in any way w ma family or anyone in your immediate circle prior to working with the organization?  

[Sue]: Honestly, no. Within my family I do recall as a child neighbor's that had a disability that I wasn't really friends with, but had acquaintance with, I think what was the most- One defining moment for me, was when I was in, this is early in school and I was a Liberal Arts, you know, studying and not really sure what direction I wanted to be in. Prior to that, I had, actually, when I graduated high school, I worked for an insurance company in Manhattan and I knew right away that was not where I needed to be. So I was thankful that I made a decision to end that career early on and go back to school. And during that time, I volunteered at a school for children who had autism and I worked with a teacher and he was just, I thought he was like the moon. He worked with these children in such a way that really was effective. And I knew then that I wanted to join that profession. So I think that person who took the time and I was young, um, but took the time to include me and mentor and be a part of that classroom. I think that was a very important experience for me. So I always remembered that. And I always to remember the importance of opening up doors for people. I think that throughout my career, I have met so many wonderful humans, as you say, who have opened those doors or who have stood next to me and kind of shine the light, like, okay, over there, or just taking time to really be role models or just share, in what they learn and what they do. And that's, that's been a real blessing.  

[Doug]: You mentioned that over your tenure at Helen Keller Services, there's been a lot of positive growth and changes over the years. I mean, you started working there prior to the ADA. There's obviously been a lot of changes in this world around disability as a whole. Can you talk a little bit more specifically through the lens of having worked with the, with the DeafBlind community for so long? What maybe are the kind of most notable changes or evolution that you've seen in that space over your time with the community?  

[Sue]: Sure, so we're going back now to the 1970s. So we didn't know a great deal, but we were determined to learn. And there have been many people who went through those years with me. I recall that I totally admire, and we thought we knew what we were doing, but we, we didn't. During that time, there was also a great number of individuals coming from different parts of the country who had been institutionalized for no other reason, but the fact that they were DeafBlind and they had really had a life experience that had been so limited and their education was limited. And so when they came to New York, it was very disoriented. They didn't maybe have a formal language, or it was very basic. And their life experience was just, they didn't have the concepts of things like working in the community or the experiences of just being a part of the community so many years. There were many individuals where we were just supporting them to, to define who they were and, and, and their preferred way of life, and then work with their home communities to develop opportunities where they could live and have a quality of life that was integrated where people could learn how to communicate with them and that they had choices available. That was one segment of the group of people, that we served. And of course we know the diversity among individuals who are DeafBlind, but in those early years, some of the folks that we met on campus fell into that group. So when you thought back then, in terms of what was special about Helen Keller National Center, you had a group of people that were trying to figure it out together, but believe it or not, there wasn't yet understanding of what there should be. So the way that we defined work options for people was very, very limited and was just this repetitive type of very sedentary, unexciting work, being out in the community, the big idea of going shopping and having breakfast in a diner like these were new experiences for people in the beginning. So we see a change of how we, we shifted from this way of viewing people and, and what's important to them. Making sure that that quality of life was present and for quite some time, the mindset was really more driven by a system and not by the people who need the services. So you kind of follow these ways of doing things and you really needed to stop and question, and look at it through a different lens through the shoes of the person and develop services that were more person-centered. And there would be people who couldn't communicate because they had never learned symbolic language. And they may have very idiosyncratic or these behaviors to express themselves because that is really truly way that they could communicate. And that was always viewed in a not so positive light. And so, Oh, this person, they should go back because they don't really fit in. They're not able to, just assimilate in the way that they should. But really they just desired to have more understanding of what was happening. And there was one gentleman, and I know the people that were a part of this will know exactly who I'm talking about, but he changed us completely because, he basically refused to comply with what we thought were the things that needed to happen. And it made many of us step and question how to approach our services. And we w we just, we, we changed things and really followed his lead. And he had certain things that he really enjoyed believe it or not, he, he enjoyed shoes. That was one thing that he was fascinated with. And we were able to get him a job in a shoe store. I mean, so we started to actually start thinking out of the box and then work became very community-based. And that was, that was an important switch. It's like, what is the person enjoy doing? Where are their talents? Where are those hidden passions, let's get them involved in things that matter to them. And that was a big, that was a big shift. I think technology would be by you other area where it was about how technology really changed things for people in giving them access to information, and giving them independence, giving them away to connect with others. That was, that was a big lift for everyone, but certainly for the community. And that, that changed a lot of our services as well. That's just a little slice of things. It's hard to-  

[Doug]: No, sure. I mean there's, obviously anytime you're trying to sum up such a large topic over such a long period of time, but I think what you pick picked and choose to talk about there really illuminated a lot of things for me, particularly when you're talking about really learning to think outside of the box and really think more of the, really start to pioneer a new sense of how you dealing with the community, how you were relating to the community and how you were supporting the community. And it sounds like the common theme there was that really seeing them as the people they were and how you could support that more, because I think what I've learned, again the last few years for me have been a real masterclass, not just in getting to learn about the deaf blind community and obviously the community, a large part of my day-to-day life, but also just learn more about the evolution of the, how people with disabilities have been perceived in this country. And you know I think something that you started working at Helen Keller Services at a time, again, prior to the ADA, at a time where a lot of people with disabilities were seen as like subhuman in a lot of ways, or that there was just something unsalvageable about them. And I'm using these terms that are really offensive purposefully cause that's that there were a lot of perspectives around that. A lot of these footage of people with disabilities living like animals and being treated like such, if you go back prior to the ADA or unfortunately in certain places, probably not that long ago or maybe even today. And I think that that just relates to in a lot of ways, the erroneous perceptions and ways in which people were trying to relate to people with disabilities assuming, well, because they're not like me, or because I can't find a way to communicate with them. That means there's something wrong with them. That means they, maybe they can't even be fixed or those kinds of things. And to really start to pioneer this other sense of not only trying to assimilate people to this, like the general public, but really support who these individuals are, what they're interested in and try to like best place that feels like, I'm sure you could, you could write a novel on that journey there.  

[Sue]: Well there's an expression someone had shared with me a while back about the golden rule of course, but there's rarely a platinum rule. And so it's really not about treating people the way you would want to be treated, but treating people the way they want to be treated. So really trying to understand that perspective of the person is really the essence of that. And I think that's one thing that through time we've gotten better at, but it's not even that now it's more about the community's strength and leadership for themselves and their voices being prominent in anything that is done, and anything that is our directions and where we are today. And I think that we've come a long way in that regard and there's so many incredible people that are supporting that. So  

[Doug]: On that note, perfect, time to cut to a question here that's kind of related. And the question is, what do you see in the future for client prompted services? What are clients demanding? What do they say they need?  

[Sue]: Okay. So I'm thinking in terms of the community, there's, there's individual like individual needs that people bring that we try to create new experiences and new, for example, employment opportunities for individuals as a community at large, I think it's really, what they desire should be, what is what we, what we pay attention to, so that there's inclusion in anything that's done. We're a national program working with people who are DeafBlind, we're a local program working with individuals who are blind, visually impaired. We need to have representation in the organization of the communities that we work with. And they need to be a big part of how we design the services that we commit to.  

[Doug]: One of the things that I've got, I've gotten the opportunity to go to the Helen Keller national center in port Washington, Long Island, a number of times. And it's an amazing campus. You have there, there's the ability for people who are Deaf-Blind from all around the country to live there for quite a number of months, sometimes to learn, to take a lot of different classes and a lot of different independent living skills learned there. Is that something that w is that something that had always been done at the National Center, or was that something that, as far as those kinds of programs, or was that something that was added over time or what was the evolution that as far as that's concerned?  

[Sue]: So for from the very beginning where that campus was really established 1976 other locations before that, and really the birth of services that were funded by the federal government was through a grant of Helen Keller Services, which at that time was called the industrial home for the blind. And there were leaders pioneers really that had gone to Congress, had gone to the government and said, we have nothing for people who are DeafBlind, and you need to help us build it. And they were funded to do that, and it just grew and it grew, and it grew. And then the government donated this land in the beautiful area of sands point. It has its pluses and minuses. So the services that have been developed over the years, they taken on all kinds of shapes and sizes and focuses and priorities. It's really been an evolution. And I could tell you like programs that have been there and gone and new ones that have come through and what's important, but it's a constant, the energy there is really what keeps you going because as a national program, the Helen Keller national center needs to lead in, in terms of what's progressive what's best practice. How can we really improve the lives and work with people in the community. So I think it's always been a great place there there's lots happening all the time. When you asked the question earlier about what does the community want? Well, some people don't want to come on living in residents on a campus. That kind of a little when you look at models, that's not a very modern model for service delivery. And we've recognized that, and we've gotten very hard, we've been trying to really create options with our partners across the country, in VR, to be able to offer services more locally in the community with our community services programs, with our deaf blind specialists, youth service coordinators, and then working with other, other entities, our affiliates are, to build and elevate their services to provide assistance, whatever way we can so that there are more options for people. So it's not a one size fits all. And it was that way for too long.  

[Doug]: And on the note of Helen Keller National Center and Helen Keller Services really needing to be a leader when you started there. How many, if any other organizations were there like, I guess specifically Helen Keller National Center, dealing with the DeafBlind population and how many, if any, are there that are like HKNC now.  

[Sue]: Yeah. So it's really the only national program that is so comprehensive so that you have, you have all of these disciplines, it's a multi-disciplined program under one roof where people can come spend a period of time and get the menu of services that we offer that's integrated. And is it big team approach? I don't think you'll find that anywhere. I think that there are services, absolutely, and we have many partners that we work with who work every day with people who are DeafBlind, but I don't know if they have the extensive ability in terms of the array of services that we can offer. So we're fortunate that the federal government has supported us in that regard.  

[Doug]: I want to follow up on that, but I'm going to take a quick pause for an interpreter switch. All right. Continuing here. Great. So what I found that really interesting when I started to learn more about HKNC and realized that it was really unique in a lot of ways, and being kind of like one of the only entities on a national level that does what it does. And not to say that there aren't like tons and tons of other DeafBlind organizations throughout the country. But I just thought that was interesting, particularly when I learned more about how many people are included in the DeafBlind community. Can you speak a little bit to, because I think this is something for those who've never heard these numbers before, it might be a surprise as how, as to how many people are people like consider people who are DeafBlind, or part of the Deaf blind community. Can you speak to what that number is, and also given the scope of that number, where you see, or where you hope services to evolve into in the future moving forward?  

[Sue]: Sure. It's really difficult to give a definitive number of people who are comprised as community. But we've tried using the American community survey to identify people who have both a vision and a hearing loss, I mean, that's, those are the two questions that are asked. So that's where this kind of information comes from. But we estimate that there are 2.4 million people who have a combined vision hearing loss in the United States. And we only know a fraction of those people. He cause many people don't consider themselves to be part of that community. They wouldn't identify that way, but they could probably benefit in some regard with our services. So when we think about the community, of course, we're thinking about a very diverse group of people. It's not maybe what some might think of a person who's Blind, who's fully Deaf and Blind. In fact, that's a small number of people in the overall group, but people who were born into the deaf culture and may lose vision later in life, people who are Blind and then they lose their hearing, people who have age-related vision, hearing loss, I mean the array of conditions that cause vision loss. So it's, it's just a group that is so diverse. I think including with that, people might identify sometimes is they think of the one primary sensory loss that they have. So they may identify as that it's really a personal journey and preference how someone might think of themselves and what their identities. But there's more people probably than most of us think.  

[Doug]: Yeah. I know from again, working with you in the organization on a regular basis and getting to, work alongside a lot of people there that you have a lot of colleagues who are DeafBlind, I'm wondering if over the course of your tenure there, or just as of your time with the organization, are there certain people maybe even early on in the journey as you were getting to know the community more who were deaf blind that you saw as like a mentor or some sort of, kind of figure that really helped you gain a more personal and intimate understanding of at least one aspect of a person who is DeafBlind and get to know them by extension, get to know that community a little better. Is there anyone that anyone or any ones that kind of stands out?  

[Sue]: So quite a number of people that just came to mind as you were speaking, some are no longer with us. There was a gentleman that worked at Helen Keller, and he was very open about life and he was someone who had through, it was really an illness that he had a medication that at middle age, he lost his vision and hearing, and he had to just transform his life. And he became a teacher at the center, but he was a good friend. And, certainly opened my eyes to many things by just knowing him. There was a gentleman who was the president of the American association for the DeafBlind. Harry Anderson, many people know him, who has passed, but he was part of our advisory board for many, many years. And I always enjoyed after the meetings to spend time with Harry and just hang out and learn from him tremendous generosity of spirit, always. And just those experiences. I think being together with people like that really helped me in my own journey. I'm thinking of another gentleman who I wish you could have met Doug, and he could be on this show with us. His name was Bob Smithdis and he was one of our directors for many years. And he had buried his wife who was a braille teacher at the center, but Bob was a formidable soul. He was a mover and shaker. He was part of that original group who went to the government to really advocate with Peter salmon for services or for individuals who are DeafBlind. And he had the best sense of humor that anyone had. He just had a way of brightening everyone's day, and was with us in these services for many, many years. But there's many people like that. So I don't know, I could go on.  

[Doug]: Well kind of on a related note, and again, I'm not going to hold you just whatever kind of comes up first, but if you could kind of whittle down some, all that you've learned and experienced over your time working at Helen Keller Services and Helen Keller National Center and with the communities that they serve, are there certain, you talked about the platinum rule, I know being one, are there other kind of like wisdoms or lessons that you've learned that really have informed you personally along that journey?  

[Sue]: Hmm. I think it's really like a privilege and to always know, it's a privilege to be able to work alongside people who bring to you their being life, they're with you for a period of time. And to just respect that. Like following the lead of, of the person and always just being receptive and trying to, help support them in their discovery of what, what, what, what needs to happen here, designing their own services, and bringing and resource and being a support. And I think always part of the, whether it's in anything, but there's a piece of like support, and then there's this other piece that's like challenged, you have to challenge people. I need to be challenged. Everyone needs to be challenged. You know? So getting moving on things, you have to present those types of things in a way that can maybe give people an opportunity to look at something differently. I've always been amazed and about the lives that people had and they've, they've shared those stories with me. And that's a privilege, but then you learn from those stories. So you can take in what other people have experienced and reflect on it and connected to your own, your own know journey in many ways, it's a rich, it's a rich career. I have to say. Yeah.  

[Doug]: Well, I know that it's been some- I can definitely in my, obviously not quite as long journey, but in the last few years of, both Helen Keller Services and the National Center and the communities that they serve, being such a large part of my life, it's certainly informed me in ways that will forever change me moving forward and, and really attributed some of the most beautiful moments of my life so far. So I can, I can second that and maybe, maybe another 30, some odd years from now, I'll have a little bit more to say on it, but so far definitely  

[Sue]: That's great.  

[Doug]: And I know we've had gotten a chance to mention this in other formats, but just while I have you here, I think it's a great opportunity for you to also just simply explain who count Helen Keller Services is the relationship between Helen Keller Services and the national center. And just kind of explain that for maybe anyone who's coming to both HKS and HKNC for the first time and kind of wondering their relationship and your relationship to both.  

[Sue]: Yes. Okay. Sure. Thanks. So the umbrella organizations, Helen Keller Services, and that's now my role to be involved with both divisions of Helen Keller Services. We have Helen Keller national center, which we've been talking about, but also Helen Keller Services for the Blind. And there's really some distinction between the two. Helen Keller Services for the Blind is a New York based program. And we have locations in Brooklyn, we're headquarters is, but also Hempsted on Long Island Islandia and is another town where we have a building location, but there's also many community-based services that are available. And the services are for individuals who are Blind and have vision loss. So we have services beginning with preschoolers at the school in Brooklyn. So beginning in a very early age, all the way through, teens and youth to working age adults to seniors. So it's a really vast array of services that are available, like there's a summer camp for children ages 5 to 15, which is just an enormous, program for, for youth there's programs for youth that are supporting them to become ready once they graduate what's next after high school and exploring, the world of work. There are programs for seniors in their homes to support them, to gain skills and learn some adaptive ways of doing things around the home so that they can maintain their independence. And then there's a big vocational piece similar to Helen Keller national center around looking at developing skills and being successful in a career and providing other training that would support a person, whether it be orientation and mobility, communication, braille for example, is one thing that we're actually going to work on, in providing social work teams counseling through, through COVID. I mean, these face-to-face services that are local here have been able to continue, which has been a real, a real plus for the members of this community.  

[Doug]: And let's talk about that for a moment, how this year, last year has been distinctly different before I do that, just to mention one thing as you were talking through all the different services that Helen Keller Services, Helen Keller Services for the Blind and Helen Keller National center provide in that you clearly were making a nod to something that Nancy writes a comment about, which is she, she asked, see, it says, please mention that deaf blind is all ages. And obviously, Helen Keller Services works with all ages that just wanted to make that connection in the comments and what you were just talking about with the services  

[Sue]: Well with Helen Keller Services for the Blind, the preschool has children who may have both a vision hearing loss, but it's really a school for children with disabilities. And including children who are blind to have vision loss for Helen Keller national center, right now we're, we're kind of set up to work with youth. So beginning at the age of 16 and then onward, where actually most of the children are still in school and received services locally. So the services offered by Helen Helen National Center and have been primarily for an older group.  

[Doug]: And so let's, let's talk a little bit about how this last year has been a little different. Obviously everyone's has their own story about that, but I think it's been really an interesting time to be someone like you. Who's not just in a leadership position of an organization, but an organization that deals with many individuals who rely largely on touch during a time where touch is not something that we can do in an organization that really has for a long time relied on that in-person training and connection. What is this time been like for Helen Keller Services? And what ways in which is as it forced you to change?  

[Sue]: Yeah, it's been a challenging time for sure. And we miss having the opportunity to work with people from around the country of Helen Keller National Center, and also have limits to what we can do in the community. But I have to say it's been a growing period too, for us, it has been an insightful time when it comes to thinking differently and sometimes when you start to think differently, it gets thinking differently. Like you just keep thinking differently and it grows, and I think that the teams across the board have really begun to look at things sort of in ways that they couldn't maybe see before as possible. So we've grown in our way of knowing that there's a lot more that can be done in a remote way, virtual platforms using technology, connecting with people and providing training and there are things that we never would have expected we could be successful with, and that people would actually feel like they had benefited, and that it was successful for them. So I think that has taught us a lot about the future in terms of making assumptions about what's possible, but that's a general theme, but then knowing that people can not always come to New York from across the country, there are pockets of services everywhere, but there's things that we can offer folks in a rural community or in a different way. So we've expanded our options, which I think is really positive. And then we've connected people from around the country who may have never connected through groups, in technology, peer learning groups, things like that, which has been very, very positive.  

[Doug]: I love that out of all the challenges that the last year has certainly presented that it also in the pressure that it, that it innately creates to have to change how things have been done for awhile. It also creates these new, these new ways of doing things that you, that you're saying can continue to benefit the organization and the people that the organization serves well beyond the pandemic and, and the specific limitations of a pandemic. So it's really exciting. I'm wondering if over the course of your journey with the organization, has there been any one year that's forced you to have to like innovate more than this past one?  

[Sue]: Absolutely. No, it was truly from necessity, when Helen Keller National Center had a suspended campus services, it was really like, we never could dream of anything like that ever happening. That was just not even something we could imagine and what would we do and how would we still be able to partner and support people and provide our services. So people got to work really quickly and really started, we learned as we, as we went basically. But it was really a terrific, I was in many ways positive. I have to say. I mean, but we can't wait so we can get everyone back, and still have a vibrant community in person at the, at the center. We certainly miss that.  

[Doug]: And I think I forgot exactly how long, but when, when you first had to close the doors, that that was the first time in many, many years that that had happened. Is that correct?  

[Sue]: It has never happened. Never happened. So as long as never, that's never happened. Yeah. So the same for the Helen Keller Services for the Blind, just to have to stop, they did exactly the, the teams on that side, you, the, that division, they did the same exact thing. And then luckily as time went on the phases that we had in New York, we were able to resume face-to-face service services in the community. We're in many locations around the country that has not yet occurred where virtual training is still the primary way, but here in New York locally, we have a community program. And there's various programs at Helen Keller Services for the Blind and one at Helen Keller National Center that people are going out meeting people in their homes using of course every precaution and safety protocol, but successfully providing services.  

[Doug]: And speaking of thinking outside of the box, I think I've had the opportunity to talk about this in spots over the course of various episodes of Feeling Through Live or other things that we've done, but I'd love to spend some time talking about your involvement with Feeling Through, and just from my personal side of things before we hear from you, I think this is a great opportunity to acknowledge and to give you so much credit for thinking outside of the box with Feeling Through, because prior to us partnering on this project to make it, by far, much better than it could have been without, and really probably couldn't have really even happened without the support of Helen Keller. It's something that you, nor the organization that have had ever experienced before.  And I did speak to some other organizations who were interested in what I was doing, but not willing to think outside of the box like you did with this. So first and foremost, thank you for that because again, we wouldn't have been able to make what we did without having the support, both resources wise, but more importantly, education-wise from Helen Keller Services from the DeafBlind community. That's the extension of the DeafBlind community. That's a part of Helen Keller Services community, the supervisors there, and staff and students there who played such a big part in the education and the authenticity of the film and the way in which we've also had the opportunity to work together, to make it an accessible event that that can be experienced by anyone. So huge. Thank you to you and the organization on that. But I'm also just wondering from your point of view, what this process has been like for you to be not only to be a producer on a film and to have that film experience, what has that been like for you?  

[Sue]: Tremendously rewarding. And I just want to congratulate you Doug on where you've taken this film and just the film itself is a work of art and surely your genius mind that created it. It's, a terrific film. So being able to be a part of something that is so fantastic, and, and then seeing where this film has opened up people's minds and just has created a great, it's just a masterpiece in terms of raising awareness around the community. Certainly you've given us some credit here that has helped us with our ability to be known by people in terms of our services. And that's a nice thing, but it's really, you've changed so much the conversation, I think maybe in the film industry to some degree you've, you've really opened up, I think your colleagues minds about what's possible and in terms of authenticity having a person who's DeafBlind, i.e., the CoStar of this film, and then you put together this other masterpiece, which was the documentary, which kind of showed that this is how you do it.  

It's not a big deal, you could, I could do it. I mean, you really illustrated your work and, and how it can be done. And I think that in any way that we can move it forward in terms of people getting it, stop this barriers and thinking that it can't be done, it can be done. And it's as if for us making sure that people have opportunities around employment that really are commensurate with their preferences, their aspirations, their talents, so look at Robert discovering this beautiful talent that he has. And that's what he preferred to do, but for all employers to look at this and say, you know what, there's a person with these challenges that could really support my company and make it stronger and outperform and bring in so many innovative ideas. And it's just another link. And then other than that, this global thing around the film that Isabel, all of us, and it's all about giving people a minute in time to get to know who they are and respecting our differences and, and appreciating one another for who we are. Because that's what that, what else is there? Like it's just, it's just a beautiful story. And it, it opens that part of our art and our spirit. And so for us this has been just a pleasure and thank you for that.  

[Doug]: Thank you. I'm wondering why do you think it's important for people who are DeafBlind to be represented in film and storytelling, and also to have the opportunity to, to portray those roles? Why is that important?  

[Sue]: I think film has a very powerful way of influencing us and we don't maybe really even get it sometimes, but the mainstream media, it influences us. And so what, what do we consider when we think of our community? If we don't see people who are from a different culture or are, have a different ability, we don't, we don't, we don't think about them. We don't include them and it's not natural. It's fake. It's not, it's not a positive thing. So we all should be included. We should all be represented in every industry, but film is very powerful. And it just seems to have that ability to open people up. You get that touch point with something in a film. You never forget it, it stays with you, just like a regular. So if I can't have the experience of meeting someone, who's DeafBlind, I'm going to remember that film where I sort of an actor who was DeafBlind, and that's my point of reference. And hopefully that will be a jumping off point for me to do something more than just watch the film, but maybe something else.  

[Doug]: And for anyone who might come to this who works at an organization, whether it be DeafBlind related, or for any really marginalized community, but let's stay within the disability community for now, knowing that particularly within the disability community, there's such a need for more representation on screen. And that there's such a disproportionate representation of characters who are disabled appearing on our screen screens in proportion to how many people actually make up the world that we live in, who that have disabilities for anyone who might come to this, who works in an organization for people disabilities of any kind who maybe hasn't had the opportunity to be a part of storytelling in some way, what advice might you have for them around working with storytellers or incorporating storytelling into what they do?  

[Sue]: That's a great question, I think storytelling in any form has such a impactful way of grabbing people's attention and, and helping them to understand, so it's one thing to rattle off a bunch of facts about something it's very different, if there's a story that a person can connect with, so I guess you had a story Doug, and that's probably what worked I think about that now. When we first met there was something about the way you presented your story about meeting Artemio back then, and when you were seven, eight, nine years ago now, but just how you were so interested and how this had grabbed you, and I guess, meeting someone like you, if someone were to approach another organization, to know the person, to some degree about what their intentions are, and yours were, were really just about telling the story that you had, but really the idea of casting, someone who is DeafBlind was definitely a part of that. And that was an important piece to you and then meeting you and then spending time you coming to New York, being immersed in, at the center and meeting with all the staff and the people that were there participating in our programs and how you just absorbed it all. And so you would true blue throughout the entire thing. It was, it was just this feeling that this is going to be something amazing. And I think that we should not be fearful of taking some of these risks, sometimes it's always about, well, wait, how's it going to impact our image? Or what, what is it going to mean? But if we don't, if we don't try, if we don't like give it a shot and we miss, we could've, we could've missed this completely. We could've just missed it, you know? And so you were very easy to just embrace it with because you were, we're so committed, I think, to bring things to light in certain way that was authentic and real to the community and very respectful. And so I don't know, I would say to any organization, if they are fortunate enough to connect with someone like to role in bed, and by all means they should partner and work together.  

[Doug]: And speaking of almost missing this, again, there's been so many people that I owe so much gratitude to who have helped this journey from start to everything that we've been able to do through now. But I really do want to give you a specific recognition for being that person who really championed it and greenlit it within the organization in a way that quite frankly, we wouldn't have been able to do so much of this without, and to again, thinking outside of the box, which again is why I was so thrilled. Like I know a lot of people were to see the news at the top of the week that you'd been named CEO, because I think quite honestly, you possess the key skills that are so important to leadership, which is being a great person, really caring about the work that you do in the people you work with and for, and thinking outside of the box and exp and exploring things that are different from what you've done so that you can grow into new spaces and do new things. So I know I'm super thankful for everything, not just that you've done for Feeling Through, but to know that the organization is in good hands moving forward with someone like you. So huge, huge, huge, thank you for that. And I'm just, I guess, in our closing moments here, I'm wondering just on the last note, if there, if there's anything you'd like to share before we sign off for today,  

[Sue]: That I think you're too kind, honestly. And I just want to say that I'm just very fortunate because I'm surrounded by a lot of great people and it's just an amazing organization. And I look to continuing the journey and working with everyone, it's just been really, really terrific. And I think that's it.  

[Doug]: Great note to end the week on here and Sue, I obviously have roped you into several conversations so far, but I'm going to definitely twist your arm to come back here at some point, but I'm so glad to have you on today. I didn't get to mention all the amazing comments during this live stream of how much they appreciate you and how happy they are for you. So just want to acknowledge that as well. And for all of you who haven't seen Feeling Through yet, which Sue is a Producer on, and one of the key reasons why it exists in the world, we are within two short weeks, we're at like 360,000 views online. You can go to feelingthrough.com to find that. And yeah, we're really excited. I'm just so thankful to be able to work with you on a daily basis and very excited for where things will take us. So thank you so much, Sue, and thank you to everyone who tuned in. We appreciate it. And we'll, we'll see you again next week. Thanks so much. Thanks so much. Bye everyone. Bye bye. 

Feeling Through Live • Episode 39: CODA (Child of Deaf Adult)

 [Doug]: Welcome to Episode 39 of Feeling Through Live. We are going to be talking everything CODA with Jack Jason, who also is an Executive Producer of Feeling Through. So he is very intimately part of the Feeling Through family here. And before we jump into things, we're going to just do a quick image description. So I am Doug and I have a little bit of Scruff on my face, short dark hair, wearing a blue button up shirt, and I've got my living room behind me over my shoulder. On the screen we have in the top left corner, it says Feeling Through Live Episode 39 CODA Child Of Deaf Adult. We have a interpreter in the top right corner. And Jack, why don't you take away your image description?  

[Jack]: I am Jack Jason and I am a Caucasian male with short black hair with a little gray, wearing a black shirt. I'm sitting in my office with poster behind me of Children of a Lesser God, and next to that A Spring Awakening and that's the description of who I am.  

[Doug]: So I definitely know that why the Children of a Lesser God is on there, but what's the story behind this A Spring Awakening.  

[Jack]: A Broadway play that Marlee was in it's a revival of the original Steven Sader production from I think, 2004. And they revived it with Deaf West theater with an all Deaf cast playing well within all Deaf cast and a couple of hearing members. So they took the original musical and re-imagined it. Instead of being set in a boy school, they set it in a school for the Deaf and it was about sexual rediscovery and oppression and it applied perfectly to Deaf cast. And so it ran on Broadway and it was nominated for a Tony for best revival.  

[Doug]: Oh, that's fairly cool.  

[Jack]: Marlee has all the signatures. So the poster description has all the signature of the casts on the poster and then Children of a Lesser God as Marlee was in that back in 1986.  

[Doug]: Very cool. Well, you know, why don't we hop right into- can you tell everyone what that means, CODA?  

[Jack]: So CODA is term used to describe people who were born with Deaf parents. So a CODA could be a hearing person or a Deaf person who has deaf parents. And using that description indicates either that maybe sign language is your first language or that you have the abilities to use English and sign language. At the same time. Some CODAs don't sign at all because their parents choose not to to sign. But it's to indicate that you grew up having Deaf parents and it could be either that you're Deaf or Hearing.  

[Doug]: And I understand that you are a CODA yourself.  

[Jack]: Yes, I'm a CODA. I grew up in Northern California with Deaf parents. There. There's a funny story about my parents and I can just delve into real quick. My mom was born in Los Angeles and my dad was born in New York. And when my mom was six years old, her father took her to a rollercoaster, famous rollercoaster down in long beach, called the pike, thinking that if she got on the rollercoaster, she would scream. And if she screamed her ears would open up. And this is a common story I've heard. I've heard some of my mom's friends who were devastated that their parents put their hand on a hot oven so that they would scream. And then somehow they would magically become hearing because they thought that the Boyce was connected to the hearing. This is why we heard the term deaf mute because they thought peak deaf people were here. So my mom went on the rollercoaster with my grandfather. He went on the roller coaster with her. He'd never been on a roller coaster before. And when he got off the roller coaster, he had a stroke and died because it was such a traumatic experience for him. My grandmother had a nervous breakdown because she was in the middle of the depression with four kids. Two of them were death. They all went to various foster because she had to be institutionalized. My mom became a ward of the state and she went to the school for the deaf in Berkeley. And she lived at the school. It was a residential school. And in the summer she would come back and stay with relatives. And in the fall, she'd go back to the school. When she was 13, she got a box from teachers and said, this is from a parent of another kid. It's for you. She opens it. And it's like Matzas. And she doesn't know what they are. She doesn't know she's Jewish. And they said, this is for you. It's from this kid's mother. She knows who you are. She knows you're Jewish. And she wants you and her son, that mom was like 13. She's not interested. Flash-forward my mom's ready to graduate from the school. They find out that her mother has gotten better and moved to Seattle. Washington. Mom is no longer than considered a California resident, they kicked her out of school. So she went through the school and then left. She moved to Seattle. She lives there. She lives with her mother. She works in a spaghetti factory. She makes pencils and her friends say, Hey, we have a guy. We went you to me. Let's go to this Deaf basketball game. She goes to the deaf basketball game. It's the same guy, but now they fall in love with each other. And when they fall in love with each other, she finds out that her mother and his father grew up next to each other on the Island of Rhodes. So not only are they neighbors, members of the same community, Sephardic Jews, their kids are both deaf. They both marry each other. And it's like a strange what they called in Judaism or Yiddish and that's, and then they have two kids, me and my brother who were hearing and that's who we are.  

[Doug]: Wow. That's quite the origin story there a little bit long in the tooth. I'm sorry. It's definitely worth the payoff. I'm wondering when we're going to make that movie.  

[Jack]: Well, it's an interesting, we, we were because as being a Sephardic Jew is a very, very specific thing. And when you're in an, even within the Jewish community, you are, except because there's not a lot of Sephardic Jews in the, in the San Francisco Bay area. And a lot of, a lot of them thought we were Mexican because we spoke Spanish, but it's not actually Spanish. It's Ladino, which is an old form of Spanish from the 15 hundreds. So when other kids reading bagels and lox and stuff, we didn't what we were eating Buffalo and, and kept hairs and breakers and stuff like that. That made us even more of a, you know, I look at it as a Venn diagram and we're the very smallest slice of the Venn diagram is really funny. It's really funny.  

[Doug]: Recently did a 23 and Me and I knew I was Jewish. I didn't realize I was at first 98.9% Ashkenazi Jew. And then, you know how it updates? Cause it gets more people on there. And then I got updates to 99.2%. So I am a very Jewish and not very much other things I learned from 23 and Me.  

[Jack]: As a part of you within the regular Ashkenazi Jewish community, because it's just, I don't know, it's just different, that's all. And then having Deaf parents and having parents who spoke and they were all short and then I was chubby my nickname as a kid was fat Jack. And so I had like one thing on top of another and couple of another on top of another, and then going to school. When kids found out I had Deaf parents either, they thought it was cool or they make fun. One day I remember playing on this. This is a very specific memory being on the school yard at around seven years old. And there's a thing about hearing your parents' voices in public. That's really like, you know, alerts you to like what's going on. And I heard my dad way off screaming my name.  I was like, what's going on? And I go running to the fence and he goes, we got a phone, we got a phone. I go, Oh, because we'd always been using pay phones. And so I come running back and she said, who was that? And I said, Oh, that's my dad. He told us we got a phone. Just you've just got a phone. And I said, yeah, I just know everybody has a phone. I said, no, no, we just got a phone, which is no, I'm not sure why don't you have a phone? And I said, and I hadn't ever thought of this. And I said, Oh, mom and dad can't use the phone. I, we, Oh, so we go into the classroom and the teacher's like boys and girls would have a little impromptu show and tell Jack to tell us about his death, new parents come and show us Jack come and show us the language. And I was like, what? And I remember going ABC... and their kid in the back was going. So I went home and I told my mom, I said, they were kind of making fun of us and my mom goes 'eh hearing people, eh', and that's the attitude I grew up with, you know, like, eh, hearing people, what do they know?  

[Doug]: It's in talking, just kind of furthering that a little bit. Cause you were talking about how, you know, obviously each code situation is different. How, you know, what the situation is like, how they identify culturally, how their parents bring them up. But can you talk about kind of like how you identified growing up culturally and, you know, talk a little bit more about that.  

[Jack]: Culturally, we were at identified as we were a deaf family. I remember being in school and having, um, issues with English. So for example, the same way that my parents have issues with English, um, although mine, I had a better command of English because I had the benefit of hearing English. So for when I was sick or when I had to be excused from school, my mom would write the note. When my, my mom would ask me to write the note, what she should say, then she would copy it over in her handwriting. And then I would use that note to give it to the teacher because she thought that her English wasn't good enough for the teacher to look at. Sometimes I had to interpret for myself at school when I was, you know, it was open house and they would introduce, you know, and the teacher would say, Oh, Jack is great. He does talk a lot, but that's okay. You know? Well, and my parents were never concerned about, about my grades or anything, I think because they, they trusted us. They put their trust into us, which is a plus and a minus, because if you give a six-year-old, you know, that trust and a six year old will run with it and I oftentimes ran it, but that's the humor and having it, you know, being a hearing kid that their family, but yes, I identified as deaf first, then Sephardic next and way down the list. I didn't feel comfortable with my English until I got to college until I had the benefit of having a computer where I could correct with my typing because writing English and then having to correct, it was a pro I would get back and said, Jack, you could say this a little better, a little differently. Our teacher once said, people who live in glass houses shouldn't throw stones. And I was like, what's that mean? I asked my mom and dad and they said, we don't know what that means. They don't know what that means. So if I really didn't go comfortable in my skin as a person who lives in a hearing world as a person who uses English until I got till I started my master's degree. And that's when people were, you know, doing computers, um, and I could correct myself. So isn't that kind of funny. And here I am, you know, interpreting for somebody like Marlee in English. It's a very interesting journey that I went through, but yeah, definitely identified Deaf first, but not because I'm not Deaf, I can hear. Right.  

[Doug]: But again you're speaking, there's the distinction between actual being Feaf and cult the culture of the deaf community. And obviously you grew up culturally in a community in the, you know, identifying with the Feaf community because of where, you know, your parents and, and that's the strongest associations we have initially, you, you described something that I've definitely heard, you know, more from like, cause I have more reference points both personally and in, in stories of people who are maybe, you know, first-generation from somewhere who speak better English than their parents. So they're often tasked with, you know, having, you know, being in a doctor's office and needing to be the person that's like interpreting in that sense or being where whatever situation might be, the grocery store, you were kind of starting to get at that, but can you talk about like the dynamic of like, you know, obviously your parents being your parents, but also the young age, maybe at times being the person who's leading the dance in the conversation  

[Jack]: I had double. My grandparents spoke Spanish as their first language. So English was their second language. So I only heard them speaking Spanish to each other. So I had the immigrant experience that you just explained. Then I had the parents who use English as a second language and suddenly gets to their first language. And then I had a third level in that my grandparents didn't know how to sign, to speak to their parents, to my parents. So I had to act as the interpreter between them, even though I saw them attempt to speak to each other, they couldn't. So I had to operate the inner being. And then I had to, you know, so I was the oldest one in our family. So I was tasked with the responsibility of being that for everybody. And sometimes it was, it was energizing because you give a kid all that attention. They're certainly gonna enjoy that attention. But at the same time, you know, I got in trouble at school because I talked too much. I still talk to, but because you're told it's okay, you know, other kids couldn't watch television late at night. My parents were watching television. It's important for you to tell us what's going on in the world. But then there were other times when they say, what did they sing on television? And as a seven year old, I was like, I don't want to interpret. I just want to watch. And it was, you know, back and forth. And I've found in my journey, as a code through my life that I see code is of two types, one set of CODAs who are really involved in the Deaf community. And they, you know, they want to go up there and be interpreters and, and continue to do what they've done in skits and others who want to leave all together because they felt that the responsibility so heavily on their shoulders, that they just don't want to do it and they want to live their own lives. And so there there's those two different groups of people. And it's an, I was more the- I'm trying to being an interpreter and continuing to be in contact with my parents. Although I remember when I got to college, the first day I got to college, there was a table there for the sign language club. And I said suddenly, and I said, I don't want anything to do assignment, which I, you know, I thought that, I thought that finding a career in styling would be too easy. Cause it's my natural language. I want to be challenged by something else. And I wanted to be a TV weatherman. That was my goal to be a TV weatherman. So I wanted to focus on broadcasting. And then I saw this table said Simon club. And I said, Hey, what's this about? And they said, Oh, well, you know, they teach sign language as a foreign language on campus. So if you take it, and I said, Oh, I am. You know what? And this is what it nets easy aid for you. So I took the class and the next thing I knew I was tutoring because the teacher said, this guy knows sign language, use him. And then the next thing I knew I was taking interpreter training classes. Cause I find out you could make $5 an hour as a sign language interpreter. And this was back in the seventies when the minimum wage was a dollar 70, I said, Hey, I'll do that. And then the next thing I did it was interpreting and then being a coordinator of interpreters at a community agency that at UC Berkeley, and then I moved to New York and I get a call that says, Hey, we're looking for an interpreter for this actress who just finished a movie called Children of a Lesser God, which you like. And I thought, why not? But I remember originally thinking suddenly, which is too easy, you know? I mean, I want to learn other things, but I guess there was no way of getting around it. I just fell into it.  

[Doug]: Do you, do you ever think back on that moment where you said, why not being that you now, what had been together for 35 plus years? Marlee do you ever think back to that moment, particularly given the fact that it's not like you were like seeking out to be an interpreter at that time, do you ever think back and go? What if I didn't say yeah.  

[Jack]: Well, it makes me realize that everything that happens in life is, is serendipitous or that, you know, it's they say it's a lot about what you do to make things happen. But a lot of it has to do with luck. And I just happen to be at the right place. At the right time. I was sitting at my desk at NYU. I was studying for my PhD in film and television. And the secretary knew that I was interpreting for Broadway shows. And for people like what, Whoopi Goldberg on their stage shows and she gets a call. Somebody called them, are you looking for interpreters? So she just like anybody else said, Hey, somebody's looking for a temper, take a job. Why not? So I took the call and they said, Oh, we're looking for, to Jupiter for my boss, his girlfriend, his desk, they just finished a movie. Do you know anybody? And I said, I can do it. And they said, Oh no, we were, he wants a woman to interpret for her. And I said, okay. And so me always working it, I gave him the name of three women who I knew were out of town. And when they tried to call them, they couldn't find them. So they called me back and I said, sure I'll do it. And then it just, one thing led to another Marlee and I hit it off when we first met. And then they asked me, are you comfortable interpreting on television? And I, ham. I was like, Oh yeah, I have no problem with that. And because I wrote in my diary, my little kid's journal back in seventh grade, I said, I want my voice to be heard by millions of people around the world. So they won't make fun of me because I'm fat. And when she was standing on the stage, accepting her Oscar and I was voicing for her, I want to thank my mother and father. My parents were also there in the audience and I got, I got a cock, a little, like my voice caught. And I'm just like, I don't want to cook my mother and my father and somebody come in and he's so good as an interpreter, she, she was in a very emotional moment. His voice did that. They didn't realize I was flashing back to that little diary entry. And then I'm talking to my parents up there and then I'm talking to her over there and it was so weird. And yet it seemed like it was destined or something. I don't know. Who knows?  

[Doug]: I mean clearly, you obviously clearly wrote it into existence as a young boy there.  

[Jack]: Yeah. I mean, you set the pancreas up and you do that, but my intention was to be a TV weatherman, but at the same time, I'm, you know, doing goofy things on television sometimes too  

[Doug]: Well, as an aspiring TV weather man you must have really enjoyed this LA rain that we just had.  

[Jack]: Yeah I'm mean, talk about weather, but my friends get really annoyed because I explained about cold fronts and warm fronts. And I talk about earthquakes and I know everything about earth sciences and they're like, Jack, you should really find another career. You really know a lot about this stuff. It's just a hobby of mine. I just love weather. So, you know, it'd be one of those people where they would chase tornadoes because I love that kind of stuff.  

[Doug]: I'm curious, you know, as we start to talk about your relationship, your longtime relationship with Marlee, both as an interpreter and producing partner, and we'll get into that more, but just on the interpreter side of it first, you know, just cause you were talking about initially there were, you know, dealing with a lot of people are in communicating with a lot of people. I understand everyone has their own preferences for who they ideally want as an interpreter. Very familiar with that. I'm just curious, like how, you know, initially you were talking about, they were looking for a female voice and then it ended up being, you kind of obviously now just, you know, everyone knows about your, you know, your longtime partnership there, but like, were there any sort of, was there initial trepidation about a male being her continual voice? Or was there conversation around that at any point?  

[Jack]: I've heard people say, Oh, it's interesting that Marlee chose to have a male entrepreneur as their voice. And I don't know if it works. I think there has to be there's something there that has to do with gender dynamics too. I think I heard, I don't know if that's true or not. It might be just anecdotal that interpreters at the UN specifically are opposite genders. So that it's clear that you're getting the message from, uh, an interpreter and that the voice you hear is not the voice of the person that it's just the conduit to which you hear the message. So me being Marlee's entrepr people clearly know that I'm expressing Marlee's words, but that I am not the voice of morally. I also think it works. I also think it worked to her advantage. It allows because of the gender dynamics too, that having a male voice put Marlee out in front of what people think of female voices and or how they treat or look at women in Hollywood at the time back in the eighties, so that if she wanted to be assertive in somehow that having my voice in that might push her just a little bit ahead. And also I'm very proud of the fact that people say, you know, when we go out on speaking engagements and we speak to 2000 people, and sometimes the people who engage moderately as the speaker will say, well, how does this work? She has a guy and she's speaking through an interpreter. And I pride myself in hearing comments back that after a minute of listening to Marlee, speak through me, they forget that I'm interpreting. And then they, they just hear more of these message, which I guess is good, but I don't want them to think I am Mark. Um, and then we played it into a little routine with us. I'm not going to call myself a professional interpreter, I'm far from professional because, you know, Marlee Marlee plays up the fact that we're, you know, sometimes go ahead of her. But in my, in my interpreting, I want to finish the same time she's done. So sometimes the way sign language is constructed, I'll go to the end of the comment and I'll bring it to the front and then finish it at the same time. And so, because Marla uses their hearing aid and she listens, she goes, wait a minute. Is he tough? And she'll make a joke of it. She goes, is he talking to me? And I'll go, no, no, no monitor lead. Like the kid who got his hand caught in the cookie jar and then people will laugh and then she'll say, you know, that's just Jack, you know, but you know, at the end of the day, he's a great interpreter. He's a handsome good-looking guy. And, and she makes me say all this stuff. And then she goes, and he loves saying that about himself. And so we play this game, you know, it, you know, we were on a talk show once and they involve me and they always now in real life, you don't want to talk to the interpreter. You want, you know, you want to talk to them, but I become sort of the joke and then they play along with the joke and that's okay. But yeah, it's what was the original question? Oh, yes. Being the male voice. It's funny. Yeah. I've heard Marlee jokingly refer to me as her bitch, which is fine. I think that's funny. I just laugh because it gets me a laugh and I don't mind. But yeah, I I've heard other people, if it's funny, it doesn't seem to work the other way. When I see a strong male deaf figure, be interpreted by a woman, it doesn't come up the same and maybe that's my own, my own issues with gender. You know, uh, a guy interpreting for Marlee is fine, but for some reason, when I hear a woman in trumping for a strong male actor or whatever, I go, Oh, it would be nice if it was a guy. I don't, I have to understand gender dynamics better than I probably understand myself about that. So that makes sense what I said  

[Doug]: No, complete sense. And some of what you're saying about getting ahead is a perfect segue to one of the questions that we have from the audience and Allana asks, well, she says I just started learning ASL and the syntax is pretty different from English. Do you speak in sign simultaneously? If so, how do you keep your syntax straight in both?  

[Jack]: So that's the reason why I'm not signing now because if I were signing, I would be signing in English word order. And I wouldn't necessarily be doing justice to those who might want to watch a sudden language presentation. So that's why we have interpreters because they can present the ASL more clearly than if I had to speak and sign at the same time. So for example, if my parents were watching, I would be more than happy to let the interpreter take over because if I were speaking in the signing, it would be in English and English is not their first language. So it is interesting. It's, you know what we used to call SIMCOM and what they employed on switched at birth. But you know, you have to bend the rules a little bit. So for the purposes of an audience, one to watch somebody signing to a Deaf person and not have to rely on subtitles in your SIMCOM, but now subtitles or in subtitles are cool. You have movies like This Year's Menorah. You have Parasite from last year, you have all sorts of, you know, of world cinema coming in through our Netflix and our Amazon's with subtitles and people are comfortable. So that's why, for example, in CODA, you know, half the movie is subtitled. What the characters signed. Roger Ebert said when Children of a Lesser God first came up and they employed this technique where every time Marlee's character signed, then William Hurt's character would repeat what she was saying for purposes of the audience, to be able to understand rather than subtitle mark, because back then, sometimes it was not cool, but now it's all cool. So now a Deaf actor can just feel free to communicate and not have to worry about a character. Who's an interpreter who signed, who speaks for them or who repeats what they say, because that doesn't happen in real life.  Maybe a little bit like when you're mad and you talk to you, like what? I was mad as a kid, I talked to my mom and dad and said, I don't want to go to school today. I don't want it. You know, and I would say it because of course I'm a hearing person who's mixed up in his mind, but in reality, and in fact, the code is on the set of CODA told, you know, we advise the director, she would speak here cause she's so mad that she has to speak and then they put that in there. So it's, it's interesting too, to think about how you want to that's my son and the question again. So typical of me, about what, what was the question? I don't know. I don't remember either, but everything you're saying is great anyway, so that I'm like this I'm like, well, I think we were initially talking about syntax, but we kind of, yeah, it is. It wasn't until like 1960 where it was actually recognized as its own language, you know, Deaf people for so long were their language was repressed. They, you know, sound in their hands. They were punished for being sought for signing. A lot of them associated sign language with the smell of urine, because they could only sign in the bathrooms at school. And then finally have that breakup moment that you know that, Oh, we have a language and it culminated with the Gallaudet uprising in 1988 where they said, Hey, we, as deaf people have a right to choose our own fate. We don't want hearing people to choose our faith any longer. I mean, it took a long time from the Milan conference of the 1870s when Alexander Graham bell said that only hearing people should teach Deaf people and Deaf people shouldn't up up until that point, there were deaf teachers everywhere, and then they just banned them. And then it took like another a hundred years before they were recognized again an interesting journey. It's a really interesting journey. Other questions from the viewers here, Ruby  

[Doug]: asks, if you've ever interpreted for someone who's DeafBlind?  

[Jack]: Who's DeafBlind? When I was doing freelance interpreting, before I met Marlee, I was a freelance interpreter and I did interpret for debt. Why didn't I employ, I remember working in two different types of situations, one in which they put their hands on my hands and I signed, and my mom and dad had some deaf blind friends. My mum and dad had some deaf blind friends. And so I remember talking that way. And then I remember there were people who used a typewriter and I would type into the typewriter and then they put their finger on the back of the typewriter with braille and they would read braille that way. So they were non signing, Deaf individuals. So I've done both. I've never employed. I don't know if they called it to Domo as it were, but somebody had to actually put their hands on my face. I never used that, but certainly signing like that and that night, I still I've seen that a lot. I haven't done it in a while, but I remember doing that very clearly.  

[Doug]: And another question is, do you miss signing for Broadway?  

[Jack]: I do. I do miss signing for Broadway, I did it like four years ago, five years ago for a play. And I went back to my, with my friends who I used to interpret on Broadway with. And I did, I like it. I don't like doing musicals because somehow when I signed songs, I feel like everybody's looking at me. And I'm, I look at interpreting on stage for musicals or, I mean, for shows as, as interpreter. And when I'm doing a song, I feel like I'm performing. And I, and it gets a little, I get a little self-conscious. I have to say my first job interpreting for a show on a stage was for Whoopi Goldberg. This is before I met Marlee and she wanted me to stand on the stage with her, which is unusual. Usually they want you to stand in front. Do you want me to stand on stage? And the opening of her show is she's in the dark and she's playing a drug addict singing around the world in   80 mother F'n ways. And so, wait, it starts out in the dark. So how are we going to do this? So we invented this idea of having a spot, a little pin light, and you just see my hands and I'm going, yeah. Around the world in 80 mother F'n ways, they were like, what's going on in here? And Marlee met her a couple of months later and I, we all became ever, we still look back and we met Whoopi. She had like four people in the audience. When I first interpreted for her show, nobody knew who she was. And I got to see her expand. And then I met Marlene and they became friends. It all became a strange what I call Jewish geography. Even though there will be some that will be as Jewish, but them for what converted or I'm not sure, but anyway, it's this great. It's a small little world. Hollywood is just small little worlds, small little was this the same small world is Marlee and Henry Winkler. She was 12 years old. She met Henry Winkler. Cause he came to see her in a show. He said, you should be whatever you want to be. Don't let anybody tell her otherwise they kept in touch. She wins the Oscar, but people don't believe she deserved the Oscar. She turns to Henry for advice. He invites her for the weekend to stay over at his house with his wife, to think it over. She lives there for two years. She becomes like the second daughter, she gets married at the house and it thought because at 12 years old they met, it's all, it's all these strange little small worlds that we all revolve it.  

[Doug]: I'm going to take a quick pause for an interpreter switch.  

[Jack]: Thank you to our interpreters, by the way.  

[Doug]: All right, we're continuing here. You know, I'd love to get into the film CODA in a moment, but I actually had one more question kind of, of where we're, you know, in the vein that we're on right now, you know, when I think of just from the avenge, when being an interpreter, when I think of, you know, interpreters, I think of how much responsibility there is, especially when you are the, you know, go to interpreter for, for someone like you are with, with Marlee. And I'm wondering if, I'm sorry I need to switch this interpreter screen as well. My apologies. I'm wondering if you've ever had an instance where you feel like you, well, first of all, can you talk about that responsibility or how you deal with that and what your relationship is like to that. And also if there's ever been a moment where like, you feel like there was such a gap that you were like, really like taken aback by it, or you just felt like something didn't quite go the way you wanted it to. And you kind of like, didn't know how to deal with it.  

[Jack]: If you know Marlee and me. I mean, clearly the relationship we have goes beyond just the typical interpreter client relationship. I, that's why I said I'm not a professional interpreter, five minutes, we're friends, we're producing partners. She's like family and the naturally there's going to be situations. And we've talked about this in public where we argue with each other or we fight and it's just natural. It's just, you can't, you can't be in somebody's space all that time and not eventually get to a point where you argue. And there's a, and I don't usually find myself. I don't think myself, I make me a gap, but clearly Marlee sees it that way because she's the one who is using me as her voice. And at some point she might've said something that just ticked me off and it's a natural response on my part. It may not have been appropriate, but it was just natural. I couldn't help it. So I said, I'm not interpreter now as an interpreter, you cannot do that. You can't just say you're, I'm there. I'm making the communication decision for this Deaf person. That's a big no-no. But as I said, we're beyond that. So I just, I'm not interpreting the publicists that Jack, you get your ass over there and interpret. And I said, no, I'm not doing it. I was being a big said, no, I'm not doing it. It was as if she was not nice to me. And I said, well, okay, that's my perception. No, no, no. And they'd say Jack, get it. We're ready to go wide. I said, fine. Okay. So I sit down and I, you know, in some language I kind of do this and I pull it together. And the first question the interviewer asks 'Marlee, you and Jack has such a wonderful relationship we've watched over the years. Can you tell us how you two first met and how it is you guys get along so well.' And I thought to myself, Oh, crap, okay. This is like some movie or something like that. And she goes and Marlee being Mari, just, you know, Jack and I have worked together for a number of years. And sometimes we argue and you know, we get into it. And then at the end of the day, I realized, you know, everything is okay. And, and Jack's a good guy. He does what he does so well. And I really appreciate it. And I don't think I could, you know, he makes me look like, and in fact to myself, wait a minute, I think she's apologizing to me, but I don't get the pleasure out of hearing the apology from her. I'm saying it to myself. And then I look up to Marlee and all I see is this one eyebrow like this, I can't do it. It goes like this. And I went, Oh my God, she just did it. And I realized I'm appalled, which I think to myself, I don't get the pleasure of hearing from her. And it was over. And we find ourselves having little arguments when we're in closed spaces, you know, like run a plane and we can't escape from each other or in a car. And she's calling up a Hollywood executive to scold him. And I said, mom, you cannot do that because I want to be controlling. I know you can't call him on the phone and scold him and just get out of the car. You're fired we're cars moving. I can't go. So she called me the executive that the secretary answers and she talks on the phone because Marlee can she goes, Hi, can I speak to so-and-so? And she goes, 'who's coming' 'it's me, Marlee Matlin.' And she's like, 'how's is Marlee calling me on the phone?' And I'm thinking, 'what is she gonna say? And she goes, well, can you tell him shame on you. And I'm like, Oh God, it's, there are times when I messed up and I've tried to cover it, but she catches, she catches me doing it. And what can I say? I mean, I'm human. I make mistakes. But to do it publicly, I really am very aware of the public persona she has. And as an interpreter, I try to make her sound as natural. I don't try to stay, you know, a lot, sometimes in real life situations, interpreters will stay behind so they can get the whole message to catch up. Dead air on television doesn't work. And I don't want people to hear Marlee going 'eh', or go 'uh', you know, I really pride myself on being able to sound as natural as possible. Some people like that, some people say I'm not realistic as an interpreter. Some people say that I'm adding things, but at the end of the day, it's the same message. And every once in a while I do mess up and she busts me for it. She catches me. It's just natural. What am I supposed to do? I can't be perfect  

[Doug]: I just to go back to that story of you two getting into that fight before that interview, it's such a it's. I mean, it's hilarious, but it's also like really touching because it really gets at the real specificity and uniqueness of, of that kind of dynamic and relationship. And I just love the, like that the way in which that kind of roundabout, but also like, to me kind of touching way of an apology, even though at the time it might've felt frustrating that you're essentially, like you said, apologizing yourself, but I think that's just such a beautiful example of that dynamic and how you can have these really, that you're communicating on multiple levels when you're, when you're interpreting for someone. And that you're both quite literally in that moment interpreting and being our voice while also having a conversation with her is such a fascinating dynamic.  

[Jack]: There are times when I find my step interpreter pause stage, and she's doing, and this is, I think an interpreter I've seen this before I met Marlin where I can be signing what's going on. And I there's the part of my brain that's passing along the message. And then there's the behind that message where I'm thinking about, what do I have to do today? Do I have to go do my laundry, draft me this it's a multitasking thing that teachers as a kid couldn't understand that I could do that I could say I could talk to a kid next to me in class when I'm not supposed to be talking and listen to the message at the same time I, if it has to do with left brain, right brain things, it has to do with learning sign language first, which gives me a certain brain function, then learning to English lit and then connecting. I always believe that CODAs have more pathways opened up in their brains then non CODAs do because you're processing language physically, as well as processing it through speaking and listening. And so it, we have an ability that I think a lot of other people don't understand or, you know, use as well as we do so I can do that. And then sometimes like, but then sometimes I get ahead of myself, which causes a problem, or sometimes I never get behind. And I'm also I'm also proud of the fact that I can look at 95% of people using sign language and be able to understand and voice them appropriately. Whereas some other interpreters are stronger in their presentation of sign language. I've always been proud of my fact that I can translate into English in a way that fits the person who's speaking. I do a lot on the side I do some, sign language, relay interpreting, and I just love to see all the different kinds of Deaf people that come through and voice for them, whether they're angry at their kids or they're ordering a pizza or whatever. And just, it's almost like you're taking on different roles. And it's a lot of fun for me sometimes to do that.  

[Doug]: As someone who grew up with parents culturally Deaf and signing first, do you does signing feel still to this day, more like your most authentic expression when you're communicating, do you prefer to communicate that way over voicing? Or how, how would you talk about that?  

[Jack]: I've never been a person who will sign without any person can use a sign language present. I have friends who have just signed for the heck of it. But I'm very comfortable signing, but there are a lot of styling of the shepherds who I admire for their ability to just really get into the ASL. So strongly. I haven't had to practice it as much because Marlee chooses to use a more English based form of sign language. Um, she'll say that she didn't grow up with ASL scope assigned English. And so in speaking, in signing with her, that's, that's been my focus lately when I met her, I was very ASL. I'm still ASL when I speak to my parents, but on a daily basis, it's more assigned English. And there are some interpreters that I'm just like, wow, they're just like, great. But I do get a lot of compliments from Deaf consumers who say, 'wow, you must be a CODA, right? Because I could just see it.' You could just tell you're signing is something you grew up with as opposed to something you learned. But I've met people who aren't CODAs who sign like they are, and it's just something natural. And I just love to watch it sign signing and people who are really good at just what to watch us. I find myself going back and forth and back and forth all the time.  

[Doug]: You know as someone who is in the very early stages of my siding journey, if I can even say that at this point, you know, something that I re, but being around a lot of signing, in sign language given the nature of obviously Feeling Through platform, what I love about when I see someone signing, it's similar to like what I feel as someone who's singing is not meant for anything other than in the shower and not for anyone to hear. When I see someone who can really sing it's it feels like it's such a beautiful expression that you can't quite access with your voice, right? Like a speaking voice, like you, I mean, there's, there's this great quote about, um, actually Steven, our actor said it last night. I forget you, you, you sing what you can't say and you dance what you can't do if you're okay. What anyway, but the point is, it looks like this, that you can almost communicate in a way that like your voice kind of can't quite get to that. It's almost like you access kind of a different level of communication through the real physical nature of the language.  

[Jack]: We were speaking about language it's blatant has always fascinated me. I've had for many years, I mean, just in Italian and in French. And I learned Italian, I haven't quite mastered French at all, but I remember going to Italy and spending my summers there. And I noticed that two reactors to people being different language departments, one, they get extremely frustrated. They want to know everything that's being said. Whereas my experience is living in Italy was I let the Italian just wash over me and I didn't understand everything, but I just loved listening to everybody speaking in Italian and watching and making a connection about what they're talking about, which I guess is a representation of what I grew up with. Sign language is just watching language and, and trying to put together thoughts and ideas. Even if you don't understand one word, it's the way we read. When you pick up a book and read you, don't read word, word, word, word, you make the connection. You, you fill it in. And so I just love to be in environments that are watching this TV show called my agent and then another show called Lupin. And they're all in French. And I just love to just absorb the language, just to hear it. And I just love language environments. I love to be in any language environment so I can just not understand and just kind of figure it out. It's, you know, it's like, why, you know, somebody says to me it with sign language international and go, no, it's not. Well then how to Deaf people from other countries talk to each other. So, because you have a basis of nonverbal communication, you can express yourself. Non-verbally there are universal cues. I accept that. They're cultural. So for example, you cannot say this in Brazil, someone talking, because that means something else. Even though here, it means, okay, or in Japan, the sign for brother indicates the middle finger, and you have to be careful about cultural differences, but they can communicate, you know, you barley come what you know, and they can communicate. And it's the same thing. I love sitting in a room and everybody's speaking a different language, and I'm just like, I just love it. I just love languages. I just love languages.  

[Doug]: We have another great question from Alana and she writes in Children of a Lesser God Marlee signs that she wants Deaf children, generally speaking in Deaf culture is it common to struggle with the idea of having Hearing children?  

[Jack]: Well, the reality is, and this is a statistic I've heard, the reality is that 90% of people who are Deaf have hearing children. So the remaining 10% is either as a result of some sort of genetic, you know, passing down genetics. And I found out myself after one of these DNA tests that I have a gene that has been known to cause deafness. So clearly in my mom's family, it's not my dad's coming, or it could be, there was the gene that caused either one of them to be Deaf, but they passed it along gospel that we didn't have become Deaf. So I have heard there are families and there are stories of families when they find out that the child is Hearing. And they were like, there's generations of that people that are a little bit like, oh, you know, or somebody who is Deaf and their child is born Hearing. And the nurse says, congratulations, your baby is Hearing. And the woman is like, congratulations? What does that mean? Being Deaf is bad or something like that. And so that's an interesting dynamic there. I know families who are like generations and generations of Deaf people, and then they have a daily job. And then there's, you know, generations of generations of hearing people that they have a deaf child. And so I think it's easier for the hearing child to be born into generationally deaf family than it is for a Deaf child to be born intergenerationally hearing family, because more than likely they will not learn the sign. Whereas the hearing child in a Deaf family will learn to speak and sign with their parents, so.  

[Doug]: Have you ever found that, like, have you ever felt, have you ever gotten pushback from, hello? I'm trying to think of ask this more specifically, but like being someone that's very much straddled, you know, multiple worlds, your whole life, but being culturally deaf from your upbringing, have you ever found yourself identifying as culturally Deaf, but finding yourself in situations where you're like not accepted by like, uh, like a deaf kid,  

[Jack]: Majority dynamic or anybody who striped straddles two worlds because they're born, you know, physically different than the family that they come from or try to integrate themselves into a family that they, they aren't like, you'll find that there's this dynamic, and especially being in the public eye, you'll find the dynamic like, Oh, you're not a professional enough interpreter. Oh, you don't have the right to say things about your deaf family. It's only up to them to decide or, Oh, you you're, you're representing us incorrectly. And, and I'm just learning about that now, because I guess with this film that Marlee just came out with with CODA, there are people who have certain opinions and I have to learn to just let them slide off my back, but it's hard. And then there's people who say it's wonderful that there is really an interesting dynamic lately, especially when it comes to code is I found that a lot of people in the Deaf community have an issue with code is because some CODAs choose to speak on behalf of the Deaf community and the Deaf community doesn't want them to do that. Other Deaf people say fine, let them speak because they're culturally like us, even though they're not deaf. And it's an interesting back and forth, it's, it's this issue of being woke or, or privileged or whatever it may be. And social media has given those people an opportunity to speak their minds. And it's not necessarily always pretty, but then again, sometimes it's very enlightening to, it's nice to know other people's thoughts and opinions, and I just have to learn to let it just go. I must've,  

[Doug]: Well you've mentioned a couple of times now and about the film in named CODA that actually just premiered last night at Sundance when one of the most coveted film slots of the year. And you know, I just, before we get into that, I find it funny. Cause we've been talking about, um, getting on this show together to talk for a while. And that CODA would be kind of the, the overarching theme. And it just so happened that the timing worked out that it's the night after the premiere of the film, which has already gotten tons of rave reviews. Can you tell us a little bit about that film?  

[Jack]: So the film originally was a French movie called. It was a French film about a young girl who lived on a farm who wanted to be a singer. The producers of the film, that was in 2014 and one of a number of awards. This is our award for their actors. And it was, it was a big box opposite in Europe. The producers approached Sean hater, the director of a movie called Tallulah that premiered at Sundance in 2016 to remake the film, but from an American point of view, and Sean, decided to embark on this journey. So she first started learning sign language. She talked to sign language masters. She got people to help him work with the script. And then she began the casting process and she had to, she had to overcome some barriers. She had to overcome some financers who, who had an issue with deaf actors playing the role, the very prominent roles of the parents because in the original French film, both actors were hearing playing Deaf. So they wanted at least one of them to be played by a well-known actor. When Marlee was approached to play the part of the, of the mother in the film, she insisted that it had to be a Deaf actor who played the role and they were able to do that. The film then was changed from a farm to a fishing village called Gloucester, Massachusetts, because that's where Sean is from Boston. And she knew the fishing community very well. And she felt that the dynamic of these working class fishermen would fit in well to the story about a young girl growing up as the only Hearing member in her Deaf family, and the one responsible for interpreting for her parents and being the, the ears for everything that goes on with the fishing business, but things changed. The fishing business changed. And then she started to flower as a young girl who found herself interested in becoming a singer. And of course, as Marlee's character said in the movie you wanted to become a singer would be as if we were blind, you want to be a painter. What does that mean to us? And that's a natural thing. You know, it's the kind of thing that, that all CODA space, should I do what I want to do, or should I do what my parents want me to do? And then the film explores the journey of, of this young character will be Rossi through learning how to sing and becoming a singer and her parents pushing back. We need you, we want you to interpret. And she goes, you're adults. You could, you know, my parents used to say, I felt a very big responsibility of interpreting for my mom and dad. And when I left I would worry all the time. And mom and dad said, we were fine before you were born. We'll be fine after you leave, don't worry. And in this film, it's a little bit different and I've seen parents like this. We need you to interpret for us what you think, but I want to, and it really touched, I mean, I watched the movie last week and I was just like sob because it touched so many points in my life, in the film, and it was just, it's just, I hope people get to see it when it comes out, then they'll really love it, I think really well.  

[Doug]: And you know, again, we would mention this a little bit earlier, but I want to get into it a little bit more at the time we have left. You've not only been working with Marlee's or interpreter for many years, but as, as a producing partner, can you talk a little bit about that side of your relationship?  

[Jack]: Well, initially the journey was with is just being her interpreter and just embarking on that, but I had a chance to observe that as Marlee, you know, she won the Oscar and then some critics said that she didn't deserve it. Cause she was a Deaf person playing a Deaf role or the kinds of scripts that she was getting. And she would ask me to look at them and say, how does this look? And I said, well I think you could do better than that. That I use my background in film and television at NYU. And to start, you know, maybe I can help you find other stories. And the first thing we pitched after she did Children of a Lesser God and we went into Paramount and they said, what do you, what else can Marlee do?  And I said, and I learned real quick that it's all about the pitch that you make. And I said, imagine, Wait Until Dark, but with a Deaf person. And they went, Oh, and I'm like, Oh, that's how you sell up a movie. Okay, fine. So then I started to develop pitches and ideas, and then we start, I started reading books and I started finding things on, you know, the internet, how, what it is that Marla could do. And then it was all about, Oh, let's foster relationships because Hollywood expect for, you know, and who you, so, Hey, let's talk to this producer, you know, why not go produce and say, you know, Marlee, Matlin loved your project. What is there something else we can do together? And Marlee Marlee then the same thing. And it started to build and build and build until now, you know, I'm her producing partner finding projects. So for example, we're doing the story that I found when we were in New York about Prince Phillip's mother who was Deaf, Prince William being Queen Elizabeth's husband who saved Jews during World War II, unbeknownst to the family and her journey and her story or the story of this, of a doctor who discovered a heart procedure who happened to be Deaf herself or even fictional stories that just happened to have Deaf characters in them. It's just about, you know, every, every actor in Hollywood who has a production company, has somebody working on their behalf to find projects that they can produce that they can do. And I just filled that role. I also happened to be our interpreter too. So.  

[Doug]: A couple of last questions before we part today, but Zach asks, are your siblings interpreters?  

[Jack]: No, my brother is serving as my mom and dad's interpreter where they live, but professionally he's not interpreter, he's an accountant. I was the one who became the interpreter, but even still, I can say I'm an interpreter, but I'm more of a producer and a partner for Marlee who happens to be her interpreter. But my main role is not as her interpreter only, because again, if I was professional interpreter, I wouldn't be doing all the producing stuff, I would just be the interpreter, but clearly people know that I played both sides of the fence.  

[Doug]: And Judith asks, how much harder is it designed for people who one doesn't know? It seems when it works most effectively, you're sort of an alter ego and have a context for what that person is expressing.  

[Jack]: I've been in situations where I've interpreted things. And I have no idea what I'm saying, but I say it as best as I can. I've interpreted for like technical, you know, they're talking about it things, and I have no idea what they're saying, but I do my based on what I hear. And usually the person in the inner and goes, I know what you're saying, don't worry about it. I know you're, you're doing fine. And I, it frustrates me to know when to go. I don't know what's going on. I can't even figure it out. And I'll be happy to say, wait a second, can you please tell me, they'll use a name sign for somebody. And it's like, I don't know what that means side is, who is that person? And I'll just ask for clarification while people who have a very distinct accent. And I can't hear what they're saying, and I ask for clarification and usually they don't, they just keep going and I just do the best I can. But yeah, I've been in situations, right. I'm totally clueless. And hopefully I do a good job. And I'm the first to admit, I always, when I'm done, I say, I'm sorry, I didn't. And they go, Oh, no, you're fine. You did fine. You know, what were you talking about  

[Doug]: For, you know, for someone who obviously has never done anything like that, my only reference point is I'm thinking of like, those dreams, those like stress dreams I have, where I'm like standing up in front of a class about to give a presentation about something I don't know at all.  

[Jack]: Or you come to school without your shoe. I just, like, I constantly have this dream that I'm in a musical and it's ready to performance. I don't know the words. I don't know the words I have this dream all the time. It's a representation of that fear. I don't know the words. Oh, no. And then I wake up and go, it's not real.  

[Doug]: So we have a hard out in a minute or so, but just with like, kind of last closing words here, is there anything else you wanna, you wanna say before we wrap up,  

[Jack]: I'm going to get a chance to see CODA when it gets a distribution deal, I'm sorry that the film was sold out for Sundance. I heard that 5,000 tickets went out the window like really fast, and then they re sold some more tickets and they've got sold out. But the movie would, I imagine based on the comments and the, and the praise that the film is getting, it will get a distributor and then it'll be available on whatever platform or whatever theater you can see it at. And I hope people enjoy it. I And I can't wait to hear what will happen with Feeling Through I'm so very proud to be associated with Feeling Through, I think Marlee and I mean, I think you know this, we wouldn't just jump on any project, but we were so proud of what you did as a director and writer of it. And so glad you asked us to be a part of it. That's producing partners. We're very proud of what you did and very proud of the actors and everybody in the film.  

[Doug]: Well, it's been an honor, truly an honor to have you both on board and also to get to know you both over this time. I really was so super excited to talk with you today because we've gotten to talk a lot offline, but this was a great opportunity for me to get to know you better. And I was super interested in everything you had to say today. And so glad you joined us and I'll probably twist your arm and have you be a part of some of our other conversations.  

[Jack]: So, and then you'll see, you'll see the different side of me.  

[Doug]: We'll have you, we'll have you both back on soon for sure,  

[Jack]: But thank you so much for that. Thank you. And thank you to the interpreters. Thank you very much.  

[Doug]: Thank you. And thank you all for joining today. We will be back again next week with another episode until then have a great weekend. Make sure you check out CODA when it's available. And of course you can watch Feeling Through, go to feelingthrough.com. It is up for everyone to watch, share it with people and we'll see you next week. Bye bye. 

Feeling Through Live • Episode 38: DeafBlind Representation in Film

 [Doug]: Welcome to Episode 38 of Feeling Through Live. I have the pleasure to be joined by my dear friend, Rebecca Alexander who's far overdue, and joining us, I've been, we've been playing like Zoom tag for quite a while now, but it's a, it's really an honor to have you here. And before I have you maybe introduce yourself, I'm going to start off by doing an image description of myself in the screen. And then if you, once I pass it over to you, if you could start off with the image description, that would be great. I am a white male in my mid thirties, short dark hair, little Scruff on my face. I'm wearing a blue button up shirt. And the screen that we have today in the top left corner says Feeling Through Live Episode 38, Deaf-Blind representation in film top right corner is our interpreter who will be signing throughout and in the bottom right corner. Rebecca, if you take away your image description there.  

[Rebecca]: So hi everyone. I am Rebecca Alexander and I am coming to you live from New York City in my apartment where I've been for the last, it seems 10 years, but maybe it's been just over a year given COVID. So I am wearing a green sweater. My hair is dark Brown and long I am of the Caucasian persuasion. And my mini Goldendoodle monkey is sitting behind me. I believe for you guys. It is on your, it's on my right it's on your left. And she could not look any less impressed. She's looking away from the screen. I have my gray couch behind me, and a framed photo behind me of sort of like a brick door. It's not entirely clear what it is, but it was a picture I really liked because it had different colors that I could see, pretty well when I, when I bought it some time ago. So, and I'm really happy to be here with all of you.  

[Doug]: What, what do we have to do to impress monkey enough to have monkey like, be more jazzed about our conversation?  

[Rebecca]: I mean, as soon as you find out, let me know.  

[Doug]: Okay, well, in that case, as long as monkey's not barking at us, but you know, there's one of the reasons I'm been so excited to have you on is because, you know, we got a chance to connect a few years ago now, before  Feeling Through was ever a thing that people were able to see. And, you know, you've been such an amazing, you know, first like mentor in this space when we first met each other, but really just become a really great friend. And we've had the opportunity to talk about so many different topics. And I feel like I've benefited so much from being friends with you and just learning about all different types of things in the world. So there's so many things we can talk about and certainly we'll get to today, but you know, one of the things that I thought through the context of, you know, what Feeling Through platform is, and obviously something that's been a really notable thing in your life as of has been the topic of representation in film and specifically Deaf-Blind representation in film. And, you know, can you explain to everyone a little bit about your memoir and why we're also connecting it to film in this case?  

[Rebecca]: Sure. So, I wrote a memoir that I think it came out like 2014, 2015, and the memoir was about living with Usher Syndrome type three, which is the leading genetic cause of DeafBlindness in this country and around the world. But I decided to write a memoir. Actually I was approached some years before when I did a big fundraiser for just, raising money for vision research. And some people found, found out about it and they said, Oh, that's interesting Deaf-Blindness, what my thought be like living in New York city. And I was approached by a literary agent and I was what, 28 at the time. And I was thinking, I was almost embarrassed at the idea of writing a memoir at 28. Like it felt very sort of self-indulgent and then some time passed. And I realized my own process of coming to terms with my own identity as not, not a sighted hearing person and not a blind deaf person, but somewhere in this great area where people are most uncomfortable in the gray, right? I found that reading other people's memoirs, no matter what their circumstances were, whether they were a prisoner of war or whether they were someone who had, you know, were raised in a cult that there were all of these sort of commonalities, there are these similarities that I think we all have that really boils down to simply being the nature of the human condition. And so I decided that I, you know, some years later when the same literary agent approached me again, I said, all right, let's, you know, let's do this. And so I did it and in 2016 or so, I was approached about making my memoir into a film and of course, you know, better than I do in Hollywood, that that takes a long time. And every time I would speak to somebody in Hollywood about what progress was being made, I felt like I needed to take two or three showers afterwards. Cause it just felt sort of very Hollywood icky. And so here we are. And, and recently now, since COVID the movie has been the rights of insult to Netflix and it's in development now, so I thought this might be an opportune time, and more importantly to talk about Feeling Through and just, there's nothing that I felt sort of more inspired and encouraged by that you did the more difficult thing by really searching out someone who would be most appropriate to play Artie and going to Helen Keller national center and, you know, sort of making this more of a movement instead of just a movie for people to go and see, be maybe touched by and then leave that you actually are giving a voice that you're actually creating this sense of inclusion for so many of us with Deaf-Blind. So I can't tell you how meaningful that has been for so many of us in this community.  

[Doug]: Well, thank you, Rebecca. I really appreciate that. And you know, I'm excited to get into talking about the nuances of what your experience has been in Hollywood so far and just around the topics of representation. But before we do that, just to kind of touch on your memoir a little bit more and what you, so, you know, beautifully brought up is that ultimately, and by the way, I'd like to note, I believe there's people like Justin Bieber that had like memoirs or films about their lives when they were like half that age. So I don't think you should feel weird about that. I think there's like 10, 12 year olds out there that I've met more. So maybe no need to feel weird about that, but what I think that's so great about what you were just saying is that, you know, ultimately, and I think it's something that people are starting to have more awareness about, but identity is not this like thing that you can very cleanly fit into, like a handful of boxes. It's something that there is it there as many people as there are in the world, you'll find as many unique ways to identify. Obviously it's a little bit more I think a parent that diversity in some people more than others, but in your case, you know, as someone who with, you know, obviously you can speak much more in-depth about this than myself, but with usher syndrome and just the Deaf-Blind community, a whole Deaf-Blindness can manifest in any number of infinite number of ways and happen in any number of stages that your identity it's very proof that your identity is this ever evolving thing. It's not this fixed thing that you're like, Oh, this is just who I am. And this is who I'm always going to be. It's something that evolves. Can you speak a little bit more about the evolution of like your identity in any way, you'd want to talk about that?  

[Rebecca]: Sure. So, you know, I was raised in a, I mean, hearing and cited family. And I was diagnosed when I was, I think, 12, with RP, which is the vision part of what I had. And then later I think that we knew I had what they called, like a cookie bite hearing loss when I was maybe, I don't know, 13 or something like that. I can't even remember now. It kind of all blends in, but it wasn't until later when I was in college, I was at the university of Michigan. And I, one day I just woke up and I had really loud ringing in my ears. And the feeling was that I couldn't hear people sort of speak to me over that. I had hearing aids at the time, but I don't know if it was because I was like a teenager still, or if I just really wanted to not about these like two senses being connected, I don't know. But that, that day that I woke up the sensation was that the ringing was so loud. It was almost paralyzing. I couldn't hear any, it felt like I couldn't hear anybody speak to me over it. It felt like I couldn't get away from it. And I couldn't because it was in my head. Right. And I, I felt like I was going insane. And so after about, and the only thing that helped it was when I put my hearing aids on. And so I, you know, after about a week or so, it wasn't sort of getting better. So I went to the Kellogg Eye Clinic, which is at the university of Michigan and they did a lot more testing. And they said, you know, Rebecca, you have usher syndrome. We've never seen it as it sort of presents itself in you, but because you have, you know, both progressive vision and hearing loss, it can't be anything else. So it was a long process of, you know, the human genome project was helpful. My, my mom was very dedicated to figuring out what this genetic mutation was because Usher type three had not yet been identified. And we happened to find the researchers in Helsinki, Finland, who had this very small population of people. And we overnighted my family overnight at our blood work to these researchers. This was about 10 years after my diagnosis. And it turns out that our blood work was that missing link. And the Dasher syndrome type three had been identified. But I mentioned this long boring story because it really means that there was no roadmap. You know, it wasn't like, you know, I was told I was going to be blind by the age of 30 I'm 42 now. And I think I have probably about 10 degrees of my central most vision. I have donut vision, many of us with vision loss experience, very different types of vision. I see everything on a spectrum. And as you mentioned, people like to sort of put something in a very neat and tidy box and nothing is neat and tidy. Nothing about life is neat and tidy and the more neat and tidy it is, the more uncomfortable I am because to me, it's just a sort of a covering up or a facade of something much deeper and more complicated. So I think going through this process of having to figure all this out on my own of not being, in some ways, the pioneer of Usher Syndrome type three really sort of gave me the opportunity to get to know myself and figure out what it was that I needed to do to feel a greater sense of confidence and a greater sense of ability to accept myself. And it was a very long process and it all it still is. But I can tell you that the level of intimacy that I have with my friends and my life and my now is absolutely because of my deaf-blindness. And I don't know who I would be if I was a fully sighted hearing person, being Deaf-Blind is a very, very difficult thing to live with. Not because being Deaf-Blind is particularly a problem it's that everybody else is sort of, you know, the world itself is not cut out for people like us. So, you know, we are constantly having to adjust ourselves in ways that are not even possible. And so I think for my own coming to terms, it's, it's, it's been a huge process in me learning to use my voice and not speak up for myself from a place of anger, but speak up for myself from a place of confidence and from a place of wanting other people to understand so that they can communicate, and do better in terms of how they interact with the world. And particularly with people who have disabilities and Deaf Blindness.  

[Doug]: And I think, you know, in getting to know you both personally, and, you know, the more public figure side of you, I think that's something that you do so beautifully knowing that basically all environments that you find yourself in are these extremely nuanced ones, ones, where there are a lot of people who don't really have the language and understanding of them, which can lead to a lot of pretty severe, misconceptions and erroneous, you know, understandings about them. And I think if what you're able to navigate it so well, because you, you come off so genuinely is having such a strong sense of self connected to identity and having, as you described, it sounds like the, the journey of what, what you've dealt with in your life has, that's been the benefit of it, of you having to almost be forced to really understand yourself in a, in a more intimate way than maybe some people, have been, have not necessarily had the same necessity at certain times in the way that you have, but I think that's something that's so apparent in, you know, knowing you a lot of different sides of view. And I think that is a interesting segue to, you know, talking about how we deal with these topics in storytelling and in film, because I think something that is happening right now, and it feels like a pretty recent thing is that there is, I, again, largely out of a little bit of bending the arm of, of Hollywood, if you will, more of a, more of a, being more receptive, the industry being more receptive to starting to understand and listen to, you know, authentic casting and what that means and why it's important and maybe follow through on it a little bit more than previously, but there's still obviously a long way to go. And the language in that space, um, we haven't really necessarily, we're still working towards the nuance because I think there's a lot of people who are in positions of power in that space who, who are very new to a lot of these understandings. So, you know, with that said, I guess, what has this process been like for you so far knowing that you couldn't have something more intimate and personal to you than your own life story and your self being portrayed on screen, dealing with, you know, any number of people, some of which who are probably learning about Deaf-Blindness for the very first time, you know, whoever you've been dealing with on the Hollywood side of things. What's that process been like for you so far?  

[Rebecca]: Yeah. So that's a good question. You know, I think that sometimes when, so I don't represent the entire Deaf-Blind community. That's not possible, it's not, it's not possible for someone to represent the entire trans gender community. It's not possible for someone to represent the Asian-American community. You know, African-American anything, there, we are all sort of individuals and we may share similar experiences. And I think that we share some more similar experiences than we ever allow for ourselves to recognize. And I think that one of the gifts of having something like Usher Syndrome is that I often try to see what the similarities are that we have, or more importantly, I love to go somewhere. And because we all have preconceived ideas of who a person is or where they come from or what their education level may be, or their income level or whatever it is based on what, wherever we come from. I love being proved wrong. I love being aware of my first impression and not saying this is who this person is, but saying, I can't wait for you to be proved wrong. And I do that with myself. Because I think that we are all sort of conditioned that way. And to say that we aren't, I think is completely dishonest, but so, you know, here's what I'll tell you. It's interesting because when you know this a couple, a few years ago, and I can't even remember how many years ago, because 2020 like feels like 12 years. So I don't remember what time looks like anymore. But a few years ago there was an announcement that was made on, on social media. And it was that Emily Blunt was going to be playing Rebecca Alexander and not fade away. Now I got this news just as everybody else did. And I was in session with patients. And like all of a sudden I was in between sessions running to the bathroom. I looked at my phone and I like pointing text messages. And people were like, congrats. You know, like, I'm so excited for you. And I had no idea what they were talking about. Right. And so then someone told me this was announced now I don't know that Emily knew any than I did, but this announcement was made for whatever reason. And by whomever. And I sort of felt like, okay, you know, this is, it was, it was so surreal. It was strange. And in addition to that, you know, a little bit later I was asked by a big disability organization to MC an event that they were, you know, putting on and they were going to be recognizing a famous person. And so I wanted to see what this organization was about. And so I just went online to look at it. And my assistant at the time told me, I think you need to go to that website and see what they have there. And it turns out that on their home page, they had an entire campaign of actresses who were low vision or who were blind or whatever, who were like auditioning to play Rebecca Alexander in this role. And it was like this whole disability rights movement, and that there needs to be representation. And I was so taken aback because both communities disappointed me, right? Like there's a saying in the disability community. And, you know, it's a very large community, it's the largest minority community in the world, as we know, and made up of a very diverse group of people. But I was disappointed because of the saying that goes on in the disability community, nothing about us without us. And the fact that I was not asked about how I felt about this. Nobody approached me from this, even from this organization and that these women were going on and sort of doing this audition and like, listen, I can appreciate that. It was, you know, maybe just for a, to catch attention or to really sort of make a point, whatever the case was. I was disappointed and I told them, and that was the last I've heard from that organization. And you know, what I, what I can tell you is that historically many of my Deaf-Blind friends had told me and have experienced that even with their Deaf friends, that losing their vision, becoming Deaf-Blind has been a very difficult process for them in communicating with their friends as well, because when you're signing your hands, that's your voice. So when people are covering your hands to feel what you're signing, that's a transition, that's a process that you need to sort of adapt to. Right. And so I didn't necessarily think that a visually impaired woman was necessarily the most appropriate because a visually impaired woman, or may not understand the Deaf world any better. So the point is there was no conversation with me first. And, um, so it's sort of this weird gray nuanced place. And I it's made me have to sort of think a lot about this whole sort of situation and  

[Doug]: what representation looks like. Yeah. You know, I have one other friend whose memoir was made into a movie, a big movie star played him, and I was equally shocked to hear how little he was ever consulted about any step of the way at all. And so I just find that like a bizarre thing in general, that why you wouldn't want at at least at some points to go to the source and talk to them when, when they're readily available in this case. But that aside, you know, I'm wondering, cause because you started to point out how, you know, authentic, just to talk about authentic representation for a moment and like what it has meant, at least in Hollywood, as of late, is that, you know, through the lens of disability in this case, the disability community, it means casting actors who are disabled in roles that are written as disabled characters. Historically, there's been very, very few roles written as a disabled character, even though, as Rebecca, as you pointed out the disability communities, the largest minority group in the world, and by any accounts constitutes as many as a fifth to a quarter of people in the United States alone historically that's been something like, you know, 5% of characters and in major TV shows and movies are written as having a disability and more problematic than that is of those that small percentage. Historically very, very, very low percentage have actually been played by actors with disabilities. They've often been played by actors who don't have disabilities. And the, and the real issue here is the fact that there are obviously a lot of people who have great talent, who are, who have disabilities, who deserve to have opportunities like anyone else would. And certainly when it comes to a character that's written as a disability, not even getting to the fact that characters with disability, actors with disabilities should be considered for any role, you know, I'm really, or like most roles at least as we kind of ripple that out and get better with that. But with that said your specific life story highlights a really unique, unique things around what, what authentic representation means in this specific case. You know, again, as you well described earlier, you know, identity is not something that fits in a neat box and Deaf-Blindness Isn't something that fits in a neat box. It's, there's such a diverse manifestation of it, yours being its own unique one compared to anyone else, who's a person who's Deaf-Blind. So it's not just about again, Oh, this person is deaf and blind. They're perfect fit for this. There's, there's a lot of things to consider. How would you talk about, you know, now that you've had some time to, with this, and obviously it's probably, it may be something that's still evolving, what comes up for you as kind of the right way to go about this, or kind of best practices as we start to talk about where authentic representation fits in specifically with your story, your memoir being option and the best way to go about thinking about casting that role.  

[Rebecca]: Yeah. You know, I think that there's a lot of changes that have happened in the time since the op the REITs were first option. I think I'm now on the fifth option. So it's been over five years since they first optioned it. So a lot of kind of change and new characters and people who've come and gone and whatever. I've never had my story told even though, you know, New York magazine and these various stories have various outlets have told my story, none of them had ever really gotten it right. So to speak because they always have their angle, their lens. And I have to assume that that is going to happen again here, right? I mean, remember, this is my life that they're going to be representing that I'm almost 42 years old. So this was the time when I was in my early thirties. I'm a much different person. My vision and hearing loss is much different now. I mean, in the book, I was cochlear implanted on one side, I'm now cochlear implanted on both sides. My preference is to be, is to not have my ears on. There is nothing I love more than being deaf because it is my religion. It is sort of my, my safe space. And when I first started losing my hearing, there was, it was so difficult for me to be with myself and my own head because of how loud the tinnitus and the ringing and the auditory hallucinations and all that stuff was. So, and I know I sort of sidetracked here, but to get back onto the point, I think I'm really eager for, I want people to have be more flexible with their minds. So maybe this movie, and we've talked about this, you know, I think people are like, Oh, we want to get the best director and someone who's famous and has done all this work. I don't care if you're famous. I don't care if you like won six Academy awards. I mean it, and I know that we don't have the budget for that anyway, but I want someone who has that willingness to see outside of their, themselves, outside of their vision. I want someone who is comfortable being incredibly uncomfortable and sitting with that. And that's exactly what you did when you went to Helen Keller, right. And when you had to learn and be a part of, you know, communicating and creating this space for an authentic after. So, you know, one of the things, the director that they've chosen, I really like we've gotten to know each other and she seems to have this flexibility. I mean, we're still a ways off, but one of the things we've talked about is starting the movie and having someone who is a cited hearing actress, and then as the movie progresses and the vision loss and hearing loss that the main actress is a totally different actress who does have vision and hearing loss, or who does, you know, we don't know yet, but even that willingness to have that flexibility and to ask the viewer to sort of suspend their, you know, reality for a moment to try to really kind of capture what it's like.  I don't know. I really appreciated that. And, so yeah, so I, this is something that I'm really going through it, and I have to tell you one of my like biggest concerns really is the backlash that I'm going to get. We are so quick to judge and to criticize and, you know, social media. I think I understand how incredible it is that we can all be together today and have this conversation, but people have no, I mean, they have no qualms about just attacking anyone for any reason because of their own shit in their own lives. And so I'm really eager for people to sort of maybe be open-minded and to really start having this dialogue. And I'm really hopeful that this will continue to open that dialogue and less sort of criticism.  

[Doug]: And, you know, I think such a great example that you just brought up again, whether it happens or not is, you know, that example, the possibility of, you know, switching actors at some point in the story to more, accurately exemplify in a, obviously in a poetic way, but more accurately exemplify the transformations and changes that you were going through in your personal story. You know, again, as we get back to this point about the fact that we are, you know, we are very young in our, under on our, in our, like the general public's general, society's understanding and language around these nuanced topics. I mean, for people who aren't part of the community, and in this case, even like a specific part of the Deaf-Blind community, they're not, they're probably have never thought about any of the things that that are needing to be thought about in representation, in your story. Let alone anything that even comes close to relating to it. Oftentimes, so as we, as we understand that film is meant to be shared with lots of different types of people to come together and have some sort of communal experience and obviously have our own takeaways from the story, ultimately, knowing that you can't appease all people all the time, what's kind of the, what is kind of the best solution ultimately, and what are ways which we can be creative knowing that we're working in this context where maybe we can't do the things we really want to do yet, because we're not there yet in the language and the, and the, and the mass understanding around it. And how do we work with the context that we're in right now and the resources we have and the understandings we have to do the best possible job we can. And it's such a, your, your story in particulars highlight, like brings kind of exposes where we w you know, where we need to really dig deeper. I think it's such a great because of, because of the intersectionality there and the, and the very, you know, unique journey that you've been on personally. It really does expose kind of like the, where we need to grow and evolve. I'm gonna hold for just one moment while we do an interpreter switch. All right. We're continuing here, but yeah. You know, I'm wondering, you know, you said that there's been an evolution of even within the time that, that your, your story was first optioned. I'm wondering, you know, as best as you can define that, how, what would you, from your own perspective, what do you feel like that evolution is, and kind of, where does it feel like we're headed with these topics?  

[Rebecca]: That's a good question. You know, I, what I'm most hopeful for is that my story will just continue to open up this space in this dialogue. You know, one thing that I think about, and I'm sure I'll get backlash on this too, is that, you know, what's interesting, is it now when you have like a zoom or if you have an email, you know, signature or whatever you have to include she, her, or they them, or he, him. And part of the reason why I think that that has been able to sort of catch on so quickly is because people have a voice, literally they can speak, they can communicate their needs, but when you're a Deaf-Blind person, or when you're a deaf person, your, your voice is always being interpreted. It's always, you always need to find someone to help you communicate your needs. So the fact that today we're able to say, even for, you know, the Low-Vision and Blind community, we're able to do the audio description. I honestly think that that would be a requirement and it would catch on as quickly as the, she, her, they, them, he, him, if we had that type of access, if we had the ability to communicate that freely and easily and comfortably with the world, right? And so that I think is something that I hope will continue to progress with even sharing my story. Now, I know so many people who have a very different, you know, Deaf-Blind experience than I do. I mean, I think if you ask me, I mean, for example, so, you know, one person that we all know very well and sort of this community Maricar has an incredible story I would love. And her, her story is so different than mine. I would love to see a movie about her story. I would love for this not to be sort of like the only story. And now we, can't a movie about that. Why? Because it's been done before. I really hope that this sort of brings this more to the forefront and that we're not focusing on this being about someone with Deaf-Blindness we're, we're focusing on who we are. It's people the same way that you look at a hearing sighted person. Who's very complicated who has their own sort of experiences that really make them resilient that make them vulnerable. And so I really hope that they can capture more than just the Deaf-Blindness that, you know, I'm someone who's very snarky. I'm someone who has a very, you know, dark and juvenile sense of humor like that. There are so many parts about me and that this is simply a part of what makes me who I am. If that makes sense,  

[Doug]: I get, well, I can definitely attest to your dark and juvenile sense of humor for sure. Which is one of the things I certainly love about here, but no, that makes that beautifully put, and, you know, just from my own experiences, I can definitely relate to a lot of what you talked about as far as being a storyteller in this overall space, obviously coming at it from a very different angle. But, you know, as far as with Feeling Through is really interesting. I mean, there's a whole nother discussion that we can have, and certainly get into today, or another time around me being someone who's sighted and hearing representing someone who's Deaf-Blind in a film, you know, and obviously I did all the homework I could do and connecting with Helen Keller services and the Helen Keller national center, and also just really getting to know the community as much as I could not, and not to be out of obligation because I wanted to, because I was curious and then got to connect with awesome people like you and many other people who became good friends of mine too. But I think something that was really interesting and taking the film around and, you know, thankfully we've, we've gotten a really great universal response, you know, from the general public, from a lot of people we've been able to share it with in the Deaf-Blind community and other disability communities, but, you know, something that has come up sometimes, and it never has, honestly, there's been very little pushback or a backlash on anything, but there have been a lot of times where people go, Oh, you know what, there's a lot of Deaf-Blind people who do this, or do that. You should have done that in the film. And I'm like, you know what? There just needs to be more films about people who are Deaf-Blind, because this was about one very specific person. Who's, you know, I mean, it's ultimately not about Deaf-Blind is it's about two different people connecting, but this was representing one very specific person who's Deaf-Blind that wasn't meant to represent all people who are Deaf-Blind and you're. And I would say to these people, your point is so well taken because there needs to be more stories that include people who are Deaf-Blind so that we can get the breadth of diversity within that community. And that no singular story, has the pressure to, to encapsulate an entire community through like one character or one story. So that's, again, you know, as we get to the fact that with storytelling, particularly that's meant to capture, you know, something very current and be told to lots of people you're always operating within a very specific context. And that context also means that when I go to make a film that includes a Deaf-Blind character played by a Deaf-Blind actor. I have to be aware it's not the driving force of all the decisions I make, but I have to be aware that this is a first that a Deaf-Blind actor is starring in a film. I have, there's a responsibility to being aware of that context. I mean, if we're, if we go like a thousand years in the future for all still here on planet earth and altogether, and there's been, and movies are still a thing or whatever form they're in, and there have been a million movies with people who are Deaf-Blind and everyone else in them, you can, there's a different language. There. There's a different way of telling those stories at that point. But right now, you know, you talked before you used the word of, in certain ways of like pioneering, Usher Type 3, but it's also pioneering in a way storytelling, very specifically storytelling that deals with the Deaf-Blind community, because there's been so few stories, particularly movies that, that deal with that experience. So it's like, you know, you talked about, you know, how, how the internet can be in social media, like as just a person, you know, how do you juggle because you do it so well. How do you juggle being who you are and showing up as who you are, and knowing that as a public figure, who is Deaf-Blind, that always, whether you want it or not carries a degree of responsibility, how do you juggle those two things?  

[Rebecca]: It's a good question. You know, I think the amount of work that I've done on myself and remember I'm a psychotherapist. So this is what I do all day long is just sort of evaluating emotions and, and kind of really trying to get the root of whatever it is that I'm feeling or anybody is feeling for that matter. And I think that what I've found is that no matter what your situation is, the more confident you are, the more comfortable you are with whatever your circumstances are, the more comfortable other people will be communicating with you in whatever form that is, the more comfortable people will be in having some sort of interaction with you. And I've also recognized that, you know, part of being in this, in this Deaf-Blind space means that I go to every, every place and everything, knowing that it is likely not going to have be accommodating for me, that I'm going to have to be creative, that I'm going to have to think outside of the box, that I'm going to have to make it work. And all of these things that don't have that sort of accessibility or inclusivity, that, that it doesn't drag me down. Because if I were to focus on everything, wasn't, you know, able for me to, to access, I think it would be a very depressing way of living. And so I do the best that I can to try to create awareness and comfort in other people. But part of that is living in discomfort. And maybe it's sort of the sick, I don't want to say a sick pleasure, but I have learned to be in credibly comfortable in discomfort, you know, whether it's climbing Mount Kilimanjaro or swimming from Alcatraz to shore without being able to hear or see, you know, these are things that it's like developing that resilience and that comfort with being uncomfortable. I think that when we see people who a are different than us, but who we see with any type of different ability, we immediately assume that maybe they're no, that we can't communicate with them that, and that they're not entirely human. That there's something that like is unreachable. And I don't agree with that. I think that we all have to be incredibly uncomfortable in order to make progress in order to sort of continue to develop this comfort with, with discomfort. So I don't know how great I am at it, but I'm certainly comfortable with other people being uncomfortable with my situation. And I don't take it personally, you know, that's kind of their stuff, not mine. And, but it has been a process of, you know, getting to that place.  

[Doug]: You know, as you mentioned in that, you're, you are a therapist, psychotherapist, you are also an extreme athlete. You were starting to kind of talk about those in that beautiful response, but you know, how, how did I guess, to not to try to make connections for you there, but I can't help, but feel like that both of those aspects of yourself are directly connected to, you know, a lot of what you detailed in your memoir of, of kind of your experiences as, as a, as a girl and a young woman, and then a woman coming into her own identity and, and needing to, you know, both understand yourself really intimately and also really get comfortable being uncomfortable. Was that was the therapist side and the, and the extreme athlete side, like kind of directly birthed from that experience or what's the connect. What, if any connection is there, there?  

[Rebecca]: Yeah, so, you know, I think that the, um, so one thing again, that people likely don't know about me and if they read my book, first of all, thank you. I always assume that my book is either sort of sitting by the side of someone's toilet is toilet reading, or maybe it's been donated to Goodwill, but at any pace, I think that for me, so I was in an accident when I was 18 and I broke just about everything in my body and I fell out of a window and it was a very, that was my first real sort of experience with having a disability. I was in a wheelchair for four months. I've lived with chronic pain ever since. And so it's funny that, you know, the, the Deaf-Blindness is part of it, but this is another part of me that, and I had to quite literally rebuild myself. And I think that so having to rebuild my body after all of the injuries I sustained, and then getting this diagnosis, what sort of evolved was me not only taking care of my body because I had to, but that I don't have control over the fact that I'm losing my vision, but I do have control over how I take care of myself. There no treatment for the vision loss. And, you know, I know that that's even a controversial topic itself, but I can control what I eat and how I nourish my body and how I take care of myself. And I can also control my exercise and meditating and practicing yoga and the things that give me a sense of empowerment. And there is something that gives me this sense of taking the power back in some way, when there's so much that so completely out of my control. It's also how I manage my anxiety and stress. That's just for me, exercise has been a key part of that sort of thing. Repeat for me now, therapy has been a huge part of my ability to come to terms and really analyze my identity and my experience in the world and learn to become comfortable with myself. And so I think that it was, I love listening to people's stories. I love being able to share in very difficult and painful, and also in joyful times in people's lives. One of the things that I love about being a psychotherapist and even a Deaf-Blind psychotherapist is that if you were to see me on the street and I were standing there with my cane waiting for the light to change, I think that I would be the last person that anybody would ever assume that they should go to for help. I think I would be the last person that someone would point to, to say, Oh, she must be a psychotherapist. She would be someone who would be able to help me with whatever the emotional stress stresses or the trauma that I'm dealing with in my life. And I love that as weird as that sounds, because it's just another Testament to the way that we sort of judge and preconceive who someone is or what they're capable of or whether they can help us. We're not, not. And, so, the fact that I am standing there and if it is sort of a very busy, noisy, crazy street, and now, because there is less traffic, you know, we, those of us who have hearing because of assistive listening, we rely on the traffic to tell us when we can cross, right. So I may need more help from someone and that reciprocity of someone who can really help others, and yet also needing tremendous help from people really is incredibly humbling. It is just a very humbling experience.  

[Doug]: Yeah. There's been some really great articles that I've seen, um, written recently about specifically in New York city, people who are blind or low vision. And I'm sure there's been some also about the Deaf-Blind community, but I've just happened to see more about blind or low vision navigating the city during the times of COVID is a very different experience. You know, normal cues that are there, like you were describing are not, not there as much or in a different way. And kind of learning to re navigate is something that I've, I've read some really interesting articles on that. I'm wondering, just being specifically being a therapist during the last year, you know, where I'm sh there's been tremendous challenges for basically everyone, in a number of ways, you know, what's it been like for you this last year? And I'm also curious to you find yourself as someone who, that, that people with disabilities or people who are Deaf-Blind seek out because of that, like other level of understanding of their experiences, that's something that happens for you.  

[Rebecca]: Yeah. So it's interesting because you know, when COVID started, one of the things that happened is that they sort of lifted some of the laws about being able to practice in like different States. So I have more people with either vision loss or, you know, who are hard of hearing or Deaf or Deaf-Blind who have reached out to me to do therapy because we're all in this virtual world, right. And we now have sort of the legal jurisdiction to work with people outside of our, our States. So it has actually provided that opportunity to work with more people who have, you know, either similar types of disabilities or different disabilities than I do, because I think that I often hear the biggest struggle is finding a therapist who really gets it. I think that sometimes we think that therapists are like these all knowing people who have done all of the research and the studying and the clinical work, and they know the best answers. And I find that actually the best therapists are the ones who have been through some serious stuff themselves and have that vulnerability and humility. But so I, yes, I have the number of people I work with who have Deaf-Blindness or who have disabilities in general has increased during COVID. COVID has been tremendously difficult on all of us. It's been even more difficult, I think, on the Deaf-Blind community. And I think that this, this time, like everybody else for me has been exhausting, but this is why now more than ever having this self care practice has been so important. I think we hear a lot about, and self-care and whatever, but it's something that I have to do because there's such a thing as what we call compassion, fatigue, where you hear so much of people going through so many different things that at some point it's like, I'm dumb. Like I can't even hear anybody else, you know, suffering or whatever. And so I definitely make sure that I meditate every morning and I, I exercise, but I I'm human like everybody else. And I have my limits. So I really try to not become a therapy factor. I really try to do more meaningful work with the people that I work with.  

[Doug]: Yeah. That's definitely now more than ever, those practices are definitely a needed and important. You know, as being that we are in a new year, with some pretty significant changes that have occurred, just recently with, you know, the, obviously the inauguration being a very specific sign of it and a little bit more right. And more of a prospect moving forward of, you know, obviously vaccines are getting administered albeit slower than we'd hope, but that there are a lot more people getting vaccinations. What, what are you hoping to see over the next year?  

[Rebecca]: Well, I think one of the hardest things that we have had to deal with is a lack of expectation management that, you know, it's funny because I was talking with a friend maybe like last weekend and she was saying that she and her husband were laughing hysterically because they were thinking about last, last year in March, when they, you know, when we were told that we would have to stay home for three months and how brave they felt. And like, we can do this, you know, having no idea that we were going to be here a year later, you know, and just laughing at the bravery, they thought they had at the time. Right. And I mean, listen, a whole other conversation is about the last administration we have, it's deplorable. I never knew that I was somebody that was capable of murder until Trump was in office. I never had such visceral, such a visceral response to anyone in my life. But I will say that our, our expectations were not managed. And, you know, I sort of think that with this new administration, I think that we're all very hopeful, but it's sort of like having a breakup with a really abusive, significant other, and now we were not ready to trust again, like we need to recover and how do you do that? And yet move into this new era. So I guess what I'm really hopeful for for this year is that people will have the room and the time and the space to heal from the tremendous betrayal and loss that we have experienced on such a grand scale. And I really, you know, personally, I really hope that people will get vaccinated soon, but I think that we're really going to be in this space for, for most of this year. And I think we all need to be prepared and manage our expectations and learn to stop looking so far into the future for when things finally open up and actually take the time and space now to think about what it is that we need to do to keep ourselves going during this incredibly trying and difficult time, and also write about the things that were we maybe took for granted. And that we're very much looking forward to once we do, have a greater opening of sort of, you know, our communities and the world. So I don't know if that answered your question, but I think that one of the things that we need to continue to do now, which is very difficult, we need to continue managing our expectations that it's going to take us time. We didn't get into this mess overnight.  

[Doug]: You talked about how this time, you know, through the lens of being a therapist, how you've been able to work with people remotely, that you wouldn't normally have the opportunity to work with. There's also been some things that I've heard in specific cases of the fact that, you know, one of the silver linings of this time has been certain things are a lot more accessible for certain groups of people that hadn't been excessive in ways that hadn't been accessible before. Have you come across that in your own life? Not just necessarily personally, but people that you're work with or connected with that, like some of the potential benefits of accessibility during this time and, and how that might, you know, look moving forward, even as we at whatever point emerge from this and kind of get back to whatever normal is.  

[Rebecca]: So I don't think so. It's a good question. I don't think we will ever go back to normalcy going through something like this that we've gone through. There's no way to ever go back. We will never be able to sort of return to something it's just like when somebody has any type of, you know, if they have, you know, a psychotic break or if they have any type of, you know, real serious illness you don't ever come out of this and not be sort of permanently affected now, that's not necessarily always in a negative way, but it will be interesting to see how we, as, you know, as in communities evolve, I think that the accessibility there's been more of a focus on creating more accessibility because we do find ourselves in this virtual space, but I will tell you that, like everyone else, I think in this community, I still struggle and constantly am trying to, you know, technology is very flawed. It's made tremendous progress, but we still have a very long way to go. And so I I'm eager, you know, for, I still have to constantly invert from, you know, they have smart invert now, but I constantly have to invert colors from white on black or yellow on block to, you know, just for so many different things. And so I'm really eager and encouraged and hopeful that we will be able to continue making progress. I think that there's a lot of really promising stuff that has changed, but I think we still have a, I want us to work more from a place of momentum and not from a place of, okay, we've created this, you know, that's all done. I think that there's so much that we still can do. So I don't know if that's quite the answer you're looking for, but I do think that this has created an opportunity for people to really be aware of the access that we need. And I think more importantly, I think we've all realized that at some point in our lives, we will all end up with some form of disability. Right. And so creating this access now will really help so many people even down the road.  

[Doug]: Yeah. There's so many other things aspects to your life. We can't get to today because of time. So I'll obviously twist your arm and have you come back on here another time, you know, you're, you know, you're public speaking, you know, more into, you know, as a trainer and extreme athlete and many other things that you do. But you know, just kind what the final few minutes we have here, are there any, is there anything we didn't talk about today or any kind of like closing thoughts that you'd like to ruminate on?  

[Rebecca]: Oh man. Where do we even start? I mean, I'm very, I don't know. I know we don't have time for questions. I'm so curious. You know, I think that part of what's been so difficult about this time is, you know, even just like not being able to embrace people, not being able to sort of touch them. And I know we all talk about this when we hear it, but I think in the beginning I was used to it, but now I really feel that deprivation and as part of why monkey and I sort of, you know, she gets way too much love for me for thing, but I do feel like this community because we are such a calf cow community that we really have been tested at, during this time. And so I really hope that to all of my sort of Deaf-Blind compatriots out there that just to let them to say that you're not alone, that we're in this together, even though we were very separate during this time. So, I mean, listen, there's plenty of things we could ruminate about. So maybe I'll leave that to you. Yeah.  

[Doug]: Oh, that's, that's a beautiful sentiment to end on. And, you know, I encourage all of you watching, if you haven't already to read Rebecca's memoir, not fade away. It's really, you know, I was, again, just, I think just you right with such a, the, the, the way in which you, you tell your stories, I think really accessible and universal for anyone, in anyone's experience. And that's what I took away from it. And, you know, I'm excited to see what happens with this movie. I'll certainly be, be following along closely and definitely like bugging you for on it. But you know, it's going to be, it's going to be an interesting journey. And I think whatever happens from it's an important step along this journey. It's an important step along the journey of, you know, representing communities and individuals within those communities that haven't been represented before and finding ways to do that. And I'm sure there'll be, you know, successes from it and things that will be looked at to, to improve upon in the next one. And that's inevitable with anything we do, but it's definitely, I'm really excited and happy for it to be happening because it needs to happen. Like there needs to be more stories like yours, being told in film. Yeah,  

[Rebecca]: I want it, you know, Doug, you just saying that reminded me of one thing that I think is important that I wanted to bring up. And that is when, when my book first came out, I went to Barnes and noble or various stores just to see if they carried it. And when I went there every time, even though it had just been released, they said, Oh yeah, they looked it up in the computer. Yeah. We have one copy. It's in disability. It's downstairs to the very back of the store. And that to me was, I was so disappointed that it was sort of, again, pigeonholed into disability, that this was a book that came out that was just as worthy. And I think that the human condition and the human experience is universal, no matter what your circumstances are. And so I was so frustrated that as soon as my book came out, it's like, yeah, let's throw this in disability in the back of the store were, you know, very few people, you know, look because I do think that that's another way in which representation needs to come out. You know, we have to have more people represented on the front tables of the store and not be sort of typecasted because it falls into this category.  

[Doug]: I love that. Well, I, you're already a part of that evolution and I'm sure we'll, we'll continue to be so, so excited to see how that unfurls and again, so happy we were we're long overdue for this, but it was well worth the wait. You're just such an exceptional person and become a really great friend. And I'm very much looking forward to getting back to New York so that we can hang out again. And you know, I'm going to believe me, I'm going to need one of your workouts when I get up  

[Rebecca]: Right. Every time. So every time you come to New York, I dragging for a workout and he was like, ah, geez, how am I going to get out of this full time? And you're such a doll.  

[Doug]: Well, no, I need it this time. So I'm looking forward to that and thank you for, for all of you tuned in today. And, yeah, we'll be back next week, I believe at our normal time. And looking forward to it and yeah, again, Rebecca, I'm going to twist your arm and have you back on here at some point in the future. You got it. Thanks so much.

Feeling Through Live • Episode 37: Academy for Blind & Love-Vision Actors

 [Doug]: Welcome to episode 37 of Feeling Through Live. And today I'm joined by Marilee Talkington, who is an actor and advocate, and also the founder of Access Acting Academy, which we will be talking about in great detail. But before we do that, I'm going to start with an image description. I'll begin. You'll see on that screen our title for today is Episode 37 Academy for Blind and Low-Vision Actors. I'm in the bottom left corner with my name, Doug Roland and Feeling Through next to it. And I'm a white male in my mid thirties with my living room over my right shoulder and a picture over my left, a little Scruff on my face. There's an interpreter in the top right corner. Marilee is in the bottom right corner. And why don't you give an image description yourself?  

[Marilee]: Sure. Hey everyone, I'm Marilee Talkington. If I had done this panel a week and a half ago, my image description would be different. I used to have very, very, very long red curly hair, but today I have very short, straight red hair. It's all gone. I cut it all off. I'm wearing red framed glasses. I have my little white AirPods in my ears. I think my shirt is maroon is kind of a muscle shirt and I have one of those zoom backgrounds behind me. That's like outer space. It's like, I don't know what it's like, it's it's like a light rim around the planet. So I'm sort of glowing and floating in space.  

[Doug]: And I will say two things; One, your space-like background kind of matches the overall background of the screen, which is kind of like a bluish, like, like a little bit of a different tint of blue. And I was also wanting to save this for when we were alive, but I really like your haircut it's fantasy.  

[Marilee]: Oh, thank you. I'm playing around with it. I'm finding that I've got like eight new looks, which is really, really exciting. I bought my first camera Palm aid.  

[Doug]: There you go. See it's a whole new world for you here.  

[Marilee]: Yeah, totally, and I should say, I'm also very fair skin and my age range for TV, because I'm not going to tell you my age is from 35 to 52. That's my age range for television right now. Thanks.  

[Doug]: Fantastic. So, you know, there is a lot that I want to talk with you about today and what's, you know, actually I've been really, we've been long in this- this episode's been long in the works here. We've been, you know, we had an opportunity to meet each other via zoom about like mid last year. And I've been very excited to talk to you since then. You know, certainly want to talk a lot about access acting Academy. So I'd love if you could just for starters kind of just give just a very quick overview of what that is. And then I'd love to kind of talk about some other things that lead up to access Academy, but before, since it's just on the screen and underneath your name, I'd love, if you could just kind of like let people know what it is.  

[Marilee]: Sure. Access to acting Academy is a first of its kind actor training program for blind and low vision actors. We, well, I'd been thinking about it for 20 years and basically started the building, the infrastructure of it, and 2019. And then at the beginning of 2020, we had our first five week full-time professional after training intensive in Los Angeles with 12 actors. And it was off the hook and it was all with master level teachers because that was extraordinarily important to me. It was all like MFA graduate level teachers that are teaching in MFA programs and drama schools. And it's still, it's, where I'm still going. Like that was budgeted. I had money for that, and now we moved virtual in the fall and what can get to that later, but now I'm trying to figure out what access acting Academy is going forward. But it's a really amazing place with Blind/Low-Vision actors in his face. And what I'll say about this too is that the whole pedagogy is based on the premise that every single person is inherently rich with creative potential, and you are not missing anything to become a potent creator, and we're not here to fix you either. We're here to actually invite you to realize your greatest self. So this isn't about fixing people. This is about trying to turn them into anybody else. This is about revealing the greatest part of who you are through acting.  

[Doug]: Well. I love that. Thank you. That was a great introduction. And, you know, I think we actually initially met each other because of a kinship on, you know, obviously what we're doing and Feeling Through with Robert being the first deaf blind actor and the way that we want to provide more opportunities for people who are deaf blind to participate in acting and, and, and, you know, both sides of the camera and filming in the film and TV world. And obviously you're extremely passionate, not just as an actor yourself, but PR, but for providing more opportunities for other actors who are blind, low vision, or with other disabilities to get more work. And, you know, I think one of the things that really struck me and stood out to me when we talked, is your passion. It's something that just like kind of oozes out of every pore and is really, really infectious in a good way.  I know that's had a negative connotation, so let me walk that back a little bit, but you know what I mean? But, but, you know, I think, you know, obviously, you know, I think on the one hand, from what I know from you as a long-time working actor yourself, you've obviously had, I'm sure plenty of experiences that have really fueled your desire to create access acting Academy, and that has really fueled your, your passion and the necessity that you find to create opportunities for actors with disabilities. Can you, can we kind of just walk back to like earlier on in your journey, you know, I'd love to kind of wherever you want to start with that, but I'm just kind of curious if there's any key moments that pop out for you or experiences that you've had that really, if you will, you could say were maybe the seeds that sprouted into access Academy.  

[Marilee]: Yeah. You know, there's a few, I think the very first one, and this is one that I go back to a lot is when I went, it was my first cold read audition. And a cold read is when you show up to a theater or a studio or whatever, and they hand you, they're called the sides, but it's basically the dialogue, the script that you're a part of the script that you're going to read. And it was too small for me to read it's blurry, you know, and this was before anything was really digital. And so I had to go find a photocopying machine to see if I could enlarge it. And we were out in really way out, not the boondocks, but, but really separate where the studio was. I had to take three buses to get there, and it took me two hours to find a photocopy machine. And it was really, I found like a real estate agency that let me go in and enlarge the script. It was a mess. It was still really hard to read, but I was determined to do this. And two hours later, I show back up at the theater. It wasn't even theater as a studio. And I walk in and I've got this enlarge script and I'm still, I'm still needing to hold it close to my face. And I start reading, I start doing the audition and the director says to me, if you can't read the script, you don't belong on stage. And he excused me from the audition. So I didn't even get to audition. And it was that blatant. It was that clear. It was that blatant. And that was a really huge moment because then I ended up taking the three buses home and I'm a brand new actor. I don't have the vocabulary. I don't, I didn't have the vocabulary. I didn't have the language to stand up for myself in that moment. I didn't even understand really what this meant, but I remember going home and it being really painful. One and two, it was a moment where I had to ask myself, is he right? And the answer came back very loudly. No, he's not right, but I didn't know how I was going to change anything. Like if this is going to be the way it is. So that was a big moment. Now did I know I was going to start an acting school from there? No, but that was, that is a huge seed. Huge. And then when I actually got into school and the first movement class I ever took, or I ever signed up for, as soon as the teacher, I emailed the teacher and said, Hey, at that time, my, I identified as visually impaired. I don't use that word anymore. I use legally blind, but at that time I said, Hey, I'm visually impaired. I'm going to be taking your class. She emailed back. And she said, I can't teach you if you can't fully see me. And she unenrolled me from the class. I mean, this is, and this is after 1990. This is after the ADA came out. So, I mean, all these are kind of like little things inside of me now, what ended up happening, and I'll try to condense this a little bit, but I ended up realizing that I had to hide a little bit. And so I ended up really only speaking up when I absolutely had to, because I wanted to be in the class. So I fought to get into that class. And I got in. And of course, of course, like I actually ended up with the highest grade in the class because I'm good at what I do. Like I'm actually supposed to be an actor. Right. So, then I got into grad school and that's really, when I realized that something had to change, I got into grad school and I was studying acting. And, you know, when you're in class and I'm sure folks who, who are watching, listening, experiencing this can resonate with this stuff, deaf, blind folks, deaf those blind folks. Basically what they said is, you know, I say, Hey, I can't really see what you're doing. And they say, well, just to the best you can. And that's something I would hear over and over and over again, do the best you can, which meant we're not going to change what we're going to do. So you just take whatever you can and figure it out. And, and the other actors were basically getting the full experience of the education. And I was having to do all this adaptation in my head, and then faking it sometimes too, because they were using things like, don't talk to us about your vision. It's showing what was the language that they said? They said, Oh, yes. When you bring up your vision like that, it's like, you're all about self-pity. So they would associate me advocating for myself as me pitting myself, and yet, and so here's the irony of this is like I figured stuff out all on my own, like the scripts that I would get, they weren't accessible. I had to go home and type. I had a, I have a big CT, the big CCTV and I would put the script under there and I would type out, I would have to re-type in my entire script for everything. I still do that actually. So most actors would be doing their work and I'm there retyping everything. But all this to say is that I was working extraordinarily hard doing the work. I kind of shut my mouth because about my vision and what wasn't working, because it was just, it was just a constant battle. And at the end of the grad program, like who was awarded the big award at the end of the year for excellence in the craft me. Right. So it's like, it all, you know, it's what, what that is, is that I'm not saying, wow, great, Marilyn, you're amazing. It's more like there, these teachers and these programs and these conservatories, and these studios have such diluted ideas about who we are and what we're capable of. And they also have these diluted ideas that acting is only good when it's taught one way. There's, that's a bunch of BS. It's our job as teachers to figure out our way in to each student. So those were the big seeds of, in terms of the training, in terms of like, knowing that there needs to be something more accessible, something more that says, yes, we want you into our class. This assign this, this particular exercise is an accessible, let's figure it out on our feet. Let's do it. And that's what I'm doing at access acting Academy. And then of course the whole, like how many blind folks do you actually see on stage your TV? Barely any at all. I mean, you see sighted folks pretending to be blind, but that's, you know, that's, that's fake and that's just mimicry, but that teaches the conservatories and the studios and the universities that we're not actually worth teaching. And that there's no jobs for us. So this is, it's this really ugly cycle that's going on. And I feel like to get me to access act and Academy, I was like, I have to stop the cycle. I've got to stop the cycle somewhere. So we're at the beginning of it, but that's, those are kind of the juiciest little, I think, seats.  

[Doug]: Well, thank you for sharing all that. And, you know, to comment on that cycle too, part of that cycle, as you were talking about too, is like how many people are there that were a similar position to you that were told you don't belong here and listened to that and gave up, and then you create this, this cycle too, because then you're, you're really, you're really creating a much more shallow pool of, of potential actors who are blindered disabled, if they're, cause not everyone is going to have that same fortitude that you had. I mean, there's obviously plenty of others that do as well, but there's plenty of people who probably for good reason, didn't feel like kind of putting up with that and just was like, screw this. It's not worth it. And then you create such a smaller pool of, and are missing out on some really potentially great performers in this case, who just ultimately were like, I just don't have the, the, the, the bandwidth or ability to deal with these obstacles right now. So I'm not going to pursue this. And you know, that's also, what's so amazing about the work that you're doing is like having this place where actors with disabilities can not only feel like they belong, but you work together to create a new methodology, right. That I'm sure as you're mentioning is I'm sure, ever evolving right now, but is something where it's really two levels deeper of like, not just like welcoming in, but really embracing and reorienting, how things have been traditionally done. What have you found so far? Cause you know, it's really interesting when we first connected, you were like, just like, you were like days away from launching this. And now as we're reconnecting, you've had a chance to really do a ton of the work. You know, what have you found from like when we first talked and you were just about to do this versus what you've discovered as you've been doing the work?  

[Marilee]: Yeah. So when we talked, I was just about to launch the virtual studio. I had already done the live one in person and I learned a truck down there, but I will say that what happened with the virtual studio and what I learned is exactly what you're talking about. Beacause my mom's Blind and I grew up in the Blind community. And as soon as I started acting, I had, so like the very first television show I did, I had so many blind folks come up to me and say, I wanted to pursue acting, but told I was, you know, but was told I couldn't. And so they didn't pursue it. That's what I heard when I went virtual, honest, honest to God. I thought people would be swarming what happened? And I just have to hold my heart here because I got on so many Q and A's and support groups and panels.  

And I was there convincing them that they had value and that they could come take an acting class. And the belief system that the world has basically been puncturing them with for so long became theirs. And so I was having discussion after discussion with people saying, yes, you can come, you actually have some artistry in you. And there's was like, well, how are we going to do it? I don't know how there's no career for me. There's no this. And I'm like, let's take a breath and let's, let's drill down to what, what are you actually believing about yourself that you've taken on? That's not actually your beliefs. So that was the first thing that happened. And that was a real shock because I was talking to so many people with that. And then we started having the virtual classes and the people that actually showed up, most of them had never taken an acting class in their entire life. So it wasn't just like after showing up, and this is the part that's so exciting to me, it was people that had never, it was like a dream and this was their first experience of acting. And that just feels so amazing. It feels so amazing to be able to offer that space. And also to know that the teachers that I'm teaching a master teacher, Jeff Crocket, our other master teacher, Sammy Grant, like they're the top caliber teachers. So they're not just showing up to a place of belonging they're showing up and getting great training. So I feel like, and in terms of like, you know, the actual classes, yes, I'm going to change the classes around come spring. I learned a lot about virtual teaching, you know, two week class versus four week classes, eight week class. But the thing that is so amazing too on zoom that I've learned that I learned in the room, but learned on zoom too, is that we're listening to each other.  

So most of the folks didn't, none of the folks were Deaf. This particular group that I worked with, they were all blind, low vision for them to be in a group where most of the video was off and we were listening and they had always been told that they were missing something that was going on. So they didn't actually have the right things to perceive the action. And then all of a sudden they're listening to what's going on and they're going, they're actually their sophistication as audience members just skyrocketed. And that is thrilling to experience and be part of it's thrilling. Yeah I mean, I could just keep talking about it because it's such an exciting thing to be involved in.  

[Doug]: It's really interesting to hear about, you know, new and different ways to teach an acting class that, you know, anyone who, you know, that people haven't necessarily thought about before. And I love how you're describing it as, you know, people have been so conditioned in this case, you know, blind and low vision actors specifically have been so conditioned to think they like can't do it the right way or are missing something. And to completely flip that on its head and find this new way and just this different rich, beautiful way to teach and learn and experience the world of acting really kind of just the, it takes my imagination to a bunch of new places that I haven't considered before. Another thing that really resonated about what you were just talking about it, some it's so similar to Robert Tarango, who's the Deaf-Blind actor and Feeling Through, you know, he's, he was in his fifties when we shot Feeling Through. And, you know, he had mentioned that I actually didn't learn this until well into the process of working with him, but, you know, he told me, you know, I think it was even after we shot the film that he meant. He finally mentioned me that he'd always wanted to be an actor. He just like, just as someone who was born Deaf and then later became Blind, he just didn't think there was any way that that could happen. Like in what, in every reference point that he had in the world, there was just no way that was going to happen. So he just did, it was like the type of thing that you dream about, you know, when you're like dozing off to sleep at night. And it's that kind of like, just like we're, you know, we were joking about being on Zuora on or whatever world we were talking about. Like this thing, that's kind of like, well, wouldn't that be great, but yeah, sure. And then all of a sudden he finds himself, you know, someone who's at the, at the center of a film that a lot tons of people have gotten to watch and, and love and praises work for. And now he is very motivated to continue being an, being an actor and pursue other opportunities and advocating for more people to consider hiring writing roles for actors who are Deaf-Blind. So it's just, it's, you know, it's, we create the world that we live in as much as we, if we don't think about it, we inherit, we inherit a world that is closed off to certain things that is not innately. So, but it's just something that if we don't really examine that, it's easy to kind of just continue with the status quo and go, Oh, no, you can't do that. When of course you very much can, and you're proving that on a regular basis,  

[Marilee]: I'm interested in, I think this is really, I'm interested in what you're saying, because I'm also, there's like right. The roles for us and there's, we should be considered for any role out there considered. And then I think that the space that one of the spaces that we need to move into when you're clearly moving into this, or you are in, it is people are going to say, and they say this to me all the time is great. We want to hire this person for the bartender. How the hell do we work with them? Like, then there's all those questions. And I feel like that's what you're doing right now is you're developing the actual techniques and the pro protocol for lack of a better word, of how to actually work with deaf blind actors. Like for me, you asked me how to work with a blind low-vision actor. I'm like, here you go. Like, I've got it all worked out now. And now I just sort of hand it over and go, let's talk about it. You got that question. Great. I got an answer, but that wasn't available before. So I feel like that's also the place we want to head is like, consider us for everything, hire us, and then ask the question about how, or actually let me take that back. Maybe the house should be early on, but it shouldn't prevent us from being considered for anything. Does that make sense?  

[Doug]: That makes complete sense. And, you know, I think there there's, th there's an evolution that I think has started and is happening and there's different steps along the way. Right. So when you, as you describe, so beautifully through your own experience, you kind of really spoken to the weight of so many years of not considering certain groups of people and not actually like not willing to change how things have been done to, to create an environment that that's accessible. And user-friendly for different groups of people. So like the first step it feels like, and I'm sure you, you get this a lot and you know, your work as an actor, as well as like, just starting to create an awareness that leads to a willingness for people who haven't previously considered these things to be like, Oh, okay, cool. Yeah. Tell me more. Right. So that's like a huge first step, right? Like just to have someone who is in any position of gatekeeper, quote-unquote, to be willing, to hear more. That's actually like in realistically not saying that that's the bar that we want, but realistically speaking for a lot of people out there, that's a big step that's I think happening more and more right now. And then from there, you know, people who are helping, if you will pioneer some of these things like you're doing with your, with access acting Academy, it's like a little bit of the weight is on the shoulders of people. Like, you'd go like, Hey, look, I've really figured this out. Let me walk you through it. Right. And then start to like really fine tune and expand the, the, the wisdoms that you're gaining in doing the work that you do. So that at some point it's more widely known. There's more people who are aware how to execute those things. And then it just becomes very much like, you know, a conversation that a QA I was doing with Marlee Matlin yesterday, she was talking about very, and her longtime producing partner, interpreter, Jack, Jason were both talking about how you've already got so many people on a film set per se. There's so much crew involved. So many different departments, like why isn't this just a department, a part of how a film set works in, in just speaking of film specifically, but obviously there's different meanings or why isn't this just at some point, like you got the grip team over here, right. And you got like, w you know, you got like the guy who like operating the truck over here and like, you've got like actors and you've got, you know, everything. Then you've got an interpreting team, or you've got whatever accessibility team or whatever the, you know, terminology will be once this kind of is more widely adopted just as it's part of a film set. Right. So it's, it's kind of like, I think where we're, where we're moving to. And I think, you know, the work that you're doing is really creating at the very least, you know, I, and this is what I really resonated with me about the work you're doing when we first connected Is you're creating Far less excuses for people who are in the position to hire actors to have, right. Well, it's like, well, we'd love to hire a blind or low vision actor, but we, you know what, there's just, there's not as many with the chops that we need to fill this role. And it's like, actually, you're wrong because there's now a whole crop of actors who are blind and low vision being trained by top notch teachers who are helping them find their voice and their, their creativity and their talent. So it's like, that's a big thing too, is sometimes you need a force the hand a little bit, you know, and kind of like already have an answer for some of the excuses that might come up. And it's something that, you know, we'd love to be able to do, you know, for the Deaf-Blind community of having doing so.  And, you know, we've obviously talked maybe about working together on this at some point, but to also have there be less excuses right. About well there just, isn't the Deaf-Blind talent out there to be able to do this role or to be able to consider in these roles. And, and that's also, it's kind of like this multi-pronged thing. And, you know, that's why hopefully there's a lot more people that will not only be inspired to be actors from the work that you're doing, but also be inspired to take on leadership positions of helping further opportunities for other performers with disabilities. On that note, I'm going to take a quick pause for an interpreter switch. Great. So stand by on that. And we're all set continuing here. So yeah. You know, I mean, that's, that's why we can really, like, there's so many layers of importance to, to that work and Yeah And I'm sure, You know, it's something that you've probably already seen pay dividends.  

[Marilee]: Yeah. Okay There was a lot you just said because all fat fantastic. But I actually took a note here, which was one of the things that I love, and I would love to be able to like, you know, CoLab with Marley and her people about an accessibility department as part of any film and TV set. I think that's the way to go, because I feel like what's happening is people are being hired as consultants, rather than let's just get an apartment, a department in there, because it makes me think too, that there's so many folks that don't disclose either. And if we normalize that there is an accessibility department and that that's just part of, that's just part of the game, that's just part of the business. Then I feel like more folks would probably feel more comfortable to actually disclose their disability, whatever they are, and be supported, be fully supported so they can do their best work that they can do on set or on stage. So I just love this idea of an accessibility department and not just a consultant. Yes. The other thing that kind of popped up is like, Hmm, I advocate a lot. And the people that I roll with advocate a lot, like so much so that it can be overwhelming and it can kind of take over your life. And in fact, the past two years have mostly been the advocating for the community. And there was some point, and I'm saying this for a reason, because I knew that as soon as I got any remote status at all, I'm not a celebrity, but as soon as I got any status at all, I was going to use it. I was going to use it to try to help the people coming from coming behind me. I was going to try to kick the doors open so more people could come behind me. And I did that for the past, probably two and a half years solid. And my artist is atrophying. And so she is really crying for attention. And I know this is a little bit of a pivot, but I want to bring this up too, because I often forget that my art is also my advocacy is that those of us with disabilities who are actually out there creating art are as impactful making change for disabled folks and for the industry as me going and creating a class, like because that's changing belief systems on a larger scale. And I'm part of the community that I'm serving. So I have to make space for me as an artist as well. So I know that's a little bit of a pivot, but I wanted to throw that in there because I know the that I roll with. I mean, it's so much advocacy and it's like, we're making steps, but there's so much more to do. It can be like any, I know for myself that I can often feel guilty if I'm not doing this a thousand percent of the time, and I'm not doing my art. Like if I do my art, it's like, no, no, no, you have to get back to advocacy. And I have to remember Marilyn, you have to keep cultivating yourself as an artist. That's who you are. And that's actually, what's going to serve not only you, but the larger community tangent anyway. So that's throwing that out there.  

[Doug]: It's an amazing tangent, not tangent, totally related. And you know, that makes me, that brings me to, let's talk about the actor part of yourself, which is a huge part of yourself, you know, I know you have a long career in, on stage and in film and TV, you know, something that was certainly a, a notable notch on your belt of recent years as your role in the Apple TV series See, which is a show that's very fitting to this conversation. Can you talk a little bit about what that show's about and, and your participation in it? Cause I know it runs deeper than just being an actor that, that it led to other opportunities, I think with Apple and also from that. But can you tell, tell us a little bit about that show and your involvement in it?  

[Marilee]: Yeah. See is a show that is a futuristic show, where the human race actually contracted a virus, a pandemic and went blind. So everybody in the show is blind. And because they all went blind, the human race in the show, I'm not saying I believe this, but the human race basically devolved. So, and there's all these clans that are roaming the United States. There's warriors, there's mystics. This is also like hundreds of years in the future to, and being part of that show is very complicated for me. It was the biggest acting opportunity I have had, and I got to work with some amazing artists. And I was on set with hundreds of people, mimicking blindness, because most of the actors on the set were cited. And most of the artists, all the artists were cited and that even talking about it hurts to talk about.  

So it's very complicated because what I say, those people are bad. People know, are they misinformed? Yes. Are they living out the delusion that the ablest delusion that we're not worthy to play ourselves? Like I was one of, I had the largest recurring role for a Blind actor in the first season. And I don't know what's going to happen with the second season, but what ended up happening getting to your point about access acting Academy is that while I was acting there, I not just on opportunity, but, a deep need for someone to speak up. They had a consultant, but the consultant was super cool guy, but he doesn't have the 25 years of experience that I do. A so I took the opportunity to talk to the people in charge, even though I was nobody like, who the hell am I am working with Jason Mamoa for God's sakes, I'm working with alpha, whatever I'm working with, like international celebrities. And I'm like, Hi, we've got a problem over here. You know, like, but it just was one of those things where I basically said to myself, if I don't say anything, I have to leave, I can't stay here and not say anything. And what that led to was a lot of really amazing conversations. Illuminating conversations, hard conversations with the people involved and me saying, you need to cast more blind doctors, you need to cast more blind actors and them saying, where are they? And me saying, you're going to give me money and I'm going to do this program. And they're like, okay. And so that started basically the road of access act and Academy. And even though I had been thinking about it for 20 years, it was this thing with Apple who was in charge of the show was very eager actually, to do better, to do more. And their head of accessibility is she's fire she's really fired.  And she was like, what do we need to do? What do we need to do to make this right? And so basically I pitched Apple and the heads of development of, or the heads of the Apple TV studio, and basically got this, the pilot program, lit, which was kind of, you know, it's the first it's the, what I've been told is this is the first of its kind that Apple's ever funded. Apple's never funded any sort of educational program like this before. So, kudos to Apple in a big way. And then I just cranked, I mean, cranked like full-time is not gonna even remotely explain how many hours I worked, you know, putting this together and preparing and doing it. And then also I was teaching it and I was teaching it and running it at the same time. And also basically being the only blind person that was on staff. So I was teaching the teachers and teaching the students, and it was quite something. And I think that at the end of it, because we had a performance at the very end, a private performance for about 90 people and, mostly industry, hire the mucky mucks in Hollywood Casting Directors, Writers, Show Runners, people from Apple. And this is where the power is. They thought I'm assuming that they thought that they were coming in to watch some blind actors act. And what they ended up coming in to see was an amazing night of performance that night at the, at the end of our five weeks, when all these inters free folks were in the audience and these actors who are blind and low vision were doing exceptional work, both acting and movement work. They, I think literally it's, short-circuited their brains.  And it's the first time ever in my 25 years of theater ever that during the back, every single person stayed for an hour. And then after the talk back ended, they all came on stage and kept talking to people. And I feel like those are the moments that we need because people need to experience. We can talk to them all day long. We can tell them, you need to do this. And you did, you did this. And these are all the reasons why, but they need to exist to really experience what we're talking about. Like your film people are gonna see it here, experience it, and they're going to go, Oh my God, I didn't know. And so with Acess Acting you had, many people came, it was a smaller audience, but people were like, Oh, I didn't, I Oh, Oh. And this was only after five weeks of training. Oh, I just didn't know. So I feel like that's, that's kind of the longer story of the Apple, the Apple to access the C to Apple, to access act in Academy, but they really, you know, Apple's all about accessibility. So I'm hoping that we will be able to fund another intensive five week. Full-time intensive going forward, crossing fingers, people crossing, both my fingers. 

[Doug]: You know, as you were talking, I couldn't help. But think about, the Marilee who was at the start of her acting career that had just faced that Director, Casting Director. I forgot which one you said that said, Oh, if you can't read the script, you don't belong here. And that pivotal moment where you're at home thinking really considering if you do, and, you know, giving her a, a huge, you know, a huge thank you to deciding that she did, because I think it was just to trace back to that moment, you know, as far as, you know, what it's led to, and the huge ripple effects of that over time are nothing short of incredible and massive, and really ended up impacting a lot of other people's lives in a really significant way. So just when you're telling that story of kind of where it's taken, you, you know, to these really important rooms in front of very influential people who make very influential decisions on how a lot of the, of what we see on, on TV and in films and how that really informs individuals and creates an understanding of the world around us, that it really does have a start to have a global impact in that way. When you think about how many people, you know, just Apple TV alone, how many people take in their shows, and you start to multiply that times, how many people are inspired to do things differently, or at least think about things differently moving forward. Can you tell us a little bit too about, I know you, you were honored with an award from the national Federation for the blind that also, I think has helped fuel the work you're doing now. Can you, can you talk a little bit about that?  

[Marilee]: Yeah. And I'm going to back up just a little bit, Apple funded, Apple funded, the five-week program. And then I had no funding. And I had been doing so much volunteer work myself, but what happened in, I think it was March or April, the NFB national Federation of the blind. Sorry. No, no. It's like, I will say four and they're like, we're up, we're up? And I'm like, yeah. They're the world's largest blind organization for those that don't know. And they have an award called the Dr. Jacob allot in award, and he was the first blind physician who was a surgeon. And talk about breaking barriers, wholly talk about believing in yourself. And this was in the late 18 hundreds. So like he killed it. It's awarded to an individual and an organization that the NFP believes is basically breaking down negative belief systems about blind folks and pushing, pushing the right narrative forward for blind people and the world. And the other, the organization that got it is, Oh, I forgot the name of the actual university, but they're making astrophysics accessible, which is amazing. So they're like, they've got this big, they're working with like telescopes and the maps, and they're making maps of the stars, and...  

[Doug]: That's how you made it to outer space today, actually, as part of that.  

[Marilee]: And I was, I honestly, when they called me and said, we want to honor you as the individual for 2020, the Jacob and award, I it's still, it still chokes me up a bit because I think who the hell am I, you know, like there's people that are doing so much more, but, in my niche and the arts and acting, I'm, I am trailblazing in this area. So that part of that award was a cash element and it was an individual award. It didn't actually go to access after an Academy went to me, but when they told me how much the award was, which I didn't know until they actually, you know, the award ceremony and they told me it was $25,000, I just went, I, I was overwhelmed. I'd never like, that just seemed like I couldn't believe that I got that money.  

[Marilee]: But I knew that when they, when that award, when I received that award, I was like, okay, it's time to go virtual. I've got some seed money here that I can put into creating the virtual Academy. Now 25 grand is not going to last. And that's, you know, I'm using it. And it's, and, and, and here's the thing about this that I, that needs to change is that I still haven't paid myself. I pay everybody else that's involved. But I'm saying this publicly right now is that's not sustainable for me not to pay myself. And because I'm a working person too, that needs to eat and survive, but right now at the moment, there's not a huge budget to do that. So that's actually how it happened. That's how the virtual Academy came about. So now I'm like, okay, where's the next round of funding going to come so that this can be a sustainable thing.  

[Doug]: You know, you're, you're, you're obviously talking about some of what's very clearly needed moving forward. Are there other thoughts now that you've gotten to do both the in-person and the virtual classes, how you're envisioning, the next steps and kind of where you want to go with this weather anywhere from like short-term to long-term.  

[Marilee]: Yeah. I mean, this is definitely something that's going to stay like, it's going to keep going. It's what I'd like to see is a studio program. I want to, I want to keep doing intensives because they are powerful major transformation can happen when you are in a room full time with folks it's, it's stunning. I've done it myself, you know, 20 years ago. And I know what that's like. So definitely those, if we can get the funding for it, in terms of the virtual, I want to keep going with the virtual Academy because I'm reaching people that are in some country town in Alabama that don't have any access to anything. And they're showing up to the, the movement class, like, or the voice class that is so exciting to reach a virtual acting classes through access acting Academy is, is like, it's huge now.  

[Marilee]: So, so I definitely want to keep going with that. And, and in fact, I'm imagining right now, and I'm going to be having a visioning meeting with my co-collaborators very soon about how we can sustainably do this. Do we want to create like core classes, acting, voice, embodiment movement, and then have some musical theater and voiceover, is that what it's going to be? I don't think at this point, I'm going to turn it into an MFA program. I don't think that's what this is. But I definitely want to, I would love to get to a point where it's like a one or two year certificate program that actors could go through. And at the end of it really feel prepared to be out in the world to be out, you know, to feel that they have the skillset and the strategies and that they, they have a CRA they actually have a craft now, not just a desire and not just some talent, but they have craft and they know they know how to cultivate their own art. So I feel like that's the way I'm headed. At the same time I need my acting and my directing to go to. So, so I'm kind of playing this one out. You understand this?  

[Doug]: Oh, absolutely. And I was just going to follow up with specifically through the act actor lens and or director lens. Like, are there, are there particular, you know, things on the horizon or things that like you're really interested in pursuing in that space or, or wanting specific opportunities in moving forward, anything that's like, kind of coming up for you on that side of the coin?  

[Marilee]: Yeah. I mean, there's things that, there's nothing that's, you know, there's no bird in the hand right now, but there's things that I feel not only that I'm ready for, but that I just want, I want to be on a series, a really juicy raw series, as a series regular. And the reason I'm saying series regular is because one, I want to be able to carry that story arc. I want to be with the character for a long period of time. And I want the financial stability that series regulars that being a series regular offers, because I can get a guest star here and there once in a while, but that is not, it's still not financially. It doesn't offer me financial stability. So I, and there's so many actors I'm excited about doing, working with not doing, you know what I mean? But the other thing is, is that I've been working on a pilot and I'm really excited about continuing to craft this pilot and eventually getting that scene. I wrote for stage for quite a few years and writing for television has been writing a pilot has been really exciting and fun. And so I would love to be able to see that go whether or not I'm acting in it. I'm not sure, but, but the cast actually has blinded disabled folks all through it, but it's not about disability. It's actually about something completely different. It just so happens to have disabled folks in it. So those are the two big things, actually, I'm ready for my series and I'm ready to sell my series.  

[Doug]: Hm that's great. Well, those are, those are definitely a really good goals to have for this, this upcoming year and, and beyond. Have you, have you found, I'm just wondering in your personal experience, like, you know, there's been a lot of talk, I think, you know, very recently I'd say even in the last like year or so with a little bit more attention given in Hollywood and kind of more mainstream outlets to actors with disabilities, or are creators with disabilities. Do you feel like in your personal experience, aside from the work that the advocacy work you're, you're personally doing, just to kind of what you gather being in the industry that does it feel like there is like, has been real discernible change? Does it feel like it's more just like conversation right now and we're silicone waiting for the change? Like, what's your like, finger to the pulse on that, knowing that it's something that's like at least coming up more in, in mainstream conversations.  

[Marilee]: Yeah. I think, I think it's a little bit of everything. I think it's coming up more. It's not coming up in every room. There's definitely more opportunities now than there ever has been in my career. Meaning for other folks like I'm, for example, I had five different casting directors reach out to me a month ago in 10 days, looking for blind actors in 10 days, five different casting directors were like, do you have a blind kid age 12? Do you have a blind adult, a blind guy, age 60? Do you have this? Do you have that? And so I was actually referring the students, some of them getting their very first auditions, but anyway, yes, I think it's, it's starting to crackle, but it's, we're still at that beginning bumpy spot where people still aren't fully convinced. They're like, yeah, we should be talking about this. Let's let's look for this actor and this actor, and then half to 75% of the time they cast a non-disabled actor. And they said, well, we did our due diligence. So why think it's a little lumpy, but we're definitely moving forward. It's not skyrocketing, but we're definitely moving forward in conversations are happening. And I think it's because folks like anybody that has status, Lauren Ridloff. Oh, who's that just fine... Niley DeMarco. Oh, he's so beautiful. You know, anybody that has some sort of status and they use that status and platform to speak up, it helps everybody. So I think the more folks that actually are getting into those positions that are speaking about it, they're helping make big change. Allie stroker, Allie stroker, winning the Tony changed so many people's minds. We've seen a lot happen since she won the Tony. And in fact, when I actually went to pitch pitch my budget to the heads of Apple TV, they're like, can we just, can I just start? One of the guys was like, can I just start with saying, I just saw Allie stroker win the Tony. And I didn't know it was possible. And now I know it took her, it just took one moment and all of a sudden he's like, Oh, I okay. We're here to listen. Yeah, I don't know. What do you, well, I mean, you're like, how long have you been with Feeling through, and have you seen a shift in the time that you've been with the project?  

[Doug]: It's a good question. You know, I started really actively started the journey and Feeling Through three years ago. And I'll be honest, like, a lot of the work that I though I've connected with a lot of amazing people through the work I've been, I think a little bit more insulated. So it's harder for me to have a finger to the pulse. Cause a lot of it's kind of happened within the Feeling Through like community and then connect just like connecting with different people out of it. So it's, it's harder. It's a little bit harder for me to gauge because of being in a little bit of a bubble, but I mean, I've just noted that like, you know, as we were talking about before we went live today, like we're Feeling Through some part of slam dance this year, we're really excited to be a part of slam dancing, you know, slam dance this year has just added a new category called unstoppable, which is for featuring films that are either have actors with disabilities or, or made by creators with disabilities. And they're really excited about it. You know, they've been in a lot of their public facing materials. They've really been leading with that and have been really earnestly working with everyone in that block to really try to make it the best it can be, and really learn a lot throughout the process. Feeling Through and Helen Keller services are working with them to provide accessibility for their panels. And they've been really receptive to trying to make the panels as accessible as possible. So those are my reference points, you know, as far as like seeing that, there's definitely, not just a change in certain spaces, but also like this enthusiasm that's starting to happen. And again, I think it's like choice, choice entities and individuals at this point. But, but, but like the enthusiasm I think is, is the cool thing to note, at least in a couple of the specific reference points that we've had with Feeling Through.  

[Marilee]: You know, it makes me think. And I wonder what you think about this is that films can have huge impact. I just wonder, like, I don't know the answer to this film versus TV. What has more impact in terms of creating change? Because you have Crip Camp, the documentary Crip Camp, which was a sensation like complete sensation, you have a peanut butter Falcon, I could see his face, but I can't remember his name. You have that kid, who's this amazing actor who's down syndrome. All of a sudden people are like, Oh, you got your film. And I just, I'm curious about the impact of film versus TV. Like, because I feel like I definitely want to get into film too, like in a big way, but the people that are making films, some are crossing over to TV, but that seems to be a different, a slightly different crowd than those folks that are doing episodics on TV. What do you think?  

[Doug]: Yeah, I mean, I think, yeah, I think so, but I think also just, you know, with the way that, the way in which we consume content has been changing content in a way that there's starting to be a little bit more fluidity, you know, I think even if you just think about there with streaming services, whereas formerly there were like certain lengths of whether they be films or TV episodes that kind of couldn't really fit into one slaughter in another. Now anything is fair game, like any length because we're, we, you know, we're not like scheduling blocks on TV. They're just these streaming episodes where you can click and watch anything. So I think there's a little bit maybe more fluidity between those worlds. But yeah, as far as influence, I mean, I think they can both have huge impact, you know, I mean, I think there there's certain things of ways in which a film gets out into the world that has a certain impact, but also being able to like live with a TV show right over the evolution of, you know, in a number of different episodes and potentially seasons is a whole nother thing. So yeah, I think they can both have just as big of an impact and in different ways, but, you know, I'd love as we kinda wrap up here for today and we, we have plenty more to talk about. So we'll have do this again at some point, but, two things I want to note one is I want to go to, Julie who wrote a comment. She said, I've been wanting to act since I was a teenager. I just don't know where to start. I try to act her class online, but there was no access for a deaf person like me. Do you have any thing that comes to your mind as far as like any, anything that you've come across that would be a good reference point or personally, maybe with how you're evolving access acting Academy?  

[Marilee]: Yes. So I've got three things, one, there's Deaf West, and I believe that they actually offer acting classes, deaf West. I would look there first because they, if they're doing that already, there's no like they've figured out the learning curve too, is there is, I don't want to say it's less professional, but it's definitely for beginners, like to, to get a taste of acting. There's a program at Queens theater in New York called theater for all TFA theater for all at Queens theater. And once a year, they do like a two to three week offering of free classes to actors across disability and deafness, and they make stuff accessible. They're like, it's accessible for blind and it's accessible for Deaf. And it's kind of a, you know, a class here, a class there you'll get like a taste of stuff. My vision for access acting Academy is that we absolutely will be opening classes up to Deaf and hard of hearing folks.  

[Marilee]: Absolutely. And this is something that I'm thinking about right now that I'm, that I'm imagining and that I'm visioning because I want an open to anybody that wants to come because I want to offer this amazing training to anyone that wants it. That's never had the opportunity, so we're not, I'm not there yet, but access acting Academy, if this is what I'll say, sign up for the email list, because guaranteed, you're going to hear something this year, guaranteed that there will be, especially now that zoom has closed captioning built in. I don't know if it's good or not, but I know that they've, they've just, they've just released that. So I am absolutely working towards this.  

[Doug]: Julie says, thank you. And for anyone else who's interested in access Academy acting Academy. Can you tell them the best place to find out more information?  

[Marilee]: Yup. www.actingaccess.com Perfect. Yes,  

[Doug]: Marilee was so, I mean, the wait was worth it. It was so great to talk to you today. I'm sure we'll have plenty of other things to discuss In the near future, both offline and hopefully online again. And, yeah, just really just, you know, I such a huge fan of everything that you're doing and it certainly motivates me in the work that I'm doing. And I just, I really appreciate talking to you.  

[Marilee]: I thank you so much, Doug. I love what you're doing and I'm so grateful that you asked me to be in this conversation. Thank you.  

[Doug]: Well, thank you. And thank you to everyone who tuned in today. We will be back again next week. I think we might actually have to be at a slightly different time, but I will be posting about that ahead of time and, hope you have a wonderful weekend and see you next week.  

[Marilee]: Thank you, interpreters. Thank you. Bye everyone. And we are off. 

Feeling Through: Q&A with the Team

[Andrew]: Hello welcome. My name is Andrew Carlberg and I'm one of the Executive Producers of Feeling Through. We’re so glad to have you all join us for this special Q&A session for the film. I’ll shortly turn this over to Doug Roland, the Writer and Director of the film, but  I first wanted to introduce everybody that you see on your screen, and that you'll be hearing from throughout the course of this next hour. Doug Roland, the Writer-Director of Feeling Through. Marlee Matlin, Academy Award winner and Executive Producer of Feeling Through. Sue Ruzenski, the CEO of Helen Keller Services and a Producer of Feeling Through. Jack Jason, Executive Producer of Feeling Through and a long time interpreter of Marlee Matlin. Robert Tarango, the first Deaf-Blind actor and co-lead of Feeling Through. And Steven Prescod, the co-lead of Feeling Through. I also want to give a special thank you to Erin and Jamie and Ilissa who will be our interpreters for this hour. And also please, throughout the hour, put questions in the chat box here on YouTube and we’ll get to them throughout and especially at the end of our period. Also just to give a little context before we just start the Q&A, myself, Marlee and Jack, all became fans of this project after seeing it on the festival circuit and throughout its life and that is when we joined the team as Executive Producers so we want to give it our full endorsement and help it get to the widest possible audience. And we're thrilled to be so, just helps with framing some questions, let's go ahead and get started. Doug, why don't you tell us a little bit about the origin of the story.  

[Doug]: Sure well thank you for that introduction Andrew, and thank you for all of you who are tuning in right now. It's really such a pleasure and an honor to be joined by the whole team here in our nice little boxes. It really brings me a lot of joy. And you know this has been in many ways a 10 year journey in the making, you know, the inspiration behind this was we literally go back 10 years. I was coming home late one night, when I was still living in New York City, and I saw a man standing on a street corner holding a sign that said I'm Deaf and Blind and need help crossing the street. I approached him and tapped him. He pulled out a notepad and wrote that he needed a bus stop. When I took him over there, a bus wasn't coming for over an hour and I wanted to sit and wait with him. So I just kind of instinctively took his hand and started tracing one letter at a time on his palm. And he understood it. And we ended up having a whole conversation that way, of him writing in his notepad, me tracing letters on his palm. And I realized just in this one interaction I'd gone from seeing this man as- Oh, wow, this is the first Deaf-Blind person I've ever met, which mind you is notable anytime you haven't met a community of people, that's something that stands out. But by the end of the conversation I was thinking- Oh, wow, this is my new friend Artemio who I'm hugging as he gets on the bus and tearing up a little bit thinking I'm going to miss my new friend as he disappears into the New York City night. So it was a moment that really, it was an interaction that really stuck with me and moved me on a number of different levels.  And like a lot of writers I immediately got to it and started writing that story, but it lived on my computer for a number of years because I just didn't feel like I was ready to do it in the right way, and it would be about seven years later that I ended up reaching out to the Helen Keller National Center and Helen Keller Services, and that's when Sue Ruzenski and I had our fateful meeting where we, you know, and huge credit to Sue; She really took a big risk kind of stepping outside of the box of what Helen Keller Services normally does and seeing a lot of value in the potential of collaborating to tell this story, so from there, Sue and I have worked really closely together for the last three years now to first cast the film authentically with Robert Tarango, who you've all seen give a beautiful performance in the film, as well as to create fully accessible screening events first in-person before COVID and now virtually. But just a quick note on that the in-person screenings, we would have as many as 50 interpreters and support staff at a single screening to provide one-to-one accessibility. And now in these virtual modes, you're getting a good taste of it. You can see that we have our interpreter in a box at the top right corner of the screen, as well as live captions on the bottom. So that's been a huge part of our journey is not only making telling the best story we can tell, but also making sure that everyone can participate in it, and experience that story, and obviously doing it in the right way alongside the community, making sure that it's something that ultimately serves the community as much as it serves people's entertainment. So that's kind of like a quick summary of about a 10 year journey to be here today.  

[Andrew]: Amazing, thanks, and then do we want to start- but after that, just before we get to all the other questions, if anybody else wants to just chime in with a little bit of a story or a further introduction regarding your involvement, or just your experience with the film.  

[Doug]: Yeah and you know, actually, I'd love to, just being that I've had the distinct pleasure of speaking with all of you a bunch. Now I'd love to actually give each one of you a quick prompt before we hop into those questions, and Robert, I'd love to start with you. And I mean, I think first and foremost, I'd love to know what it's like to be a movie star now.  

[Robert]: This is Robert speaking. I still can't believe that I'm the first time Deaf-Blind actor and a movie star. It's just so inspirational and to really be able to see myself on screen is just amazing. I'll never forget that experience of watching myself for the first time. And it really, I actually felt shy and a little awkward with watching myself on screen, but again, I can't emphasize enough how inspiring it is to really be able to show the world that, you know, Deaf-Blind can and how good that makes me feel and the impact I'll have on the future. And I'm hoping that I can make more movies moving forward.  

[Doug]: And I think it's a perfect segue to ask you Marlee as someone who's certainly, you know, broken boundaries in the film world yourself, and have continued that work beyond being an actor and also being a real activist and advocate for not just the Deaf community, but the disability community in Hollywood. I'm just curious in your personal kind of thoughts why Robert's achievement is important and how you kind of extrapolate that to disability and film as a whole.  

[Marlee]: Oh, first of all, thank you for having me on board. It really is a great honor. If only I had four hours to be able to tell you all the various experiences, which unfortunately I don't have, I would be able to tell you, but I think to be as brief as I can be here, the first time I was introduced to that film, to Feeling Through, was through Jack, my interpreter and producing partner who runs my company. And we've been together for 35 years since I won the Oscar. And it was just last month, a few months ago. And he said, this is a film you have to see. It's just something you have to see. So I had a chance to take a look at it. And this 18 minutes is probably the best 18 minutes I've ever spent watching a film. I know for myself, if and when I get excited about a project, then I know that it really is unique, and this certainly stands there as a unique project. It's a testimony to a story that has to be told. It's at the same time a very simple story and has so many levels. It's so deep. It's so lovely and naturally it's authentic. And that's the word that we really want to focus on. It's authentic. I am really proud that Doug, you did not shy away in casting. And you believed in the story enough and being in the fact that you've experienced the story yourself, you know, and understand what it's like and how important it is for individuals who are Deaf and Blind and people who are hearing to be able to work collaboratively, or regardless of whether there are barriers having to do with disability, you in this film and with the authentic casting have proven that there are stories out there, human stories that we can tell. And I know that this will reach as many people as possible because you've told it authentically.  

[Doug]: Well thank you Marlee, that is unbelievably kind words you've shared there. And I really appreciate that, and it makes me think of how important it was for Sue on the end of this of being somewhat the first person that I connected with at Helen Keller Services and someone who believed in this from the start, you know, how important it was for you to think outside of the box and really see the value in this. And I'm just wondering, you know, if you'd like to share kind of your perspective on, you know, maybe the journey from what you thought from our initial conversation and now having had this whole journey together, what you think about the importance of, you know, the larger ramifications of this film, both for Helen Keller Services and the Deaf-Blind community at large.  

[Sue]: Thank you, Doug. This is Sue. It Has been a tremendous, really rewarding journey with you. And initially my contact was with Doug. He, I was fortunate enough to be in a position that he reached out to me in the organization. And I have to say it's out of the realm of my everyday experience. So I was not quite convinced that this was real. Then I had a great opportunity to meet Doug in a hotel lobby in California with his team and knew instantly that this is something big. And Doug is, as you said, the word authentic and real committed. And there was no turning back at that point. So, being a partner through this process, I've learned so much, but Doug has invested his creativity and ingenuity, his heart and his spirit. And because he immersed himself in the Deaf-Blind community, coming to New York to Helen Keller national center, time and time again, I'm working with the community. He really was able to gain so much just natural knowledge and ability to really portray and create this film in such a way that we could never imagine how wonderful- As time has gone on, it has just grown exponentially, the impact of this film, never having seen it, you know, of course, but knowing that it had this potential and having, you know, worked with Doug over this period of time and with Robert and everyone on the team, being able to have some mutual goals that really can change things in our society and giving someone like Robert an opportunity to show his talents, to have more people following his pathway to be part of and represent, represent themselves in the, you know, the mainstream media. There's just so many positive things; bringing attention to accessibility and so many other things, but the connection has been extremely enjoyable. And I'm so grateful.  

[Doug]: Well, I thank you Sue, and I certainly don't put this lightly, but getting to collaborate with you has been one of the great joys of my life, not just my career, but personally. And I would also like to say, because in a true character Sue would never say this herself, but she's one of the most selfless people who's like committed to a cause that I've ever met and that inspires me on a daily basis. So thank you Sue for that. And, you know, I just, I think I just want to let everyone know we have- we see all of your amazing questions you're asking. We're going to get to them really, really shortly. Just want to quickly, also get to Jack and Steven before we get to your great questions so far. But Jack, just to continue this thread here, cause I think we're, we're on a good thread here. I know we've gotten to talk a bunch now and you have had some really insightful and pointed things to say about representation in film and not just kind of where we've come, but where we still need to go. And kind of what you see that still happening. I'm wondering if you'd like to share anything on that note.  

[Jack]: Well, as someone who's worked with Marlee for 35 years and seeing the journey that she's gone through and how Hollywood has evolved in terms of representation, I think the most important thing at the end of the day and what I seek out for Marlee, when I'm looking for material, when I'm looking for scripts is a story that deserves to be told. In the past they, you know, they said- Oh, this is a movie about somebody who's Deaf. And I say, that's great, we've seen that story. We've seen Marlee in Children of a Lesser God. We've seen Marlene on television in the West Wing, but I like a good story, and in 18 minutes you did that. And to make the story even better, you put in the character that happens to be Deaf and Blind. So often you'll see in scripts, you know, what we call exposition, where they have to write out, you know, I was born this, you know, you'll see a character or something turn to the camera and say, you know, when I was four and- you okay, but if you put a character in there who's real and authentic, like somebody like Robert who is Deaf and Blind, you know, instantly there's a story there, you know the audience creates a story in their head for this character, so you don't have to go through it. And then you could just watch the story. So when I saw the film for the first time and brought it to Marlee's attention, I said Marlee, this is a good story. And everybody loves to see a good story. So it's important to be able to find that first and then to bring in a character who was authentic to bring in a character who might be Deaf or might be Deaf-Blind is just like the icing on the cake. And now you have a slice of life, as Marlee has said that you've never seen before, but that you can share and just enjoy a story. So again, I just was fascinated with the film because you guys did it so well. It was told authentically and it's entertaining and that's, at the end of the day, it just leaves us with Marlee and myself it gave us two big smiles on our faces, with some tears too.  

[Doug]: Yeah, we love both of those things, so I'm glad both of those emotions came up and that leads me to you, Steven, and you know, Steven, something that has been every time I've shown this film and it's been many many times now, it's consistent across the board that people rave about your brilliant performance. And, you know, I know that there are a lot of firsts as a part of this film. And I know that this was a unique experience for you and working with Robert I'd love if you could just kind of share what your experience was like working with Robert.  

[Steven]: Yeah, thank you guys for having me here. Thank you, Doug. It was an incredible experience. I know, I think you did great by casting. I think you knew what you were doing when you just matched us together. Cause as soon as I met Robert, I felt like we hit it off. It was a vibe, you know, walking in, I did have like these preconceived notions, you know, on how would it be on set and things like that. But, you know, when I was with Robert, Robert, it was like, wow, this was just a guy who, you know, he works day-to-day job and all of that stuff, we hit it off offset and I feel like it showed on camera, but like, you know, our experience together offset was something that was like, I couldn't, I wouldn't change. Yeah, it was, it was great.  

[Doug]: Well, I'd love to get to some of the great questions that, that you've all asked, who are watching right now. And I'm going to start with one that's for Robert. So Robert, this question comes from Lindsay and she asks, what advice would you give to other Deaf-Blind people who want to work in film and what do you hope for the future?  

[Robert]: Well, in terms of my future I want to be involved with more movies and have a stronger presence of Deaf-Blind individuals acting. And I want to give advice to the Deaf-Blind community that it doesn't matter what disability that you have. You can still do it and succeed, whether it be you’re a signer, you're a tactile signer, whatever your vision is, you can do it if you put your mind and heart into it. And again, you know, just breaking those communication barriers. It doesn't matter if you know sign language or you don't know, sign language. There's always a way that you can communicate. And to just break down those barriers of that, we are all the same. We are all equal.  

[Marlee]: Marlee says- If I may interject, I love Roberts mentioning the fact that a person who is Deaf and Blind and the Deaf community can totally jump into this industry if they set their mind to it. One shouldn't feel afraid to be creative, to be able to write your own story, write your own script. But at the end of the day, I always say that disability is not a costume. We shouldn't be able to think about actors wearing disability, like a costume, but to do authentic representation. And that includes whether you're talking about Deaf or Deaf-Blind, we should let them be able to tell their stories because there are plenty of people out there who could represent authentically stories, both Deaf and Deaf-Blind, and who can be apt in terms of being actors, just like hearing people can. So disability, again, we have to remember it is not a costume to be worn by somebody who's not the same.  

[Doug]: So this next question comes from Carolyn and she asks me, she's asking about the scene in which Tereek covers his ears and closes his eyes. And she asks, how did you determine the length of time and why not make the silence and darkness last longer? That's a great, I love that specific question because as any filmmaker can note, and I did also edit this film, it's details like that you spend many, many hours on, probably far too many, in my case, I'm a real, as an editor, I'm painstakingly detailed, but you know, ultimately, you know, I always cut each scene individually and then get a real feel of how it works in the flow of the whole story, and ultimately I just, it was a decision that was made so that you were able to sit with it long enough for it to evoke a certain feeling or thoughts, but also still flow within what is ultimately a short film and have something, you know, also move at a certain type of pace. And, you know, the pacing of this film was something that really took a while to fine tune because on the one hand, it's so important to create this environment where it's this very quiet stillness, you know, those kind of couple hours, very late night, early morning in New York, which are kind of the only couple where things slow down and get kind of quiet. So to really evoke that feeling of like time slowing down and the intimacy between these two people, but also not have it start to feel like it was dragging too much. So that kind of push and pull ultimately informed a lot of the decisions around that. And that kind of is why we ended up with the length that we did there. And I see that Carolyn had a follow-up question about that same moment for Steven, and she asks you, what was it like for you to experience that brief moment of sensory deprivation sitting next to Robert and being surrounded by the crew on set?  

[Steven]: It was a moment of vulnerability, you know, just putting myself and Robert shoes, even, you know, the notes that were written in the pad that he had, the things that were said in there, it was like, you know, it's easy for someone to take something like that for granted. So to put myself in his shoes, it was, it was a moment of vulnerability. Yeah.  

[Doug]: And, you know, I will say, you know, Steven, I think your vulnerability is really what your ability to access your vulnerability is what makes you a brilliant actor as it would for any, but I think that's something that particularly in a film where there's so few words spoken, I think what you were able to really encapsulate, and what really comes through in your eyes throughout is really what makes your performance, such a brilliant one, but, you know, I'd love to just pivot for a second because we so often talk about, you know, Robert's character Artie, but I would also like to say that, you know, there are some very interesting issues being explored with Tereek's character, some of which, you know, I think you, as we got to know each other through pre-production and production, you mentioned to me being really resonant, bringing up things from your own personal life that really resonated in that role. In really brief terms, could you, because I'd love to almost, we could have a whole conversation with each and every one of you on this panel, but, you know, Steven, if you could kind of give like some of the primary elements of your life that ended up being so crucial in the role of Tereek, I think people would be really, really interested to hear about that.  

[Steven]: Again, putting myself in other people's shoes. There was a kid that I met that was similar to Tereek's character, who is in the street, asked me for $2 and he was a young kid and I asked him, you know, where are your parents? And he didn't have his mom died, and he told me a whole bunch of things, and I welcomed him into my home for the night and, you know, we spoke, so it really resonated with the character. It was so crazy that I was reading about this character that was so similar to what this young man was going through. So that was something that I took with me.  

[Doug]: Okay. And to kind of build off that too, I think, you know, something that's been so integral to you as an artist, that you ended up, you know, representing through your art was some personal moments that happened to you in your own personal life. That ended up really actually I think, kind of leading to you being an actor. Can you share some of that experience because I think it's really integral as I've gotten to know you as a person and an artist, I feel like it's so integral to both sides of you.  

[Steven]: Thank you. Yeah. I mean, well, I was, despite me being, wanting to be an actor started when I was 14, there was a director who, you know, wanted the kids to addition for an independent film. And I was like the first project that I did that I did that gave me like my acting spark. And from their tried to get into schools that was like pretty difficult to stay in because of the funds that my Mom had trouble keeping up with. So I kind of lost ambition and found myself incarcerated at the age of 16 because I was hanging around with kids, you know, we were bored. We didn't have any type of phones or iPads or any things to kind of keep us occupied. But thankful I was given a second chance and the judge sentenced me to a six months case program that gave these paid internships. And I had an opportunity to intern at a not-for-profit organization that had a performing arts in there. And so the arts is something that I can say, like, I can say really saved me  

[Doug]: Continuing here, this next question is for Robert, it's from Paul. And I guess it's actually for both Robert and Steven, but let's start with Robert. So Robert, Paul is referring to the scene in the movie where you and Steven are walking together and your cane hits the barrier and you trip, and Paul's asking, he says that must've been tough. How did you reach that point of trust, to do that scene and also, Paul notes that he's the parent of a child with Deaf-Blindness, just, something that he also noted in his comment as well, but again, the question for you, Robert, is how did you and Steven cultivate a level of trust to be able to do that scene where you trip?  

[Robert]: So prior to filming that scene Doug and I, well, Doug really explained to me exactly what was going to happen. So there was a lot of pre-conferencing that happened beforehand that we talked about it. We really talked about what we wanted to show within that scene as well. And again, the point of that was really for that moment where Steven and I really connected, link our arms for the first time. And again, you know, this is, you know, a movie about two people that happened to meet by chance. And in that moment, that's when you really developed the trust between two people. And you can then depend on one another.  

[Doug]: I'm going to do a quick pause for an interpreter switch. Continuing here. So I actually think that's just noting that that last question was from a parent with Deaf-Blindness I realize Sue, we haven't really mentioned for those who maybe aren't familiar with Helen Keller Services, could you maybe just tell people a little bit about, you know, who Helen Keller Services is and what you do.  

[Sue]: Surely this is Sue and thank you for that opportunity. So Helen Keller services is an organization that provides an array of services and programs. They're rooted deep in Brooklyn. They've been there for 127 years. But one division of Helen Keller services, the Helen Keller National Center, and that is a program that's really the only kind that exists in the country. It's national in scope. We have a residential vocational training program that is located on Long Island. People come from around country to gain skills to be independent and also to succeed with employment. So people will learn skills and adaptive technology, orientation and mobility, independent living communication, braille, tactile sign language, many, many different things, but with the ultimate goal, for them to have the best life that they can have, which could be becoming an actor maybe, but could also include many aspirations, to really live a full life in the community. And we have regional offices throughout the country, and also boots on the ground in States from far West as California, really all throughout the United States, we partner with other organizations to really build capacity so that services can be available closer to home for many, if that is their choice, so that they can receive the services that they need. And we also do research and professional development, many other, types of services, but that's it in nutshell.  

[Doug]: This next question is from David, and David asks, what was the casting process like for this film? How did you find a Deaf-Blind actor or an actor with a disability that could perform the role without quote wearing a costume? And that is a great question. And I guess I'll hop in on that one, but, you know, I think the biggest thing, I also want to note that I believe this went out with the invitation for today, but if anyone who's watching has not seen the supporting documentary that goes along with Feeling Through called Connecting the Dots, we'd be more than happy to share that with people as well. That's a 24 minute documentary that follows the process of both- We had cameras there the whole time as we were searching for our actor for Artie. We have cameras in the room the first time we met Robert and it also tracks the journey of the year long search for Artemio who was the man who inspired all this, that I met 10 years ago. So we'd be more than happy to share that, and it goes into a lot of great detail on this, but in short, as we were starting to mention at the top of this conversation, one of the beautiful parts of partnering with Helen Keller services and Helen Keller National Center to make this, is that it just so happens that Helen Keller National Center has about the largest database of people who are Deaf-Blind anywhere in the country. So, you know, the first step was to work with very closely with the National Center and specifically Chris Woodfill, who's the Associate Executive Director there who is Deaf-Blind himself really led the casting process for the character of Artie. He reached out to people who are Deaf-Blind all across the country. Basically saying- Hey, this guy wants to make this movie, does that interest you, do you want to audition for it? And started to get a sense of who might be interested. And then from there we held a casting session, like, you know, multiple casting sessions like you would for any role. We did half of the auditions in person at the center. For those who we were auditioning remotely we did it through a video chat and had a series of interpreters to facilitate those auditions. And you know, it was one of those moments that, you know, you hear a director say a lot, but it couldn't be more true to this case, which is the moment Robert walked in the room, just his energy and his smile. And he was cracking jokes and I was like- This is our guy. Like we got him, we found him. So Robert, I think notably two was not on our casting list. Let me walk this back a second. Robert at the time was working in the kitchen at Helen Keller National Center. He was not on our casting list that day. And I believe it was actually Erin who's interpreting on the screen here during a break in our casting mentioned- Hey, what about, what about Robert? I feel like he might be good for this. So Robert was pulled out of the kitchen, not really fully explained as to what was happening. I think initially he thought he might be in trouble, walks into a room with a stranger, sitting with a couple of cameras around and all of a sudden finds out he's auditioning for a movie. And we, again, caught this all on camera, it's a really special part of the documentary, which I encourage all of you to watch if you're interested. And again, Robert was just from the moment we found him just cracking jokes and just had the life and heart and warmth that was so important to this role. And, you know, Robert, I'd love to turn it to you for a moment, if you can just kind of recall what that day was like for you getting pulled out of the kitchen into a casting session.  

[Robert]: So, like Doug said, I was working in the kitchen. I didn't really know what was going on. I was just doing my job in the kitchen in a different building. And my supervisor called me out of the kitchen and said, come with me, you know, I thought there was someone on the phone and he said, no, no, you have to go into the other building. I had no idea why I was being called into the other building. I walked over thinking the whole time, what it could possibly be. And the second I walked in the room, my eyes went a huge, I was so confused. There were so many people in the room and everyone just said, have a seat. And they started to explain what was going on. And the more they started explaining the more inspired and the more excited I got.  And I started to say to them, are you serious? You really think that I could be in a movie? You know, growing up, I had wanted to be an actor. I'd wanted to be an actor for a very long time, but I thinking that, you know, I was Deaf, I couldn't be an actor and then especially losing my vision. I really couldn't be an actor. So I got so excited that they were doing this and I was more than willing, but yes, Doug and I joked around a lot. We had a great meeting and then, you know, I left the room, I went back to my job and a couple of days later, my supervisor answered the phone and said, Doug picked you. And I couldn't believe it. I was jumping up and down. I was so happy. You know, they had interviewed a bunch of people for the role, but that Doug decided to pick me. I was absolutely thrilled. And that started the whole process of making the movie. And I felt like, Oh my God, I made it, finally, it all opened up for me and I could not have been more excited. And I want to say, thank you very much to Doug for making that movie and for making it happen.  

[Marlee]: And Marlee wants to interject- I can't imagine Robert and Steven, not, you know, melding, I mean these two, these two just seem made for the roles for this beautiful film. And they just see me for the role.  

[Doug]: And Marlee you hit the nail on the head because I will say just as much as I had that recognition the moment Robert came in the room as this is our guy, it was the same exact thing with Steven. And I will say, when I went into this process and I think this is actually a really good metaphor for, you know, what we're dealing, a lot of topics right now about authentic casting of people with disabilities. There's maybe this assumption that it's going to be so much harder, or, you know, we're not gonna be able to find the right person. I personally had a much easier time finding in casting Robert than I did finding Steven for the role of Tereek. So I think that's something that stands out a lot. I saw a ton of young actors in New York for the role of Tereek. A lot of them were very great actors, but none of them just encapsulated that kind of like energy that you can't quite put your finger on, but you know when you see it and, you know, to the point where I was really badgering our Casting Director going like, no, we don't, we can't do callbacks yet because we don't, he's not in this mix of people. We don't have him yet. So we did this last reach out. Steven sent in a self-tape that was- not trying to call you out Steven, but like the quality of the camera wasn't so great. So I couldn't quite see it. So I'm like, I feel like there's something here. And then Steven was the first one up that day and this like, literally the second he opened his mouth. I don't even know if a sound came out yet.  I was like, he's the guy like done, we got him. And it's just like, that's that magic that you have happen sometimes in casting where you just, I mean, you just know when the energy of the person walks in the room and you're like, I don't even, like, I'm obviously I want to see him, and I want to see all the other actors that have shown up today, but I just like, know in my heart of hearts, like this is our guy and we were so fortunate to have that for him, both Steven and Robert.  

[Andrew]: Doug, can you talk a little bit about your directing process as well? Like just, we were talking about the casting of them, but just what the process is and how it differs obviously. Not all directors, I mean, and Marlee can interject as well. Not all directors know ASL obviously, and so the process is different in communication and Jack feel free to chime in as well, but just how does that work on a set?  

[Doug]: Yeah, sure. Well, yeah, I'd love to, I'll start on that real quick and then I'd love to hear from Jack and Marlee about your experiences of that too, and obviously Robert as well, but just real quick on that note, I mean, look the first, again, you know, huge, huge, thanks to Sue and Helen Keller services and the National Center for, you know, always making their amazing interpreting team available throughout this process. Erin and Jamie who you've seen on this were a huge part of it. There's a third interpreter, Ilissa, who's also on this, but not seeing all three of them in many other people played a huge role in providing the interpreting team that we needed to make this happen. But again, it was, you know, it's ultimately people, I love this question so much because the answer that I give now is Doug in 2021 is very different than what I would have imagined prior to this process. But I would say, you know, first and foremost, obviously having a great interpreting team is necessary because I, unfortunately, my ASL skills are still quite poor, and I really need to fix that. And we'll get on that and more concertedly coming up. But, you know, beyond that, people always say, what was it like working with a Deaf-Blind actor? And I say, I think the more appropriate question was, what's it like working with a first time actor, because I thought his first time actor, and this was probably more of a thing to address than him being a person who is Deaf-Blind, because with an interpreting team that I also had the great privilege to build a rapport with, the actual communication part wasn't necessarily the most challenging. It's like, you know, Robert obviously kudos to him because he ends up having a great performance. But when you're working with the first time actor, there's a lot of other hurdles to get over as far as getting someone comfortable with taking ownership of the role, knowing that ultimately me as the director, I'm here to help steer the ship, but like, you are the ship. Like you, you have to take this role and know that it's yours and own that. But yeah, you know, it was really honestly in a lot of ways, simple with an interpreting team and a really supportive organization behind it, like HKS and HKNC, and you know, again, like I'd love to go to Jack maybe to give us a little bit of the interpreting side of it on set. Maybe if you'd like to, anything that stands out as like notable things from your experience.  

[Jack]: Absolutely, again, talking about that 35 year span of working with Marlee, you know, in her initial foray into the film business where it was Marlee is the only actor on set who was Deaf, and therefore I was serving as Marlee's interpreter by her choice. And oftentimes that meant too, that they would ask me questions about sign language and so forth and not being clued into all this I know, would help teach or whatever it may be. Flash forward to a movie that's coming out in a couple of weeks at the Sundance film festival that Marlee has called CODA where we have three Deaf actors, each one working with a team of interpreters. And what you have to understand is when you have Deaf actors, you don't have to worry about, Oh my gosh, how are we going to make this work? The interpreters will help make it work because they're there to communicate. And they work as a team, whether they work at the video village with the script supervisor, to make sure that what the script supervisor is seeing is, is authentic to the script and is following the lines, whether they're working with the actor when they go to hair and makeup, whether they go to wardrobe or whatever it may be, but that it's important to have that actor there, but also to understand you need that interpreter there during the casting process, I have often heard stories of Deaf actors going into auditions, and there is no interpreter there. And the Casting Director says, well, where's your interpreter? Well, it's not up to them. It's just like the way you provide access to somebody who happens to need a wheelchair to provide access. You need to provide that as well for an actor who might be Deaf or Deaf-Blind.  But yes, the role of the interpreter is very important in these situations. But at the same time, you need to also be aware of, to bring in like Helen Keller Services, a Deaf consultant, a Deaf instructor whatever it may be, to get the real experience of a performance on screen with the person who is Deaf or Deaf and Blind, and it's evolved, and it's still evolving. But yeah, one actor now, three actors let's have a whole film full of actors who are Deaf or Deaf-Blind. Let's see what you get there. You're going to get a good story. I think.  

[Doug]: Well perfect segue to Marlee, you know, as someone who, you know, has been in the industry for so long, what if any evolution have you seen from your first role to, I mean, obviously Jack just described CODA, which sounds like, you know, obviously a very well considered set in that sense, but what have you seen over your career, and I'm sure you could write eight books about this, but in a shorter answer, what have you seen over time?  

[Marlee]: It's in all honesty, it's been a wild ride. It's been a wild ride. It's a crazy journey that amazes me every day. I mean, to be able to observe how everything has, has transitioned from knowing to be able to accommodate an actor like myself, who is Deaf, I'm speaking from my own personal experiences as a Deaf person who was an actor. I've seen so many things that have happened. And to be brief, I can give you a very good example. I was found in the stage production of Children of a Lesser God, I was playing a secondary role. And the Casting Director from Paramount happened to see me there. Actually they came to watch the entire cast for Children of a Lesser God the play, because they were casting for the film. And after filming all, each one of us, then it just so happened. And I didn't even know this was going on, is that I was just grateful to be an actor on stage. The next thing I knew is that the director saw me in the background, in her words, in the background and said, who's that, and that girl with the dark hair, I'm blonde now, but don't get into that. But, just pick me out from the background and the rest of it happened, I auditioned and that's how it was discovered. And she and I worked well in tandem, Randa Haines the director, because I had some acting experience, but again, like Robert, I hadn't actually been in a film before. And so, I was directable according to Randa, that I was able to work with her. And we worked in collaboration to create this role. So now there's my career going forward. As far as interpreters on the set in the past back then they would get it. Like Jack said, there was just one and so many other people in the background who happened to be Deaf with, again, it was just one interpreter. And it's a lot different than what we're talking about now, where I think about it, I'm laughing and how we're able, but you know, what bottom line is, we all grow and learn. And I'm so happy that you, Doug, have reached out to Helen Keller Services, because you understand the importance of working in collaboration with people who are the experts. You did your homework, you reached out, it was a no brainer. And you know, so well how Deaf and Blind people work, because as a result of your workingship and partnership with, with Helen Keller services, and again, as an actor who well-known and getting work, it's been, it's not been easy. It's not been easy for me. It doesn't mean that I sit back and I wait for roles. I have to develop, I have to write, I have to network. And I had something happened just recently and I want to share this with you because I think it's important that I was asked to play the first time ever on television, a judge on television, a Deaf judge. And I met with the director, he sent me the script, we looked at it, I did my research as a judge who happened to be Deaf, someone like me, who could play it, who signs and there's nobody out there. I couldn't do my, you know, there's nobody out there to follow. So I had to set the pattern. So finally, the director met with me and he said, okay, wait a minute. You're going to be signing. You need an interpreter. Oh, no, it's not going to work. Even after it was offered to me, even though we explained it in the meeting before, and that happened within the last year. So I think everybody like Doug did, has to do their homework, has to understand how to work with an actor, how to portray them authentically, how to be able to create a character on screen. That tells a good story. Whether you're talking about film or television. So that's major.  

[Doug]: I mean, I love both, that was so beautifully put and also kind of combine what you were just saying with Jack to kind of respond to that. There's the homework part of it. Definitely. Obviously, if you're someone like me, who at the start of this process was very new to the community, but beyond that also to your point Jack, about saying, you know, what about a story with that's all Deaf-Blind and Deaf people. And like, that would be a pretty interesting story. You know, the other thing that I've really learned as a storyteller through this process and that I'd certainly encourage other filmmakers and storytellers is like, you're also, whatever is perceived as the like homework or extra effort. One needs to put in your many times rewarded with expanding the breadth of richness of the worlds in which you are representing on screen. And the many dividends that pays in, I think, any great storyteller wants to not only reflect the world that accurately around them, but also show people things that they might not have seen before or thought about in a certain way. And you can really only do that by having a really inclusive, really inclusive storytelling. And that's something that, you know, again, whatever, you know, perceived like extra work, it might be it's such a great thing; the dividends, it pays is-  

[Jack]: It's not extra work, this is why I stressed every day with Marlee's case, it's not, and I'm not saying you're saying it's extra work, I hear it all the time. Oh, we got to get an interpreter. Well, we have, but you have a gaffer, you have a, you have lighting people, you have a makeup people here. It's just part of the crew. It's just another level that you add to a film that makes for a better story at the end of the day, I just get annoyed when people just say, Oh, how are we going to get an intern? Oh, no, it's part of the film crew, it's just, I don't know, Marlee is saying the Deaf community and the acting community has work to do. And the work that is that we can provide the opportunity to educate. We can't get angry  if you guys don't know about this kind of stuff, we just have to sit down and communicate and educate and talk. That's basically what it is at the end of the day.  

[Doug]: Well, I'm going to quickly, rapid fire through a couple other outstanding questions here with like the final five or so minutes we have one comes from Yasmeen, who, a question for me asks, why would Tereek go to great lengths to help Artie after he refused to give a homeless man spare change? That's a great question. And I think ultimately part of how Tereek's journey and character arc is demonstrated. Initially we meet Tereek as someone who is in need of help himself. He doesn't really have the bandwidth to help other people, you know, he he's obviously in whatever situation he's in which we get, you know, some clues as to, but there are a lot of question marks around. We know he's not in a good position. We know he has nowhere to stay that night. He obviously doesn't have a lot of money on him from what we noticed from several points in the film and whatever else he's dealing with.  So when he's first encountered by this homeless man, he literally does not have the bandwidth to help in any way or the means when he first encounters Artie, he doesn't help Artie in this, like- Oh, sure, like, open-armed, I'd love to help you kind of way. He really does it because, well, there's no one else around, I guess I have to thinking that he's really just not realizing he's signed up for like a night long journey thinking he's just going to maybe help him for one moment and then it's over. But it's through the circumstances of getting stuck with heavy quotation marks, getting stuck with Artie that they really start to bond heart to heart and what he gets out of opening his life to someone else, which again, we realize he's very closed off to begin with opening his life to someone else who has the capacity to take him in is what ultimately changes Tereek for the better signified by him giving those that money that he took from Artie initially, because he's in a little bit of a desperate situation, but he was transformed by their connection to the point where he's able to pay that forward to that homeless man at the end, because it's supposed to, it's meant to be a symbol of the journey he's been on and what he's gained from connecting with Artie. And there's that real mutuality between the two of the characters, obviously Tereek had something to provide to Artie to help him and Artie. We very much learn had something to give to Tereek as well. So, great question that really illuminates what I think ultimately is kind of the heart of the story. Again, just to get through these last couple of questions here, and thank you for everyone who asks questions, they're really great ones today. Samantha asks -Hi, can you tell me more about Feeling Through Live, which is a series on your YouTube channel; What inspired you to create this series and what do the live streams consist of?- Samantha, thank you so much for asking that, you know, again, Feeling Through is so much more than a film it's really become, I guess you could say a community or maybe some sort of, the rumblings of a movement, so to speak.  But something that we realized is that in providing these fully accessible screening events, you know, first in-person before COVID, there was something about bringing communities together, bringing the Deaf-Blind, Deaf, Low-Vision communities together, Blind communities together in one space to have a collective experience, to get to dialogue with each other, learn from each other. We realized that there was a real deep value to that. So when COVID hit and we, you know, very quickly under, you could probably imagine, you know, something that restricts us from being able to be near each other and touch each other, how disproportionately that's affected the community, such as the Deaf-Blind community that often relies on touch to communicate. You know, and again, you know, Marlee, I'm sure you could speak a lot on from the Deaf community, having the masks that cover the face as a, as a whole nother conversation as well. But ultimately we realized there's this need to try to find a way to use technology, to keep people connected. So I created Feeling Through Live, which is a weekly live stream that again, continuing the beautiful partnership with Helen Keller Services to- it's basically the way I describe it is it's a weekly live stream, a weekly accessible live stream with captions and interpreter, that is meant to provide a platform for people who are Deaf-Blind and beyond. So we've talked to all different people in the disability community about topics relevant to everyone. So that might be, Cody Colchado, who is the world's strongest disabled man, speaking about what fitness means to him, and how it's influenced his life and helped him that might be speaking to Doc Francis. Who's a Deaf-Blind preacher who speaks on how his faith has helped him accept his Deaf-Blindness and use it as a gift in sharing his message with other people and a whole host of other people, you know, everyone, Marlee and Jack, I'm going to definitely twist both of your arms to do an episode with me at some point in the future, but it's an amazing opportunity to provide a platform for a lot of people who have amazing things to say that are in the disability community, but we might talk about things that are disability related. We might talk about just other things they're interested in that have nothing to do with disability. It's more just the fact that through this process, I've gotten the chance to connect with so many amazing people and I'm like other people should be hearing from these people. They're such awesome, interesting people let's do our part to be able to provide a platform. So I know we're running a little over time, so I'm going to rapid fire just through the last couple of questions. So we get to all of them, but, Lindsay asks what was the most challenging part of the process? And how do you hope audiences question as a result of watching Feeling Through? So again, could probably do a whole live stream just on that, but the ten second answer is the hardest part. Believe it or not was the fact that it got really cold when we were shooting and we were shooting outside at night. And my New York city blood does well with the cold weather, but Robert's an Arizona boy over here, and he was getting real cold. So we had to warm him up a bunch, and a lot of the crew as well. So that was probably one of the biggest challenges. And then also, I'm just hoping that people understand that the more we include everyone, the better our, our storytelling is, the better our world is as simply put as that. And, again, the last question here is for Steven and Steven, if you can answer this in like 20 seconds, cause I know we're running just a few minutes over here. Lindsay says Steven brought me to tears when he yells at the bus driver to help Artie. What experience did you use for this scene, Steven? Or what, what did you draw upon in that moment?  

[Steven]: It was like just one of those moments. You know, you take your real life and everything and you put it into like, into like these moments of, for these scenes. And it was just like for everything, even what Robert represents, you know, Robert doesn't just represent, you know, Blind and Deaf community who represents people who wants to tell their story and wants to be seen. And you know what I mean? And at that moment I felt unheard, unseen. You know what I mean? So it was like a fight for myself as well as, Robert's character.  

[Doug]: And thank you, Steven for also pointing out another comment. Cause it's easy to see the differences between Tereek and Artie, but Steven pointed out another commonality, which is two people who in their own respective ways might have times in their life where they feel very unseen and unheard. Certainly something that the Tereek character was going through as well. So, you know, with that said, Andrew please if you want to bring us home here.  

[Andrew]: Yeah I want to just interject and say thank you to everybody, but also please follow Feeling Through on social media, we'll be posting upcoming festival screenings, all of which for the most part are virtual now we have one coming up with the Slamdance Film Festival. If you, I mean, word of mouth is so important for a film like this period. So please spread the word to your colleagues, both in the industry and outside of the industry, and share our journey with them. If you have any additional questions or wish to see, as Doug mentioned the documentary, that's a supporting material to the short film, please reach out to us. I want to thank everybody on the panel for giving of their time and talents today. And I wish everybody a great rest of the week. And thank you so much for joining us.  

[Doug]: Thank you. Bye. 

Feeling Through: The Year Ahead • Feeling Through Live Ep. 36

[Doug]: Welcome to episode 36 of Feeling Through Live. This episode is far overdue because I've been wanting to talk to our good friend and one of the stars of Feeling Through Stephen Prescod for a long time on this, you know, Steven I'm super relieved today. Cause obviously we had some technical difficulties when we tried this at the end of 2020, which was so fitting, right. That the last episode of 2020 would be rife with technical difficulties. But now it's a new year. It's 2021 it's working. And there's actually, before I pass it over to you, there's something that I want to start doing more consistently here in 2021, which is an audio description of ourselves before we hop into things. So I'll start and Steven, you'll follow, be very clear what to do. So,basically what you see on the screen right now on the top left corner, it says Feeling Through Live episode number 36, Feeling Through the year ahead. And then there's three boxes and interpreter box in the top, right? I'm in the top left. It says Doug Roland Feeling Through beneath me. I'm a white male in my mid thirties, a little bit of scruff on my face with a little bit of my living room in the background in a, in a picture frame over my other shoulder. And Steven, why don't you give an audio description of yourself for everyone who's listening.  

[Steven]: Hi everyone. I'm Steven Prescod. I have the silky durag on white t-shirt at my home, in my room in Bed-Sty Brooklyn, just, hanging out with you guys.  

[Doug]: Right on. Well Steven again, it's so fitting that you are the first guest to 2021 because we have such, and I'm also just starting to get used to saying 2021, you know, like that first week of the year when you're like, am I messing up the year? You know, like when you're like, here it is. So, it is 2021, right. I'm not wrong in that. Is that right? Good. But you know, what I'm really excited about today is a couple of things. One, you know, I'd love to touch base about this past year, cause there's been some, there's some cool stuff to discuss, but it's really a great opportunity to talk about the exciting things that are coming up with Feeling Through a lot of what you'll be participating in. And for everyone to get to know a little bit more about you, because you are not only an amazing collaborator, but have become a really great friend. And also someone who's just has so many interesting things to share. So we're going to get into all that, but just to kind of start things off, you know, I'd love to like kind of just get a quick summary from you of kind of like, as we left 2020, and we're entering 2021, if you can, like whatever kind of stands out the most, if you can orient people to kind of your thoughts and feelings leaving this last year and like what you've entered this new year with.  

[Steven]: You know, I feel like with every year there's always like this new beginning, a fresh start and I, that's something that I personally really needed and I'm sure many of the viewers are watching, everyone needed. Cause 2020 was just, it was, it was a lot for us to handle. We got hit with a, with a new norm, you know what I mean? So it was a lot to deal with. And especially as an artist, you know, so, this year, I just want to come in and go strong. You know what I mean? It was a lot of obstacles last year. So this year is like, kind of like picking up where I kind of left off in a way. Yeah.  

[Doug]: Yeah. I think that's a theme for a lot of people and will definitely resonate for a lot of people. And, you know, one of the things that is going to be a great place to pick up this year is, you know, there's, there's a lot happening with Feeling Through and you're, you're right at the center of that. And for those of you who have seen the film, I'm sure you were very moved by Stevens, nothing short of, I would say, and I don't use this lightly brilliant performance in the film and, you know, Steven, something that's been so consistent as we've gotten to show this film to, you know, thousands and thousands of people at this point, you know, first in-person and now virtually one of the most consistent points of feedback that I hear is how brilliant you are in the film. And I'm just wondering, like, you know, now that this has been shown to so many people and we've so consistently talked about your, how brilliant your performances and how moved they are by it, what, what are your thoughts and feelings about hearing that?  

[Steven]: You know, it's always a great feeling to hear that as an artist. But I can't take that without thinking you guys, you know, especially, you know, you as well, Doug, you walked with me through that whole thing. You really know, like every shot that I was taking, I was like I don't know. Like, I was just like every take. I was like, is it as good as this? Good. I don't know. But like, you always like gave me the confidence and, you know, you always like spoke to me like behind the camera and was like, you know, giving me the green pointers and everything. So it was just like, it just feels good to, to hear that you did a great job, cause you never know what you actually did until it's done. When you do this kind of work. You never know what you, you know, what you put out there. So it was just as good to hear that it's a good family.  

[Doug]: Well, yeah. I appreciate you having faith in the process and being like such an amazing collaborator throughout the process. I mean, I think that's one when you're from the director standpoint, when you're working on something like, you know, nine tenths of it really is a casting it, right. You know, because if you, if you don't cast it right, you can do everything else. Right. And it's just not going to work because ultimately, you know, with storytelling, it's only as, as moving as, as the, as the artists and the performers who are embodying the life behind the story. So, you know, certainly it was, it was a dream to work with someone like you who, it really is. I find unfortunately like a rarity to some degree, as far as you have a poet's heart and it's like the art first, and then all the other stuff after that, and you, the way in which you really invest your heart and your spirit into your performance is something that is really exceptional and I think rare.  So I certainly thank you for that, you know, some of the things that, that are really exciting coming up this year and just to kind of give her some of it's a little bit of a recap of last year, and moving into this year, you know, we've won now. I think it's like 16 awards on the festival circuit and w including another win that we just announced yesterday at the Fargo film festival. So it's been really exciting to see that it's been received well in the festival space. And we're really excited to be a part of the Slam Dance Film Festival coming up, where we will be playing alongside a block of other films that are in the disability space. So it's really also exciting to see that there's going to be more representation of people with disability and film, and a larger entity like slam dance is really getting behind that, which is exciting. And a lot of you've probably who follow us, have probably seen us posting a lot about this for your consideration campaign we're doing right now. And, you know, for those of, I think most of you probably understand what that is, but for those who don't, if you do a quick Google of, for your consideration, you can understand what that is. We're, we're not at Liberty to speak on certain specifics of it. We have to say for your consideration, but you know, that for your consideration is a huge thing that we will allow us to take our message of first the power of human connection, and also everything we do around Deaf-Blind awareness on this platform to a whole nother level and a whole larger platform. So for those of you, who've seen that and want to support a really easy way is to do what we've been doing on our socials, that, you know, Steven, you were kind enough to do as well. We're all writing on a piece of paper #FeelingThrough and #ForYourConsideration, holding up that picture, posting it to social media and putting that in the text and tagging us @FeelingThrough. And if you have any questions about that, just go to our social media at Feeling Through, and you'll, you'll see a lot of examples of that. And that's just the way that we can all participate in spreading it out and sharing, you know, spreading out the awareness of Feeling Through and getting it in front of more people. But enough of that advertising, I want to get more into you, Steven, and, you know, Steven, I'd love to like, take a huge step back to the beginning of this process. Cause there's some really fun stories of when we, at the very beginning of Feeling Through and us meeting each other. And you know, one of the stories that I really love that you actually reminded me of a couple of years ago was that, was that the final callback audition of us meeting each other before we met each other in the room. Can you refresh my memory on that one?  

[Steven]: Yeah. I remember Googling the director of filling through, because I have no idea where you look like first. And I remember my manager telling me that you got the call back. So because it was first a self-tape audition. So this was the first time I was going to do a face-to-face audition with Doug. So since I knew what he looked like, and I don't think he, he kinda knew who I was. I remember I walked into the elevator in the building and Doug came in and he used with someone else. I forgot who you with. I can't remember. But, yeah, he was standing right there next to me. And I was like, wow, did that rectify here than not? That was like a cool fun fact. Cause I remember you told me, you were actually thinking of me cause you was like, I wonder if that kid is going to show up today. And I was like a pretty fun conversation we had about that. I thought that was pretty cool.  

[Doug]: Yeah. And I think didn't you didn't you tell me that you like, asked me what, where the audition was and like.

[Steven]: I did ask you where we, I was like, well, yeah, I did ask you, where is, where do we have to go? You said we have to go over the sign in. It was somewhere, you said we have to sign in over there yet. But like, it was just like, it was dope. I think it was destined. It was like destined for us to work together. Like, you know, how that whole played out.  

[Doug]: And it was funny from my perspective, because like, you know, when you're going into like the final callbacks for like the central role of the film, and you don't know who the, you, you really don't know who the lead's going to be from my perspective. I'm like, so in my own world, like nervous if like, are we going to find our Tareek today or not? And it's just so funny that, you know, you were like, I'm so in my own world that I don't realize, you know, I, you know, I don't even like, I'm like, oh, I guess he's auditioning for a cool, like, I'm not really paying attention. And then you were also the first actor up that day. And it was really one of those moments because I've said this a lot about Robert as well as you, but it's so applies to both of you. And the second you opened your mouth at that audition I was like, this is our guy. This is our Tariq. Like, and there's no better feeling when you're casting something. Then knowing undoubtedly that that is the person to play the role. And I had that feeling with you, like 100%. I was like, I guess we'll do the rest of the casting today because like, I want to be fair to people that showed up. But like, I know this is our guy. There's that that's my, my opinion is not going to change. And that's such a great, such a great feeling. And, you know, Julie is asking how many actors made the callbacks. And that's a great question, Julia, you know, I think we saw at least 20 people that day, but, you know, we saw like, well over 40 people for the, for the role of Tareek.  And it was really, you know, the hardest role to cast. It was funny going into this process. I thought I assumed that casting RD would be the hardest role to cast because I didn't, I, I wasn't familiar with any Deaf-Blind actors, but that actually played out pretty kismet lately. And in fact, I think it was Aaron who's on the screen signing right now who was in the room when we were casting Robert or when we were casting that role of RDA who suggested we audition Robert. But yeah, we probably saw like 40 people total for the role of Tariq. And, you know, I was really worried about it until I saw you because I, as much as, you know, there were some really great young actors there. Like none of them really felt like they embodied the sentiment like you and Nilam's asking, how do you know which actors a perfect match and, you know, really that it's just a gut feeling. You know, it's just that thing that like hits you in a really intuitive place. And you just know, and that's like, that's the best feeling when you feel that. But, you know, Stephen w as we got to connect more about the role of Tareek, and got to know each other more, you shared some stuff with me about how, you know, people and elements of your personal life really informed, the, you know, you playing to-. Can you share a little bit of what you shared with me about that?  

[Steven]: Yeah. I'm big on, you know, living through someone else's experience. And there was some, there was this kid who reminded me so much up to wreak. His name was, is Nixon. I was literally outside walking my dog and this kid, just young kid came over to me and asked for like $2 for coffee. And I was like, how old are you? He told me his age. I think he's about 19. And I was 18. And I asked him, I said, you know, where's your parents, you know, like, what do you need coffee? Like, where's your parents. And he said how he was explaining to me he didn't have any, and he was explaining to me this whole entire situation. So I just told him, you know, spend a night tonight. I mean, you know, and we connected, he told me a lot. It was like, it was a lot that related to what was going on with two week. And I carried that with going into this role, going into that role. Yeah.  

[Doug]: And you know, I think that relates a little bit to, after I cast you and we got to know each other, you know, I got to know a little bit more about you and your personal life and your personal story, and it just felt again, all the more, a perfect match. And, you know, I think you also have a really interesting, you know, story, personal story and how it influences you as an artist. So I'd love to, like, you know, maybe if you can kind of go back and kind of walk us through kind of the major bullet points of your life, because I think they're super applicable, or they really are things that ultimately manifest in you being the amazing artists you are. Can you tell us a little bit about that?  

[Steven]: Absolutely. Well, I grew up in Bed-Stuy Brooklyn in a one family home. I literally had like the only house in my neighborhood, like all my friends and my neighborhood lived in, most of them live in like buildings, you know, so they had to adapt to like all these other personalities and families and people around them. But I never took it for granted that I was in a, an actual home, like a house. And it was if it was a home and, you know, my family allowed me to express myself and had this crazy imagination. I used to watch like home alone movies and be like, Oh yeah, I could, if anything, I could do this stuff. So I always had this like, creative, you know, think that, like, I just love to just do, but, um, it kind of the spark where acting happened when I was 14, there was a director in my neighborhood named Brooklyn Brown. And, he was casting kids for like a independent film that he was doing called Skittles. And I actually, I got cast there from one of the roles out of like 175 kids that like audition. So that gave me like my acting bias. I was like, yo, this is nice. Like, I want to keep doing this. And my mom, she tried to get me into acting schools and there were like crazy expensive, the ones that we came across. So she couldn't really afford them. And over time, like, I kind of lost the ambition for wanting to become an actor. I was like this, I'm never gonna see myself being like, I, I don't think I'm ever gonna accomplish something like that. I had like low hopes for myself. So then, with that, when no ambition or anything, I just started hanging out with, you know, kids that were born to, and we started doing things that, you know, kids in my neighborhood do when they were born around that time.  We didn't have like the iPhones or different things like that to keep us entertained or anything like that. But I found myself incarcerated at 16 and it was what assault robbery. And it was my first offense. I was supposed to serve seven years and I would have came out when I was 22, you know, but I was blessed to have a second chance. And the judge sentenced me to a six months case program. And in that case program, they gave paid internships. They told me the axes, they asked me like, what is it that I love to do? And I told me to always like to dance and act and stuff like that. So they sent me to this place called city kids. And I thought it was like a daycare center, but it was actually a not-for-profit organization. It was like a bunch of kids all over the city, just going there. And, and in the performing arts, they had college prep programs or different types of things. And like, I was just the intern in. And I was like, seeing all the stuff that the kids were doing. I was like, nah, I want to do this. Right. I'm going to stay here. Even after my internship. And the arts saved me, like, it helped me find layers of myself. I was, I felt like I was just in this one box because it was like all I knew. And, and that's why I feel like it's important for kids to like, have the arts in schools, like, you know, to be able to have that self expression, you know? Cause it was ways that I was letting that expression now in terrible ways. I didn't know. I didn't have any great outlet to let that, to let that out. You know what I mean? I always called them misplaced anger. So, you know, I'm always thankful for the artists. Like that's, that's something that saved me that's so I feel so connected to it as why I love it so much. It's like, it's it it's like a healing thing. It's like something I need to cope indirect myself in this world that we live in.  

[Doug]: And, and you would use your art to tell your story and share it with a lot of other people. Right. So, so what, what was the next step thereafter after you were kind of introduced? Oh yeah, no, go for it. We're live. So we capture all the little things that happen along the way, but yeah. Tell us about how you, you know, the next step there and how you used your, your art to, to share your story with a lot of other people.  

[Steven]: Yeah. So, and the city kids program, I met this artistic director named Moisis Bellisario and he and I connected, he became my mentor and I started like sharing a lot of stories with him about my life. And he said, you know, you want to be an actor, you said, right. And I was like, yeah, he said, so you start writing stories, write stories about your life. He told me to do it first for therapeutic reasons. So I was just like writing like a bunch of stories. And I brought them to him. I bought like two pieces to him. And he said, you know, let's turn this into one main show. And at first I thought it was like a crazy idea. It was like, there's no way I can perform like all these characters. How am I going to do that? That doesn't make any type of sense to me. It was crazy. But I remember for the first open mic that we had, I remember the first local mic that we had. My mom came and I know there's a quick that you're going to show a huge, let me explain that as well. 

[Doug]: Right now, I’d love to just get a little bit into what a Brooklyn boy is, so just keep going where you're at.

[Steven]: Oh yeah. So yeah, so the Brooklyn boy. Yeah. When the response that I got, it was like, that was the first time I actually felt validated. I was like, it was wild because I was shy, I was, I was afraid and uncomfortable because I was going to share people, share with people, stories about things that I've done, you know what I mean? And I didn't know how people were going to take that, but the response that I got, he was like, okay, this is something that we need to grow and groom. So, you know, we continue to grow, grow Brooklyn boy. And it just became something that we, that we, a tool that we use to honest and open conversations with kids around the city in schools, you know, it's about a rehabilitation, has gang violence in it. It talks about religion. It talks about like all of these things. It's, it's, it's autobiographical. And also, it's just about like turning pain into purpose. You're not paid 32 characters in it. And it has, yeah, I, yeah.  

[Doug]: Yeah. So, and so this is a Brooklyn boy, a one man showman.

[Steven]: Should do theater.  

[Doug]: And, and then it started as a theater, like you're performing on stage and it's you play 32 characters, it's all autobiographical of different moments of your life that, like you were saying, ultimately tell this story, that you kind of extracting wisdoms from your experiences, many of which were like not, not very good experiences to go through, but how they informed you to like where you are today. Is that, is that kind of fair to say?  

[Steven]: Yeah, absolutely. Yeah, definitely. You explained that so great. I might take that next semester.  

[Doug]: But I have been, you know, it was being in Los Angeles and you being in New York, I  know, obviously I would see when I come back, but I, it never aligned with me to see it on stage and then this thing COVID happened, which made it that much harder, you know? Cause I kept harassing you to go, like, you have to let me know every time you're performing that. Cause I'm going to come back just to see that. Cause I really want to see it. And unfortunately it hasn't yet, but what was really cool is you, you had the opportunity to, to finally do film a version of it too, right?  

[Steven]: Yes. Yeah, we did. We we filmed like, you know, we filmed scenes and on the street of me doing it as if I would be doing the one man show, you'll just see me playing all the different characters in a way. You know, I do still love the, I love the theater version of it more because I, you know, that was the way the piece was first written and you get to fail the audience, connect with them more. But, you know, I enjoyed it. You know, it was pretty good. And I haven't heard any of the responses, how people felt about it, but I think I heard like a few people said they loved it.  

[Doug]: You heard from me, I told you, but wait to get to the, to the, before we move on, because I do actually want to play a clip from the film version, which I like one of the many moments that I love from a BB before we get to that you were talking about how much you loved the theater experience of it and being able to move people. And you know, there, there, there, I know that you got to play it for a number of different people. And to my understanding you did you get to share it also with younger people, in schools like school agents, such as, as an opportunity to maybe perhaps speak to people who could possibly find themselves in a similar situation to you, where there any moments where you had the opportunity to share it with, with kids like that.

[Steven]: Shared with thousands of kids, like all over maybe. Yeah, it was a lot of kids. We shared it with Schrader, with formerly incarcerated youth, you know, and every time after every show, it could be pain is so universal, you know, cause everyone, it doesn't matter the age, the ethnicity doesn't matter. Like everyone found a way to relate to the story. Like they found something in that story that they were able to relate to. You know, I that's like my favorite part of is after the show is like hearing everyone else's story. Like that's, I think that's, that's the rewarding part for me. Hmm.

[Doug]: You know, particularly when you were getting to show it to kids and students and, you know, some you felt, you sounded like they were maybe from a similar, maybe like have a similar kind of experience to you. Did you get any kind of specific feedback from anyone that stands out of like what it meant to them or anything that like rings in your memory particularly?  

[Steven]: Yeah. There was one time I performed at my little brother's school and then this young kid, he came backstage crying and he said that his brother had the same situation as me and didn't make it out. Like that broke me like that. I didn't forget that over. Yeah. It was a lot, it was a lot of, it was a lot of people that touched me, you know, but that's the first one I could come off the top of my head. I mean, yeah. Yeah.  

[Doug]: What I mean, do you, do you think, you know, I can say from an outsider that like, I can only imagine that this would, you know, as someone who's, who's watched at least the film version of it, that this could have a real impact on someone changing, like a young person changing the direction there, the direction in life for the better.  

[Steven]: Yeah. Yeah. It had it hadn't, everyone, like, you know, everyone, it, even mothers, you know, mothers that their sons weren't weren't even there, that day when they came and they said it made them want to even learn how to love their son more. It had other people who wrote me and said, you know, things change with their, with their kids after they saw it. It was a lot of different, different things, the different feedbacks, you know what I mean, different people would come up to the, like, I remember we were doing, like, we had like a home-based theater finally. And like, we're doing shows back to back, like, you know, everyone just came, people came for like their birthdays people came when their anniversaries like, cause he heard about the show with the mouth, you know what I mean? And had, yeah, it was the conversations that I felt like that was, you know, you don't always keep in touch with the people, I haven't gotten a chance to really find out what everyone else is doing. But I always like tried to get people to, I got people to follow me on Instagram. I follow them back and not see them pursuing things that they said they wanted to pursue after. Like, you know, we had those talks, like after, you know what I mean, when they were like asking about like finding their purpose and things like that. And I was just like, yo, just do what you love, just be passionate about life, you know, impact people, just watch how you treat people and all this other stuff. Like those are important, things of life, stuff like that, you know what I mean? Like those are like really great conversations, you know? Yeah. Cause I'm telling you everyone, they, they found they related their stories so much to it. Like they said, they were watching it and they were gripping a chair, like, cause it was taking them back when they were in that same, same exact, you know, scenario or something like that. You know what I mean? So, and then even like the younger kids that didn't have anything to do with that, like the old young kids, the questions that they ask, like, I was like, wow, like you really, like, you really think like that, like, you know, he was like, so how were you able to cope all these things? And I was like, okay, wait. Yeah. It's it's it's those are, yeah, those are there's some memorable experiences.  

[Doug]: I'm going to take a quick pause for an interpreter switch. So just hold on one moment here.  

[Steven]: Okay.  

[Doug]: All right. We're continuing here, and you know, just to one more point on that topic, as you were sharing it with a lot of different people, there was also a pretty notable, guest at one of your performances that I know you've talked about at length and did the whole new circuit on, but can you indulge us and tell us a little bit more about that particular performance?  

[Steven]: Yeah. That performance is what actually sparked like one was skyrocketed the whole thing. Because before I did this performance, we only had two pieces to the play and There was like these, there are, so the program that was in Sydney kids, right. It kind of like shut down. And the CEO of city kids contacted the artistic director and asked them, do you have any kids that could come in on do a performance for like some special guests that's coming into town? And he was like, okay but who?  

[Doug]: And at this point you don't know who the special guest is? 

[Steven]: We all know who the special guests, he doesn't even know. He's just like, yeah, just come. And he's like, yo, Steve, I need you to call me and a few other people. I need you guys to come in and just do a performance. It was, I don't know if he called it an audition or just do like a performance. It was like an audition. I suppose so. I remember we did it, we did it for a group of people first and they loved it. They loved the two pieces that I did and the advocates, they loved them too. But then they, then they wrote the artistic director and told them that they wanted me specifically to be like the, the main performer or piece that would be presented to the special guests that was coming into town. She was like, okay. And then it wasn't till like two days before I think I was told who was that's coming, but then they weren't too sure if there was still gonna come. And they said it was a Duke and Duchess of Cambridge. And I was like, okay, let's say-  

[Doug]: And just for clarification, the Duke and Duchess of Cambridge is who and who.  

[Steven]: It's Princess Kate and Prince William. Right.  

[Doug]: So the Royal family, just, just so there's no confusion here, Prince William and Duchess, Kate Middleton of the Royal family came to see your show of Brooklyn boy. Yeah. And not only did they come to see it, tell us about what happened. Well, maybe during book more after the performance.  

[Steven]: Yeah. So I mean, like, I remember when he told us, you know, when they got, when they got there, like even after the performance or whatever, like we're not allowed to touch them or anything like that, you know.  

[Doug]: That sounds very much like a directive you get if someone from the Royal family was coming to see your show.  

[Steven]: Yeah. Right. But it was crazy about it. Cause then this show was like, what was it? It was so always so painful because like in the show is like, the profanity has profanity in it. Like a couple of things, like all this stuff that's in it. And they were like, no, you can't see these words in front of the loyal. Like, you know what I mean? So it was like, I had this huge argument, like, no, but that's how it is. Like, that's how the piece is. They have to, they have to see what it is. They have to see like the rail rawness of this piece, if that's what they want. I mean, their entourage desolate before they love it, whatever. Like, why can't they see what it is too? And I fought them on it and we, we, we were able to still do it. And I thought I did it. And after it was done, as soon as it was done, I'm about went to the back and everyone stopped. I'm like catching my breath and the, Moses, he was like, get out here right now. He said, come back out here right now. And like, stand over here. He's about to leave. So I was standing outside just waiting, like, you know, just waiting for him to like make his exit. But before you left, before he was making his exit, he walked up to me and shook my hand. And he was like, he was explaining to me how much the piece touched him.  

[Doug]: Who is he here? Just, I want it. Who was Prince William wanted to talk to you and shake your hands. So he was okay with touching at this point?  

[Steven]: He was okay, he was just fine with it, he actually explained, he was actually saying that everyone always put their, like, you know, the cleanest, the, their best foot forward. Like, you know, they cleaned the suit. Like, so to get like the realness, he said, like, he loved that. He was able to like experience that. And, and he asked, what was it that I plan on doing with the piece? He said, he, you know, he went everywhere. He met Jay-Z and all these other people. But you know, this was like the most exciting thing he experienced on his visit in New York. So he sat and I was like, where did he was at? What are you planning on doing it? And I said, you know, I plan to like travel to different schools and share with kids. And he was like, Oh yeah. He said, well, I want to help you with that. I said like, like, what do you mean? You want to help him in the ho how are you going to do that? How are you going to help him? He said, I'm going to give you my number. I said, I, I said, and then Moses said, yeah, I have his number ready. He like yelled that out. Cause Moses was listening. And there were like a few reporters, like reading his mouth or whatever, trying to see what he was saying. And he said no, I have another number. And he called his like secretary, his personal handler over in and gave them like a permanent personal number. And then he left. And I remember, I remember going to meet up with friends in the Bronx to go to like a studio session. And I started getting calls from like TMZ and all these other people trying to find out who's this kid met the Prince. I didn't know how they got my number. And you went to my house, like news reporters and everything. It was just, yeah.

[Doug]: TMZ is good man, TMZ I mean, as far as they'd get like surveillance footage, all this stuff, you never know they get it.  

[Steven]: I don't understand. I didn't get it. I was, I was like, wow. I was like, what's going on? And then I ended up talking about it on like a few talk shows and things like that. But the, what was the scary thing about it was that, you know, everyone was, was so ready for like a full out, play and only had two pieces of it. Like, you know, and they were like, Oh yeah. So if we can't wait to see this place, so Moses and I are looking at us like, you're, we're in trouble. Like we got to hurry up and do this without that we had five weeks. So within five weeks, we, we, we just went, got creative with, with all the stories that I had. And that's what kind of like pushed us to like finally finish this whole entire thing that we said we were going to do.  

[Doug]: And that's, that's a good motivation when Prince William says that he loves it and wants to help you out. I think that'll, that'll give you the motivation. You need to finish up there. I also love the idea of Prince William rolling around New York with this entourage meeting, Jay Z, hanging out with you. I was like, Oh yeah. Okay. Okay Prince William, like, you know, I guess, you know, I love, I love this kind of other, this isn't the Prince, William I guess you see in the tabloids all the time.  

[Steven]: Totally different guy. Yeah. Yeah. He's cool. Laid back. He's he's grounded, you know, he takes a lot from his, his mom from what I've heard about her and yeah, definitely. He's gentle, gentle Hardy. Yeah.  

[Doug]: And you look, obviously at the end of the day, it's, that's the kind of most buzzy thing that I think a lot of news outlets pulled from it, but you know, what it really is indicative of with your piece is that regardless of who you are, whether it's Prince William or, you know, a kid who's in, grew up in a very similar environment to you and everyone in between that it resonates with everyone because there's very universal themes at play in your story. And, you know, I think this would be a great moment to go into, to a clip from the filmed version of it. So before I do that, could you, could you just set up this, this short clip we're about to play?

[Steven]: Okay. This short clip was actually one of the first two pieces that were, that I first worked on when it was like a theatrical piece. And that piece that you're going to see when I performed it at the open mic, my mom came to that open mic and she remembered me being chased in the house by the cops. That's what you're going to see in this scene. I'm being chased in house by the cops, but she didn't know. She didn't know why I got chased in the house by the cops until she saw the piece that I performed. Oh, wow. Yeah.  

[Doug]: Okay. Well, I'm going to roll the clip here and then we can talk about it a little bit more.  

[Steven]: Oh, right. She, I couldn't take the gun back down because they were right there in front of us. There were three cops. Two of them were black. One of them were Indian descent. They can't walk into our front yard, flashing their lights. You'll submit here, like, as Ashley says, yes, sir. We live here. Okay. What about this guy? The cop tasted out to me. I panicked. I ran up the stairs. I didn't know what to do-  

[Steven]: My aunt heard the noise so she stepped out of the bathroom. What are you doing in my house? What do you want with my nephew? Mister, come downstairs right now. No, stay away from my nephew, Steven don't go downstairs they're going to arrest you. But I didn't do do nothing. No. Stay away from my nephew. You don't belong here. We belong here. He used to come downstairs right now. You want to go to jail son? No, stay away, don't touch him. Steven, if you didn't do nothing, then go downstairs now. Yes Grandpa. I started walking down those steps. And I started thinking about every last freedom that I had left. Receive my praise, oh God, I started thinking about life was over. So I started praying to God, please, please just get me out of this one.  

[Doug]: I love that clip. I mean, I love, I love the whole thing, but I mean, that's such a, it's kind of like the climax in a lot of ways of the story. And, you know, I think what's so evident in that clip that is throughout is that as someone who grew up in New York and went to see a lot of theater and in invariably saw plenty, one of one, plenty of one man shows, you know, I think it's a really hard thing to do what you do throughout this piece. That's, you know, very much very clear in this one clip as well of how seamlessly, you can slip into and embody the various characters of your life, all of which you're playing. And I think you do that in such a great way. And I think, I think your movement and dance background really serves you and how fluid you move in and out of those roles. Maybe can you talk a little bit about your passion for dance? And if that, like, if that's served you in any way in this, in this piece here, and obviously you showcase some of it as well, which we, we, we don't get to show today, but can you talk a little bit about that?  

[Steven]: Yeah. I've been dancing from, since I was young, my aunt told me that she should just play music and I'll just like move to the sounds and the rhythm of it. Like when it changes, I'll go with it. But you know, to this date, I got more love for dancing. Like I I've gained more love for dancing. You know, they say that the words that you can't say, you put it in a song and the words that you can sing, you dance and like that that's like so true. That's so true.  

[Doug]: Time-out for a second. Cause that was so good. Can you say that again? Cause I just want to hear that again. Cause I love that.  

[Steven]: Say that the words that you can't say, you put it in a song and the words that you can't sing, you put it in a dance.  

[Doug]: Oh, that's so beautiful. You know, I think to anyone like me, who's not a particularly good singer or dancer. I'll try, don't get me wrong. You know, that's something that like, there, there are certain things that can only be, even if you can't do them well, there's certain things that can only be expressed in the, in the ways that you're, that you're describing there through song and dance that I think resonate from, from, for anyone including those who aren't particularly good singers or dancers, but that's such a beautiful, beautiful message.  

[Steven]: I feel like everyone could, everyone can sing, everyone can dance, you know what I mean? It's, it's, it's a boat. You have to just do your, do it for you. You know, I, I didn't think I was always the best dancer. Like I grew into the way I dance and I'm like, and, and learning from other dancers and stuff like that. And it just, I felt like that was the fun about it too. Just, you know, seeing the evolution of it, you know, I wasn't always how I dance now just kept just doing it. And that technique was Moses idea with the whole, switching to characters like that, because I, at first I thought that was silly and I didn't want to do that at all. But that was like, yeah, that movement was, I believe that was something that definitely did help me through, to do that. Definitely.  

[Doug]: No, and it was so, I mean, you do it so well that it really, you know, I found myself, when I watched the entirety of this really being able to so easily, easily visualize the entire scene and cast of characters just through how seamlessly you transitioned to each one and how beautiful you embodied them. Is this something that, you know, obviously COVID right now is keeping you from doing it on stage. Do you plan to continue doing it on stage once you can, again, and also, do you plan on sharing the film version more widely at some point?  

[Steven]: Yeah, well that, that film version was like kind of like a test, like a test run and, you know, there's so like, yeah, those are tests run to, to share it with, a few people to actually help us turn it into a series. So that's something that we actually look into work on and I still would love to do like a huge special in Brooklyn and get like a few of my friends who I play in the show that have not yet seen it. You know what I mean? Like I'm like, yo, I'm talking about you guys, like people know about ya. Y'all got, gotta come see the show. So yeah, something that I do look forward to doing still. So, I mean yeah. To see how that all plays out.

[Doug]: Well, we have a question that I think actually is a great transition into another chapter of, of what I'd love to discuss today. But actually before I move to that, I just quick, quick question from Julie who asks, were you more nervous than usual when performing in front of royalty?  

[Steven]: I think it all added up to the same nerves in a way Fannie prefer for performance because I honestly didn't know how I admire the entourage and everything. Like, you know what I mean? Like it wasn't till like, after the fact, I was like, wow, that was a big, big deal. Like the, the aftermath of it. But I want to say because for every performance, like I treat it as if like, you know, I treated as if like, you know, I want to do my best for them, you know, for the people to love it. So it wasn't, I can't say it was any different from how it would be if I was to perform it for you. 

[Doug]: Well, what am I not royalty royalty to you, Steven? Come on.  

[Steven]: Of course. Yes. Yes. I'll perform it. You guys are all loyal to me in my performances. Yeah. 

[Doug]: Said like the true artist you are certainly. But John asks, and you know, it's a great question to kind of take us into the next phase of this conversation. He asks you, how do you feel when Hollywood casts, actors and actresses who aren't disabled in roles of disabled characters? That's obviously been something that's been, you know, a growingly hot topic in Hollywood, as of late in some productions have, you know, gotten a lot of pushback for, for casting non-disabled actors and disabled roles. How do you feel about that?  

[Steven]: First it's unfair, like give everyone a fair shot. You know what I mean? It's everyone is good. Everyone should deserve a fair chance. You know what I mean? Whether you allow them to audition, at least for those roles, you know what I mean? But no, they should. I feel that I like me. I don't try to stay, I stay away from like, you know, seeing how I feel about like, things like that. I am more about what can I do to impact to change that. And I felt like this is a part of it, like, you know, so to be a part of this, that that's, that's, that's where I focus on, you know what I mean? So to change the course of that. 

[Doug]: Absolutely. And, you know, I'm wondering, you know, maybe you kind of just answered that, but like, you know, kind of something that's certainly very different, but related when we're talking about opportunities and that there being a disparity between, you know, certain groups of people and their opportunities for, you know, in a lot of things, but we're talking specifically about Hollywood, you know, something that was really big the last few years, you know, I think it was a couple of years ago where, you know, #Oscars. So white was a really big and trending topic and that's something that's obviously applied to many more than just recent Oscars, you know, from the perspective of being a black actor, you know, how would you talk about opportunity and, and, you know, both from just the kind of general macro, Hollywood lens, and also from your personal experience, and what opportunities you feel like you get, or don't get.  

[Steven]: Well as a black actor. I mean, like, I feel like this is, it's been great times for now we're black actors. Honestly, I feel like there's so many roles as being written by black actors. I feel like people are looking forward to seeing more black actors on screen than there was before. It's a lot of gray roles as it has been more diverse roles as being written for a black actors that I'm seeing. So, yeah, I'm just, yeah. I always look for like the, the positive, like the, the positive things and things. That's just the way my mind worked. Like, I'm, that's just the way my mind is set up. Like, you know what I mean? I don't, I don't buy into the whole what's going on and how they're, how they choose to go about how they choose to go, whoever chooses to go about things is just, I just focused on what I can do, what I can do to change that in my own life. You know what I mean? To impact others in a way too. Yeah. You know what I mean? I, I love to turn it off. I answered that. Did I answer that?  

[Doug]: Absolutely. It's your, that, I'd love to talk a little bit more about your experience in working with Robert Tarango who played Arty, because I think, you know, first of all, you guys had such a beautiful relationship throughout it off-camera, which I think really came through on camera, but I'm wondering if we can kind of just go through kind of your journey from your perspective of working with Robert and, you know, what, if any context or knowledge you had about the Deaf-Blind community prior to meeting Robert, what you've learned along the way, how your relationship progressed throughout? What, what do you have to share about that?  

[Steven]: Yeah, well, I do have family that's a part of the Deaf community. So that, that was, I grew up, you know, learning about Deaf people, the Deaf community, and the Blind community too, I've been around like both blind and Deaf. Like that was always something always thought about like, you know, someone's blind and Deaf. And I know we all know of Helen Keller, but it wasn't like click into me when I used to think about that. And then on when this role came up and I saw that a Deaf-Blind, actor's going to be playing it out in a bowl. I thought that was the coolest thing ever. And I was just excited to see what the experience was going to be like. And it was definitely a great experience. Like, although I was a bit nervous because I didn't know what to expect, you know what I mean? You know, you never really know what to expect or anything, but in that scenario, you know, it was, it was great. Like, I felt like, you know, I think for casting, Robert, like Robert was like this great great person for that role. You know what I mean? He, he stuck it out. He motivated me even when we were like out once said that for, I think it was like the third day I remember it was like really colon. And I remember Robbie was like, I remember it was, I forgot he, it was, it was a lot of him, it was a lot on him that date. And they were like, you want to just like, go back to the I'm holding. He said, nah, I'm going to finish the shot. Like, you know, like the Lowe's I go, that's tough. Like that right days is grit is grit. You know what I mean? Like, yeah. He was dope. He motivated me, definitely motivated me to just give them a hall. You know what I'm saying? If he could do, I was like, I got to get them home. And even off of set, you know what I mean? Just like just being in his world and seeing like, you know, how he had to, I was there, I seen him, you know what I mean? Like I seen all the other background actors, there was a lot of noise, a lot of things going on in the South. You see Robert? Yeah. It was, I don't really know how to like, pay a lot of the things into words, but yeah. I heart, I heart Robert, you know what I mean? Yeah.  

[Doug]: And that totally, you know, again, came through on screen and because of your relationship screen, I, you know, just watching from afar, watching the evolution of your guys' relationship and really bonding with each other was a special treat on top of everything else. That was so great about making the film. And, you know, you had mentioned, Helen Keller, and I don't know if you've heard about this, Steven, some of you watching right now, or we'll come to this later, might've seen this, I learned about this a couple of days ago, or maybe a few days ago. It got lost a little bit in all of the madness that happened a couple of days ago at the Capitol, which I won't even open that Pandora's box right now, but there was a, it started trending mainly on TikToK with younger people. This whole thing that Helen Keller didn't exist, that she's made up. That she's a myth. And you know, I don't know if it's hard to tell I, again, I'm not on TikTok. I was reading articles about it. It's hard to tell if, you know, it started a little bit ingest or as a joke and then took on a life of its own. But I ended up reading like a medium article from a teenager that said, you know, yeah, it just doesn't seem like someone who's Deaf and Blind could have been an author and done all those things. So I don't have to choose to believe that because that's like one of the privileges of our generation is that we don't just believe everything we're told. And you know, though, it's good for everyone to do their own research. You know, I think that's exemplifies something that's become deeply problematic over the last four years of people picking and choosing whatever they choose to be true and just disregarding things that they choose to not be true, whether they're based in fact or not.  And you know, for anyone who's watching who might be entertaining, I don't think anyone who watches this would entertain that. But Helen Keller was a very real, there's a lot of video footage and many other documentation of all the steps of her life that there's many places you can go to validate that and find that out. But more importantly, I think it speaks to a topic that is something that we try to address often on this platform is about the diverse capabilities of the Deaf-Blind community. Look, if, if you don't know anyone who's Deaf-Blind, you've never interacted with that community. I can totally understand how given the little bit of knowledge you have and the lack of representation you see in media, how you might make a Romanian assumptions that Deaf-Blind people can't do certain things. But once you start to learn about the community, you realize the diverse capabilities of many, many people in that community that can do, you know, anything that you can can be done. There are people who are Deaf-Blind that can do those things. Obviously everyone is in a different situation. Not all people can do all things that goes for everyone, but the Deaf blind community is a community that has diverse capabilities. That's more than capable of having Deaf-Blind people who are authors and activists and Harvard graduates and lawyers and everything in between. And I think this is a great opportunity for people who haven't maybe had the opportunity or taken the time to learn about the Deaf-Blind community to learn about the diversity of this community. And the, you know, many of the beautiful people that make it up, you know, we encourage people to feel free to watch, you know, the number of previous episodes. We have a Feeling Through live that feature people who are Deaf-Blind talking about the many things that they do, and certainly seek out other sources, you know, obviously go to helenkeller.org check out Helen Keller services, you know, go to many other organizations that deal with Deaf-Blindness.  They're more than happy to supply information on that, but yes, Helen Keller was a real, she's not a myth. And let's hope that that is something that dies out quickly. And that, you know, one of the things, one of the beauties of the Feeling Through experience and the fact that we're able to, you know, take it into lots of different high schools and middle schools and universities that we've already done in moving forward, we'll continue to do will certainly continue to educate people on the diverse capabilities of the Deaf-Blind community. And the fact that Helen Keller was real. So that's, that's where we'll be doing our part. And Steven I love to hear about how you're doing your part in sharing your story and sharing your poet's heart and artistry with so many people. And, you know, before we sign off and, you know, I know we're going to have a chance to talk to each other in a lot of different formats coming up with our, you know, for your consideration campaign going on in the different, different places. We'll be having conversations. But before we go home, I'm just wondering, do you have any, anything closing thoughts that you'd like to share today?  

[Steven]: Well, I could, I mean, since you mentioned the Capitol, I could mention that. I don't know. I could mention it. I just feel that all with that, you know, I feel, I don't know, I don't, I don't know how everyone, I don't know how everyone is feeling about it, but I feel like we should just continue to focus on bettering our communities. How are we going to impact our community, save our own communities and not focused on the chaos that we can change right now? You know what I mean? We just continue to just focus on what we have to do. Like, I feel like that's the most important thing and yeah.  

[Doug]: Yeah. I mean that's a beautiful sentiment to end on and, and, you know, just to extrapolate from that, I think, you know, what you and Robert exhibit in Feeling Through is a beautiful example of the power of human connection, despite whatever differences we might have. And that's something that we certainly that's important to us here Feeling Through in something that we continually try to put out as well. So, those are beautiful words to end on there. And thank you Stephen for joining us today. You'll, you'll certainly be back on here and talking with me in other formats soon, and I'm really, really looking forward to that and really just want to take one last opportunity to thank you for, for being here and just being, being such an amazing person and collaborator throughout this process and, and being someone who breeds such beautiful life into Feeling Through it, to really make it what it is and for everything that comes from that. So thank you so much.  

[Steven]: Thank you for having me Doug. And thank you guys. Yeah.  

[Doug]: Yes! Thank you guys. Obviously thank you to our interpreters as always, and to all of you who tuned in we're back in 2021, we'll be back next week. Same time, same place. Tell a friend, share this link with people. Let's spread the word. Let's make this even bigger in 2021 into a great year ahead. Bye. Everyone Later, everybody take care.